How do I find a dr that understands dercum's disease and has had success treating individuals with this rare disorder? (photo)

Thank you for sharing your question and I am sorry to hear of your painful lipomas.  Dercums is difficult to treat as complete excision of your lipomas is nearly impossible and in general it is advisable to only treat those that are painful.  This can be surgery to remove the mass or you can consider Kybella injections to dissolve the lipomas reducing their overall size.  Hope this helps.

I've had good success treating Dercum's disease with laser-assisted lipo (Smartlipo).  When other options you listed fail, laser-assisted lipo is worth exploring.Good luck!

Small incision lipoma removal is the most prudent option for dercums with development of multiple lipomas. Our office specializes in lipoma removal in Los Angeles. Best, Dr. KaramanoukianRealself100 Surgeon

Your lipomatosis , is an uncommon one. Most of lipoma are not painful. The large and symptomatic ones could be suctioned out by a highly skilled PS with minimal scaring and fast recovery. The smaller one you may leave them alone for now.