How do I find a dr that understands dercum's disease and has had success treating individuals with this rare disorder? (photo)

What is the best way to treat a patient that has hundreds of lipomas? Some are small 0.5 cm others are near 8 cm. Majority are extremely painful upon touch. I stand because it hurts too much to sit. My pain specialist has tried a ketamine infusion, lidocaine infusion, and a mixture of medications in a lidocaine base cream. None have worked. Should I let any dermatologist just cut them out or keep searching for a dercums specialist in ca.