I Am Looking For A Dr. Familiar with Dercum's Disease-Painfiul Lipomas

Need Help. Looking for a Dr. in the Naples - Ft. Myers FL area who is familiar with Dercum's disease and/or painful lipomas. I have several painful lipomas that need to be diagnosed and removed. The most painful lipomas are in my chest- rib - side area. The excruciating pain is causing my Heart rate to escalate and my Blood pressure to go up to 160/100. The only Dr. I have found who is familiar with this disease is Dr. Karen Herbst in California. Thank you.