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POSTED UNDER Accutane REVIEWS

Ruined the Quality of my Life - Wyandotte, MI

ORIGINAL POST

Doctor told me it was a miracle drug and was...

what1f
$100

Doctor told me it was a miracle drug and was extremely excited to put me on it. I didnt have cystic acne in the first place. It was very mild teenage acne. They mainly expressed the teratogenic side effects and seeing as I was not planning on getting pregnant, I didnt worry too much about that. I was 17 and was told all i had to do was take a pill for 6 months and my face would be clear forever, why would i not indulge? On accutane i experienced dry peeling skin, nosebleeds, dry hair at first.

A little over 3 months into the course my hair thinned and my doctor laughed at the fact that i thought accutane could thin my hair and didnt say anything about stopping treatment. However, after reading everything i did on accutane, i stopped the treatment. Although my skin was smooth after the treatment. i later experienced rectal bleeding, my nails grew vertical ridges in them, my hair never returned, and my skin over my entire body thinned somewhat.

It has now been about 3 years since treatment and my skin has thinned dramatically and veins are visible throughout my whole body, most notably my chest upper thighs and under my eyes. My face flushes/ rosacea. I think it is just because my skin is so thin that it shows more. I have tendonitis in my shoulder that arose out of no where, just all of a sudden i had tendonitis and i didnt want to blame that on accutane, but all my bones creak after it and i have read multiple side effect lists that included tendonitis as a side effect. Also my wound healing is impaired and so scars are more plentiful. Lastly, i have developed raynauds. I thought my hands and feet were always just cold until one day my toes turned blue. I am now being tested for an auto immune disease. I wish everyday that I would have never taken this drug or that i could go back in time.. I wish that the many side effects, even if they were rare, were expressed to me and that they tried another treatment first. Oh yea, accutane was my first treatment. They never prescribed a topical, or antibiotic. This was my very first visit to a dermatologist's office in my life. I wish that the doctors would have had the medical knowledge to realize the dangers of this drug and have tried ANYTHING before accutane. I cant stand my life after this drug..

what1f's provider

Dr. Peter Saitta

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Politely Ignorant. Very nice. Dainty and feminine in his mannerisms, but friendly. Just unaware what he was doing and the effects of such a strong drug, and very little knowledge of the side effects.

Replies (3)

April 17, 2013

Sorry to hear you experienced so many side effects from the Accutane. If your acne wasn't that bad I can see why it wouldn't have been worth the tradeoff.

You mentioned that you are being tested for an auto immune disease. Do you mind me asking what one?

May 9, 2014
A multitude of autoimmune diseases. Rhematoid arthritis, Thyroid disorders, Diabetes, Lupus. Doctors have no idea, and my family doctor who has known me for a while now can see the side effects because he knew me before the pill. He has tried helping me as much as he can but to little almost no avail
May 25, 2017
Exactly what happened to me as well, my doc and I are in the midst of collecting paperwork and make a joint complain. For me it ruined my left eye, didn't just dry it out permanently - I got fat astrophy as well, thus a changed appearance and pain. Now I literally have to peel the lid off my eye in the morning, have tons of floaters and it looks like [RS bleep]. Plus hair loss, excessively thinning skin, ears so dry they bleed everyday, ridges in nails with brown patches and red bands across etc etc etc. first the doctors didn't believe accutane could have caused it, I was even tested for tumors.. but no, turns out it WAS just the effing accutane treatment. It's so hard to report side effects, I need my doctors help to be able to do it - and we aren't even sure it will go through since you need excessive evidence the medicine ALONE caused it. Not so easy, my doctors word,my bloodwork and scans is not even sufficient. I need several doctors vouching for me! no wonder people just jump on the wagon when side effects are "so rare". I feel for you, you are not alone
UPDATED FROM what1f

Accutane ruined my life at 17....

what1f
This is the worst drug known to man. Literally all I do is think about my life before I was prescribed this poison. I was just a kid. A 17 year old kid who was prescribed this on the spot after just asking about it out of curiosity. I didnt have nodular acne. i hardly even had any scars. It was my first visit to the dermatologist for acne. Yes, I read the ipledge but that was mostly about birth control and slightly about depression, but Im a guy so i wasnt worried about that stuff. 3 months into this crap, my hair thinned. My thick, thick hair thinned. My face was beat red, my nose bled so much i had to wash my sheets every night, my skin was dry and fragile. After this I stopped treatment. I asked my doc about hairloss and he scoffed at the idea and laughed saying "hairloss?!, from an acne drug? Come on?" hahahah... That was when i quit trusting doctors.. Later my skin seemed sunken, especially around my eyes. My face turned more pale and never gained color like it used to. Then i experienced anal bleeding, heavy. It was lightly colored so i didnt really pursue it. Again I was a 17 year old kid, I didnt know what to do.. My hair is still thin and has never returned, my skin is red, eyes are sensitive to sun and sunked, constant shoulder injuries from any type of hard work. I was an athlete before, and normal. Exceptionally normal. Now I'm suicidal over how drastically different this has made my life. All i think about is how very different and normal my life would be had i not taken this. I've seeked lawsuits, but i was prescribed a generic version that is protected by US supreme court. That is also BS and i may try going after doc for medical negligence and malpractice.. We'll see. DONT TAKE THIS.

Replies (2)

November 9, 2014
I don't know how old you are now, but listen: All of our supposed "vanity" is really the height and depth of insecurity. We seek (cosmetic and emotional) help in relative (or total) desperation. I know from a LONG history: 64+ years! We do this, basically, so that we can accept ourselves and keep breathing, and so we can feel better about ourselves and our lives. And maybe feel better, again. Do not give up, on yourself, your life, OR your anger!!! ANGER IS GOOD!!! ANGER IS POSITIVE ENERGY!!! Shoot for anger not depression (which DOES arrive in kitty-cat feet, annoyingly.) I have had many weird ( and alarming!) "mishaps" chasing a better face and body. It is SO hard to accept yourself with the imperfections that loom large, even when they weren't that big in the beginning. Or maybe they WERE. But the odyssey continues. Everyone tries to tell you that you are basically IMAGINING your faults. That's how they see it. They are not YOU. Please know the value of YOU, your soul and your heart, and the love you have given to so many over your 'still-young' years. Let me know you are OK. Love, the OLD LADY
March 23, 2024
I took accutane at 12 years old and your post made me feel like finally someone understood or I’m not crazy after all. Everything you mentioned happened to me too and in retrospect I wish I never took it. Hair thinning, dry eyes and skin, the natural tone of my face doesn’t look the same since, and I experienced terrible depression shortly after taking the drug. I don’t have cystic acne now but the trade off sucks and I wished I knew the repercussions at the time but I was only a kid.