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POSTED UNDER Bellafill Reviews

PLEASE PLEASE Don't! I Would Do Anything to Take Back my Decision to Get These Injections. Tampa, FL

UPDATED FROM fullofregret115
10 months post

It turns out curcumin is the answer

fullofregret115
$3,000
As I have stated previously, I've been taking supplements for some time to manage my complications and they have always helped at least some. But I still had swelling that was worse on some days than others and overall was not happy with how I looked.

A couple of weeks ago, I decided to try curcumin again as I had in the past, but this time I bought a very high-quality (and expensive) brand.

IT WORKS. I'm so happy to report that I'm very pleased with the way I look now.

If you have filler complications, please try it. It has been shown in studies to be as effective as steroids, and it's natural and healthy instead of fraught with terrible side effects.

Replies (5)

July 18, 2016
Dear FOR,
Great!!! So glad the natural remedy worked!!
I did answer your PM again.....
Just to let you know.... Glad you are on the mend!!
July 18, 2016
I developed lumps at two months. One that appears as a cold sore that left a slight discoloration and another on the other side of my mouth below the lip. Neither can really be seen and they don't hurt just more of a bother. My dr stated she could inject steroids but u think I will try your natural remedy first. What brand did you use?
July 25, 2016
It's called Curcu-Gel Ultra, available on Amazon. If you have lumps that do not hurt, they may be nodules and not granulomas. This matters because from what I've read, nodules are actually harder to treat. They're like an accumulation of scar tissue rather than a severely inflamed lump, so they're less responsive to anti-inflammatories. But the good news is that even if curcumin/steroids/etc don't help, nodules go away eventually. Good luck and keep us posted!
July 25, 2016
Thanks for your reply. I guess mine must be nodules since they don't hurt but are just annoying. I so wish I hadn't done this.
July 25, 2016
Me too!! But I can tell you firsthand that it really can get better...unfortunately it can just take a long time. Many people give up and have surgery before that happens (not that I blame them if they're really disfigured - I just hope people give non-invasive treatments a chance before taking more drastic measures).

I have read COUNTLESS medical articles about complications from PMMA, and several of them suggested that the reactions do resolve in time. Spontaneous resolution of granulomas is even reported!

Hang in there. I really think you'll be OK in time!
July 25, 2016
Thanks I'll keep you posted. Have a great day!
July 25, 2016
You're very welcome. You too :)
July 30, 2016
That's fantastic! Can we see an "after curcumin" pic?
December 26, 2019
Hi, which brand of curcumin did you buy? I had Bellafil injected in my face on 01/26/19. This year I experienced itching and then a dry patch. Then, the dry patch spread to cheeks and temples and got really bad. Derm says it’s eczema which I had when I was a baby but never since. Eucrisa helped clear it but makeup made it flare again. I only had 1/2 a syringe in both cheeks and temples for acne scars so it’s a tiny amount. I’m 22 so I’m scared of having to face the consequences for my stupid decision to have this injected. Please message me, I feel alone. My name is Vanessa and I live in CA.
December 26, 2019
Hi, sorry I didn’t read the whole comment section before asking about the brand of curcumin. I also didn’t realize this post is from 2016.

If by chance you see this, could you please lmk how you are doing? And by chance, how much Bellafil did you receive? Thank you. Wishing you happy holidays.
UPDATED FROM fullofregret115
9 months post

vitamin D - light bulb moment!

fullofregret115
As I said in my last update, I had the feeling that vitamin D is probably critical in correcting these adverse reactions (or preventing them in the first place).

I got to thinking about the similarity between some of these complications and keloids/hypertrophic scarring. The treatment is even the same--steroids and/or 5-FU.

Well, I thought I remembered reading before that keloids are more common in African-Americans and other people with darker skin...which points to low vitamin D levels being the culprit! I did some Googling and sure enough, new research suggests that vitamin D could possibly be useful to prevent and treat keloids/hypertrophic scarring.

***If you're planning to have any procedure done that could cause scarring, make sure your vitamin D levels are where they need to be! And of course you should do that anyway for health reasons.***

As for my symptoms, currently my swelling is worse on some days than others. I had several days there with pretty drastic improvement, but then the swelling came back after spending a long day outside in extreme heat. Not sure if that has anything to do with it or not. Overall the swelling is still never as bad as it was months ago. The pain is almost gone; I will feel an occasional twinge randomly but it's happening less and less.

Replies (3)

June 16, 2016
Dear Fullofregret115,
I am glad that you are busy researching ways to solve your problem. I do not think that surgery is the way to go. I would not want to insult my body further while it is trying to heal from a bad reaction.That will only put your body under additional stress. It is likely that your body will heal itself; It just takes time. The body is miraculous in its ability to heal. You just need to continue to give it what it needs, and to take care of yourself. Quite eating fast food !! That stuff is terrible for you. If you do have to go through a drive through, then order a salad, and have low fat dressing. Make sure it's grilled. The other option is a wrap. Get it without dressing. They ruin the healthiness of wraps by slathering them with dressing that is full of FAT.
No wonder obesity is on the rise...duh

Anyway, I do hope that you continue to heal !!!
Good thoughts.... :)
June 17, 2016
Hi txmom808,

Thanks as always for the encouragement :) And I agree. I have faith in the human body to heal itself from most issues when it's taken care of properly, so I've kicked the fast food to the curb!

At this point I consider surgery to be the nuclear option, and I would bet it's often done in cases like this when the problems might have resolved on their own eventually if given the chance. From my research, it seems even full-blown granulomas go away in time, regardless of whether they receive treatment.

Of course, for people who are disfigured due to their complications, I totally understand their being unwilling or afraid to just watch and wait. I just hope they and their doctors truly exhaust conservative options first and try to find the root of the problem before risking scarring and further disfigurement.

Thanks for checking in :) I'll keep you posted!
June 18, 2016
Dear fullofregret115,
Please read the post I wrote to you further up. I think you should read the article I mentioned. Just go to the website I gave you and search for it under key words. You will find a lot of useful information. I do not think your granuloma reaction sounds like you need surgery. You are not disfigured, but it is certainly bothering you. I believe there may be some other options you have not yet explored. You've only had one 5 Fu shot. Could you have another one in a set amount of time ? You can also take other meds as listed in the article. If you were disfigured with no appreciative clinical response to your current treatment regimen, then perhaps surgery would be prudent; however, my understanding is that you've had some improvement, and there is no disfigurement.
Keep on doing what you're doing. Surgery also has it's risks and there is no guarantee that excising the lumps will prevent more from forming, or that you will have any appreciable psychological or physical benefit. Plus, there will be a scar on your face, and a loss of volume where the lump is removed. It doesn't sound like a great trade off (at least not to me ) at this point. Of course, completely your decision. Just wanted to help you think in terms of long term risk vs. benefit ratio. Please continue to seek specialists in this area to help you, and continue doing your own research and conservative approach through diet, exercise, and supplements. It sounds like you are doing a good job !
Keep us all posted. Fingers crossed for good outcome !!!
June 18, 2016
Hi txmom808,

Thank you for the article. I hope the one I read is the same one you're referring to - "Granuloma Management"? If that's not it, please let me know.

That's a good, thorough article. I have heard of any and all fillers potentially causing granuloma but I'm glad you reminded me. The article suggests that my reaction could even be due to the collagen in Bellafill and not the PMMA.

I like the table that helps differentiate between types of adverse reactions. My symptoms seem to fit the delayed hypersensitivity reaction most closely, and collagen is specifically mentioned as a cause for that. The good news is that it says this reaction resolves spontaneously after a year! I'll continue trying to help it along though for sure.

I have thought about more 5-FU injections but my doctor is kind of hesitant to do them. He will definitely do it if that's what I want--ultimately he leaves it up to me, but his recommendation is to leave it alone as he believes it will resolve on its own in time. I also got a second opinion shortly after this all started too, and the other doctor was in agreement with him. He actually said that he doesn't recommend treatment for this kind of issue unless a year has passed with no resolution.

Also, a problem I would expect with the 5-FU would be that since I have diffuse swelling even where there are no lumps, it seems like it may not be possible to control it by injection. That's just a guess though; I would have to ask my doctor.

I have considered medication too. I don't like the idea of the oral steroids since they're fraught with side effects, plus it's common to relapse as soon as you start to taper off the steroids. I would be open to trying allopurinol. It seems safer and like a better long-term solution, but I still would prefer to resolve this naturally if possible.

In fact, reading about allopurinol is what inspired me to try using supplements. Allopurinol is of course traditionally used for gout, and it has been suggested that its mechanism is not just lowering uric acid (which obviously would presumably not be useful for granuloma), but maybe more importantly, it's also a free radical scavenger. This likely explains its effectiveness on granuloma, and that's why I turned to natural antioxidants. From what I read, allopurinol works very slowly as well, so I don't think I'm at much of a disadvantage by taking the natural route.

Sorry for my rambling...I get really into this stuff as you can tell :)

Thanks again and I will keep this updated!
June 19, 2016
Dear FOR115,
Yes, that is the same article I read with the table. It is very good an concise. I think you seem very well informed, and have thought this out. I once had a rash called erythema nodosum in my lower legs. I had terrible lumps (Granulomas) and ginormous swelling. In addition, a lot of stiffness in my joints that made it painful to move. The GP put me on steroids. It arrested the stiffness, but the swelling and lumps stayed. She sent me for a biopsy, (Which confirmed her dx) She then checked my sed rate, and it was continuing to climb (Something your doctor may want to check.) After that, she increased my steroid dose, and made me continue it. I think I was on abx also at the time. (Bactrim),which I got hives from even though I was on high dose steroids. (I wonder what would have happened to me during that reaction without the steroids?) She referred me to a rheumatologist who looked for all kinds of causes of the rash. (Sjogrens Syndrome, Sarcoidosis, etc.) Nothing found except a slightly increased strep titer, which did not mean that was the cause, since they have no way of knowing your date of strep exposure, and I had had strep several times prior. - Most of the time, no cause is found, and the condition simply resolves spontaneously.
My condition was so bad that the rheumatologist wanted to put me in the hospital on IV steroids, but I declined, and I chose to suffer it out at home. After about 8 weeks, the swelling subsided, along with the joint pain and stiffness, and it has never returned. (Thank God. It is very painful and disfiguring.) So, with the proper support, your body can and will heal itself, probably within the time frame that you doctor gave you.
I can imagine how upsetting this is for you, and I do hope that things turn out okay. Please keep in touch and let me know how you are doing,
June 20, 2016
Thanks, txmom808. I appreciate all your support!

About your experience with erythema nodosum - wow! I know that had to be miserable and so scary, not knowing what it was or when or if it would go away. I'm so glad it cleared up and you've had no more issues. The human body and immune system are miraculous...but also bizarre sometimes!

Thank you again. I will stay in touch and hope to have good news to report in the future :)
June 20, 2016
Thanks, txmom808. I appreciate all your support!

About your experience with erythema nodosum - wow! I know that had to be miserable and so scary, not knowing what it was or when or if it would go away. I'm so glad it cleared up and you've had no more issues. The human body and immune system are miraculous...but also bizarre sometimes!

Thank you again. I will stay in touch and hope to have good news to report in the future :)
June 20, 2016
Dear Fullofregret115,
Yes, I suppose it was pretty scary. When the rheumatologist was testing for sarcoidosis as a possible cause, I cried and cried. I know that scarring of the lungs can be very serious. I was not ready to hear that. But, luckily, my lungs are as clear as a bell, and that is pretty much rules out sarcoidosis. Truly that rash was a freak thing. I have no idea where it came from or where it went, but the rheum said that I will most likely never have it again. But, believe it or not, it's certainly not the worst thing I have ever been through.

I just shared that story to let you know that there will be an end to your suffering, and no matter how bad it seems right now, your body will, most likely, beat it.
Just keep doing what you're doing ! Hang in there!
June 20, 2016
Thank you :) I'm so glad you're OK. It is comforting to know that even something that horrible did eventually resolve - what I have is nothing compared to that!
June 21, 2016
Dear fullofregret:
Thank you for saying that. I am fine. I feel healthy as a horse, and I think I'm in better shape than I have ever been in my whole life !

I would not say that what you are going through is "nothing." I don't know how I would feel about having lumps on my face. That is something you cannot hide. My pants legs covered mine. But, at the time, I was just more worried about being sick than how I looked; I am sure that both are bothering you now.

I just want you to know that I am going to be watching for your posts to see how you are doing, and I will be thinking about you.

Be well.
Love and prayers,
Txmom
June 21, 2016
Hi txmom,

That's great to hear about your good health. It sounds like you do a really good job taking care of yourself, and it's so much easier to prevent problems than it is to fix them!

I am sad to report that I woke up today with swelling worse than I've had in a VERY long time - mostly on one side of my face. Since the beginning, the swelling has come and gone and moved around to different areas of my face. It seriously reminds of the game Whack-a-mole.

I had a really stressful day yesterday - one of those where everything went wrong. I'm not so sure that's a coincidence, as stress causes inflammation.

Either way, I'm at my wit's end so I called my doctor's office. They can't get me in for over 3 weeks since the doctor is taking some time off. It will probably be better by then! But when I go, I will be asking for more 5-FU injections and possibly allopurinol.

I still believe supplements, exercise, etc really will work in the long run, but those things take time - months even. Plus with inflammation this bad, they have a steep hill to climb. I'm going to take some help from the doctor to get this under control.

My appearance wasn't bad lately - just not ideal, especially for all the money I spent. But that won't be the case if this swelling continues to worsen!

Anyway, thank you again for all the support and I will keep you posted.

Love,
FOR
June 21, 2016
Dear FOR,
A ball of bad karma must've hit the Earth yesterday, because I, too, had a pretty bad day. I don't know what position the moon is in, but it is punishing us. I'm not feeling very well today, but I am going to the gym anyway. It's not my usual time of day to go, but I get it in when I can.
I hope I feel better after.

I do try to take good care of myself, but lately it's been hard due to some long term stressors that don't have any easy fix. That is just life. Nothing is ever easy!!!

I am sorry for your recent facial swelling. I would be pretty upset if it were me. This might sound nuts, but have you tried an ice pack?
I use ice on my knees. It helps prevent tendonitis pain. Ice will usually help prevent swelling. You could try alternating with moist heat (Microwave a wet washcloth then put it in a ziplock bag.) It only takes about 30 seconds. Don't burn yourself. Always put a small towel on your face before applying heat or ice.
(Just in case you don't know.)
Use the ice first, then the heat. This is so you don't end up on the freezing end of things. Do this as much as you can.

I hope that helps. Otherwise, you might try seeing a naturopath or even going to an herb store. Sometimes the people who work there know a lot about other supplements and/or therapies that might help. I wish I had a cure for you !! I am sure at this point, you are ready to try just about anything.

You are so sweet to write to me so many times. I think you are a beautiful spirit inside, no matter what your face looks like. ;))

I know you are doing everything that you know how to do, and that this is very frustrating for you. If you ever want to talk more specifically about anything, please PM me. I will be happy to write back. I just take little breaks throughout the day and check my mail.

Sometimes I find it easier to talk anonymously than to my friends who have never had plastic surgery or enhancement procedures. They don't really get it. Anyway, most of them come to me for help; so I am the keeper of all the confidences in the relationship. (mostly). That is fine with me, but it doesn't leave me with a lot of people to talk to...So, that's what running is for. lol
I'll be here if you need me.

Love and Hugs,
Txmom
July 13, 2016
Over the counter antihistamines like Zyrtec can also help because they have anti-inflammatory properties.
July 18, 2016
Thank you, I believe you're right. Anti-histamines have actually been mentioned as a potential treatment in some medical journal articles about PMMA complications.
July 17, 2016
I hope it gets better. I do want to say that you can also have bad reactions with the temporary fillers. my face is ruined after poorly placed juvederm. they also placed filler where I specifically said I didn't want it (cheeks) and now my cheeks are stretched and sunken. I am now scheduled for a mini lower face lift to try and correct this mess. I would give anything to turn back time and reverse my decision to have the filler.
July 18, 2016
Thank you. I actually am much better thanks to a supplement I'm taking, curcumin. Studies have shown it to be as effective as steroids and I can vouch for that.

I'm so sorry to hear about your results with the Juvederm. You're right - although temporary fillers are safer than permanent, nothing is risk-free and poor outcomes can still happen.

I wish you the best for your surgery and hope you love the results! Please update and let us know how it goes!
UPDATED FROM fullofregret115
9 months post

Flareup

fullofregret115
Due to being extremely busy and stressed for the past few months, I fell off the wagon. I was constantly eating unhealthy food on the run and wasn't taking the time to exercise or take supplements.

Well, it came back to bite. Two weeks ago, my symptoms returned (really they never resolved 100% but they had improved tremendously. My cheeks were still swollen this entire time but not that noticeably, and I had no pain).

This time around, the pain returned and swelling reappeared in places where it had gone down months ago. Thankfully none of it has been as bad as when this happened the first time.

So I'm back on the supplement regimen, with a few changes, and it seems to be helping a lot. The pain is mostly gone and the swelling is improving. At this point I don't want more 5-FU shots, although I will get them if things worsen and I start to look unsightly.

I started doing a lot more reading and research, racking my brain wondering WHY this is happening to me AGAIN. I'm a seemingly healthy person, so why is my immune system overreacting and unable to handle a product that is fine for most people? Something is clearly wrong here.

My conclusion: I really believe the biggest problem is vitamin D deficiency. It is a critical immunomodulator, which is what we need when our immune system is having inappropriate reactions to foreign bodies, or to our own tissue as in autoimmune disease, etc.

Deficiency is very common, and I would bet particularly so in this community since we care about our appearances and therefore most of us aren't willing to trash our skin in the sun. I urge you all to read up on vitamin D. You need more than you might think and the health consequences of deficiency go far beyond aesthetics and can be truly horrifying!

Current daily supplement regimen:

-2000 mg fish oil
-good quality multivitamin (taken as directed)
-10,000 IU vitamin D3 (large dose but just temporary to get my levels up)
-12 mg astaxanthin
-400 mg green tea extract (this is an immunomodulator as well)

I'll keep you all posted! Let me know if you have questions.

Replies (1)

June 3, 2016
Dear Fullofregret,
I am very sorry for your relapse.
I ran across a website you might find helpful. www.naturalantiinflammatory.org
It is fairly comprehensive and might help you.
Also, the lymphatic system has no pump, so when you exercise, the pumping of your circulatory system helps move the toxins out of the lymphatic system. (In case you don't know.) This is part of how exercise prevents illness.
Also, drinking lots of water helps flush toxins out of your system.
Try to get back on your healthy regimen, and I bet you will see an improvement. Eventually your body will probably beat this reaction. Sometimes it takes a long time....Hang in there. You might also think of seeing a Naturopath.
Good luck. Sending positive vibes your way ....
June 4, 2016
Hi txmom808,

Thank you so much for the kind words and for the information. I can't wait to read through the website! And no, I actually didn't know that about exercise and the lymphatic system so I'm really glad you mentioned it. I'll definitely devote more time to exercise now that I know!

Thanks again and take care. I'll keep this updated as to how everything is working!
June 4, 2016
Hi Fullofregret,
I am glad I could help you. If you have time, please read up on the lymphatic system. It is an amazing system that helps to keep us healthy!!
The skeletal and smooth muscle keep the lymph moving through the lymph nodes where the toxins are "cleaned." The lymph is later returned back to the circulatory system. I exercise regularly, and I hardly ever get sick. This is one of the reasons.
Good luck. I hope your condition improves !!
June 4, 2016
Thanks :) I hope so too, and I'll read up on that for sure. I find all this stuff so interesting and really believe it will be my ticket to recovery!