POSTED UNDER Mohs Surgery REVIEWS
Upper Eyelid Mohs Surgery - Springfield, IL
ORIGINAL POST
I am scheduled for Mohs surgery of the upper...
mslincolnNovember 12, 2014
$26,000
I am scheduled for Mohs surgery of the upper eyelid on Nov. 19th and reconstructive surgery on Nov. 20th. I am disappointed this isn't going to be done in one session. I had my consult with the Mohs surgeon on Monday. This is a nodular BCC on upper right eyelid, but it is near the lash line. Dr. thinks it's pretty 'contained', but I understand you don't know until you get 'in there'. He has already told me I may lose some of my eyelashes permanently. I have been on the internet the last two weeks and I have seen photos of this, so I was 'sort of' prepared. I meet with the oculoplastic surgeon tomorrow, I really don't know how much he can tell me until HE sees the extent of tissue lost. I have seen some photos of where they can 'graft' or do a flap that may contain some lashes, but it all depends. It's not just a cosmetic issue (well, it mainly is), but the lashes do protect the eyes from dust, debris, etc.. I have what I would call prominent eyelids, my eyes are not deep set where you might not notice some of this. I go between being OK with all this to being upset. I have been a fanatic about suncare for the last 40 years (I'm 61). Never tanned.I was the one using zinc oxide/titanium oxide sunscreen, wearing hats, wearing sunglasses 365 days a year, rain or shine and now I have this in a very obvious spot. I asked the surgeon how in the h*ll did I get something like this and he said "You got this when you were a little 8 year old girl playing in your backyard" That actually made me feel a little bit better. At least I know I have done the best I could. The pictures of the Mohs surgery are very upsetting, but from what I seen posted, most people look OK after a couple of months. My family doesn't really get this. My sister is taking me to the surgery and she said "oh we'll probably be out by noon, won't we?" I have been EXPLAINING what Mohs is and how it works, but I don't think anybody's really getting it - or listening. Thanks for letting me vent. mslincoln
UPDATED FROM mslincoln
surgery done
mslincolnNovember 19, 2014
Had the mohs today, it look a total of 8 hrs. After first tissue sample was taken, it look 4 hrs to get results, to see if the border was clear - it wasn't. Took another piece of tissue on an outer corner. I still have eyelashes. It looks like a 'gash', about an inch long and 1/2 inch wide. set to have skin graft tomorrow. not really painful during procedure, they give you about 4 shots total in lid, and they pulled and stretched the lid constantly while working, but when the numbing wears off, it IS painful, but that subsides after a while. my eye is all bandaged up, so please excuse my typing. everybody else in the 'waiting area' was in their 70's & 80's. They all said the same thing "doc told me I got this 50 years ago". not looking forward to the skin graft, I have read the donor site can be more painful than the actual graft itself, but I cannot wait to get this wound dressing off!!!
Replies (6)
November 21, 2014
Thanks for the update. I have been thinking about you, wondering how it went. It sounds like what the docs told me to expect. This is being done in a private clinic here, he said he has his own lab, and it will only take an hour to get the results of each margin back. I am hoping that is the case, and I didn't hear what I "wanted to hear" :).
Are you supposed to keep the eye bandaged overnight until grafting? I have already been warned that I may lose most of my eyelashes, which I can deal with. I am getting anxious to get his going. My doctors are still surprised that the biopsy came back with SCC, they said they would have bet money it was nothing, considering my age. My reconstruction surgeon wants me to come by after the MOH's surgery, to let her take a look, so she can know what to expect the following day. That's kind of difficult, as I was told am not allowed to drive, and the hospital is 35 KMs away. Oh well, will figure it out. Glad things went ok for you, no surprises, no complications :)
November 22, 2014
Yes, when I left after the Mohs procedure, I was "bandaged up" on that eye, had what they called a 'pressure bandage', which is basically a lot of gauze folded up and then taped into place very firmly on the face/eye to staunch any bleeding, and no, you can't hardly drive. I had trouble even walking as I wear glasses and obviously couldn't get them on my face afterwards. The Mohs surgeon took pictures of the wound when he was done and before it was bandaged up. He sent/emailed, forwarded the pictures to the plastic surgeon so he could review what was done and he would have time to decide how he would repair the next day. I also think my Mohs surgeon took pictures of me at the initial consultation so there would be a picture of me, in tact, in my file. These 2 doctors all work for the same clinic so they all have access to my file to see what was done. I'm kind of concerned about the part where you say your reconstruction dr. wants you to 'come by ' after the Mohs surgery. Your situation sounds a lot like mine. I would say you would be totally bandaged up after your Mohs surgery and that pressure dressing normally stays in place for 24 hrs.. I can't see your plastic surgeon undoing that pressure bandage to take a look at it ahead of time? - and then bandaging you back up again? Your Mohs surgeon is not going to send you home with a gaping wound uncovered on your face for overnight. That's why, in most cases, the Mohs surgeon is able to do the repairs after the procedure and you go home all stitched up - all done. But unfortunately around the eye, that is not the case. I would say to make sure your mohs surgeon and your reconstruction surgeon are on the same page. If there's some way your Mohs dr can get pictures of your open wound to your plastic surgeon before hand, you shouldn't have to be undoing any bandage for anybody. I take it yours is on an upper eyelid, near the lash line too? I;m just finding my way with this too, please keep in touch, mslincoln
December 15, 2014
I went the graft way for the two spots on my nose. Took the skin from near my hairline in front of ear. Even with the stitches still in it, you can hardly notice it. Also my nose looks good and those stitches should dissolve on their own. Nose is a little puffy on one side but otherwise it looks good. Took would dressing off after about 36 hours and just use bandaids and Neosporin on the areas. I also take an antibiotic twice a day to fight any infection. Hope you heal fast and everything goes well.
December 15, 2014
I have my second follow up with the plastic dr tomorrow. Honestly, the donor site looks 'rough'...it's still red and the incision looks rough and bumpy. It's only about an inch long and about in the middle of it, there's a dark spot. I thought this was going to blend in with contour of the eye, but now I'm not sure. The graft itself looks pretty good, but yes, it looks puffy on the eyelid. I know it's still really early regarding how any scars will look.
Glad this went well for you. Some of the ones I've seen involving the nose look very involved. Best of luck.
December 15, 2014
I had never heard of the "Mohs" procedure until I was referred to a dermatologist to check out a pimple on my nose with a hard center that would not go away. I was referred by my PCP and by the time I got into see the dermatologist 3 weeks later, I also had one on the other side of my nose. She removed them and one was a squamous cell and one was a basel cell. That was then it was recommended I under go the Mohs procedure. So that was set up about 2 weeks later but then I delayed it for 3 weeks longer as I was having family visit during that time. Anyway, I had it on Dec. 11th and had 2 surgeons who specialize in the Mohs. I was extremely nervous as of course I looked at all kinds of websites and images online and saw all kinds of things that really frightened me. But fortunately they only had to take one layer of each area and I had clear margins, so had very little damage to the nose. I was offered the skin graft, and after it was explained to me I agreed to it. I was only at the office for about 3 1/2hours and everything went well. After the initial pinprick of the first shot I felt absolutely nothing and had 2 diazepam during the surgery to relax me and took 1 Tramadol after it was over. Have not had to take any pain pills since. I feel very fortunate after reading and seeing what others have had to undergo. I do think it takes awhile for scars to heal especially for older people. And I am happy they were able to take my skin graft from the area near my hairline, so I can hide the scar if I need to. At this stage of the game and my age and the fact I am a breast cancer survivor (hate that word), I am blessed to still be here and able to handle it. And of course, I would not be able to without the help of God and trust in my doctors.
December 15, 2014
Your story rings a lot of bells with me..I looked at all those sites too and have seen some pictures on here that are serious, but most people seems to heal well. I agree with the age thing (I'm 61). I probably wouldn't heal as quickly as a younger person. I don't want to make too much of the scar issue, if I was younger, it would matter more - maybe. You have been thru a lot, but it sounds like you are doing fine and have a great frame of mind. I find everybody's stories very encouraging and supportive. Thanks for yours! ms.Lincoln
UPDATED FROM mslincoln
Skin graft done
mslincolnNovember 21, 2014
I had the full thickness skin graft done today on the eyelid. It is a piece of skin, basically about the size of a large kidney bean, grafted right along the lash line, stitched into place. The donor skin was taken from the same eye, along the outer edge of the eyesocket, it is stitched also, but the scar from it should like follow the contour of the eye, so I don't think it will be noticeable. I don't know quite what to expect with the graft. It looks pretty graphic right now. I was told to expect a lot of swelling and bruising, so am on an ice pack regime right now. I can't say any of this has been extremely painful...just periods of discomfort, but I definitely would not want to go thru this again. I sometimes think this was blown way out of proportion, but I know I hadn't done anything, I would have had major problems down the road. It is still hard for me to believe this came out of a little dry scaly patch, no bigger than a grain of rice that popped up several months ago. To anybody who's going to go thru this...don't freak yourself out looking at pictures on the web too much, BUT do be mindful that this IS surgery and don't let anybody make light of it for you. I think my sister, who accompanied me the last 2 days, really got a shock.
Replies (2)
November 21, 2014
Did you have to get put out for the procedure? I was told I probably would be, as they can have no movement. I was told probably muscle relaxers. and possibly a breathing tube. That makes me a little nervous, as I have never had any medical procedures done before (outside dental work). I know the pictures on the net are graphic, and I know to take them with a grain of salt. Really hoping my incision can be repaired with a skin graft as well. The surgeon said the other option was to completely graft my lower eyelid onto my upper eyelid, and then sew my eye shut for a month. (I sure hope that is not the case) You just had a scaly patch? I had a bump appear and grow rapidly. Within 2 weeks it was over a cm, protruding outward like an eyelash. I am also wondering about time off work. Not that I want to take time, but I do deal with people every day. I don't want to have to go to work swollen and bruised, black and blue. Not sure if the surgeon will recommend I take time off, or maybe I will have to use some of my accumulated holidays. Or maybe I will be ok to go back...who knows. Guess I just wait and see.
Is the donor site sore, or is the eye socket itself just feel sore and inflamed. Did they give you any creams or gels to apply? Sorry for all the questions. :)
November 22, 2014
I had what they called 'twilight sleep'...I was sedated, but I was still kind of aware...I think I started humming songs at one point. It was an IV in my hand. I didn't feel a thing, but I do remember them telling me they were going to tying my wrists down so I couldn't reach up and 'swat at them', LOL, I guess people do as you are not totally unconscious, I do remember hearing the words morphine and propofal being said. This is only the 2nd time I have been put out. I had all my wisdom teeth out 6 years ago, it was an iv in hand, and I was totally out for a short time. I can see where your procedure is more complicated, so they may want you totally out - don't fear it, I think it's a blessing. I know exactly what you are talking about when you mention grafting lower lid onto upper eyelid - I think it's called a Butler flap/graft (?) they make a horizontal slit in your lower lid and pull the lower eyelid skin thru that slit onto the upper eyelid. I spent WAY too much time looking at stuff on the internet and I did come across this. I hope you get a separate graft, my dear. The whole eye area is tender, but the donor area is more so, it feels like it is pulling, so I'm hoping that's a sign of healing, it has bled a little bit, I have read it is normal for the donor site to give you more trouble than the actual graft. The graft is very bizarre looking, like a patchwork quilt. The only thing I was prescribed was a little tube of antibiodic salve to put on graft/donor site. put it on with a qtip, I get kind of a strange sensation of 'numbess' - if that makes any sense, when I touch the graft area. This basically started off as a little tiny dry 'scale' on my right eyelid and if I didn't sit in front of a magnifying makeup mirror every morning putting on eyeshadow, I would never have noticed it. it was probably half the size of a grain of rice, and the eyeshadow would 'collect' on it. This probably came on about 10 months ago. But this past summer, I got to 'picking' at it, I thought there may have been something in it and I picked it to an open sore, ...twice. I saw a derma dr about the same time for another issue, and she said 'what's that on your eyelid?" I said it's nothing and she said if that doesn't go away to come back. a couple of weeks later, I got some redness around the lash line, so I went back. derma dr said well the redness was just dermatitis, BUT while I was there, she'd like to biopsy that spot. She said it's probably nothing, not to worry, but then on my way out the door , she hands me a brochure on the Mohs procedure....she already knew...
I worked in the public too, but I retired the first of the year, so at least I don't have to deal with that....sorry this went on so long...it helps to talk about....please contact me anytime, ms lincoln
Replies (10)