Simple Implant Exchange Gone Horribly Wrong. Miami, FL
My breasts weren't horribly bad, I just wanted to...
Symmastia confirmed and HIPAA request
"Yes you do have synmastia/symmastia. The skin in the center of your chest has separated as a result of the implant pocket being dissected too far toward the midline. This is correctable and in my opinion requires temporary removal of your implants to allow the tissue planes to adhere to one another again, followed by replacement of smaller implants.Hope this helps." Dr. Ali Mosharraf
"Yes you may have an element of symmastia on the left. If it bother you, it would need to be corrected surgically by re-establishing the division between your breasts." Dr. Tyler C Street, MD
I only wish my PS would see this issue and RESPOND with options!
On another note, I have booked in to see two PS next week. One of them asked to see my operative reports from the surgeries with Dr Krau. I called his office and they sent me an authorization form to release the information. I did some research about the Health Insurance Portability and Accountability Act (HIPAA), and found their form a little off. There are some specific items that must be included on the form. HIPAA says the recipient (that is me) can use the information for whatever purpose I choose, however, the PS forms states the information can be used for the following purpose: "Representation in a personal injury action" - QU: DO THEY EXPECT ACTION? Secondly, once protected health information (PHI) is disclosed, the recipient can re-disclose the information and it may no longer be protected by federal or state law. I believe the key to this item is that the RECIPIENT can re-disclose the information. On the PS form it says "once the PHI is disclosed, it may be re-disclosed to individuals or organizations that are not subject to the federal privacy regulations such as expert witnesses, litigants, insurance companies and even may be public record if filed with a court of law". Does this mean I would be signing that they can disclose and release my PHI to anyone since it was missing "BY THE RECIPIENT"?!
So I downloaded a standard HIPAA form just to ensure I wasn't authorizing re-disclosure by anyone but me! By law they have 30 days to respond. I have no idea what operative reports include, but I will keep you posted!
Dr Krau non responsive to request for operative records
Dr emailed operatives reports and took them to see to PS
1. Dr. Jabs will not even consider doing this type of revision surgery after reading the operative reports and examining my breasts! He recommended Dr Spear, a revision specialist, who I happened to see yesterday.
2. Dr Spear will operate on me for about $17,000.00 - without any guarantees of fixing the problem. After reviewing the operative reports, he was unclear on what Dr Krau did and why, and said there really is no way of knowing what can be done until he is in there. He did say there is not enough research on Galaflex for using it to assist with window shading, and that it is like to produce more scar tissue then other ADM.
He said I had 4 options. 1. Don't do anything. 2. Explant. 3. Create a new neo-pectoral pocket which may or may not address the problem, since he is unsure of how much muscle was detached / released. The more released, the bigger the problem. 4. Return to sub glandular but no guarantees the animation will be hidden although should be better then it is now.
He said no matter what he did, he would have to use ADM (at $3.5K a piece) to address the animation and close cleavage/borderline symmastia. He said there is NO WAY to reattach the muscle, and while he cannot tell for certain, it appears the muscle was detached/released very high up on my breast. He said the left breast had a superior closeness/symmastia, while the right breast had an inferior one. In other words, one breast was worse on the top half, the other worsen the lower half.
Both indicated they had not seen this type of muscle animation deformity so high up on one breast before!!!!
Any which way I look at this is devastating to me. More surgery, no way of knowing what or how it will be fixed, and it will cost me thousands of dollars. Why do doctors think it is ok to NOT help unscrew the problems they create?
It's getting worse
Revision by Krau
After a lengthy search I thought I found an experienced, and caring surgeon. I cannot say I have the same opinion since my outcomes are unacceptable and my doctor is either too busy or choosing not to respond to my questions about what can be done to address the problems since having first revision surgery last October 2015 and more surgery in June 2016 that did not address the issues created in first surgery.