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POSTED UNDER Jaw Surgery Reviews

So Far, Not Worth It. Wish I Could Go Back in Time. - Hayden, ID

UPDATED FROM numbskull

Still in pain, apparently forever...

$18,000
All I can say is that it seems my surgery went horribly wrong. I have had a really terrible time, and can't say anything positive about having this surgery....I wish I had a time machine, I would go back and make the decision NOT to have had this surgery. I have no feeling in the lower half of my face, which feels frozen, except for the extreme nerve damage that goes thru the left side of my lip, through most of my lower left side teeth , and complete numbness and loss of taste in my tongue on the left, except for the one nerve spot that feels like a needle is stuck deep into my tongue. I now have a speech impediment, and can't hardly taste anything...even putting on lipstick and brushing my teeth is extremely painful. Lets jst say that my kissing days are officially over. The Dr put me on Neurontin, which is a very powerful anti seizure med, but it did nothing for the pain, only made me very dizzy.

If you do not have an extreme reason to have this extreme surgery I would never recommend it to anyone, ever.

Sorry to say that, because if anyone reading this is considering this surgery you must have a good reason, and probably have professionals telling you to get it, as I was told repeatedly that I did need it, but it is not worth the risks at all. These doctors will gladly do the surgery, and take your money, but when things go wrong, as they often do, they have NO WAY to fix the problems, and no solutions to help you with the fallout, if a bad outcome should happen to you.

I was told that over 90 percent of people have no problems, and that a small percentage of the remaining 10 percent will have some problems with numbness. I was never told that I could have the terrible nerve damage that I am enduring, and it seems that I managed to jump over the whole 90 to 95 percent factor and land dead center with just about every problem that can occur, short of bone infection, or death.

I will have to live with the pain I am in now for the rest of my life because I have been told that if there is little or no improvement by now there probably won't be, and believe me it is extremely depressing.

Consider very carefully what the cost might be to you if things go wrong, as they did in my case. I was told that my Dr was the best, and she told me she has not ever had this problem before, but who knows? Why then am I having such devastating outcomes?
I do hope if anyone reading this decides to go ahead with the surgery that your outcome is better than mine. The surgery itself, and the many months of recovery are bad enough, but now I am facing a lifetime of fallout and pain. 2 years later and no real improvement, except that I am learning to deal with it on a day by day basis, and trying to overcome the anger that I feel towards myself for having done this to myself. It has been an expensive, terrible disaster for me personally.

numbskull's provider

Dr Lang

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Replies (5)

I wonder if you have been diagnosed with Trigeminal Neuralgia?  And I am concerned that you only mentioned one type of medication for the pain, which didn't work, when there are lots of different medications they use for that diagnosis.  Is your provider working with you continually on this issue, or are you just alone with this?

Hi..Thanks for the reply...I have not seen my doctor at all in over a year, with no follow up attempts by my doctor.. as I said, she seems very far from interested in helping me..I think she just wants to forget all about the problem and has offered no solutions since the original attempt with Neurontin...all she seems to want to say is "But, you look wonderful!" Who cares! I am in constant pain, and have a speech impediment now! Anyway, I need to just find another doctor and see what they have to say...also, I don't know if my insurance will pay for any of it, since the damage is related to an elective surgery. I do feel all alone in this, and really don't know what to do to make myself a little less miserable. Most of the time I can hardly sleep and am constantly waking up from the pain in my tongue at night. I feel exhausted and depressed.

For some reason, RealSelf never notified me that you had answered!  I just found this now because you posted on Carol's review.  It's been two years now?, and, not giving you advice, I will say that I think you need to make it a priority to interview other doctors.  And when you interview, them, ask if your insurance will cover any of it.  They deal with insurance companies every day--they know how to find out whether it'll be covered.  And they may also know some tricks to get you covered if you're borderline.  You simply cannot live your life in pain.  Chronic pain leads to depression and an inability to get things done.  You must make this your priority.  And get help from someone--a friend or family member--so that you can do these doctor interviews.  If you're in too much pain, it might be too difficult for you to organize yourself.  Please!  I don't know whether you want to go back to orthodontists at all or just go straight to pain specialists but either way, please find someone!

After having had several facial plastic surgery procedures, (and none like yours), I have to tell you that numbness lasts for many months if not years. Gradually, the feeling comes back.
I had this surgery done and am so disappointed. Half of my bottom lip is numb and most of my chin and right side of my jaw. It's uncomfortable to chew and one of my front teeth is loose I guess from cutting my upper jaw. I am devastated of these terrible, permanent lifetime effects of the surgery, how I wish I could go back in time and chosen not to have this done. It's been a little over a year post surgery and I still have not gained any feeling. My bottom lip is so numb I find myself biting on it I guess subconsciously to try and regain feeling. It's driving me crazy and am hoping and praying that time will bring back the feeling. Anyone who is contemplating this surgery please thing VERY hard before you get it done since you may end up like me with annoying numbness loose teeth, loss of taste, tingling on your palate and other daily annoyances that makes it difficult to concentrate on day to day living.
Sad to tell you, but you will not ever get any real feeling back...I am three years in now and the only change has been for the worse....I now have more nerve damage sensation that I originally did after surgery. This surgery is a horror. It is obvious that the Drs have no idea how it will turn out from patient to patient...yet they do it anyway. Money talks I guess. I was informed by my so called doctor that if sensation doesn't return before the 2 year mark it will never return. At least you don't have nerve damage, especially in the tongue. That is one horrid consequence you managed to dodge, by pure chance, because I can tell you without a shadow of doubt that it had nothing to do with the skill of your surgeon...none of them have a clue as to how this surgery will turn out, except for the substantial increase in their bank balance. That they have figured out really well.
I agree it's all about money.. the doctors really don't care about the consequences of their patients surgery and I really wonder where they get their statistics about the percentages of people who have no problems and people who do. I was never contacted and I wonder how many people actually are. My guess is that a much higher percentage of people are very unhappy with their results and are experiencing unpleasant side effects like we are . Maybevthey are too upset or humiliated to post it it talk about it. My doctor did tell me that the older you are the longer it takes to heal I'm 54, so im still holding onto the chance that time could be on my side and I just need to wait it out but not feeling so hopeful. I feel my mind is constantly on my numb lip , the numb spots on the roof of my mouth the tingling numb area on the right side of my jaw and the incredible uncomfortableness when I chew food. I like you wish I could turn back the hands of time and had never let myself go through this surgery. So anyone out there reading this remember if you go through with it, these possibly lifetime results could be your fate of misery.
I totally feel you. Really! My double jaw surgery was the worst thing that has ever happened. I have constant pain and throbbing everywhere! Constant migraines and vertigo are now the norm and I can't smell or really taste! I often get light headed from my blood not being able to circulate. My eyes are sensitive to light. I cant each things with hard textures like fried food or cheerios because it cuts my mouth. It cuts my mouth so bad that it bleeds and makes it impossible to eat for at least 5 days after. This is not included the depression, anxiety and PTSD I suffer from on a daily basis. I send my best wishes to you because its hell living with this!
UPDATED FROM numbskull

Still not worth it. I am still in pain, still...

Still not worth it. I am still in pain, still have no feeling in lower face and still can barely eat anything. My mouth has about 20 blisters all over inside, and i cannot stand to stick that syringe in there...I think I am dehydrated as well. My neck is still all ridged and hard from lipo, so the doctors suggestion to use warm heat and light massage has done nothing that I can tell. I go to the doctor today, so will find out when I get mouth splint out. I have been getting terrible nutrition, maybe about 600 calories a day, which isn't helping matters, and to top it off on that few calories I am not losing any weight! How is that even possible! I hope once the swelling is down more that my mouth looks better, right now it looks awful. Overall, this sucks.

Replies (4)

I am so glad you have an appointment scheduled today. If you have the slightest thought you might be dehydrated please do your best to get some more fluids down.

Let us know what the doctor says.

How are you feeling now? Was it worth it? I felt like that after mine too. Hope it's worked out for you!

I am concerned because I haven't seen a recent posting. Are you okay? I just had jaw surgery , both upper and lower, 4 weeks ago and am in terrible unexplained pain as well. Curious to know how you are doing.
Hi...Thanks for the note...I am sorry to hear that you are in pain. I am almost 2 years out and I am in constant pain...it never stops, so actually I am doing terrible...I have severe nerve damage in my whole lower face, in my lip and my teeth, loss of sensation and taste in half of my tongue, except where it feels like I have a nail driven into my tongue, and tingling nerve damage in my chin and neck. Lets just say my kissing days are over. I am so angry and helpless feeling, especially since I did this to myself, I let that doctor do this to me and it will never get any better, and I paid a lot of money to end up this way.....I am going to feel this for the rest of my life. I would NEVER recommend this surgery to anyone EVER! The doctors don"t care that they have ruined your face and left you in pain, they have no solutions and are just mainly concerned that you might sue the crap out of them. Which I may do yet...Thanks for your concern, and I do sincerely hope that your surgery ends up better than mine has...personally it is the worst decision I ever made. Let me know how you are doing..
omg i'm so sorry. how do you function? Can you work? I am so afraid I have the same thing. fortunately for me it is just my chin and lower lip. but I still have a difficult time speaking and eating and smiling. Of course, being in this kind of pain takes away the desire to smile. Have you tried anything to take away the pain? No pain meds are working for me so far. Iv'e tried 2 and it looks like this is type 2 which nothign works for. Its so horrible we have to live like this. I wish I would have read your review before I had the surgery!!!!!
Be at peace.... lipo IS very painful. But if you desensitize the area by touching it more and more it does go away within the year. And the solid pieces can be massaged out within mintutes I swear. Just try it. You do look great tho by the way. 2 out of your 3 issues are fixable by you ... the return of feeling might take a year or more. just keep working it and be positive. People who should never walk again tell themselves they can and they are running one day. Best wishes!!!
ORIGINAL POST

I am in week 3 after surgery. I am still in lots...

I am in week 3 after surgery. I am still in lots of pain, with huge swelling and no feeling in half my tongue, my whole lower face and neck as well. It is very wierd how you can be completely numb, but in lots of pain atnthe same time...The Dr did some liposuction at the same time and that has added tremendously to the pain I am in.

I was very concerned about doing the two surgeries together, but the Dr did not seem to think there were any disadvantages, so I followed her advice..wish I had not. This is a nightmare. I would never do this surgery if I had any idea of what I would really be experiencing. Dr keeps telling me I will feel very different once I am further along in the healing process, and I do hope she is correct, but right now, I would never recommend this as anything anyone should do except under the most extreme circumstances.

The Dr says she did the maximum extension on my lower jaw, and at this point in recovery I only hope that I will ever have any feeling in my lower face ever again, even though they tell you 80 % of people have full recovery and 90 % have partial recovery of feeling. I guess I am being pessimistic, but with such complete loss of feeling as I have now it is hard to imagine it coming back.

I had an extreme overbite, and have been told my whole life that I would need this surgery eventually, and I probably waited too long, since I am 58 now, but I dreaded this and knew it would be hard...I was right. The only positive thing is I am losing some weight..so, as far as I am able to see right now in this process, I wish I had not done it. If you are a parent, and putting off getting braces for you child, just think about the torture I am having to endure because my parents wouldn't get braces for me as a child. I have suffered my whole life because of their decision, had to have braces for the last 2 years, and now this really awful surgery. Now I may have to live with the numbness for the rest of my life. I hope not, because it feels awful.

Replies (2)

Oh my goodness, I'm so sorry to hear what a rough time you have been having. Hopefully the numbness will continue to subside.

Many people still need the surgery even if they had braces as a child. Unfortunately there is only so much braces can do before moving the bone is required, so hopefully that at least makes you feel a little better about not having braces while you were growing up.

Please keep us posted on how you are doing!!

Braces wouldn't have solved this problem. Good nutrition, especially prenatal, addressing allergies and mouth breathing, and treating other muscular and postural habits and conditions would have prevented it. Sorry but your fate was sealed by the time you were 7. If anything, your orthodontist probably would have put you in headgear impeding the growth of your maxilla and making things much, much worse. Recovery would have been better and easier at 21 than 58 and you'd have enjoyed the benefits for longer but jaw surgery wasn't half decent until 15 years ago so if you want to regret anything, regret not getting surgery when you were 45 and getting it done by a world class surgeon.