Lip tissue shrinkage (Photo)

I'm sorry to hear about the difficulties you've been experiencing with your lips. It sounds like a complex situation, and I can understand your frustration in finding effective treatment. Here are a few thoughts and suggestions that might help guide you in the right direction:

Specialists to Consult:

Dermatologist: While you mentioned seeing dermatologists, it may be beneficial to seek out a dermatologist who specializes in oral or mucosal diseases. They can provide a more focused evaluation on conditions affecting the lips and oral mucosa.
Oral and Maxillofacial Surgeon: These specialists deal with a range of oral health issues and may offer insights into structural changes in lip tissue.
Rheumatologist: If there is any suspicion of an autoimmune component to your condition, a rheumatologist might be able to help, as they specialize in autoimmune and inflammatory diseases.
Potential Treatments:

Biopsy: If not already performed, a biopsy of the affected tissue might be necessary to better understand the underlying cause of the cheilitis and tissue changes.
Treatment for Cheilitis: Depending on the type of cheilitis (e.g., exfoliative, angular, allergic), specific treatments may include topical or systemic medications.
Addressing Hair Growth: A dermatologist can also advise on treatments for unwanted hair growth, which might include laser therapy.
Additional Considerations:

Patch Testing: If an allergic or irritant contact cheilitis is suspected, patch testing might identify potential allergens or irritants.
Nutritional Assessment: Sometimes, nutritional deficiencies can contribute to lip and skin changes. A healthcare provider might recommend blood tests to rule out deficiencies.
Persistence and Second Opinions: Given the complexity of your symptoms, seeking a second opinion from another specialist might provide new insights or treatment options.

I hope this information helps guide you towards finding the appropriate care. Don’t hesitate to reach out to specialists who might offer a fresh perspective on your condition.

Best regards,