I'm going in to this with the thought that a RNY will help me with my type 1 diabetes. I've been a T1D for 25 of my 28 years on earth. My BMI fluctuates between 35.2 to 34.8. I have my first insurance weigh in next week. I'm hoping this procedure with the lifestyle change will improve my insulin use.
Updated on 26 Jun 2017:
I managed to keep my BMI above 35. I feel odd focusing on not losing weight for 6 months. Knowing that many people who undergo this procedure are much more overweight than I am is the cause of this feeling. However the reason I want to do this so badly is much more than just weight loss.
I've been a type 1 diabetic for 25 years. I spent from the ages of 3 to 13 on shots then at 13 going on 14 I got my first insulin pump. That year I started to gain weight which I wasn't able to when on shots. While on shots my A1Cs were north of 10! They went much better in the early going on the pump either, but they gradually got better. I'm now at a 7.4 A1C. Since my earliest days on the insulin pump my insulin usage has increased. Even when my blood sugars & my A1Cs improved, more insulin was added to my daily regimen. I'm at a point now in my diabetic life where I'm entering a vicious cycle. I'm on an enormous amount of insulin which causes me to make weight loss very difficult & being overweight means I need more insulin to compensate. Basically I'm a type 1 diabetic at risk of becoming a type 2 diabetic as well.
My hope is that RNY gastric bypass will eventually get me to a point where I won't need over 120 units of insulin a day to maintain good numbers.
Updated on 7 Oct 2017:
I’m almost there. My RNY is scheduled for 11/20/17. I still have work to do to get to that point. I still have to make weight at my last insurance weigh in at the end of this month. I have to keep my blood sugar in check till surgery. Starting next week I have plenty of doctor appointments every week.
I’m a little nervous about what eating will be like after the surgery & what my recovery will be like. I’m also excited for the future & being close to finally getting to the starting line (I don’t consider all of the red tape & weigh ins as part of the actual process).
Updated on 26 Oct 2017:
I’m only weeks away from my RNY. So far I got cleared via the endoscopy & I did my last weight check in. I have to get approval from my endocrinologist on the 2nd, the psych on the 6th, & my primary care provider on the 10th.
Updated on 26 Oct 2017:
I added some photos.
Updated on 3 Nov 2017:
My biggest hurdle in this process heading towards my RNY has been cleared. Yesterday I got the 2nd best a1c I’ve ever had in my 26 years of being a T1D. My endocrinologist also said that the Medtronic 670g pump would be a huge benefit to me in my recovery process. Hopefully my insurance will cover it. I have my psych evaluation on Monday & my pcp for approval on Friday. The doubts & questions are slowly starting to creep in, but nothing that has really caused me to rethink my decision to get this procedure done. I’ve also had to start thinking about what to say when people ask me about what surgery I’m undergoing. I’ve been thinking about using “gallstones & hiatal hernia”.
Updated on 7 Nov 2017:
Yesterday was supposed to be my psych evaluation, but due to some epic miss-information I missed the appointment. Months ago I was given my first of what would later amount to 3 itineraries of mandatory medical appointments. In the first one, I got my psych evaluation scheduled. A month or so after that I got a second itinerary that didn't include a psych evaluation on it. I figured no big deal I had that already scheduled for 11/6. The initial appointment notice didn't mention a doctor's name, just the hospital. Last week I received a voicemail from the hospital reminding me of my appointment. Once again no names mention as to who I was seeing. That same night, I received a letter from my surgeon's office with a doctor's name on it, but it said that needed to call this doctor to schedule the appointment. So I called the surgeon's office to see why I had to call to schedule an appointment despite already having been called with a reminder for said appointment. It turns out that they took the initial psych evaluation out of my schedule & didn't contact the psych office about doing so. So yesterday the day I'm supposed to actually get this evaluation over with, I go to the hospital for the appointment, I stop into the surgeons second office just to ask for where my appointment is located. They tell me that it's with the doctor I got the 3 itinerary about, which is not in the hospital. So I go to the doctor they told me to & it turns out he wasn't the right person. In fact, he doesn't even take my insurance. So I call the surgeon's office back & they guess that it could've been with another doctor who's name was never given to me by either the hospital or surgeon's office. So I call them & they are the right doctor, but I missed my appointment running around to the wrong doctor. The correct doctor wouldn't be able to reschedule me until January. Furious, I call back the surgeon's office to ask them to get me in somewhere asap as I'm two weeks away from surgery & I'm required to do this evaluation by my insurance. They said that they will call me once they had it confirmed & that it could be a few days just to get an appointment.
That was all yesterday!
Today I called the surgeon's office to see if they got me an appointment. They said that they hadn't yet & that it could take a few more days. Knowing the psych office they were contacting, I decided to them myself. It turns out that an appointment was already scheduled for me next week. I have no clue what the staff in my surgeon's front office are up to, but it almost shook me right out of doing this procedure with them. I'm not sure how long & why they would have me wait just to hear about an appointment, but it appears that they had booked one for me.
At least my aunt & I have the same surgeon. So knowing that my aunt is alive & doing great certainly helped to keep me from bailing.
Updated on 16 Nov 2017:
Tomorrow is my last day before my 3 day pre-op liquid diet! Lots of things are running through my head it this point. Thing like: am I actually ready for thing? What will recovery be like? How will my diabetes react to the dramatic changes post surgery?
At the same time, I’m very excited to start a truly new chapter in my life!!
Updated on 19 Nov 2017:
It’s the night before my surgery. It feels surreal. My whole journey started last February when I began researching gastric bypass & T1D. I’m more nervous about life after the procedure than I am about the actual procedure. I’m packing up everything I’ll need. Although the surgery is in my hometown I’m recovering with my mom an hour away, since she took the time off to do so. My surgery check in got bumped up from 12:30pm to 8am after I asked someone in my surgeon’s office want to do about low blood sugar due to my NPO starting 12 hours from check in & possibly 16 hours from surgery. I have couple of phone calls to make before I get brought in for surgery in order to get the ball rolling on my new insulin pump. I’m hoping to get a decent night of sleep tonight, but I probably won’t.
Updated on 25 Nov 2017:
I had my surgery on Monday & it went well. I actually felt pretty good once the initial bloat from the surgery settled. I was the king of the world on Tuesday. I had no problems getting out of bed or drinking water, then something happened. Later in the day on Tuesday, I went to the bathroom to move my bowels. I was a little surprised that I had to go, but didn’t give it more thought than that. When I went it was all blood, in fact it was only blood. I felt lightheaded & called for a nurse. When she came over, I started to get the my bed, but instead passed out. I was later given a CT scan after waking up & it revealed that there was blood in my colon.
I have since spent from Tuesday night to now (Saturday) in ICU. I’ve been hooked up to heart, oxygen, & blood pressure monitors 24 hours a day. I’ve had “bloody stools” since Tuesday, but they are starting to slow down. I was NPO from Tuesday to Friday afternoon. I’m handling liquids well. I’m hoping to be released from the hospital by Sunday.
My surgeon, Dr. January Hill, has been phenomenal throughout all of this. If I could have her as my PCP, I would do it in a heartbeat!!!
Updated on 2 Dec 2017:
I’ve been home for almost a week. I’ve been feeling good. My insulin pump basal rate has been reduced from 86units a day to 36units a day & I still find my self going low. I haven’t had a bloody stool since last Friday while I’m the hospital. I’ve been walking around my block a few times a week. I find myself tiring out quickly, but I figure that is to be expected. I have no problems getting my liquids in. My biggest qualm right now is it takes my eyes longer to adjust to light & when I wake up from sleep it takes a minute or so to sort of “unscramble”. I follow up with my surgeon’s office on Monday. My weight is down from 215lbs from the summer to 195lbs as of today. I also no longer have to take metformin which has been amazing not having to deal with the literally shitty side effects. My sleep since leaving the hospital has gotten much better since I can sleep on my side & stomach. The surgical glue is starting to crumble & I have to avoid picking at it.
All in all things are going well. The results I was hoping for happened faster than I thought they would.
Updated on 13 Dec 2017:
Starting weight: 215
Current weight: 186
I’ve been feeling good post surgery (although as I write this I have a cold). I have no problems getting in my water requirements. Only one instance of food dumping. The situation was I had a low blood sugar, which I treated with apple juice and sugar free pudding. A hour and a half later I was still low, so I treated it the same as before except with more juice. 30 minutes later, I was on the toilet. Lesson learned. From that point on I have been using glucose tabs for low blood sugars and they have worked fine with no problems. All in all this has been a great decision to undergo the gastric bypass.
Updated on 21 Dec 2017:
It’s been 1 month since I under went my RNY Gastric Bypass. To be honest, I’ve very little difficulties since my extended stay in the hospital. My main goal of this process was to bring down my insulin usage & get better control of my blood sugars. Today was my one month follow up with my doctor. The breakdown is as follows:
Summer weight: 215
Current weight: 182
A1c prior to surgery: 7.6
A1c today: 5.8
Average daily insulin usage
prior to surgery: 120units
Average daily insulin usage
as of today: 52units
The doctor said that I have low iron. Which isn’t a surprise due to my low blood levels post surgery. Yesterday, I was able to comfortably wear a pair of pants that I haven’t been able to in years. This has definitely been one of the best things I have ever done for my health.
Updated on 28 Dec 2017:
I’m experiencing my first weight loss stall. I’m stuck at about 180-181lbs. I’m not super worried & I’m far from panicking. I joined a gym this week & soon I’ll start slowly working out. At this point my biggest concern is handling a workout while balancing my blood sugars. My numbers have been still good, but I’m fighting with my carbs to insulin ratio.
Updated on 18 Jan 2018:
It’s been almost two months since I had my RNY. I got over my stall a week ago with help from exercise, tweaks to my diet, & natural metabolism boosters. My two biggest challenges at this point is figuring out what my meal insulin sensitivity is & not drinking liquids during our around meals. I find that I miss being able to drink while eating. Sometimes I’ll get something to eat & something to diet only to end up letting the drink sit there while fighting the urge to drink it. Outside of eating, I have no trouble getting in my 64 oz of fluid a day. My basal rates haven’t needed any adjusting in over a month.
Updated on 31 Jan 2018:
Here are some “after” photos. At this point I’m at 174lbs.
Updated on 6 Feb 2018:
I met with my endocrinologist for the first time since undergoing my RNY. She was incredibly impressed with how my diabetes has been. My a1c was 6.5 & I weighed in at 176 weighing jeans & sweaters, so I’m guessing that I’m about 170-173. My endo decided that I needed to reduce my basal rates from 39.6 units a day to 36 units a day.
But ... that’s not all.....
I FINALLY GOT THE MEDTRONIC 670G INSULIN PUMP!!!
I started wearing it today. I’m not using the auto mode (the mode which automatically corrects your blood sugars every 5 minutes) yet. You have to wear the pump & sensor for about two weeks for the algorithms to pick up your body’s natural blood sugar flow. So in two weeks I’ll be ale to use the 670g to its fullest capabilities. With even tighter control over my T1D, I’ll be able to lose weight even easier!
Updated on 8 Feb 2018:
I’ve decided that when people who I’m not close with ask me about how I lost weight, my response will be “Tide Pods”. I’m not ashamed of having the surgery or afraid of judgment. I just think that telling people my Tide Pods diet is my weight loss secret is hilarious!
Updated on 5 Mar 2018:
I just recently hit the big 50lbs loss marker! The horrendous weather has helped since I’ve had to shovel often just so that I can go to he gym. Haven’t had any issues with dumping, eating, or getting in my liquids. I have been busy getting used to my Medtronic 670g insulin pump. It’s an amazing machine, but I’m still figuring it out. The photos are from just before I hit the 50lbs loss mark.