“Horrible Experience with Dysport - Caused Vomiting and Dizziness”

Is it really so different in Virginia? Each time I get Botox (by the same provider) I am given a paper to sign with all the possible side affects listed on it. Don't they make you do that up there? Have you had Botox with good results and tried Dysport for some reason with these horrible results? Sorry you are suffering. Hope you feel better.

Horrible experience with Dysport too, nausea and vomiting also. Neck pain extending into shoulders. I have had Botox for years, and have never experienced problems. I've just had Dysport on my forehead on Wednesday the 14th of April, 2010. I immediately had a bruise right by the vein in my forehead that runs from the top of my forehead to my nose. That night the severe neck pain started, and moved into my shoulders and has not abated since. I also had a bout of diarrhea late that night, but it was not very severe, so I thought nothing more of it until later when the nausea and vomiting started. I had a headache that night, but since I have migraines during my menstrual cycle, not sure if that is related to Dysport, as I was on my cycle. The next night I woke in the middle of the night (around 4:30 to 5am) with severe nausea and projectile vomiting, which recurred last night as well. I called the RN who administered the Dysport and she says that my symptoms are not even associated with Dysport. I have seen enough comments on this site to determine that is not true. She also said at first that she would file a report, but then decided that it was not serious enough. As far as the written disclaimer prior to treatment goes, I was not given one, probably because I've always tolerated Botox well. No mention of severe neck pain OR nausea and vomiting is mentioned in the Medication Guide, however it does have a section entitled "Spread of Toxin Effects:" which mentions "...Symptoms of botulism can happen hours to weeks after injection..." According to wikipedia, webmd, and wrongdiagnosis websites, diarrhea, nausea, and vomiting are all symptoms of Botulism. I've tried to go on to the FDA website to post a report of some sort about my adverse reactions, but it is complicated and seems to be set up for physicians to report only. (It ask for lot numbers and manufacture dates and locations, etc.) It's a little disheartening that there reporting website is so much more difficult to use than yours (realself). To all of you with facial deformities from Dysport, my heart goes out to you and I hope you can find a good resolution. I hope that more people will post about their adverse reactions so we can get more info to the public. I will NEVER use Dysport again. The risks far outweigh the benefits

Just starting to move around a bit more, like you I'm still pretty floored! It's awful and depressing to feel so down for this long. I drink lots of distilled water and take extra vitamins. I wonder since we got the shots around the same time if that batch was no good or too strong?? Dysport is not botox, it's a much smaller molcule that spreads everywhere no matter how much you get. Scarry now that kores is dysports latest competitor and who knows what they have come up with to be bigger and badder than dysport. I read a petition online reported to the fda about botox and dysport making people super sick. Search for public citizen. I will look for it and send it to you. I hope you feel better soon.

I have also had a HORRIBLE reaction to Dysport. It has been almost 4 weeks since my injections...around the same as you guys....and I have had the classic symptoms of naseau, neck pain, EXTREME head pressure, dry mouth, heart racing, chest tightness. This is absolutely the worst thing that I have ever experienced. I would really like to start a support group....as this is so depressing thinking that I may feel like this for several months. I, too, am having a hard time finding a doctor that can provide proper treatment. If anyone is interested in chatting offline, please contact me.

Hi Soloist, very sorry to hear about your allergic/toxic reaction to dysport. The chest pain pain and discomfort is the worst. I still have it. It's like a mechanical problem, upper chest and outer towards my arms. It feels heavy, tight, and short on breath 24/7.Feels a little better when I lay on my side. How are your limbs? are you weak, numb and tinglinging in arms, hands, feet? The first month was the worst. Xanax helped me through a lot of it. You don't need much, break one in half or even thirds. it will calm you down. I've been to the hot springs a lot just to soak in the mineral baths and get massage. I've been to many docs and had extensive blood work done they really can't say or do much about this. I was totaly healthy and full of energy before Dysport. Now I'm so fatigued and feel like laying down constantly. My blood work came back positive ANA. That's when your auto-immune system is not working. I hope and pray it's just the dysport in my system and all will get better soon. Just want to feel a little bit better. Wish i thought twice about trying a new drug. So easy to think that botox worked great and this was "like" the same thing, WRONG!!! Never again will I do a drug that I don't know about it. This has been life changing for me. I have never been this ill for this long and scarred to death. Find a new distraction like yoga or reading something very positive to get your mind off it. Go to public citizen website. www.citizen.org search botox and the first article dated jan, 23 2008 that's the one. Also on the dysport website you can read clinical studies that warned dysport but not us in our pamplets, the one I got at the end of my service. Hang in there, I know how you feel.

i have been so sick i haven't been able to post. I am entering the 5th week post-injection. have now been to the hospital 3 times due to headaches and breathihng problems. i went to a toxologist yesterday for blood test for the toxin antibody. the worst for me is the head pressure, throat and chest heaviness, tightening of my neck muscles. it is getting worse for me. i can't even eat and have lost about 10 pounds in one month. this is so frightening and horrible. i am so hoping that things will get better. i am seeing my gp and a neurologist to help with the symptoms.

Ice packs behind your neck will help. Go get some body work done. Get your mind off doctors and the way you feel. Find a healer or accupuncture. You have to try other ways to feel better. please let me know what your doctors say. Like you I'm still feeling awful and your input would be great. I have a doctor appt. on thur with a specialist. I have no insurance as you can imagine this is so expensive to deal with. Please pray this is not permanent damage in our chests. That's my biggest concern.

I again haven't posted because sometimes I just don't feel well enough to go be on the computer. Yes.....I have had all kinds of tests done. Have had EKG, stress test, breathing tests, head scan, MRI.....hospital bills that are reaching $20K. I am currently under the care of my internist and neurologist....neither of which really know what to do for me. The internist prescribed an anti-migraine medicine which I have been taking for almost a week...that helped with the headache pain, but not the pressure. I was sent to a pyschiatrist today for some anti-anxiety meds. The anxiety about this is horrible. I have some terrible head pressure that I can't take much stimulation...so I can't really go outside...and I have had to take a medical leave of absense from work. My symptoms come in waves...I have good hours and bad hours. The tingling in my feet started today. It was somewhat helpful to read here that others have experienced that. That is the hardest part of this thing....it seems every day for me I have a new symptom. Yesterday it was tightness in my face and jaw....could barely talk or eat. I am forcing myself to eat as I don't have an appetite...the weight loss over this is scary. I am hoping that I have peaked at the worst of this and things will start getting better...but reading that some of you are still struggling at 8 weeks out is so scary. : (

Realized I didn't answer the question about the test that the toxologist did. I am not sure what it is called....but it is evidently one to measure the the toxin antibody in my bloodstream. I am not sure I really want to know the test result to be honest with you....because either way there isn't any sort of anti-toxin that can be administered at this point.

I hope you ladies are doing better. I'm very curious if any tests revealed anything? I'm entering week 7 and still have awful chest pain and heartburn 24/7. I also have; insomnia, body weakness, brain fog(severe), constipation or diarhea, neck pain. I am better about the numbness/tingling pain in hands and feet. It's just occasional and not as bad. I wish I could just snap out of the stupor feeling and get with it!! This is too slow thinking and moving for me. Never has anything floored me like this. Wish someone would post that had these symptoms and give an idea about how long it all last???