Partial Myectomy and Ptosis Repair for Blepharospasm with Apraxia of Lid Opening

I am am a 52 yr o physician who recently underwent...

I am am a 52 yr o physician who recently underwent partial myectomy and ptosis repair for Blepharospasm with Apraxia of lid opening, initially almost 7 wks ago, along with lateral canthoplasty which I was unaware of (I am not asian) until after.

Initially told I could go back to work in 2 wks, 6wks off ideal as I was to join a new practice in 6 wks. At 3 wks ,sent pictures to my out-of-state surgeon as eyes looked very deformed not just asymmetrical, was reassured that it was "great"at 3 wks post op . At 5 wks f/u my Lt eye upper lid was almost non existent in the lateral half, I looked strange at best.There was no way any of that could correct on its own. On my insistance as I had already lost the job, had resigned from the one I had), he agreed to make some corrections to both eyes.

Now though its only been 2 wks since the 2nd repair,(i also have a stitch abscess in Rt eye that came up 3 days after 2nd surgery,but healing) my LT lid is <1/2 the size of the Rt one, there is almost no lid above the suture line even to try and pull and there is a large fold above the RT.Rt eye has lagophthalmos

HORRIBLE! Worst decision of my life.Did it because of medical advice. Was told risk of contracturs and will need more extensive surgery later . Untimely, as I had great results after 1 treatment with botox .

Please help me with timely advice, I don't know where to turn. Thanks
Name not provided

Did not like to listen, or answer questions, very arrogant. Details never discussed, pros/cons never explained. Got info from a bunch of articles handed to me.

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I had my eye revision on June 24, 2010. The photo on my profile are my newer eyes. I also had a mid face lift with temporal pull to the sides for elongated eyes and vertical appearance once again. The upper lids had Pearl fat grafting and I can see where it is already starting to absorb, so more will be needed. My eyes are no longer hollowed, and the face lift helped fill out hollowed lower lids as well. I am very pleased this far and it had been over 5 weeks. The down time was less than expected, with little swelling and bursing. Less than with original eye lid surgery. This has been along time coming and the Plastic /Reconstructive Surgeon I chose was one with skill and experience.I should of gone to him originally and saved myself allot of heartache and emotional pain. He is in my own home town of Illinois.I have plenty of before and after photos of anyone is interested.
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hello my name is Teresa and I have blepharospasms and am very interested in seeing your before and after pictures. my email is tpj065@hotmail.com. I am not sure how to get your pics but maybe you can explain it to me. Looking forward to hearing from you. thank you teresa
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Hello Vickisue, my name is Teresa and I am very interested in seeing your pics/ as I am contemplating surgery for my blepharospasms. not sure how to see your pics. but would very much like to do so. thank you teresa
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Kim.Thank you for the information on the doctors name. Do you have any before and after photo's you could send to me? I would like to see if our problems are similar. Thanks for all your help.
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Please do give us all the name of your doctor. Any that does successful reversions with eye lid surgery, is always appreicated.
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My doc is occular plastic surgeon. John holds. MD St louis mo. The surgeries I had were for blepfrospasm with apraxia. Included ptosis repair. While a myectemy is not cosmetic surgery I believe the results are better than expected. Most important I can see again. Best of luck Kim
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my eye look deformed too me and others one eye shaped like it spooks..its li oval..doesnt close a;ll the way and i get xtremley bad headache an dpain...also d crease is very high...i dont know how to put pictures her to show pliz le me know i dont have a social life anymore because of this issue...emb arrased of the way people noticed...if there is a doctor that can tell m ewhat precedures can be done to fix the issue..i trully apreciate
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im with u on this i had a poor eyelid job too and trying to get it fixed
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I am so sorry to read your post. You lost much in this decision. A physician as well. I guess even when in the medical profession, the wrong Plastic Surgeons can be chosen. Please keep us informed of your progress. I can relate to much of what you wrote, and when the crease is very high with not much lid, you can be sure too much tissue was removed. That altered shape alone, changes your appearance to one of a stranger looking back at you. What corrections were done, besides botox? Was Botox used for upper fullness? I too had a bad eye job, so any suggestions on reversion is always good to know. Good luck to you, and I would name this doctor so others won't feel the pain and emotional suffering your now experiencing.Your not alone in this persuit of reversion. Take Care
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As time is going on, I am beginning to think it wasn't the doctor but just my luck.I KNOW THE DOC IS PROB BEST IN THE WORLD.My professional life has just been that when it seemed my career would take off, luck intervened. I have trained more in my life than I ever got to use.I wish somebody knew my story. trained as a pediatrician in Europe,gave up to raise kids,came to US,needed to train again per req, head-on coll 1 day passed out on way back after a hard call weekend while in training,went back to finish after 2 months, Aced the Board exams ,5 yrs later blepharospasm began.. rest is history as they say.. When i first wrote here, I was mad,still am to an extent for the rec for surgery when my stakes were so high.BUT IT WOULD BE UNFAIR TO BLAME THE SURGEON ALONE.I was so happy after the botox results, conf to go back to work, delighted at the job offer..that I didn't think anything could go wrong or asked more ques.Also think since a lot of communication was on email via secretary,she gave his routine ans without really understanding my job, its req etc..
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I also wanted to add for u Vickisue, that the botox was BEFORE surgery for spasms. Since the initial surgeery, its only been more surg and massage. Talking abouta stranger looking at you in the mirror, I looked like someone from a diff planet at 5 wks after the 1st surg. At present all I care about is to be able to see clearly so i can drive,find some work to help finances a little.In the desperation I probably pushed for correction too early without giving more time to heal. Well, my eyes were so dry and uncovered that the cornea was getting abraisons, even patching hurt as the eyelashes would rub the eyeball.I have been patching my eyes every night for 3 months now just to try to sleep even if interrupted
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was wondering how you are doing? kim
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Thks for caring! Did U ever get your surg? I dec to not let this destroy me, the person.Been to hell and back before, prayed for a chance again.With God's grace, found a 3 mo job in one of the rural areas, with patching at night and drops after every patient,sqeezing out the air from the lids in-between, I am getting more used to working with these eyes. Both eyes have very diff shape,I wear glasses all the time. The pts are elderly, don't care about what I look like and love the care they get,give a lot of blessing.My life is getting rebuilt one blessing at a time. The price is-living away from my family and making up at night for all the extra time I take to do my notes due to eyes.Instead of 8-5 or 6, my working days are 8-10 or 11. 4-5 hrs sleep x 5 days, sleep half day sat and sun , time is going fast. Can't do any procedures or trust my readings of xrays scans etc, live walking distance from the place of work ....
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I had surgery on May 7 with dr. holds in st louis. so far so good. my eyes are open and sight is good. i have some swelling and still quite numb in the forehead and eye lid. Dr holds spoke of correcting surgeries for those that did not fair well. If interested i would be glad to share more. Sounds as if you are adjusting well. Having this surgery was the hardest decision I have ever made.kim
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Kim, I would like to speak with Dr Holds if he can make my eyes look even again. I have developed a problem in both lower lids now too because of changing angle of eyes. Both lids turn inwards everynow and then especially when I rub(entropion). This locum is coming to an end, can't really afford much but paid some of the debt. I wonder if he will give a free phone consult as a professional curtsey, I am sure the insurance will pay for functional lid repair and if he will charge a reasonable fee for the rest..I can try to come one time. I live in Idaho. Can you talk to him about me please and tell me what he says? I will really appreciate any help.
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I am seeing him on Friday 6/25 and will pass him your info. I will contact you back Kim.
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Thanks Kim! Much Appreciated. God bless you.
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wondering how you are doing kim s
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I am carrying on. Decided to take a break from surgeries. Learning to live with what I have. Both my lower lids have started to turn inwards and i have been told they will need surgical correction. every now and then the lashes rub too much and they get very irritated. Vision wise i can get by but all the precision is gone, I see double unless I scrunch up my eyes like the spasm s did. the floppy upper Lt lid is a little better but still loose, so still have to squeeze out air and tears from it periodically.

I never heard back from you. kept wondering if you ever talked to your surgeon about me.I am so far away, will need a phone consult or something first before i can take a chance again.

How are you doing? Hope all is well with you.
Take care, Happy Holidays!!

Jdasi
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I just wanted to add . i think it would have made all the difference if my surgeon had done a brow lift instead of Ptosis repair. Due to the repair, my lids keep pulling the brow down because the upper lids aren't wide enough any more. my eyebrows sit almost underneath the brow ridge instead of a little above. Just added this in case you do talk to your surgeon again,
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where are you located? how long with diagnosis of beb? how are you now?kim
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I am in Boise Idaho. BEB was self diagnosed as none of the opth I saw locally was considering it. Dx Nov 08, I think Sx began 5 yrs ago, worse since 07. Have had a very protracted course with no end in sight. Initial Surg oct 09,2 revisions on each eye since then.one eye seems to have "excess" of lower half of upper lid,lids don't align,blurred vision, I think unstable tear film, The other just had a revision 10 days ago and still looks "hung up" laterally.Also supposed to have had SOOF,but one side already showing decreased tone lower lid/cheek area.No evidence of SOOF per another opth locally. Any suggestions?. Need to be able to work, study to re-certify this yr.....
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sorry to hear. I have had a year on not being able to keep eyes open, botox treats the spasms but apraxia does not all them to stay open. have doctor that is specialist with beb, ocular plastic surgeon. am considering partial myectemy and ptosis repair. May i ask who did your surgery? I would be glad to share the name of my doctor if you are interested. did you have a complete myectamy or ptosis repair. prior to surgery what were your symptoms and how did botox work? kim
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If ur spec is in UT, we are prob taking about the same. My surg is supposed to be"the authority" on BEB. rec surg after 1 botox Rx. My apraxia was not that much of a problem after botox.I had partial myec, ptosis rep all at the same time. Botox worked very well for spasms.apparently had all 3 BEB,ptosis and ALO. My eyes want to go back to the same lid position because that is the only position when i have a stable tear film and all ghost images go away. This is a decision I will regret for the rest of my life. My vision now is like looking thru eyes full of tears all the time,
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my guy is in st louis but spent 2 years with the man who created the surgery and currently practices in utah. at one time i had considered traveling if he was the best. my guy does not speak much about him. after one teat and minimal success with botox he has sugested the ptosis repair and partial myectamy. What is AOL? What else can be done to correct? could you explain a bit about your eyes going back to original position? i am unfamiliar as to what you are experiencing. thanks for your info. it is very helpful to me as i consider this procedure. i am terribly sorry for your current condition and wish you well. What kind of doc are you? kim
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