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POSTED UNDER Restylane REVIEWS

Restylane Ruined my Life - Sherman Oaks, CA

ORIGINAL POST

I got Restylane to plump lips and have EXTREME...

$600

I got Restylane to plump lips and have EXTREME fatigue for the last 2 years. My life has changed DRASTICALLY for the worse. I can barely work part time and the "full life" I used to live is GONE - replaced by "just barely surviving" every day. I can't get to the grocery store after work, and even if I could, i can't then prepare a meal. Too tired. I WAS a happy, vibrant, highly productive person before Restylane. And this ISN'T depression - I've been depressed.

Major fatigue post Dysport's provider

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Replies (59)

February 28, 2012

My gosh, I'm so sorry to hear what you have been dealing with. I know you mentioned that some doctors think its an overactive immune system, while others think its an underactive one. Do they all agree it has to do with the Restylane, or is that being debated as well?

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March 24, 2012
No doctor has a way to tell for sure that my problems are the result of Restylane, but *I* know it had SOMETHING to do with the injections because I felt so different the next day after the injections. I had a specialist say he wouldn't be surprised if it was the Restylane. He said sensitive people have trouble with Restylane. I am sensitive - always have been. :(
June 10, 2012
same problem with jeverderm u think we will end up like this forever
July 10, 2012
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December 15, 2012
Charlene Roux. Well, I hope YOU have an adverse reaction once you "start back" up with Restylane. This is a SUPPORT community. Would you walk into and Alcoholics Anonymous meeting (also a support group) and tell them that OTHER people don't have the "allergy" to alcohol. You are the one that is ridiculous. Kindly take your crappy opinion elsewhere. YES, cosmetic injections have RUINED my life. RUINED. As in completely different than it was before the injections. Notice MANY people are having problems with these injections. And if you look at the FDA Adverse Event Report, you'll see many OTHER people also had bad reactions. Since you're healthy and feeling fine, do something ELSE with your time other than telling sick people they are ridiculous.
December 15, 2012

Whoa, this is definitely escalating to a place that isn't helpful to anyone. We are a supportive community, and we welcome people to share their opinions and experiences but do require that they be done in a way that is respectful to others. The above comments, as I'm sure you would both agree, are not very respectful. Lets keep the focus on the treatment, not each other please.

As always, if you have any questions, need any help, or want to report something negative you see going on in the community you are welcome to contact me via private message or you can also contact our Community Support Center by clicking on the "Help" icon near the bottom of each page.

Lets keep RealSelf a place where people feel comfortable sharing.

December 16, 2012
dear Megan you are right but this Charlene Roux was already banned by you for her brytal words in july always in this discussion, I don't know what she wants from us but I don't think this is normal. Charlene Roux 23 Jul 2012 -:- Message from RealSelf staff -:- This comment does not follow our Community Guidelines and/or Terms of Service. We reserve the right to remove any post for any reason.
December 16, 2012

That is messaging for when a single comment is removed, not when a community member is banned from the community. However, due to her postings last night she has now been blocked. 

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December 18, 2012
Sorry everyone - the person I was commenting to made me really mad. Her comment has been removed. I'm on this forum to try to help anyone that needs my experience with this illness.
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December 18, 2012
I appreciate your support - that person's comment made me really mad.
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December 18, 2012
Apologies to the community - that person's comment just really made me angry. I generally just try NOT to comment when people make rude comments.
December 18, 2012
dear major don't be upset, there are people that do get into the forum just in order to get attention and use rude words.. thanks to megan for managing this situation. I just hope everyone is better and will spend at least a peaceful christmas :-) I am from italy and i will pray this Christmas for the families in Connecticut, i know this is a forum for other topics but my thoughts this year go to them...
December 18, 2012

Totally agree with you. Like the rest of the nation, my heart has been absolutely broken for everyone involved, but especially those parents...no words.

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January 6, 2013
Thanks Gloggol ;)
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February 28, 2012
i am soryy to hear this. i hope it will be fine..
February 29, 2012
I totally understund you. I am there too........ restylane injection can change your life:(
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March 24, 2012
Ugh, I'm sorry for YOU. I just started researching thimerosal, the mercury-derived preservative that's in injectables like Restylane and Dysport... Ugh.
May 13, 2012
Hallo. So scared now. Hear from people like you and others that restylane have so much different kinds off substance that we dont know about. Could not a doctor on Real Self answer about this? Maby they dont know either???
Take care, and hope for the best:)
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May 14, 2012
Hi Simba1234,
Seriously, reconsider if you're considering any injections. I've read other people's comments on here that bring up a good point: this is a dangerous TOXIN and there's not ANY medication that can reverse the effects of Dysport/Botox if you have an adverse reaction. It's my theory that the injections are triggering a reaction in each of us, but not necessarily the SAME reaction. Hence, I don't think doctors know what to DO for us. That's DEFINITELY been my experience.

The FDA approved Dysport a few years ago, and right now you can contact the FDA and get at 14 page report of people reporting really life altering symptoms, including 14 DEATHS. But it's STILL "approved" and on the market.

Here's the FDA report if you want to download it and read it:
https://www.dropbox.com/sh/ogry21mya7g4mhe/FUwFvt2EN-

Wishing everyone good health.
AJ
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May 30, 2012
I agree with Simba that Dysport is the danger. Infact, there were actually 16 deaths reported from Dysport injections treating children for spasdic dysplasia & also over 250 cases of others with serious side effects Dysport basically slipped through the cracks (FDA approved) labeled with a warning called blackbox warning. This was approved in April 2009. The irony is that when Dysport was officially released with this WARNING~ most doctors did not share the serious dangers associated with Dysport! Its a money maker & to hell with what its capable of doing to a person! I personally have also had Restalyn & a few other fillers & with no side effects whatsoever. Read my story...
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June 9, 2012
Oops, my response was suppose to be in agreement with AJ. Sorry bout that Simba :)
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March 6, 2012
I am so sorry to hear this. You can ask your provider, who injected the Restylane to inject Hyaluronidase into the area. I use this in my patients who haven't liked the product or had a reaction. This is an enzyme that can remove the product, with in hours.
March 7, 2012
Maybe it was the Dysport? I'm only mentioning that because a few others on this site have mentioned that they have had Dysport or Botox in the past and got really ill for a long period of time after their last injection.
March 16, 2012

Thanks so much for the tip that this can be instantly reversible if I can't get used to the results! Tried it yesterday for the first time and was freaked out by my new look! I dreaded facing everyone and explaining what happened to my mouth...By this morning alot of swelling has subsided and I think I like it, but it's nice to know if I don't, I can hide out and it can be reversed quickly.

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March 24, 2012
Thanks for the suggestion. I'd had both Dysport and Botox before at different times with no serious negative effects. But I'll search around the site for what you mention here. Now I actually wonder if was the mercury derived preservative thimerosal that has made me ill. Maybe I got too much "mercury" that day with those 2 injectables...
March 27, 2012
I got very sick from Botox - was ill for about a year with fatigue and brain fog. Too bad because the product works great. - I am chemical sensitive.
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March 27, 2012
@cyndiLou what did u do to get well???? I'm STILL sick after 2 years. And thank you for posting. I'm relieved that others have had sickness from it and I'm not the only one. BUT of course I hate that any of us are sick.
May 13, 2012
Hallo Rand Rusher. With full respect to you, but Hyaluronidase, what I have learned do not take care off the cross linker and if you having a reaction to that the disolver do nothing.
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May 14, 2012
Hi KTA,
Did I comment back to you yet? I feel like i did in a private email or something. But if not, I wanted to say thank you for pointing out that other people were having adverse reactions to Dysport/Botox. Thank you thank you!
AJ
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May 14, 2012
Thanks for the suggestion Rand! It's more like the injection triggered an immediate immune response. It's not about either of the drugs still being in my system. The injection sent my body into a tizzy. :(
AJ
May 20, 2012
the enzyme causes fat loss. I had enzyme done to remove resty and it RUINED my face. I am now looking at a revision face lift. It has made a virtual mess of my skin creating folds and other issues. I wouldn't recommend it.
June 22, 2012

Did you become chemically sensitive after Botox?
I became very chemically sensitive and have wondered if it was associated with all of the injections I had. I also think its interesting that most people who get MCS are women. I started a website called DetoxTheBodyMCS.com to help people recover. I was so sick I could hardly go anywhere for 2 years. I am still a little sick. Yikes. I have still gotten restylane, but quit the Botox/dysport.

June 23, 2012
The name of Botox is Botox Neurotoxin. The MCS symptoms that I had were negativereactions to any Nerotoxic compounds like gasoline, fabric softener, air fresheners, etc. I didn't get sick the next day, but I had plenty of Botox and restylane in the period before I got sick. I had Botox and resty since (not putting it together) and didn't get any worse. I eventually adopted a detox and seriously healthy eating style . So maybe that's why I didint seem to get worse. However, I never had as much as I got that first time. I did get the tiniest dose of Botox last year, but really can't do that anymore. It's called Neurotoxin!! It messes with neurotransmitters, the limbic system and so many other things you don't want messed with. That's my feeling, but I also have read plenty about restylane and it's not natural. It was natural and they added chemicals to make it last. They call it chemical cross linking, who knows what that is? A few places on the web (kaiser permnente website) says it can cause auto immune disease like lupus. The good news is that no famous actresses have dropped dead from it. I did find one case of MCS from Botox. The doc over-botoxed her and she got quite ill.
July 18, 2012
BTW, when did you have this done? I had mine done Feb. 2012 and the dysport and restylane was from Medicis. I wonder about lot numbers, etc......
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March 7, 2012
Yes but typically and well documented court case that was proven not to stay in your system longer than six months
But everyone is different and nothing is an absolute
June 23, 2012
That's not true. Both my sister and I have restylane results that have llasted for years. Maybe the resty is gone, but the wrinkles never came back . The mercury preservative or whatever can stay in the liver or other organs.

Someone on this forum suggested that my illness...

Someone on this forum suggested that my illness may be from DYSPORT because others here have reported being very sick after Dysport injections. After reading their stories, I'd say it was the Dysport that has made me sick since I have many of the same symptoms.

Replies (29)

May 14, 2012
I'd seriously consider it.
May 14, 2012
No AJ....I didn't hear back from you but I appreciate the shout out Thank you! I did read your comment further up on this thread that you did see my post. So glad you did. I wish you all the best and that goes to all the others who have had horrible reactions. It is so scary. The chances we all take to look better and we don't get all the TRUE facts!
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May 16, 2012
Hi KTA-
:) Thanks again!
May 17, 2012

I just had Dysport inections in my forehead and glabella region, on 5/16/12, and Restylane in my lips andchin area. I also had my 1st Dysport injection about 8 months ago. I have been more fatigued lately, more than usual, have a hard time waking up in the morning, and can barely make it a whole day at work without feeling exhausted. I noticed this change in the past year or so. I though it was because of menopause and the fact that I am getting older, I am 54. I had Dysport and Restylane injections today, went back to work, and then a couple hours later started feeling pressure on the side of my head, and became very tired, Still feeling weird this evening. I didn't think it could be the injections until I came upon this website, and I am glad I did. I would be willing to take part in the class action lawsuit.

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May 19, 2012
Hi KBT,
I'm SO sorry to hear you're going through this too. You sound just like me- I'm sure it IS the injection and NOT ageing. I'm thrilled you want to be part of my class action! Could you send me an email when you are up to it so that we can swap emails? I'll also tell you a few things that seem to be helping me. But DO rest as much as you can. That's one thing I would go back and do differently: I didn't know WHY I was so tired so I just kep pushing thru and continuing my full life.

And just FYI to everyone, I DO plan on posting publicly what I've done that has helped me get better- because I've looked on this forum for that info from others who say they have gotten better and never see it.

thanks so much for contacting me. Wishing you perfect health!
AJ
May 28, 2012
Hi, I had nearly they same reaction from injetction with Botox (Vistabel) last year. The things wich helps are: to take a sauna, Accupunctur, and Schuessler Salts, it means Calcium, Magnesium etc. But my side effects only due for 3 months , thank God!
June 6, 2012
Hi
I just posted my experience and cannot find it.

Sue

I've been sick for over 2 years now. I wanted to...

I've been sick for over 2 years now. I wanted to post what has been helping me to SLOWLY get better. Since January 2012, I've been seeing a nutritionist who does hair mineral analysis. They take a small sample of your hair and see what your body is missing, or they can see if you have toxic levels of heavy metals, etc. Nikki has me on every supplement that my hair tests say I'm missing. She has me on other supplements to help me detox and remove heavy metals, etc.

She's based in Los Angeles, but can treat anyone remotely. So far it's the LEAST expensive thing I've done that is working. All the other medications my "real" (ie Western) Doctor had me on were so expensive and didn't help me.

Nikki's program treats the underlying causes and not just the symptoms. I found it fascinating when she said "The body will heal what IT wants to heal in the order IT wants to heal." Which means the SYMPTOMS that I dislike aren't necessarily the first thing my body will heal when given the right "tools" (nutrients/supplements). I feel like I'm helping my body heal from the inside out. Hopefully this is long lasting, deep healing.

Nikki Moses at Moses Nutrition:
www.mosesnutrition.com

Nikki trained under Dr. Lawrence Wilson, M.D. His website has a TON of information if you want to check it out. www.drlwilson.com
Nikki also has articles by him on her website here: http://mosesnutrition.com/More_Info___Articles_LNTR.html

Wishing everyone perfect health!

Replies (107)

June 28, 2012
Hi, l have been away and have just come back one yesterday. Ray4' have you been feeling better each year since having your restylane? Or are your symptoms same? You were saying you had lumps in your face 6 years after restylane? They say your body is meant to get rid of it in 6 months! Do you have a scar from removing the first lump?Planning on having an MRI done on my face soon to see if it's still there. Maybe you might need to travel to get someone to take you seriously. I live in Australia, and nobody here seems to think my feeling unwell has anything to do with restylane. Not enough is known about this. It's all still pretty new, and l don't think enough research has been done on the side effects of these products. Its not worthy taking the risk for beauty, and how would any women know if she may react to this foreign products. We just didn't know how we were going to handle it, and the doctors don't really care. It is such a big gamble. You always think it won't be me l can handle anything, well that's how l thought. I was very wrong. Simba, l am not sure l understand what you mean? What kind of data do we need to collect. I had Restylane Vital. Which is meant to be be a kind of light liquid, which draws fluid to the skin. I think it is different from restylane.
June 28, 2012

Thanks so much for posting an update. I'm glad to hear the nutritionist is helping you. I like what you shared about how the body will heal what it wants, in its time frame. I do hope the effects you aren't liking are moved up the priority list though!! ;)

Please continue to keep us updated on how you are!

June 29, 2012
Shezian, I still have a small scar from my first surgery. There are still small lumps of Restylane- unfortunatley I do not have the vial number or any info on that matter. I always thought that feeling fatique or those symtoms may be due to aging, but i am only 45 now. maybe I also lost some confidence due to the lumps , which may my skin worst. My immune system got worst and I am trying to solve this first with natural healing and excercise. I hope to get an MRI as what was discussed here in the forum and see how to go from there. In the meanwhile, still having the hydrulonaise and hope the best- does not look good though
June 29, 2012
Ray4' do you k ow for sure those lumps are from restylane from 6 years ago?
I am very scared now, that you say that even after 6 years you still feel unhealthy? Also, are you still having hylaunise after all this time? How many times have you tried hylaunise? I really want to believe that as time goes on l will be feeling better, otherwise l just don't know how l will cope. Even if the restylane is still present removing it may not heal us, as the immune system has already hit overdrive. Not sure what the solution is.
I am only 41 now and l had restylane nearly 2 years ago, and l know it's not natural for me to feel this way and that the restylane started some kind of immune reaction and now its hard to heal myself. I just want it out of my body and l just want my health back to the way it was before all this. Imagine how many other women suffer in silence and never relate it back to injections. I am glad we are here to help each other through this and maybe come up with some ideas on how we can get better.
June 30, 2012
Well I want to a great plastic
Surgeon and he said it
Can't be possible that restylane can stay In your immune system for many years