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Restylane Ruined my Life - Sherman Oaks, CA

I got Restylane to plump lips and have EXTREME...

  • 25 Feb 2012

I got Restylane to plump lips and have EXTREME fatigue for the last 2 years. My life has changed DRASTICALLY for the worse. I can barely work part time and the "full life" I used to live is GONE - replaced by "just barely surviving" every day. I can't get to the grocery store after work, and even if I could, i can't then prepare a meal. Too tired. I WAS a happy, vibrant, highly productive person before Restylane. And this ISN'T depression - I've been depressed.

Someone on this forum suggested that my illness...

  • 6 May 2012
Someone on this forum suggested that my illness may be from DYSPORT because others here have reported being very sick after Dysport injections. After reading their stories, I'd say it was the Dysport that has made me sick since I have many of the same symptoms.

I've been sick for over 2 years now. I wanted to...

  • 27 Jun 2012
I've been sick for over 2 years now. I wanted to post what has been helping me to SLOWLY get better. Since January 2012, I've been seeing a nutritionist who does hair mineral analysis. They take a small sample of your hair and see what your body is missing, or they can see if you have toxic levels of heavy metals, etc. Nikki has me on every supplement that my hair tests say I'm missing. She has me on other supplements to help me detox and remove heavy metals, etc.

She's based in Los Angeles, but can treat anyone remotely. So far it's the LEAST expensive thing I've done that is working. All the other medications my "real" (ie Western) Doctor had me on were so expensive and didn't help me.

Nikki's program treats the underlying causes and not just the symptoms. I found it fascinating when she said "The body will heal what IT wants to heal in the order IT wants to heal." Which means the SYMPTOMS that I dislike aren't necessarily the first thing my body will heal when given the right "tools" (nutrients/supplements). I feel like I'm helping my body heal from the inside out. Hopefully this is long lasting, deep healing.

Nikki Moses at Moses Nutrition:
www.mosesnutrition.com

Nikki trained under Dr. Lawrence Wilson, M.D. His website has a TON of information if you want to check it out. www.drlwilson.com
Nikki also has articles by him on her website here: http://mosesnutrition.com/More_Info___Articles_LNTR.html

Wishing everyone perfect health!
Name not provided

I got Dysport injections around my eyes (which I'd had 2-3 times before) AND Restylane in my lips for the first time. My life is ruined since that day almost 2 years ago. I have extreme exhaustion every minute of my life, I have brain fog, I'm too tired to feel love or joy, which I did feel BEFORE Restylane. Some doctors say I have underactive immune system and that's why I have heavy metals, Candida Disseminated, high levels of bacteria. OTHER doctors say I have an OVERactive immune system. Either way, I'm barely able to work part time when I used to work 40+ hours a week, I can't drive at night, -too tired. Basically I feel like I have narcolepsy. The EDD's "independent review" doctor says I'm "healthy to work full time" and I've appealed that decision. Waiting to go in front of a judge. Basically my life changed COMPLETELY. It's a nightmare. In the last 6 months ALONE i've spent $11,000 on doctors, specialists, supplemnts, Rxs, AND i'm working half as much as I WAS. Don't do it. Face aging. Now I get to face aging AND am totally sick.

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Hello, I had a similar experience, except mine was brought on by doing the master cleanse. Have you looked into chronic fatigue and celiacs? Celiacs is linked to the auto immune system, it might not be that the restalyne caused it, more that it put your immune system into high gear bc it couldnt recognize the restalyne "invader" and so it is on a constant auto immune battle. I would consider cutting out all gluten and dairy for at least 6 months, and getting on a good probiotic and a digestive enzyme. At least that worked for me, I was gluten free for 3-4 years and I'm happy to say I have my life back. When I was ill I had pnemonia a high fever and lost 10 lbs in two weeks (I'm 5'9" and 125 lbs so I didnt have any weight to lose). I'm not a doctor but Ive been through it and studied it alot. Maybe talk with your natural doctor about this and do some research, but cutting out gluten really cant hurt you. Hope you feel better!
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Thanks for your suggestions SomeLAGirl. Yes, I'm off gluten - and actually already was before I got sick from the injections. I agree that diet is really important/powerful. I agree that the injections kicked my immune system into high gear (or something). I definitely feel it created a new situation in my body - chronic fatigue is the current diagnosis. I'm glad you've got your life back - that's wonderful!!!! Wow, brought on by the Master Cleanse. I haven't heard that one before, but nothing really surprises me anymore!
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Hi guys had an adverse reaction to restylane. Started with heart palpitating and muscle twitching and everything died down for a few weeks and now I have severe PN would really appreciate a private email contact from a fellow sufferer. Mine is annarowe1000@hotmail.co.uk
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Hi there annarowe,I'm so sorry you have had an adverse reaction to this junk.I had juvederm,similar to restylene.Its been 18 months continuous horrendous symptoms for me.Im now left with hearing loss and tinnitus in my left ear.avision loss in my right eye,hair loss,memory loss.This stuff is evil.I pray you will find some relief,somehow.My best advice would be to seek a naturopath,and try and detox your system.This is what I am trying to do.Nothing the Doctor gave me worked,like tramadol,duloxetine.I became more of a zombie than I already was.I have been left in this semi dementia state,confused,disorientated all day,everyday.I pray you will get better,and there is hope,it's just finding the right treatment from someone who knows what they are doing,and how to treat this.If you need any advice on supplements that I am taking,I will gladly post to you,I'm not sure what really helps,at the moment it's just trial and error for me,and I'm a bit of a guinea pig for natural medication,but that's fine as long as I get some relief.Please keep us posted on how you are doing.Best wishes,kx.
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Thankyou for your reply katie... I have not been to the doctors regarding my symptoms as I am not willing to try any medication they perscribe. Did your symptoms peak at any stage or have they remained constant throughout. I am taking vit B Vit c and magnesium... My PN has remained at the same intensity over the last two weeks. Some days better than others. I have massaged magnesium oil into my skin in the evening. That seems to ease the pain so I am able to sleep. Would very much appriciate you sharing your experiences with me x
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Hi annarowe,nice to hear from you,yes I agree most conventional Doctors have no idea how to treat this.I think we are basically test dummies and our reactions are being noted by Allergan,I think it's a mass poisoning scandal on their part,how many people they can maim from this junk. My symptoms seem to peak at night,from when the sun goes down,severe disorientation comes on very strong as does the eye burning become worse,in the day it feels like I have particles of crushed glass in my eyes,they are irritated and red raw.Some days the clarity is more better than others,but most days the brain dysfunction is prevalent,memory loss,loss of awareness of time and place.I can feel this immense foggy cloud envelope my brain and almost suffocate leaving me unable to think.Feelings of impending doom are also rife,it is a living hell.I am still sticking with the herbalists instructions as I can sleep some,this is the only thing I think that keeps me going,but I am terrified that this stuff has caused such a major reaction that it has produced brain inflammation,that may take years to get better,if it ever does.I think you are on the right track by using herbal supplements as you are not introducing more toxins into your system.There is so much out there,and it is a bot of a minefield,but it's just getting the right supplements,good ones are co enzyme q 10, vit b1 and vit b3, Astaxanthin,l glutathione reduced,acetyl l carnitine,and r lipoic acid,I have been taking these,for quite a while,I can't really say if or what might have helped to slightly alleviate the symptoms or if the tonic containing the herb samento is what's really trying to detoxify my system.Please keep posting,if you need any advice or just want to talk,let us know,best wishes,kx.
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Ok so am thinking your symptoms are pretty much constant and vary each day but have you improved at all since one year ago?? ... I get the light headed dizzy kinda feeling just about every day but it does pass again... I also get heart palpitations bad... I can't work out if there is any food I eat that may trigger them. I do have a healthy diet, I am of normal weight and try and eat low sugar
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Hi annarowe,thanks for the reply,we'll yes I can fairly say that I have seen slight improvements in sleep,weight,24 hour burning in brain and eyes and forehead has decreased slightly.Sundowning is still prevalent,nausea has decreased it's still there but ican eat a meal without vomiting.The bowel function is better,there are not severe episodes of diahorea.The herbalist advices lots of sugar for stopping my cortisone levels from dropping too low.This I thought strange but I presume she knows what she is doing.I do feel shaky at certain times of the day,like I need sugar as I get weak.She also advices zero carbs,and no carbs,just protein lots of milk and juice,but not too much fruit or sweets and chocolate.I have put a bit of weight on the middle part of my body,but I'm not complaining as I got down to 9 stone 2lb,now I am 12 stone 2lb,a stone under my original weight,in 2011 before the injections,I'm 5 foot 10 almost,so I think 12 stone is ok,at least I can eat,at first I was eating any junk just to put on weight,now I'm trying to be healthier again as I feel this will aid recovery,I hope.I am trying to work out too if anything is triggering any symptoms,I do feel sick and bloated after carbs,so I will check in future or maybe right down any adverse reactions.Please keep posting and I think that's great you keep up with the vitamins and trying to rebuild your immune system.I too still have the dizziness and off feelings all the time making me feel sick I think this is the toxins in the blood filtering around,that it feels like to me,hopefully speak to you soon,kx.
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Sorry meant to type no carbs and zero gluten or starch,x.
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Hi AnnaRowe! I sent you a private email here on RealSelf, because I sent you links to websites and stuff. Please let me know if you don't get it. Wishing you health, -Major Fatigue
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How do you cope with the dizziness Katie... Has this improved for you at all over time... I have it daily it makes me feel nauseous. Sometimes worse than others I can still feel it when I close my eyes
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Hi annarowe,thanks for the post,yes it is very difficult to deal with the dizziness,sometimes if I can,I sit and close my eyes,or try to rest a little and not over exert myself as this seems to trigger more symptoms,then a cascade of further symptoms errupts and engulfs me and I then have to stop what I'm doing literally.I think being over tiered puts the immune system into overdrive,so pacing yourself and not getting too stressed helps me.Also lots of vitamins and natural brain supplements help to keep the brain feeling clear and not cloudy,which can cause more dizziness.I feel sick quite a lot throughout the day,but it's less compared to the vomiting I had before.I too find its worse when I close my eyes and I try to ride with it and not fight it,sometimes having background interference helps me to not concentrate on it and the tinnitus.Trying to get to bed by 9 to 9.30 also helps to rest the brain,I also try to avoid strong smells,perfumes,additives in food,no alcohol, It feels like certain things can trigger it off,anywhere,anytime,I use to panic badly,now I try to focus on something else and try to think if things I need to do that day,not much else you can do.Hopefully in time it will pass and you won't notice it anymore,or as much,kx.
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How are you all,Chad,Major Fatigue and Glogloo,have any of you seen improvements at all.Well it's been 19 months for me now,and my last hearing test showed hearing loss in the left ear,and I must wear glasses now,as I have marked vision loss in my right eye.Everything still burns,memory loss,hair loss,muscle fatigue and as Major Fatigue mentioned in her earlier post,feelings of narcolepsy,I'm so tiered I can't function and feel I need to sleep 20 hours a day,but can't obviously I have a young family to look after.If anyone dares to tell,like these so called non informed Doctors that it's not the filler I will tell them to come step inside my life for 10 minutes and see what happens,it's hell,and it's burning,literally.God bless all of you,praying for you all,kx.
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Ciao katie not so good for me either, burning and stinging pain, swelling most of the days... I see you so much
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Oh Glogloo,I am sorry to hear this,did you get the results of the biopsy yet.Im glad you sued the Doctor that did this to you,these people are evil incarnate greedy for money,they will injure you and not give a crap,how can this be legal.I kick myself everyday,why did I do this,to myself,to my family.It all just gets to me,I miss just being healthy and happy,now I am in constant pain.Have you found anything Glo,that works for you,to ease the pain,how do you cope with this,sending lots of best wishes for healing,kx.
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I am so sorry to hear all this suffering,and no one wants to help,or can't,or doesn't want to get involved,or probably Doctors know absolutely nothing about these reactions.Im praying for you all,and asking God to help ease this suffering,from these disgusting chemicals that have no place in the human body.I feel like my brain will explode with the pain,and the feeling of crushed particles of some foreign substance in my eyes.The 24 hour tinnitus is driving me nuts,and the severe fatigue.The memory loss is still prevalent,always.My body feels poisoned and sluggish,this is worse than a slow,painful death,it's existing,not living,I want out of this burning hell.God be with us all,kx.
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Perhaps I started off wrong, my mother has always had some anger management issues. But now she's really just raging over her deep depression due to this cosmetic procedure. I meant to say, we haven't had the best relationship, but now my entire family is experiencing her anger bursts and she's often cried about them being do to her sense of helplessness.
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Hi dear writer, My mother has had her life in a mess since her experience with Restalyne. She has an enlarged chin. She can't feel anything, lost sensation around it, and is also complaining about depression and fatigue. She's changed, she's always been kind of a type A and sometimes overly critical of people. Recently, she's completely had mental and rage episodes. Acts strange. I know she's devastated from her chin issue, she's had several facial reconstruction procedures on it. Her plastic surgeon has abandoned her... He even joked and claimed she got a chin implant at some point. She says she feels a stinging, burning, and pinching sensation that chronic and highly irritating. My reaction was that of complete sympathy and some anger towards the doctor who's supposed to be helping her. And even anger at her. Because, she really was pretty in the eyes of my siblings and I. She didn't tell us about the side effects for over 6 months. She tried to hide them. And then she blew up on me one day over a phone call. Made me upset to hear it. But, she's currently speaking with an activist lawyer type from LA and he's interested in going very public and filing some collective law suit. Did you by chance go to Dr. Alexander Cosmetics in La Jolla? Here is my e-mail, c****@gmail.com . If we get anywhere, are you willing to discuss your documented pain and experiences post Restalyne? I am going on several forums and I'm actually collecting the info of other's who have had this dreadful experience. And I urge you to stay positive and hang in there, there are people out there that care and understand your pain. My family is currently experiencing extreme stress from this. Should you be interested in coming forward, I'm not promising anything, but should we get anywhere in our case, we can contact. My mother is going to file suit against this product in the future. Thanks and take care!

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Carolina I would be glad to be with you in this lawsuit bit unfortunately I am in italy. I sued the doctor WHO did this to me... Kisses
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Hi Glogglo,how are you?i hope you are better and things have changed for you,I am still stuck still in this hell,no Solicitor will take on the case,but now my dad,has asked his Solicitor in Italy if he will take my case,he has said yes,so Viva Italian and two fingers up Allergans backside,kx.
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And please,please don't ever inject,hyaluronidase,this stuff contains thieremosol,a derivative of mercury,if you had a reaction to the filler,you will most definitely have a reaction to the enzyme,it is also derived from bovine testes,absolutely disgusting,how the hell the stuff gets passed is beyond a joke,these are very serious chemicals that are being used.Bdde is another nasty one,as Simba mentioned,this is a form of anti freeze,what he hell are industrial chemicals doing in the cosmetic industry,anything to make money,God help us kx.
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yes!!! thieremosol is something to watch out for. It's a PRESERVATIVE in injectables, so I don't think Doctors or manufacturers are considering the negative effects it can have on someone. Especially someone with high levels of mercury already.
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In my honest opinion, i also don't think cosmetics and other chemicals possibly used in other things,could cause dementias,vision loss,24 hour burning,and hearing loss.I have never,ever had a reaction like this from anything else ever,I will spend the rest of my life.trying o get this stuff banned if I can,all the bet kx.
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maybe they could if injected inside you! the fact is that they are not injected inside your tissues!!! this is the difference
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Hi Simba,how are you,I hope you are better,me I'm the same still stuck in this hell,and I totally agree with your comment.This stuff is highly cross linked with other chemicals,that help the fillers remain sustainable in the body.Also bacteria plays a big part in the compostition of this bio hazard waste.This should not be approved for use in any country,in any part of the body,ever.This can seriously affect your health and damage your immune system.I pray tht this stuff biodegrades over time,like the 'wonderful',Allergan reports.Where are the testing papers for this stuff,they won't provide any one with that information,it's top secret.You are the experiment,and it's pot luck,what reaction you will have,I would rather hack my feet off with a rusty butter knife than inject this stuff ever again.The truth will come out,kx.
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