61 Yr Old Has Ruptured Dow Corning Removed After 34 Yrs - Little Rock, AR

I had Dow Corning silicone implants put in 1980....

I had Dow Corning silicone implants put in 1980. I've had them 34 years. Nothing but trouble. Beginning about 8 years my health started getting worse. Of course at the time I was still young and never made a connection that the implants were the cause. Back in the 80 I was told it was so safe. Would have perky books in my 70s. Just what you wanted to hear. No disclaimers at all. Fast forward to 1990s. Dow Corning lawsuit. I joined class action and it dragged on and on they filed bankruptcy and i figured that's that but stayed on the suit. Didn't take their first $1250.00 settlement to have them removed. Just rode on with it. Forgot it really. 2000 had heavy bleeding to point of blood transfusions. Fibroid tumors so big and numerous had to have hysterectomy to stop beeding. Still made no connection with implants. Then one thing led to another. Mental problems, depression, anxiety, hair loss, arthritis, foggy thinking, on and on. Still no connection made to implants. No doctor even mentioned it could be the problem. My implants capsular early. I just lived with that. Just bought better bras. 2011 coherent Al cancer hit. Still no connection made. Went through all those treatments chemo surgery .After removal of cancer the reversal of the colostomy and now thought I was recovered. Went for my 3 year cancer free checkup in April this year. All looked good. Doctor did marker tests. Looked good. I thought I was good to go for 5 year mark. Well CT then PET shows metasasis everywhere. Lymph nodes, abdomen, lungs, spleen, all over the place. I feel fine. I was stunned beyond belief as there is no cure. Just more chemotherapy til they kill me.

then I thought something else may be the cause. I raise mules and had an accident resulting in the right implant getting exploded about 2 months prior to these last tests...Hello!!! I Google can silicone mimic metasasis on PET scan. I found studies by a mayo clinic and others. Yes ladies it can mimic and show as metastatic disease.

So..I had my implants removed yesterday 5-8-2014. It's over. They are gone. I immediately feel better after surgery. Just sore. I'm so happy to have them out. I did not do a lift or put anything back in. I don't care the p's said they are safe now. That's what they told me 34 years ago.

so now I did contact the cancer institute where I am a patient and sent the information from Mayo and my Dr and nuclear radiologist agree that it could be a false reading and want to do a more extensive review. I'm praying it is only silicone.

In the meantime dow corning gave until June 2nd to get implants removed for all women who joined class action all those years ago so I will get 5000.00 settlement and my insurance paid 80% of the ruptured implant removal. Then the courts are open for settlements until 2019 for all of you out there that had given up. I found a team of lawyers who are still pursuing this on behalf of women with these awful products
.just FYI. Not my main reason, just added that fir your information.

I will include photos and updates as I go along but don't hesitate to get these removed. It's totally worth it and don't fall for the "they are safe" hype or you could wind up a statistic like myself. Just don't do it.

photos before and after explant

I wrote this review earlier and see alot of type - o's from auto correct. My cancer was colorectal and i had an ileostomy not colostomy. Anyway going to try to add before and after photos. I'm in day 3 and doing good. No pain or soreness or swelling today. No bruising. Dr. David Bauer at Arkansas Plastic Surgery did my procedure. The left one came out in tack with the capsule en closing it. The right one was a mess completely smashed and all over the place. I'm pleased so far with the outcome.

Took off my surgical bra standing for first time today

I took off the surgical bra which had be very tight today for the first time and had a look while standing. To tell the truth I was expecting my nipple to be looking at my toes hanging from thin loose skin. That's how I envisioned the unveiling.:)) so to my surprise they aren't beautiful but they are mine. I am so pleasantly pleased. He did a good job. I have wrinkling and some bulges but like I said I have kept these old gals tightly bound all week. Didn't take it off. Only laying down the first day to check the color like he said to do.

Tomorrow I make the 200 mile trip to get my stitches out and the drains. The right one was busted so bad. He warned me about it that it may not look so good as the left so I was afraid to see.

I saw the oncologist yesterday. 400 mile round trip. He did not discredit that it could be silicone instead of cancer but they are meeting tomorrow my surgeon, radiologist and oncologist to review my slides to determine the best way to biopsy. Probably aspirations.

photos of my removed implants from hospital pathology..caution it's graphic!

I just returned from the 400 mile round trip for my first followup with ps. If you wonder you definitely can get your implants given back to you. At least the hospital where I was. The Dr himself didn't even know where pathology was located but he had ordered them saved and i have them after they were gone through pathology. I'm posting these graphic images only to show the real up front and personal view of what implants actually become after 34 years. The darkest one is the one that was ruptured. He had a time getting it out. Silicone was all over the area and he said he had to remove alot of breast tissue on that one all the way to the dermis. He described it as "grossly ruptured". The lighter colored one is my left side which was still in its capsule. The Dr has on his report that even though it was encapsulated when he removed it he looked inside. Silicone bleed all around it. So those things do leak even if not ruptured. HELLO?

ANYWAY. They rode behind my seat on the drive home and not on my chest. Of course I guess with my history of cancer that pathology cut them all up. I got a gore detailed summary given with the implants. There was no cancer in there but let's of crystallization on the exterior of the capsules. Granulomas.

Dr told me he could take out left drain. It was about dry. But the ruptured one is still draining so he fave me instructions and see by Sunday if it let's up. That has to come out or you get swelling he told me. So the compression bra is necessary. He said keep it tight while draining to prevent buildup.

Gee long story..long trip. I'm pooped but feel good. He did tell me that pretty much what I see now is what it will be. Maybe he just doesn't want to get my hopes up but hey...it's 1000 times better than I had it pictured. I expected a long flap of skin hanging to my bellybutton with sad nipple looking at my toes cross eyed....smiles....

Hope this helps someone else.xoxoxo

weight in the middle

Man. I haven't gained weight but my stomach and waist line is so swollen. Maybe just water. It came all of a sudden like when I was younger during my period. Just bloated! Anyone else had that? I've actually lost 3 ponds by the scake. Weird...but I won't worry bout tgat. Just a minor observation when I took this photo.

Things are changing

Gosh. I took some photos on the 17th. I had surgery on May 8th. So anyway still had the one drain going on the right one that was such a problem. Okay those looked pretty good. I could live with that.I went a day without the ccompression bra after i took out the right drain yesterday and dang if they look like i got 2 flat tires. That's okay too but what's up with the all of a sudden sunken spots?? Did I take that bra off too early? Sure can't live in it forever but I'm hoping the weight didn't pull them down before they healed. Course the right one took a beating getting all that out of there so I lost a lot of breast tissue but until today it looked the best. Oh well..boo hoo..I'm still happy. I took a picture in a sports bra and clothes. Heck no one will ever know and now I can buy smaller tops. Yay..those are always on sale...smiles

so tomorrow is the biopsy. I can't sleep. Ihave to kknow but it's scarier than getting these out was.

I'll keep you posted and hope this all helps someone else. There's lots of us out there.

more photos

Okay posted before i added all photos.

day after biopsy

Had the biopsy yesterday. Will get results later. Enjoying a cup of coffee on my back deck and listening to cows mooing in the distance. Wild turkeys gobbling in the holler. Frogs croaking on the pond. Crows cawing...so nice. I have to remember why i moved here years ago from the city. Sending some of it your way...Attaching calming photo of the mountains from my deck and telepathically sending you a cup of coffee.

I like these bras..oh la la

Hey gals. I wanted to share these bras. They are fruit of the loom and danskin brands. What I like is they are soft and wire free but better yet the cups are foam and actually round you out nicely. Sport bras at wal mart. I didnt want to spend alot right away til I figured out the size. These I guessed at C cup but may be able to go down to B but for now im wearing these.

photos

I forgot the photos..lol

I am doing good. Preliminary biopsy posted "suspicious" for malignancy. But im waiting on final pathology report. Course you know it had to be a holiday weekend so I could fret a few more days.:(( I go back Wednesday to see plastic surgeon and then over to the cancer institute to see drs there si I figure I will know then.

Hope you are all recovering well and have your chins up. Maybe these little cheap sports bras will work gor some if you. I really look normal wearing them and they feel so good. I bought another danskin brand that is wider across the front and zips. Thats great to sleep in.
Just FYI.

Xoxoxo

Received my Pathology report yesterday

Hey girls: Just an update on my pathology. I got it yesterday. They diagnosed Large B Cell Lymphoma. I am totally shocked and maybe in denial. I started with colorectal in 2011, now this is a new thing altogether. I don't think any of the drs expected it. I sure didn't. I don't have any of the symptoms of it. My blood tests are all in normal range on CBC and CEA (Cancer markers), I'm actually putting on a pound or two since I got those nasty implants out. I feel great, have energy, good mood, my color has not changed, I just have to wonder on this. They did the biopsy with ultrasound and fine needle aspiration. I just can't believe it's true. Has anyone ever been diagnosed with this? I just still believe it is silicone in there and they just missed it. If silicone can light up on a PET scan same as a metastasis, then couldn't it on a slide do the same thing? I guess I'm grasping at straws, but if I felt sick that would be another thing. I don't. I'll be 62 in August and everyone says I look 45, so how in the world can you look and feel healthy and have such a drastic life threatening disease. If it is true diagnosis, then I'm looking at stage 111 or IV with the many different sites it showed up on the PET, heck, looks like I'd be in a wheelchair. I'm just at a loss. I see the oncologist asap, they are trying to set me an appt. Heavy doses of bag MOJO chemo this time around, bone or stem cell transplants, the whole big shebang. Oh, Lord.....I have to keep my spirits up and I guess denial in the beginning is normal, so just hoping the big "minds" made a mistake, but they are the top notch team in the state, it's not a little cancer institute, it's state of the art. But, what if they didn't consider my history on the pathology and didn't even think to "think outside the box"?? I don't know. I'm thinking maybe have it sent to Mayo since they are the ones who wrote the first article on how silicone can imitate cancer and that it will migrate. Maybe they could take a different view. I don't even know how to go about doing that but I'm going to find out before I line up for the bullets.

Thanks for all your prayers and support and I'm sending the same back to all of you. Kinda like we are in the same boat, just different courses we are following, so we aren't alone. With God's help...........:)))))

xoxoxoxoxo

my great big splurge first sexy push up bra

Hey gals. Got my new sexy pushup bra in the mail today. Found it on BostonProper site. This one has extra foam in the cups kinda pushes the sides in then those spaghetti criss cross areas mask my "dips" sunken spots where they are drooping. I just tried it on without much adjusting but I think I like it.

today's nudie

Not perfect but heres what the bra is hiding. After 34 years of paying for my vanity ...I dont miss the implants and love my new all me breasts.

large b cell lymphoma

Question...anyone on here know anything or have large b cell lymphoma? Id appreciate knowing anything.

blood tests can be good and still have LYMPHOMA

Just got back from another doctor for blood draws for Dow Corning suit. Dr told me you can feel and look fine and not have symptoms and have good bllodtests etc snd still hhave lymphoma.:(( only a biopsy shows it. But he did say it was better than metatasized colorectal because if I had that I was done. He told me lymphoma is hard but a chance of curing it. Especially where I am going. They are best in the country on myeloma and LYMPHOMA. So some good mews but busted my bubble about feeling good etc. He is board certified internal medicine. So...onward and upward and put on my hardhat. Things are gonna get tough looks like. Ill know more wed when I see hematologist specialist at UAMS in Little Rock. I have requested my pathology report as it is all hinges on that right now that it is correct or NOT. Still questioning...thats me...I dont go down easy.:)))xoxoxo
Little Rock Plastic Surgeon

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Snugglens, I explanted my 33 year old ruptured dow corning implants on May 19th. What a mess....no wonder I have been so ill. Prayers for you honey
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You CAN and WILL beat this! Accept this challenge and win the a health BOSS! You have the mentality and body and spirit of a 40 year old...you ARE going to get healthy, even more so then you ever thought possible! Onward and upward, kick ass and win, you are almost there!!!! *hugs n support*
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Yee haw... that's gonna ring true! Thanks for the uplift. xoxoxoxox
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How are you doing, Ms. Snugglens? Haven't heard from you lately and I've been thinking about you! By the way, I think someone left a message for you under my profile, if you want to take a look. Well, just thought I'd check in with you and see how you're doing today. Take care, Hun. xx
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I know it can be very confusing if you don't have any symptoms! I had a friend who was told he had leukemia, but he felt 100% healthy! He didn't start getting any symptoms for about 5 years! I had never heard of such a thing at that time! I don't know if this will help, but I did a Google search by typing "Can you have lymphoma without any symptoms" and this is one website I found: http://www.cancer-forums.net/can-you-have-lymphoma-without-any-symptoms-t124240.html. I know you want to know everything you can about YOUR diagnosis, so you're asking other people to give you any information they may have, but please remember that each person's body is different and not everyone will have the same symptoms or results from whatever medical treatment their doctor suggests. If I was told I had cancer, I would be researching and doing the same thing you are, but please remember that your doctor knows YOUR situation, just as your PS did, so it's important you talk to him/her about what's happening in YOUR body and go from there. Sadly, everyone knows someone who's had some kind of cancer and can tell you all kinds of stories. After a while, if you hear too many of those stories, it will just get very confusing. I'd say that the best thing to do is listen to YOUR oncologist, ask questions and go from there. Just like you did when you were researching your explantation. Otherwise, there's the danger of "information overload" and you will begin to feel overwhelmed by so much information and you'll still feel confused and stressed out. Try to step back a little bit, take a breath and AFTER your appt with your oncologist you will be armed with more information. That way you can make a more informed decision on any treatments you may need in the future. I'll be thinking of you, Snugglens and I hope you stay symptom-free for a very, very long time. xxx
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BTW, Snugglens, please don't take anything I'm posting here as anything negative about researching for natural treatment of your cancer. I am definitely in favor of trying alternative treatments as opposed to chemo, etc.! I'm also not suggesting you just blindly follow your doctor's orders, because I know how Western medicine is and that leans towards popping pills and receiving treatments that do more harm, in the long run. It's all so darn confusing and I have no idea what I'd do! I know you're just gathering as much information as you can so you can make the best decision for your situation. xx
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Thanks Petunia: I appreciate your input and information. I really do. You guessed it, my head is spinning. Think I will garden or go fishing tomorrow...lol..get it off my mind. It is something I can't speculate on, you are right about that. Thanks for making me take a breath. xoxoxo
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I'm so sorry, how scary this all must be for you. I'm not sure if this is something you want to try but an acquaintance of ours shared a shake mix he used when he was diagnosed with cancer of the liver. I know he was only supposed to live a few months but 4 years later he gave us his recipe for shakes he used that he believed kept him alive. Here is his recipe: (He drank this twice a day) in a juicer 3-4 carrots, 2 Tomatoes, 2 cucumbers, handful of fresh spinach, 1 apple & AHCC mushroom complex. I have been thinking of trying this lately, I just do not feel well. I haven't been to doctor I'm just trying to eat healthy and do healthy things but something is not right with me. I am tired, I am weak, I struggle to get through the day, my lymph nodes hurt and are on and off swollen for past couple weeks. I have had saline implants for 9 years, but I am reading that they can get fungus and bacteria that can make you sick and also the exterior shell is silicone so I imagine if silicone isn't healthy that even this exterior laying in my body does the same damage with health. Even if my implants have nothing to do with my not feeling well I still want them out. My body regularly has muscle spasms against them, after 9 years my body is still saying these don't belong! With the shake the only thing I'm not sure about is the mushroom complex. I'm trying to read about it to make sure its safe, reviews are saying it has helped boost immunity for those fighting cancer. I would think if it helped for that it would help to fight all illnesses but I guess I don't know for sure. I also don't know if there is a certain kind you are supposed to buy. I know the guy had written down AHCC mushroom immunity complex but I wouldn't know how to find him today. I do see this product on amazon, its spendy and doesn't have a lot of reviews, but the reviews it does have are good. Anyways, thought I'd share in case it was something you'de like to try, prayers to you.
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Thank you for sharing that information with me and I will sure try it. It can't hurt anything, only real food that is good for you. On the mushrooms, I do have a book by a Dr. Blaylock, M.D. that mentions certain mushrooms. Some are good, portabellas are bad, so what he says is about that mushroom complex you mentioned is very beneficial. I did earmark that in the book Natural remedies for cancer patients. Yes, I did read that the saline can cause mold and fungus not to mention the silicone shell. You are right in your thinking. That's why I did NOT replace mine with saline after I read all that on them. They are not safe either. The doctors just don't consider silicone implants as a cause of anything, but Mayo and others are publishing in medical journals for doctors to question if a woman has implants and also some artificial prosthesis have silicone and are causing same symptoms in patients. It's been being touted since 2005 but still no one is listening. We are the victims and have to be proactive on this before our voices will be heard and doctors quit overlooking this. The stuff migrates. It always has and always will and lymphnodes is where it goes then on to other areas and so forth. It can cause Lymphoma. Good luck to you in getting those out.:)) It could be the problem. Mine were in 34 years. xoxoxoxo
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Thank you for this information. I will certainly try the shake. I don't see where it can hurt. The mushroom complex is mentioned in Dr. Blaylock's book Natural Cures for Cancer Patients along with a lot of other things to do. Only certain mushrooms though. Portabellas are bad. The doctors never admit it's the implants. We are the only ones to voice that and be adamant they listen. There are articles and studies b Mayo Clinic and others out there telling doctors to take this into consideration in diagnosising a patient with implants and prosthesis made of silicone. I ddn't get saline put in as an alternative because of the very reason you said...mold and fungus...I decided none are safe so I just explanted. Good luck with getting yours removed. I left mine for 34 years ignoring what I know now was early warning signs. Just take a look at the gorey things after they came out. I know that ruptured one had mold. You can see the black on it.... xoxoxoxo
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Ha..looks like I answered you twice..:))
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My prayers are with you. I don't have b cell lymphoma. I don't think anyhow. I have tumors everywhere. They just tell me they are benign and most women have them. They haven't even biopsied them. The doctor says take this low dose chemo in pill for the rest of your life. I'm 47. The chemo puts me to bed so I quit taking it. I want to feel better. I went through the swelling, hair loss, mental changes, cushings syndrome, adrenalectomy and hysterectomy but doctors tell me even though all this started after the implants that IT IS NOT THE IMPLANTS, THAT IS IMPOSSIBLE. It's like they are drones or something. None of them will say that the implants caused the problems! Thank you for telling your story. I know I'm not alone. I'm not sure what my next step should be but you are in my prayers doll!
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Oh my, I'm so sorry to hear that. I've been through it and listened to their story. No one mentioned the implants and I was in denial because I didn't want them out...34 yrs later I am paying...Stay on them til you find someone who will listen. Look up your symptoms online with silicone as reason and see what comes up. You may be amazed. You are not alone. I had fibroid tumors so large they could not be taken out vaginally. Benign but there....Good luck with your decision and thanks for writing:)) xoxoxoxo
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hi again honey, the best info i can share with you about B cell lymphoma is that each case is very individual. on your diagnostic report, there will be all kinds of info that can help you classify which of the dozen subtypes a person can have. it depends on genetic markers, histology, location, morphology, t-cell involvement, etc. if anyone responds with their own story, that is something to really keep in mind, each case is very individualized. the words themselves of "large b cell lymphoma" is a blanket type of diagnosis that can mean a lot of different treatments and prognoses. i will be more than happy to talk with you privately about this, i am sure no expert, all i am good for is research, ive done a lot of it! but you seem like you are good at that yourself. let me know if there is anything i can help with.
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I am researching. It is individually based, I can see that it is complicated. I'm gathering questions to ask on Wednesday and I wan some proof and answers before I line up for bullets.:)) Thanks Lemay!! Hope you are better today:)) xoxoxo
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oh jeesh, here i am whining about not feeling good after explantation, i am so sorry for the path report, but admire your proactivity. i am gonna give ya advice, cos i have two friends with Large B Cell, and if you are gonna do anything outside of the box, get right on it, do not waste time, do not wait, cos everything you want to do, know and get results from is going to take longer than you expect. am sending ya lots of soft hugs, take care of yourself first, now. XXOO.
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Lemay. Can you tell me about your friends generically anonymously some details and what they experienced? Did they have implants?
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both of them were men! they had seriously different experiences. i know from my own research trying to help their family understand some of the medical jargon that there are specific/individual/genetic items in their diagnosis that determined their chemo cocktail and treatment plan. i had them forward me their exact diagnostic info, and started googling. there are MANY kinds of B cell lymphoma, diffuse, small, large, jeesh, it was confusing to a layperson, like me, but just wikipedia alone was very useful as a place to start. but ya have to know very specific things, in order to get specific info.
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Thanks lemay. That helps me alot. Ive been researching what I could on google and I see it is complicated disease. I see oncologist wed so ill have questions. Funny thing I have no symptoms and they say its everwhere. I know u dont feel goid so I do really appreciate giving me this much info. You get well and take care of yourself you will recover soon:)))) xoxixo
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Lemay. One quick question if u can. Did they survive it with chemo?
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Oh Snugglens! I have been silently following your story for a bit now. So sorry to hear of your recent news. Thanks for sharing your story as it as helped me part with my plastiboobs- I thought if you could part with yours after seeing them for 30+ years, by gosh i can part with mine! I will pray for you.
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Thanks Belleza for thinking of me and im so glad you can gleen some inspiration from my story. Im happy I got them out. Just hope I did it in time. I waited in denial not wanting to deal with it and now with lymt diahnosis and its known ties to silicone implants I hope it wadnt too late. Thank you for your prayers and support and I do the same for you. Getem out....thats my advice to everyone.xoxox
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I have given up hope that I will ever get my silicon rocks removed. Would take a financial miracle. Been paying for my sin of low-self-esteem for 30 years. Apparently that is not enough.
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Hey CJustice: Don't give up hope. Sometimes something will come from nowhere if you just keep on trying and hang in there. I know what you mean about 30 years. Mine were 34 years. I should have done it long ago but I thought they helped my looks so we have all been there done that part. Young women are still doing it. Maybe our stories will make them take a second look at it..maybe not..sometimes youth is blind. Sending you positive vibes and big hugs!! xoxoxo
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Cjustice...what about financing the surgery through a company such as Care Credit? My PS informed me that I could pay for my BA 23 years ago through a payment plan and his office even had the application for me to apply right there. That's what I used! Fortunately, I didn't have to pay for my explantation, because my insurance company covered it. I'm not sure if you can apply for implant removal surgery, but idk why you couldn't. Just an idea...
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