Dysport: Stories

Ever since the injections on Jan 29,2013 I feel nerved up can't relax unless I take an attivan when will this disipate? Barbie

I didnt feel well after dysport. I have never had issues w botox and been getting treatments for about 10 yrs.

I'm so sick of these doctors telling patients that they're basically NOT wanting to blame dysport for the reason of DRY EYE. As an ex: It's true, that I did have seasonal allergies that caused my eyes to itch & sometimes swell. However, using Claritin or Patanol always cleared it up. I had always had plenty of tearing, & never dry anywhere, nor did my body give me warnings of change, other than treatment for menopause & I used estradoil. When I immediately had those injections, my eyes & body did a crazy change. I was so terrified that the next couple of days after that nurse injected me, the swelling to my eyes with extreme irritation [like a sandblaster] ocurred. Within a week! ZERO TEARING! I didn't or couldn't even identify with what dry eye was? The anger in me with the neglect from that doctor, the FDA, & manufacture is beyound an insult to injury. I got a letter yeterday from the BBB & they could not find enough evidence to prove my claim. They made all contact with all of the doctors & cannot find my justified injury. Which is total b.s. I specified to them that when I had decided to these injections, e.g., I had NO idea of what even a black box warning even was. Yet, because it was a thumbs up to be used in 2009, I was suppose to know this! I researched online before my injury & nothing indicated dysport to possibly cause injuries to eyes, body & most of all death! I don't have spasdic dysplasia, like all those kids that were guinee pigs being treated for. I didn't even find out all the negatives until after I started filing my reports & looking for help. This is crazy & an injustice! Which hurts worse, I ask myself? My permanent injuries to my body & future? Such an insult to injury, while also my fearing & to trust people.

It's coming up to two years since I got the botox shots that went awry. I am currently using Restasis (the single vial form) and, because it isn't covered by insurance, I store the opened vial in the fridge in a clean sandwich bag and use it for about 5 doses as opposed to one. I'm a single mom with 4 children who is also unemployed, so this is how I have been able to continue treatment with this medication. I have been able to get my regular eyedrops--Refresh Tears and Systane Ultra covered by medical insurance that is free in Canada if you are low-income; I am so thankful...prior to this I was spending close to a week's grocery's amount on these. I find that in the winter when the weather is drier my eyes are much drier; during the spring and summer my symptoms abated somewhat, but when you have to turn on the central heating system it can really take its toll on dry eyes.

I have been looking into getting moisture-chamber glasses custom-made. I'll update you all on this when I am able to afford them.

I have been seeing a dry-eye specialist--two appointments so far. I had the Schirmer eye moisture test and I registered in at 4.5 out of 10. While it was a relief to finally have this acknowledged, the medical world is still quite hesitant to make any connection with botox! Crazy, since I had the test which would determine whether or not my dry eyes are related to autoimmune issues and those tests turned up negative. Anyway, I have found hot, wet compresses to continue to be a vital part of my continued eye-care, and, as well, trying to keep good health--an upper respiratory cold really aggravates things.

I think that what is the worst is having to put my eye drops in while out in public. I have recently started going out with a wonderful man and he has been very accepting of this, but I still feel a bit self-conscious when I have to do this around him.
I can relate to b2tru2life when she talks about previously tearing up very easy. I, too, am quite emotional to the point where in my pre-Botox damage days my eyes would fill with tears whenever I felt a twinge of empathy...now I have to bring along my eye drops to a tear-jerker movie...The rare time when the event demanding an emotional response is quite serious and my eyes DO fill with tears, at the back of my mind I am aware that in the midst of this event which has elicited my response, my mind is appreciating the lubrication in spite of my sympathetic reaction to someone else's sorrow.

Well, I wish you all what I wish for myself--moist eyeballs!

Take care all,

Eliza

Your physician is full of it. Forgive my boldness, however the trained physician I had gone to said the same thing, for not beilieving that the the dysport as being the culprit for dry eye. It spreads and paralyzes the nervous system in the body, while it is also a viral poison. I never had any signs of dry eyes whatsoever, etc. Infact, the opposite. I'm a great crier & cry quite easily. I'm not over emotional, I'm just a passionate lady & instantly to zero tears, for almost 2 yrs. now. If you research as much as I have, you'll find out some incredible info. about Dysport. I suggest to READ ALL my posts & of others. There's also another website called patientsville that others have had terrible results.

my god. You poor thing. My tears returned a tiny bit. Enough to cry but then my eyes completely dry out again. It's soo painful. I will keep posted as time goes on.

No tears at all. After the dysport injections, the sudden freeze/loss of tearing to my eyes were also too irritated for the use of Restasis. I had to rely on eye drops for treating the infections. For so many months, time basically just blended together. I'm not a dramatic kind of lady, but was always hanging on by a thread. Never a relief for signs of recovery. I cry miss my tears. Tears are very healthy. Infact, I recall that I use to explain my crying over a movie, & watching the news whiling tearing up with a feeling of empathy for others. And just crying for happiness, or sweet memories in my heart. Then to suddenly, with no warning- zero tears. It hurts in all ways, to imagine it might be, physically, at times like a rubber band has sealed off my eyes connected to my brain with pressure. When I have to cry. Anyway, the treatments for losing my tears, consisted of constantly applying warm packs as instructed & using preservative free eye drops, often about every few minutes to keeping them lubricated. After my retuxin chemo, I was able to wear day & night lenses. For which I'll only wear half a day. They're great & have the aqua oxygen & comfortable, like a shield to protect my eyes. And still the endless use of the eye drops. It's gotten better, yet I still have NO tears. Oh, & I do still cry, quite often, yet they're unable to surface.

It will be 2 years next February and my eyes still have no fluid after botox. I hope one day I get better as I have gone from an incredibly active person to a depressed recluse who now wears goggles to go outside.

Good luck

From my extensive research and personal experience of Dysport. Dry eyes is one of the major common side effects that is reported. I infact, have literally Zero tears since I had dysport injections. I'd never had it before & just a minimum. Now, for almost 2 yrs, I have to use preservative free Refresh single vials eye drops for lubricating my eyes. So very painful with pressure to my head, permanently dry & extremely inconvenient to my eyes, & all of it. I was really athletic, & dealing with such sadness & anger. Be careful for caring of you eyes. I was so gentle with caution in caring for my irritated dry eyes from the very beginning after the dysport injections side effects. The irritation with the dryness went into severe eye infections. I infact, have researched so much in pain & anger because I'm susch a safety nut. I was led to believe how great dysport was & how safe it was. I never had botox or dysport before. Anyway, this one lawyer had posted the full FDA reports about 16 deaths caused from dysport, etc. anyway, here is the link. http://www.fittszehl.com/practice-areas/pharmaceutical-claims/botox-dysport-birth-defects.html. They infact also said that anyone that has had problems to contact them. i'm so upset for the fact, they're statute of limitations is only 6 months! Well, I'm waiting it out for the dysport to wear off [5 months] & went through hell with eye infections. dysport traveling into my lungs & getting severe double pneumonia, & the big one of a rare cancer of my tearducts. I say rare because this cancer is very iunusual for the lacrimal glands /tear ducts. I was in good health, etc. until the injections. READ the article though about 16 deaths reported in 2009 & over 250 reported to the FDA of severe side effects. I'm trying & I will find out about those deaths. And why in the hell these Cosmetic Centers had in 2009 kept quiet about it. While they still are using the dysport, knowing full well that 2 yrs ago all those people died. I plan to be alive for many years to come. However, I'm in remission. And guarantee that this is going to be FULLY EXPOSED.

Is it possible to get dry eyes symptoms when treating excessive sweating?

Wow.. Well, for me it's been 2 months cancer free. Read my story~ I'm still so devastated & have never gone through anything remotely so painfully beyound any words to explain. I still can't even cry to simply move forward in knowing that I may live. I've included a copy of a letter to the doctor that I went to for the dysport injections. The only remote response from her was in the very beginning when I started suffering with NO TEARS, swelling with eye infections, & severe pain, physical, emotional & spiritual, mental, etc. I still can't get past the moment to moment sufferings. ------------- ATTENTION ONLY~ Dr VanderVeer, I've posted this on the review board site. We had discussed by phone in Jan. 2010 my early experience of Dysport & the severity of what I was going through. A year later of experiencing the 247 horror & feeling of death is beyond words. Leading upto on 4/5/2011 my diagnosis of having Malt low grade lymphoma. If I have the ability & strength of suing you or the FDA for the approval on the poison, I absolutely will. Much has been upgraded on your website, etc. in regards to caution about Dysport, etc. Which was not at all brought to the publics attention in 2009. Valerie Casey 07/26/2011 3/10/2011~ 15 months ago I had dysport injections in my forehead & crows feet area from a friendly nurse named Quinby. 2 days later my eyes swoll up so bad, are severly dry, & with zero tears because my tear ducts are totally blocked. My lacrimal glands have swollen with no relief. I look like a monster. I had never had botox or dysport, so I did a lot of research on both products before I decided to have it done. I felt safe with dysport. As I couldn't find any bad reviews on it. Ironically, after my experience at VandaVeer I then started finding bad reviews from others that too had similar experiences with dysport. Btw, a few weeks after my injections I contacted VandaVeer with my devastating alarm. I asked for Quinby & oddly she didn't work there any longer. I was told that she went back into nursing, so I then talked with VandaVeer. My mind & emotions were so down. I just shut down with no confidence & fear with anger. I look like a freak. I use to be a pretty, [not vain], young 56 yr.old woman that had a nice glow. I'm a woman, so naturally I like to look my best. 'Look as good as I feel'.. Just like VandaVeer portrays herself & business in her commercials~ via the media. Having the injections was a Christmas gift to myself for a fresher look. Since that day in her office I have no life outside my apartment. I'm in severe physical & emotional pain. With a lot of mental trauma Every day that goes by I chose to believe that the dysport will wear off. Yet, I'm permanetly damaged. This last year has been devastating. I had been seeing an excellent opthamologist until just a few days ago when he read my catscan that he ordered. I have one of three eye diseases & I'm waiting to hear from several specialists for what is to happen next. I don't know? I've never felt so horrible as I do now. Why did this happened to me? Is it from the dysport or the injection that was given causing me nerve damage? Comments (2) valeriepdx - That's You - 05/24/11 (Delete) 5/24/2011 I just finished with all chemo treatments that ironically, only in my tearducts that I have malt low grade lymphoma. The extreme swelling in the upper eyelids have gone back to normal. However, the pain is still extreme with still no tearing. My eyes are completely dry & appears to be permanently damaged. I've never experienced anything at all like this. I'm beyond being overwhelmed. I have a few good years left & I'm frozen with depression & pain. valeriepdx - That's You - 07/26/11 (Delete) July 26, 2011 I have very much a deep emptiness in my soul & fighting depression. It's difficult for me to trust people anymore, or to have faith. I persevered for so many years as being athletic & going to school. However, this cancer ordeal has left me in a strange place in my whole being, for which I've never been before. People often say about such situations or experiences to be thankful & to compare with others misfortune. None can imagine what I've been through & the tortured painful suffering. My doctor's final words during my last catskan checkup was to advise me to not have the dysport injections again. He & many of his staff had commented that it was very uncommon to have malt lowgrade lymphoma in the tearducts as I do. He also had never heard of such an experience as what I had gone through. What do I do about this? I'm struggling & having a difficult time in regaining strength.. I keep trying to move forward & to regain my esteem, hoping for a new life. My eyes have improved incredibly. I still can't tear, whatsoever. It hurts me emotionally, mentally, physically & financially. I've lost my motivation & joy for personal achieving & in being my optimistic myself. I've always believed in having a positive self image & to not make poor choices for drawing a negative or humiliating attention to myself. I normally & cautiously avoid such energies. I feel personally robbed & fearful about what to expect next. This cancer is in remission, yet why should I even have had it, & will it come back? Doctor VanderVeer has very much upgraded her website since my visit in her office & having the dysport treatments. Infact, she's really added alot of positive upgrades to her website. Quinby the nurse that gave me the injections no longer works for the center. Why did this happen to me? I just hope & pray that no one else will ever go through what I did. Which was either from the Dysport & or the injections triggering nerve damage which caused zero tear production with extreme infections to 'BOTH EYES'. ------------------------------- I'm cancer free today, however, still no tears & dealing with extreme of dryness. It's been 2 yrs in Dec. 2011. I never had dry eyes before. I never had cancer in my tearducts before. Which btw is a very unusual area to even have Malt lymphoma.. Help! If we could pull together for the FDA & the doctors we should sue them for everything they have. I did so much research before getting dysport. Which was December 2009 & only great reviews were said about the product. Oddly, when I contacted & made my initial complaint to Dr. VanderVeer suddenly she had upgraded her website with nothing but possible side effects, & had extended her media ads to very much elaborate her expertiese with beautiful results & so forth. She ignored my letter to her about suffering with cancer that was from either her nurse or from the dysport. I'm suffering from fatigue & struggling just to keep up with all my eye drops that my insurance does not cover.

I waited until the dysport was completedly done just by waiting until all my forehead lines reappeared. Then went back to Botox. My vision is just blurry for very upclose reading which I explected as both parents and sister wear glasses. BUT after Dysport, I had double vision, and focusing issues. Think my vision is taking a normal course now with age.

3/10/2011~ 15 months ago I had dysport injections in my forehead & crows feet area from a friendly nurse named Quinby. 2 days later my eyes swoll up so bad, are severly dry, & with zero tears because my tear ducts are totally blocked. My lacrimal glands have swollen with no relief. I look like a monster. I had never had botox or dysport, so I did a lot of research on both products before I decided to have it done. I felt safe with dysport. As I couldn't find any bad reviews on it. Ironically, after my experience at VandaVeer I then started finding bad reviews from others that too had similar experiences with dysport. Btw, a few weeks after my injections I contacted VandaVeer with my devastating alarm. I asked for Quinby & oddly she didn't work there any longer. I was told that she went back into nursing, so I then talked with VandaVeer. My mind & emotions were so down. I just shut down with no confidence & fear with anger. I look like a freak. I use to be a pretty, [not vain], young 56 yr.old woman that had a nice glow. I'm a woman, so naturally I like to look my best. 'Look as good as I feel'.. Just like VandaVeer portrays herself & business in her commercials~ via the media. Having the injections was a Christmas gift to myself for a fresher look. Since that day in her office I have no life outside my apartment. I'm in severe physical & emotional pain. With a lot of mental trauma Every day that goes by I chose to believe that the dysport will wear off. Yet, I'm permanebtly damaged. This last year has been devastating. I had been seeing an excellent opthamologist until just a few days ago when he read my catscan that he ordered. I have one of three eye diseases & I'm waiting to hear from several specialists for what is to happen next. I don't know? I've never felt so horrible as I do now. Why did this happened to me? Is it from the dysport or the injection that was given causing me nerve damage? 5/24/2011 I just finished with all chemo treatments that ironically, only in my tearducts that I have malt low grage lymphoma. The extreme swelling in the upper eyelids have gone back to normal. However, the pain is still extreme with still no tearing. My eyes are completely dry & appears to be permanently damaged. I've never experienced anything at all like this. I'm beyond being overwhelmed. I have a few good years left & I'm frozen with depression & pain. 6/12/2011 I'm now taking Restasis again, had plugs inserted in both tearducts, & using Refresh plus preservative free [in the vials]. I've been through the worse hell I've ever gone through, with so many losses. Whats a mind blower is I have incureable Malt lowgrade lymphoma cancer in my tearducts. The great thing is that just a few days ago my eyes started to show promise in healing. I'm not needing to insert many eye drops as often. I can comfortably wear my lenses. They actually act as a sheild against the air keeps my eyes moisturized. I've not a clue what is before me as far as the cancer from my tearducts spreading or when this will happen. I hope I'll forever be in remission. What a feeling this is. I feel tortured & extremely sad with anger. There's no doubt that my serious injury was caused from my doctors visit on 12/18/09. My mind has at times pushed me over the top, yet I'm quite aware with precise. I've continue to research others that have experienced similar cases. I more than ever value my life & others with this similar experience. I've been traumatized & cannot even cry. It's been for 1 1/2 years of suffering in extremes. I'm a crier & passionate woman. I sob deeply & feel crazed & caged within my pain not tearing. The pain is insane at times in all ways. I'm reaching out for mutual support to everyone that has also suffered by the means of Dysport & into filing a major lawsuit with a qualified lawyer. Please contact me ASAP & let me know what you want to do with additional direction. thankyou..

It's been almost 13 months since I had the botox that set off the awful dry eye. I stopped taking the B12 a long time ago because I started getting heart palpitations (not sure if there was a connection, but I was taking really high dosages so I thought I'd best taper off regardless...). Anyway, I've been using hot moist compresses in conjunction with baby-shampoo scrubs. Plus taking rastasis. My moisture level is 4/5 with 5 being normal. It has improved since this time last year, a bit. So you can imagine what it was like then. I'm hoping things will be normal by next year, cross my thumbs:)