Dysport: Stories

You can perhaps shoot an email to "Truth and Awareness" on this chat board as she is about 8 months post-injection and from what I know is still having eye issues.

I would like to make an adjustment to my previous posting. In my posting it may appear to the reader that I got Dysport at an urgent care. I did not. I got it at a laser clinic.

Hi Amanda. So sorry that you are suffering as well. Send me an email with your contact information and I will add you to a list of individuals that I have compiled that have been affected. We have formed somewhat of a "support" group of people who have suffered these horrible and debilitating symptoms. I feel your pain. I am 8 months post-injection of Dysport and am still having issues.....mostly with the head pressure and ear problems. The rest of the symptoms for me are intermittent and less severe. There are a couple of women in our chat group who are about a year post injection and are doing much better. So there is hope for all of us.

I am so sorry that you are going through this nightmare! I as well believed that I was going to die, I have all the symptoms that you have plus having awful and prolonged allergic reactions to things that never bothered me before and have broken out in hives and welts for no reason. BECAREFUL IF YOU ARE PRESCRIBED PREDNISONE, YOU MAY HAVE A BAD REACTION TO IT, I did, and I carry an epi pen with me at all times should I have a reaction to something, one of the side effects of the dysport is that you can experience severe and prolonged allergic reactions to things that you would normally not have a bad reaction to. Ask your dr for an epi pen just in case and keep it with you at all times! I am 4 months (almost 5) post injection and am just starting to feel like I can somewhat breathe normally again. What a horrific ordeal, I have become a different person because of this experience. Just know that you will get better in TIME there is no anti serum for the dysport. Only time will get you better, and yes, it does come and go in waves of severity, just know that when it hits hard that you will get through it although it feels like you are going to experience sudden death at times. You won't though, it just feels like it, and I as well have been told that it's "anxiety attacks" well that is bs and don't let anybody tell you that, it's the dysport travelling through and affecting different parts of your body and the symptoms are real and they are happening to you and don't let anybody tell you different or treat you like a mental patient. Again I am sorry for you, I will be thinking of you through your ordeal, just know that you will get better in time, there will be days in which you feel you cannot get out of bed, when that happens just try to rest as much as you can so your body can metabolize this awful drug! I had all the symptoms that you have plus a few more and did not think I was going to survive the first 2 months of it honestly I prepared to die because I totally thought that's what was going to happen, just know you do not have enough of the toxin in your body to end your life and that you will get better, sad to say though, you will just have to wait it out, xanax helped me through. I had my injection on August 1st, symptoms slammed over me on August 8th and I am JUST NOW starting to feel like a human being again but still weak and tired often. Please feel free to contact me in a private messege at maj74@rcn.com and put "dysport" in the subject line and I will be a support system for you through this because it is unlike any sickness anybody has ever experienced and it helps to be in contact with somebody who knows EXACTLY what you are going through. Will be thinking of you! MissMissy

I'm in day 2 of the steriods and feeling pretty funky! I will give it one more day, I also have an epi pen should something go wrong.

THis should be close to the end as far as it getting worse. It should start to improve RIGHT now according to everything I have read. HANG IN THERE. I am right with you and it takes all I have, but we will survive!

HI Soloist,

I am so sorry to hear you are still not "NORMAL". Doesn't it make you want to crazy? I am at week nine. the last two weeks have been so scary. My symptoms definitely peeked. I am hoping they start to lessen. I just got back from an MRI. I am pretty sure it will show noting, because this ugly drug hides itself in the brain matter, with no obvious sign for MD's to see. If it wasn't for Xanax, I would have wound up in the ER at least at a few times with full blown panic attacks. I have the most depressing thoughts because this just WON'T go away. I have lost my entire Fall season to this hideous drug.
I hope you are hanging in there,

katy

Yes, the symptoms do seem to somewhat subside then slam over you again, and don't let them tell you in the er that you are having anxiety / panic attacks, your sympoms are REAL, not panic attacks, I was told that bs in the er as well, I am in week 12 post injection, 5 er visits, countless dr visits, and one hospitalization later and I was just tested a few days to detect the spreading of the 60 units of dysport that I was injected with on September 1st. Keep your spirits up, it's really all you can do to get through this nightmare! Best of luck to you!

I am almost in week 12, symptoms are not letting up, can barely work, feel horrible all the time, still having trouble breathing. I am in Pennsylvania. Had the injection on sept 1st and the symptoms started suddenly on september 9th, sent me right to the er!

I'm in pennsylvania, I am in week 12 and still no better and now I am breaking out in weird rashes, welts, and hives, my skin is burning and itchy 24 hours a day and showering has become painful. I can breathe a bit better, a bit less brain fogged, vertigo is all but gone, still have the head pressure, ear pressure and ringing in my ears so loud I can't hear myself think. The full body weakness is lifting but I am by now means able to work a full time job yet. Feeling really hopelss!

I am in week 12 of this hell, the reaction to the dypsort slammed over me 8 days post injection, but the reaction can take up to weeks to occur depending if the toxin spreads or not. Now the total is 5 emergency room visits, a two day hospitalization, 30 some blood tests, and was tested for botulism today, will have the results in a few days.

There's pretty much nothing you can do, I have heard of an anti toxin shot you can get but it will not undo anything that is already happening, sort of like an anti snake venom shot, but has to be given before the reactions start. I would ask your dr for an epi pen in case of allergic reactions occur because you can experience severe allergic reactions to pretty much anything while the dysport is in your body. I am in week 12 and still no better and now I am breaking out in weird rashes, welts, and hives, my skin is burning and itchy 24 hours a day and showering has become painful. I can breathe a bit better, a bit less brain fogged, vertigo is all but gone, still have the head pressure, ear pressure and ringing in my ears so loud I can't hear myself think. The full body weakness is lifting but I am by now means able to work a full time job yet. Feeling really hopelss!

Yes, the anxiety and insomnia remain a problem for me even 12 weeks post injection :( Get as much rest as you can, drink lots of water and eat detoxifying foods, the best peice of advice I can give you though is to keep your spirits up because there's almost nothing that can be done for this except to wait it out. Read my original postings, the horrors I have been through are totally not worth having a smooth forehead! Best of luck to you!

The anti toxin only works if you get it before the onset of the symptoms, sorry, this is something you'll have to wait out, everybody is different, I am in week 12 post injection and still feeling terrible but stay postive, there are pple on here that only suffered for as little as 2 weeks so you may clear up quicker than I, hopefully! BEst of luck to you, keep your spirits up, that is very important!

are you still feeling sick? I had injections on September 13th and I still have headaches,neck aches, dizzy and foggy head. REALLY tired of this!!

Yes, I feel better now. Mine only lasted 4 weeks and has not returned. I hope yours will go away very soon.