Photodynamic Therapy: Stories

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Photodynamic Therapy - Oregon

I Had Photodynamic Therapy to treat my preskin...

I Had Photodynamic Therapy to treat my preskin cancerous cells on the surface of my skin. I also suffer from Rosecea and sun damage and some acne.

My face was cleaned with some alcohol and then Levulan. It tingled but was not painful. I sat with it on my face for 1 hour then sat with a light for 16 minutes. Today is my first day and feel like I got a sunburn but so far it’s not painful.

Day 2 I was very red and itchy I started to...

Day 2

I was very red and itchy I started to notice small bumps forming on my forehead and spreading quickly to other areas of my face.

Day 3

I had to stop by my the dermatologist office because the itching was getting to extreme. They told me I had developed an allergic reaction to what they believe was the topicals they had given me after my PDT treatment.
I started on a topical hydrocortisone cream and the redness and bumps are much better but still a little itchy.

Day 4

A few breakouts and the redness is getting better. I started to peel and my forehead still has bumps and is raised I’m hoping the allergic reaction I had doesn’t affect the results.

I was doing much better on day 5 and 6 my allergic...

I was doing much better on day 5 and 6 my allergic reaction was due to face products that I was given after and not the Photodynamic Therapy. I will add a new picture soon.

Sorry it took this long to post my final pic but I...

Sorry it took this long to post my final pic but I have been very busy. Here is my final picture. I have noticed that my skin is more even in color and there are less brown spots then before. Like I said the main reason I did Photodynamic therapy was to treat my pre-cancerous cells. I will be going back for a second treatment in a few weeks and will keep you post on my results.

I will finally be having my second Photodynamic...

I will finally be having my second Photodynamic Therapy this friday. I will be posting new photos once again soon.

Day 1 Second Treatment Ok so here I go again....

Day 1 Second Treatment
Ok so here I go again. This is my second treatment and boy o boy was this one way worst then the first. I think you can tell by how much redder my face was the second time around. This treatment was left on for 2 hours compared to the first treatment which was only left on for 1 hour. The burning during treatment was much worse then the first as well.

Day 2 treatment 2 Second day the itching is...

Day 2 treatment 2
Second day the itching is starting to kick in as my skin is trying to heal. I also have broke out on my chin area but I think this happened on my first as well as I’m sure my skin is probably purging.

Day 3 Treatment 2 O my....Well I think I’m...

Day 3 Treatment 2
O my....Well I think I’m allergic to the levulan! I had this happen the first time around but I was told it was probably the topical wash and lotion that was causing my reaction. This is day 3 and I developed a rash all over my face and my face started to swell even more. I had to go see a doctor and was put on oral steroids and oral antihistamine. It’s been about 8 hours since I started the steroids and I’m starting to feel better. If you look back at my fist treatment this is the same exact thing that happened on day 3 but this time being the levulan was left on longer the reaction was much worse. You can’t really see the tiny red bumps all over my face because my face is so read. I was lucky when I went to see a doctor because I didn’t have to wait at all they called me back right away before everyone else and got me started on meds. You can see the swelling in my face compared to the day before.

Day 4 Second Treatment So the rash is gone thanks...

Day 4 Second Treatment
So the rash is gone thanks to the steroid, it’s funny how fast that stops once a steroid is started. My face is so tight and after my shower the peeling is starting. I did not peel like this the first time around so I’m unsure if that is a good thing or bad thing. Let me know if any of you peeled like this :-(

Day 5 My face was peeling like crazy today. I...

Day 5
My face was peeling like crazy today. I posted pictures for you to see and after my shower I had a lot of skin that shed off but I have much more to go from the looks of it. My forehead as not begun to peel yet but it’s usually the last to peel.

Day 6 Treatment 2 This treatment is going to...

Day 6 Treatment 2
This treatment is going to take much more time to heal then the first. So for those of you who are working and don’t have time off from work beware. I would say the first treatment took about a week to heal completely and this one may take a week and half to 2 weeks to heal completely...

6/25/2012 Sorry it took me a little longer for...

6/25/2012

Sorry it took me a little longer for the final pic I have been busy. It took about 9 to 10 days for most of the peeling to finish and redness to calm down. The final pic here is the final result with no makeup on. Any redness you see is due to Rosacea and not the Photodynamic therapy itself. I really dislike the down time but if it helps with my problems then it’s worth it. What do you all think?

10-6-2012 I will soon be going for my 3rd...

10-6-2012
I will soon be going for my 3rd treatment. Not looking forward to the pain but if I get the same results as before or more it’s all worth it.

This is my 4th Treatment for my face and my last....

This is my 4th Treatment for my face and my last. I will be starting my chest soon and that will be 4 more treatments. I don’t know why I think I always look so much more red then others posts :-(

Sorry about not updating I have been spending my...

Sorry about not updating I have been spending my time with a terminally ill family member. I am still peeling a little on my forehead and nose but it’s almost gone now. I was just diagnosed with Basal-cell carcinoma Cancer on my foot so I will be having more skin removed off of my foot soon. I will be starting the Photodynamic Therapy next for my chest and staying out of the sun for good. :-(
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Comments (28)

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Angel Eyes 13 May 2013
How are you doing?
Jenniferzz 15 May 2013
Doing ok had a family emergency so I was unable to post updates. I will add some updates soon.
oneheart5037 9 May 2013
can u wear makeup while doing the procedures?
Jenniferzz 15 May 2013
No
gaylene 5 Dec 2012
Did the photodynamic treatment not clear the rosacea?
Jenniferzz 15 May 2013
It helped a lot but I still get a little pink.
Jenniferzz 6 Oct 2012
Happy to hear that. My second treatment was more painful then the first but in the end the results make the pain worth it.
Mroreo 7 Sep 2012
Hi Jennifer- Thanks for posting everything! Looks very scary- but you look beautiful in the end! I am going for my Levulan treatment next Friday. I am a nurse, so I hope I don't scare the hell out of my patients on Day 4!
Jenniferzz 15 May 2013
Thank You!
Hpop 2 Sep 2012
Thanks to everyone for sharing their experiences. I had Blue Light Therapy for the first time 5 weeks ago. My skin was back to normal in 5 days. Now 4 days after second treatment parts of my face like entire right side are back to normal complextion but my chin and left side of face except for some small areas are very red and dry. Does anyone know if this is normal? Can anything be done for the redness? Im starting to panic.
Leatrice 2 Aug 2012

Because my skin was so sensitive, the apolicatipn of the PDT cream was very painful, I'm not going to lie. And my skin was red for three days, many areas of my face were blistered for 4-5 days, and my face was very dry. But after that when the swollen skin went down, the dryness went away, and the redness went away. WOW, totally f***ing worth it. Sorry for swearing, but this was the best decision for my skin I have ever made in my entire life. $450 is an easy pricetag to live with.

Liiz 15 Aug 2012

Leatrice,
I just got the levulan treatment and I have incredibly sensitive fair skin. My face is really red and I was just wondering how long it took for the redness to go away for you and what topical lotions I should use. I've been using aloe, desonate gel, hydrocortisone anti-itch cream, and cerave lotion. Should I try to hold off on these to allow more peeling?

Megan P (Community Manager) 26 Jun 2012

Thank you so much for posting the after picture - your skin looks amazing! I would love to have mine look that good without makeup!! So glad you found a treatment that works so well for you. :)

Please keep us posted how long the results last for you. I'd love to know!

Angel Eyes 16 Jun 2012
I'm down for PDT next month and agree it's great to see your photos. Thank you for posting them.
Jenniferzz 25 Jun 2012
Your welcome ;-)
Megan P (Community Manager) 8 Jun 2012

Jenniferzz, just want you to know that I absolutely love the pictures you have been posting. It is so helpful to really see what the skin is looking like, and you have been taking great shots so we can really see it. Thank you so much!! Hoping the healing continues to go well for you. I'm looking forward to hearing. :)

Jenniferzz 5 Jun 2012
O pgoody you would have to upload the pic onto your profile I think, I don’t think there is a way to upload it here unless you send it to my email and I upload it.
Megan P (Community Manager) 5 Jun 2012

You are absolutely right Jenniferzz! Pgoody, thanks for being willing to share a picture of the hat you fashioned - very creative, and I'm sure you will inspire many others to do something similar. :)

pgoody 6 Jun 2012
I posted it as my profile picture, just click on it and I think it will enlarge well enough to get the idea.
Jenniferzz 6 Jun 2012
I see it now Pgoody, thank you for sharing. I will be purchasing a hat this year to wear while outside. I also just purchased some new sunscreen today :-) I was told to stay inside for the first 48 hours so I did. I really haven’t been out of the house much only to pick up some necessities at the store.
pgoody 5 Jun 2012
How do I upload a photo to this site? I rigged up a tinted film to a sun hat.... worked great. I was able to water my garden and rode in the car without worry of to much sun getting to my face. I also used the shield over the screen of my laptop so I could use it without direct glare on my face.
Jenniferzz 5 Jun 2012
Look below. I Keep posting it below and forgetting to hit reply.
Jenniferzz 4 Jun 2012
Pgoody I don’t see the message about the hat? I would like to see it please send it to me again if you can.
Jenniferzz 2 Jun 2012
Hi Marje,
I’m doing ok, thanks for asking. It’s day 2 and I’m getting pretty itchy now. I will look in my email and check for your message, sorry for not replying.
Jennifer
pgoody 4 Jun 2012
I had the same reaction as your hubby. Do you think we got any benefit from such a weak reaction? I sent you an email about a hat I rigged up that others might want to try. Not sure how to post it so others can see.

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