POSTED UNDER Botox for Migraines REVIEWS
Absolutely NOT Worth It - 100 units of Botox for treatment of chronic migraines
ORIGINAL POST
Long-term side effects
$1,500
I was given approx 100 units of Botox for treatment of chronic migraines. I was not warned in advance about any potential long term side effects. Within 24 hours I had the worst headache of my life. I thought I was literally going to die. The headache decreased a small amount daily but in crept anxiety, depression, nightmares and a strange feeling of disassociation. I lost my job and my marriage suffered as well. Oh, and my migraines are meaner than ever. Summary: if u want to try Botox for any reason, learn from my mistake and don't take the risk. I eventually recovered, others have not been so lucky.
Jennay Gump's provider
Replies (46)
June 29, 2011
LOL...your second pic is hilarious, i thought about getting botox for my 31st...i have those damn 11's that make me look angry all the time, im not but then someone ask and it makes me annoyed, and hence i get angry...I also thought it would be good as i have heard it does wonders for migraines ( i have had them since i was 6 years old) but now im not so sure...:(
August 25, 2011
omg you sound like me!!! 11s, migraines since 6yrs old, i thought i was the youngest! anyway, i had a consultation today & WAS going to go for it full steam ahead, but i am absolutely mortified reading all this here. i was not confused before, now i am! :)
July 31, 2013
There is NOTHING I having tried in the past 39 years of having Chronic Cluster/Migraines. I do not recomment Botox... it is a poison and if it gets into your system like it did me... no telling what it will do. God Bless.
November 12, 2013
This is absolutely true! I was poisoned over 3 years ago and will NEVER get better! It causes permanent damage to muscles, the cns, and a myriad of other systems!
July 7, 2011
I know what you man about pain. I am waiting on an answer to my question now. (only asked it yesterday) Got the injections in my neck and in one week the pain started in my neck and then traveled down my back. It has now settled in my left shoulder. I think it is the worst I have ever had. Muscle pain + burning + numbness. I know it is brought on by my computer work, when I get home it goes away about 95%.
I hope it wears off.
I hope it wears off.
July 31, 2013
It won't wear off for at least 3 monrha. I had injections all over my head, neck and shoulders.. within a few days I couldn't lift my arms. I was flat on my back for 4 months. God Bless. There is no antidote... believe me, I researched it.
July 31, 2013
That was two years ago and it still has not worn off. (I am sure the botox has worn off but it has done permanent damage to something) Any lawyers out there?
August 4, 2011
Ok Botox what do we do my wife has had several back surgeries and so she is on pain med (oxycotin) well to make my story short she went to the dentist for dental work he mentioned Botox for migrains she had him give botox treatment and now she is completely lost we as a family dont know what to do as the Hospitals think its the drugs but she was fine till the day of botox injection she complains about her head hurting when we can get her to talk and she keeps running a high fever I am going to take her back to hospital but they are not helping is there anyone that can help us that really knows she has never been like this and we dont know where to go.
July 31, 2013
Please find out the manufacturer of the Botox and call them. Let the people in the ER know that she has had Botox and that there are pages of side effects. I went to one of the best Heart Doctors in the country and he said it was definately due to the botox injections. Go on line and pull up the drug reaction sheet for Allergan Botox, you will be amazed. God Bless
November 12, 2013
I got sick from Botox too and never recovered, it has been 3 years..............it is a permanent poisoning of the body!
August 4, 2011
What is a dentist doing giving botox? Who next a chiropractor? Even the neuroligist who gave me the injections did not expect the pain I am having. I had to give her the idea that gabapentin might stop the reaction from the botox side affect. I am at 600mg three times a day now. It works about 75% to block the nerves from telling the brain that there is pain.
One amusing side affect from this med. About 3 hours after taking each dose I get a slight euphoric feeling and what might make me angry I just ignore.
One amusing side affect from this med. About 3 hours after taking each dose I get a slight euphoric feeling and what might make me angry I just ignore.
July 31, 2013
No more side effects. still taking gabapentin after two years. if i miss one dose my shoulder "reminds" me. If I miss two I actually get slightly depressed. Is gaba an antidepressant too?
I see most of the remarks are from people who have migranes. My problem is fibromyalgia and one muscle in my neck. When it knots up I get a headache on the outside of my head. The bigger the knot the worse the pain. That is under control most of the time using excederin or a muscle pain cream.
August 2, 2013
The biggest side effect with using Gabapentin is weight gain, but a drug of this nature can cause depression on withdrawl. I tried it but did not like the side effects. God Bless you
May 20, 2015
It's a mood stabilizer. I'm already on 2400 mg of it for a traumatic brain injury and I have not had a day without a headache. What medications/ procedures other than this do you suggest
UPDATED FROM Jennay Gump
Not Worth the potential permanent side effects
As I stated above, my condition improved over time. After I lost my job and a large part of my quality of life. Yes the worst headache of my life went away but now I realize that long term effects set in and I have never been the same. I have never been well enough to work again. I began to have systemic neurological issues including but not limited to, vertigo, Meinere's Disease, hearing loss, tinnitus, complete hearing loss in my left ear, neuropathy, neuralgia, light sensitivity all the time, visual disturbances, double vision in one eye, Myalgic Encephalomyelitis, chronic pain that is unbearable at times, heat sensitivity, heat intolerance, mysterious flaming hot skin rashes that doctors cannot identify and so much more. If I could go back in time and not have botox shots I would. Botox tool a great deal of my life away.
Replies (5)
April 5, 2018
I am dealing with similar issues. The manufacturer and my doctor said there was no long term effects but it’s been 5 months since I had my last injection and I am still suffering. When was the last time you had Botox?
June 5, 2018
I have seizures and I'm on medicine but haven't had any in a few years. I've thought about getting botox for the longest time now I don't know if it's a good idea. I'm suppose to see a neurologist in a few weeks who specialize in them. What else have you done besides the injections for pain?
April 30, 2018
You mentioned flaming hot skin rashes ...
Is there any swelling involved? Possibly with the appearance of red dotting on the inflamed tissue?
If so, have your doctor look into RSD (formerly known as CRPS). I developed this after a cervical surgery, but it took almost a year to diagnose. I ended up having to travel to the Mayo Clinic for a series of tests before diagnosis was confirmed.
A lot of mainstream docs, even the neurologists, seem to forget about this disorder which is both neurological and autoimmune.
Is there any swelling involved? Possibly with the appearance of red dotting on the inflamed tissue?
If so, have your doctor look into RSD (formerly known as CRPS). I developed this after a cervical surgery, but it took almost a year to diagnose. I ended up having to travel to the Mayo Clinic for a series of tests before diagnosis was confirmed.
A lot of mainstream docs, even the neurologists, seem to forget about this disorder which is both neurological and autoimmune.
June 19, 2018
I cannot imagine what you've gone through. My side effects are beginning to fade after two months but am still dizzy, unsteady, ear pain, neck stiffness, rash on my chest, insomnia and weak neck muscles. The neurologist is baffled and said this is "uncommon" but reading all these posts make me realize that we are being duped into believing that botox is safe. I would love to tur back the clock to last Friday 13th. A bad day for my life. No more botox EVER.
October 10, 2018
I hope you are feeling better and do not suffer any permanent deficits, as many of us have.
Hi Jennay,
I'm so glad you decided to write a review, as active as you are in the forums your info is equally as important and useful as a review. Also, it's great you are finally feeling better and the Botox has worn off. Your pictures are funny, and you are right having a sense of humor is all you can do in times like this. ;) Please keep us updated and stay and active part of the community.
Thanks so much for your review and enjoy your weekend!
-Britt
Thanks Jennay,
We like to hear that. I'm so glad the community has been so helpful to you and in return you to it. Thanks!
-Britt