Multiple Lipomas Removed but More Painful Ones Now Growing - and New Problems Too

Hi, I'm a 32 year old male, athletic build and...

Hi, I'm a 32 year old male, athletic build and never been obese or had weight problem. I have had multiple lipomas removed, more than 80+, over three operations. In 2005, I had two operations to remove them from my arms.

By late 2008, I had to have 60 lipomas removed as a number of them were quite painful and they had regrown on my arms (mostly in nearby places from where they had grown last), but there were 30 in my back (a number over my spine, most of them in the back were extremely painful), up to 20 on my abdomen and chest, the rest were in my legs (thighs/hamstring area), buttocks and on the ribs. I've since felt awkward about my body, primarily because of the huge number of scars!

Now, just over 14 months later, atleast another 20 have regrown - new 'lipomas' are cropping up all the time (some are extremely painful to the touch, but not always rounded), depressingly many of them are in the same place as where others were removed & in some places where one was removed 3 or 4 have grown next to each other, some are even becoming more and more painful and are already the size of golfballs (5cm)! I'm also finding that I'm going to the toilet a lot more, to pee mostly, but often I find I get shooting pains in my bowel (if I don't go regularly, usually at least 5 times). My sleeping pattern is irregular, I don't get much of it. I feel sick and at times I vomit :(

To top it off, my knees are getting more and more weaker and painful too ... But at NO point during all these years have I had a biopsy nor an internal scan! My doctor keeps saying it's just multiple lipomas and not to worry but he isn't a specialist.

The procedures done have been under general anaesthetic as numerous lipomas have been removed each time. However, I don't know for sure if it is multiple lipomas as now I have more and they're painful. I also have additional problems now, pain in my knee joints, problems sleeping, occasionally feel like vomiting, also the new lipomas are not always round shaped and I get more and more every month!

Nobody else in my family, sisters, cousins, parents, grandparents nor next generation after me have/had it, only me :( ... So it can't be Familial Multiple Limpomas, can it? I'm awfully concerned it could be much worse, Dercum's or Ander's Disease or worse still, liposarcoma perhaps - and I'm really scared about it.... When I was 26 I had an undescended testicle (from birth) removed - could that be related? PLEASE HELP ME SOMEONE!!! I don't want to die :( ... Thanks in advance!
Name not provided

I think it could be misdiagnosed as my doctor isn't a specialist, just a General Practitioner (GP)

Was this review helpful? 1 other found this helpful