2nd January - Ireland, IE

Hi all i had my mohs procedure just over 3 weeks...

Hi all i had my mohs procedure just over 3 weeks ago ' i guess it felt a lot more traumtic than what id expected ' bring awake in small threatre with consultant & 4 other members of staff ' i just didnt expect b so busy one holdong my head pulling my nose & hearing them talking about the cancer " i guess thats where the problem lies i never wanted face i had dkin csncer " i kept mysrlf busy eith my kids & then b lying there hearing them talking sbout how far the cancer had spreadwas like a slap in the face " mesn time my bp kept dropping which made me feel unwell ' next day i had reconstruction cheek skin flap " again didnt realise id look how i looked i felt devasted ' im now 3half weeks on hsve had many down days but they are getting much less i just feel so self concious re skin flap scars etc dnt want go out

mohs nose

Thos moring (5 weeks on )my scar feels itchy very thick although hard see in pic

1st day making effort wear eye make up again

Well today i decided to use make up again make effort " feeling disheartened feel draws attention scar just dnt look like how i used to ' :(

1st day make up after mohs & reconstruction

Well feeling disheartened today i decided even wear eye make make effort feel it draws more attentiom to my scars ' just dnt look how i used to :(

christmas

week 6

Feeling lot better within myself lot more energy ' enjoyed christmas with my 3 wee children but still struggling feeling self conscious: should it still b as noticable at this stage or am I expecting to much??

Another lump b removed & biopsed

So I had my check up after having mohs & skin flap 12 weeks ago ' I have a little lump under my skin flap ' my dr has said it may not necessarily b a skin cancer but she wants renove by scraping it if she can or she will have to go deeper & do a biopsy ' is this mohs again??? Feeling gutted :(
dr dolan

My consultant ' plastic surgeon were & continue to b amazing

5 out of 5 stars Overall rating
5 out of 5 stars Doctor's bedside manner
5 out of 5 stars Answered my questions
5 out of 5 stars After care follow-up
4 out of 5 stars Time spent with me
2 out of 5 stars Phone or email responsiveness
5 out of 5 stars Staff professionalism & courtesy
2 out of 5 stars Wait times
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Hi there -- Just checking in to see how you're doing now. How was your biopsy? Hope you're okay. *hugs*
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Hi there thanku so much Sharon for being soo thoughtful ' it's was a cyst with lot scaring tissue ' lot tingling down side face headaches moe dnt know what's going on xx
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Hi here thanku soo much for being so thoughtful ' it was a cyst with lot scaring tissue so they removed ' my skin flap actually swollen today tingling down side face etc
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So glad your new lump wasn't cancer! I am awaiting results of biopsy of lump under my scar as well. It is scary wgat we are going thru. All the best to you. Your original story gave me courage for my moh's surgery in January ♡
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Apparently it happems quite a lot that lumps can develop ' iy csn b caused by trauma & thickening scar tissue under scar ' I hope this helps please let me know how u get on xxx
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How did your biopsy go on second lump @moh's nose? I had surgery like yours January 23 2014. I just had another biopsy on chest and several aks frozen off on face. I am awaiting results from March 20 biopsy. Plastic surgeon charged $28,000 for flap surgery! !!!! I do not want to go thru anymore of that! Good luck to you.
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Had Mohs procedure on my ankle Jan 16, 2014... Still can't walk :(. Still hurts. Stitches removed last Wed, 3 weeks after the surgery, had no idea I would still be hurting & unable to walk... Tried before a week to walk.. Disaster .. Swelled up.. Hurts to sleep. Keep hoping for recovery.. Try to walk because people tell me I should be able to... This is terrible :(
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Everyone here seems to have had surgery on face, nose, ears.. Anybody on ankle? They originally said I would be out of work 2 weeks... Going on 5 weeks :(, would've list my job.
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Hi rhonda500 sorry only saw your comments there ' how is your ankle now ? Was it a bcc u had on your ankle? Xxx
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:(. Sitting here with ice pack on it now.. Been trying to walk Oh boy. Yes on ankle is no fun
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Hello just came across this/these postings and i can realte a lot to them. I had BCC last year on my nose...tiny bump looked nothing. had it biopsied and i thought that was it, only to find out it had not all been removed and requied further treatment. I naively assumed it would just need a bit more treatment similar to the biopsy...wrong!!!When i saw the dermatologist i was told it was very large and extensive and I needed it operating on ASAP. This was a friday and I had it operated on the following wednesday, so all a bit scary! I had MOHS surgery with skin flap reconstruction, it was apparantly very deep right down to the cartilage and extensive but luckily it hadn't extended as far up my nose as they had thought (which was lucky as the scar starts right up the top of my nose by my eye). I had about a month off work and was initially very self conscious. It was also quite a scary thing overall, I'd never been a sun bather at all, and just assumed that all BCC's were removed very simply with a biopsy and that was it....I had no idea they could be so extensive and require such surgery/ reconstruction. Anyway, I just wanted to say that I'm now 6 months on, the scar has healed really well. Im still massaging it daily, but it is still pretty numb/spongy feeling. My nostril inside is still quite swollen and very hard, but it is getting better. Good luck to everybody out there. MOHS surgery can sound daunting, but it does get rid of the cancer which is the most important thing. Stay positive each day gets better and the scars will settle down.
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Violetruby, this sounds a lot like my experience. I had the first surgery in March for a bcc. That surgery did not get all of it and I was sent for a mohs procedure. It was at the top of my nose close to my eye. The lab revealed it was morphoeic with perineural invasion. I also requested that she look at what I thought was a large pore that had been there for many years. It also came back as morphoeic basil cell carcinoma, although not as invasive as the other. The first tumor was to the bone, so she scrapped as much off as she could. The holes were too large to close so I was referred to a plastic surgeon for reconstruction. After two reconstructions I am now in my first week of 6 weeks of radiation to kill the remaining cancer cells left in the nerves. It has been a frightening journey. My face is looking better, but right now my biggest concern is getting rid of the rest of the cancer.
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Hi..I had MOHS on the side of my nose on November 18th and I still have swelling and numbness and pain. Not to mention my nostril is almost closed. I have talked to my dermatologist/ MOHS surgeon and he said we have to wait and see, as it can take up to a year. Meanwhile, much like you, I can barely stand to look in the mirror because not only is there a big round pin cushion like bump where the cancer was removed, there is also a 1/2 " fleshy type bump where the cheek flap was. My next appointment is January 13th. I made it through the Holidays and a niece's wedding but it took all the courage I could muster up to go out in public. I try to forget about it and go on with life but it is tight, unsightly,painful and numb and tingly above my lip. I feel your pain!!
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Hi there ninafmw ' thanku for your comment " I dnt know whats worse people being blazza expecting us feel ok or people staring ' please let me know how your appointment goes January 13th
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Hi mohsnose...lol, I am still feeling down and I am not looking forward to my doc appointment. I posted a picture and a question on Real Self and got a couple of answers that were helpful. I think the part that really gets me is the fact that if my Doc did tell me I would have numbness like this on and above my upper lip, I think I would have asked for more options. The deal is that I was pretty dosed up on Demerol and don't recall him giving me enough info to make an informed decision. At the time I felt that I should just trust him to make the right choice. He had already had the assistant give me about 8 or so shots to numb the cheek area and it about sent me in to shock and I had been in there for over six hours by the time we got to the reconstructive part.ok..enough about my complaints, but I have a feeling you can relate. I honestly think that you look great and that yours is healing well. I wil see if I can post you a picture of mine. the site where they finished the second phase of my cheek flap bothers me more than the actual place on my nose, which has turned into a pin cushion looking thing. The cheek flap place looks like a jelly bean is under my skin....awe well, I thought getting older looking was enough to deal with but now I look like some kind of elven folk from hobbit land..lol. I guess I have learned so far that I am more vain than I realized. I work in a pretty dirty environment with not so good air quality and I am still only able to breathe from one side of my nose, so along with all the stares, glares, and questions, I am also worried about having to work and breathe the bad air. I have been lucky enough to be approved for short term disability from my work and have been off since the day of my first surgery which was November 18th. I haven't lost hope, I know everything happens for a reason, and it has given me a better outlook on how people feel when they look "different" than everyone .I have a 33 year old son with Down's Syndrome so I now know even better how he must feel sometimes. I am going back to work on the 13th after my next appointment. I am thinking of going to a real plastic surgeon to do the rest of the 'tweaking' as my dermatologist calls it. He said he would continue to work on it at no charge, but I don't know if I trust him anymore. By the looks of your picture, you are going to look good. What are you having done in six months?
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I apologize for all the venting. I want to encourage you that it appears by your pictures that you are healing up just fine. We can't worry too much about what other people who have not been through this think. I wish you and your little ones a Happy New Year!!
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Hey ninamfw ' dnt u worry at all I know what its like to feel down you dnt nd to justify yourself u are allowed feel concerned ' did u lose your cartlidge ? Could u ask your surgeon to show u after pictures on perhaps one of his patients? Miss Black will have to lift skin flap all over again to debulk shes really lovely ' I have developed a cyst above my eyebrow now on antibiotics x
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Hi there, welcome and thank you for sharing your experience with us!

I'm so sorry it was such a traumatic experience for you, it can't have been easy to find out about the skin cancer and go through the surgery. Do you know if the surgery was able to remove all of the cancer cells?

Please do keep us updated with your progress! You're not alone. :-)

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Thanku kirsty yes they got all the cancer the 2nd time " i have to have corrective surgery in about 6 months' this week bn a hard week i went out for the 1st time my self to my little girls nativity play feeling very self concious & just not gr8 within myself complete opposite of what i used be , after explaining to a girl i know how i feel she told me that its a lesson learnt in vanity & u know what us girls are like even with a spot ' this comment just made me feel worse how can she compare a spot to having skin cancer eating through wall my nose leaving defect & needing reconstruction " im so glad i have someone on here talk to " i fnt want feel like this i want get up & get on witj it b fun have a laugh then get cross with myself
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It will hopefully get easier for you. I can understand why you feel like this, but you have to remember that you've been so strong to have the surgery and now the cancer is gone you get to spend the rest of your life with your little girl!

Can you get a revision surgery to correct the defect?

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Yes kirsty i think around may i will b having corrective surgery " can i ask it it common on week 5 to feel scar feeling thick itchy?? X
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I haven't actually had this surgery myself, so I'm not sure. However, the link below will take you to a list of Mohs questions, which have been answered by board certified doctors and may help you while you're healing.

Mohs surgery Q&A

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