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Accutane Induced Severe Dry Skin & Eczema - New Jersey

Not Worth It
Spent: $100 in New Jersey

Comments (9)

Updated 27 Mar 2009

Posted 26 Mar 2009

I never had much of an acne problem. But after several sessions of laser hair on my face I started to get lots of papular-pustular acne. I tried all the different topicals and antibiotics for acne. It also started on areas outside my face so maybe it was just my age (mid twenties).

I finally found a doctor who offered a "cure". He prescribed Accutane. I was fine at 30-60 mg levels . He put me on 120 mg / day in the second month. I started to get severe eczema that required steroids to treat. I stopped the treatment af the end of 2 months, but the severely sensitive and dry skin persisted.

It's been 2 years and my skin is still very sensitive. I cannot take showers (hot or cold). Just the water hitting my skin is enough to give me a rash. I cannot wear anything but 100 % polyester or silk.

You can't imagine how careful I have to be just getting out of my car, wearing a seatbelt, or giving someone a hug. The friction of the slightest rubbing gives me an itchy patch of eczema that spreads out of control quickly. I have to moisturize several times a day and bathe in oil.

All this and I was still getting acne on my face! I finally experiemented with diet. Cutting out dairy cured my acne. I cut out milk, cheese, ice cream, yogurt, etc. My acne went away for good in a few months. I've tested this periodically by having milk or icecream. And bam! the next day I get 3 or  more pimples on my face. I can sneak in a little cheese here and there though.

I will go 6 months of more without any acne at all. Not one tiny pinprick whitehead. Then I have some milk and cereal or some icecream and the acne comes right back! It's not the milk itself. But the IGF-1 that is passed from the pregnant cow into the milk. This hormone acts like an androgen and makes the sebaceous (oil) glands go crazy.

My skin has gotten better slowly, but it is still extremely sensitive. I would recommend anyone going on Accutane do a "micro dose". There are studies out there showing that as little as 5 mg every other day (even once a week) is effective in curing acne.

I talked to my derm and he admitted he takes accutane still. He is in his 30's. I always thought he had perfect skin. But I saw him with a few whiteheads and he said he was on Accutane for two weeks, then would go off it for 6 months or more. He said he would never take it for more than 2 weeks at a time! And he did a 10 mg dose!

Too bad that isn't the "standard of care" for patients. But it goes to show you what the appropriate dose really is. Especially for people who only have a mild to moderate acne problem.

This review is the subjective opinion of a RealSelf member and not of RealSelf, Inc.

Helpful review?

My Doctor: name not provided

Improper dosing

Comments (9)

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Bama Hayseed 23 Jun 2009
Hi James in New Jersey, Thank you for your article about accutane. You worked hard to help guide us with dosages, etc. Maybe you can help me. I am 50 and past the acne thing. Now my skin is just extremely oily, especially on the nose and forehead. So oily that I think the constant flow keeps the ducts clear and prevents acne! Do you recommend accutane for me?
Bama Hayseed 25 Jun 2009

PS. Anyone else with insight regarding the use of Accutane for an oily face - with no acne, your comment would be much appreciated.

james 23 Jun 2009
no. isotrex which is topical isotretinoin would work for your t-zone. alternatively you can try retin-A which is very similar and more readily available and prescribed by derms.
Bama Hayseed 24 Jun 2009
Hi James. Thank you for your response recommending topical isotretinoin, or retin-A. I will consult a dermatologists asap concerning this. However, before I lose you on this site, if those topicals don't work, then do you still not recommend a low dose of Accutane for my super oily skin, acne free? (in addition to experimenting with cutting down on dairy) Thank you again.
james 25 Jun 2009
Be very careful with oral isotretinoin. It is for cystic acne. Due to "standards of care" you will find it difficult to have it prescribed at low dose levels. If derms prescribe it at all for papular-pustular acne, they usually insist on sticking to the doses laid out in the clinical data (which is 99 percent geared towards treating cystic acne). Since your skin is just oily, even a low dose schedule may be overkill. You might want to think about only taking it for a few weeks at a time (my 35 year old derm divulged that this was his personal regimen). This will be difficult for you (especially as a woman) because of the "IPLEDGE" rules that force derms into a monthly routine of prescription, blood testing, and pregnancy testing. My derm would go on Accutane for a few weeks then get off it for 6 months to a year. When any acne showed up he'd take a moderate does for a week or two. Lucky him, he has it just laying around the office!
james 25 Jun 2009
You really don't want to take something orally just to treat your face. Because it will dry your entire body out. You really just need to treat your t-zone! Trust me, I now have to deal with terrible eczema from taking accutane. It's like the OPPOSITE of acne/oily skin all over your body.
Bama Hayseed 26 Jun 2009
Hi James. I do trust you. I will put sober thought into what you have told me, and thank you so very much. Roll Tide.
Vira 17 Nov 2011
Hi James, I'm sitting here horrified reading the side effects and even worse the potentially permanent side effects of Accutane and wondering if I can go through with it.. I am from NJ myself and was wondering if you could give me your Dr.'s name. I would like to make a visit to see him over the holidays to get his honest opinion of dosing. You noted in your review that he took it himself and only takes it for two weeks at a time.. Maybe that's all I need... My dermatologist seems to give Accutane prescriptions out like candy and that scares me! I would really appreciate the help!! Thanks!
Meghnathi 5 Mar 2012

Wow you sound just like me! I took accutane when I was 18 and am 20 now, no acne. I had hiborrly oily hair and skin before and now it is so much better. It left me with scarring and was really rough on my joints (i still have lower back pain when i lay down). It was so worth it for me. It is a tough thing to go through so I warn anyone who is thinking about it that like she said it really does change your skin. Instead of blotting sheets, I need moisturizer!

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