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POSTED UNDER En Bloc Capsulectomy REVIEWS

Silicone implants removed 06/15 My health is so improved!! It's like a miricle I am so grateful!

ORIGINAL POST

I want to say thank you to all those women who...

JSR60

I want to say thank you to all those women who have bravely told their stories here, because of you I am now moving toward the goal of removing the implants in my body. Several weeks ago, not feeling well I went on my support group forum and saw a posting where a women who had breast implant removal and she had regained much of her health. The "light bulb" went on. I had very old implants, could they be affecting my health? I started doing research and I have many of the symptoms of Silicone poisoning my body. Wow, could I have become so ill because I put these things in my body?

30 years ago, young and with not a lot of self esteem, I decided instead of going to Europe, I would get Breast implants. I was very happy with them. they looked great, if a bit bigger than I would have wanted, but I loved having boobs when I had a AA before. I would tell anyone how great they were and encouraged women who asked me, to go for it. Thank god no one I know went ahead with implants, knowing what I know now , I would feel terrible. For 15 years I never had any health problems and aside from the occasional pain under the arms or in the chest area , all was well. I did have a rather extreme reaction to a virus I picked up but nothing to say that I was ill or anything. Around 16 years ago I had a mama gram that showed a possible leak in one of the implants. I was referred to a PS. He was very interested in how my breasts looked, as his mentor had done the BA. He never pointed out that then they were rather old and maybe I should consider a revision. All he said was that he could only tell me if they were leaking by doing surgery. That scared me for many reasons, I was in a new marriage, with a new house, I had an active job and two little boys. The timing was bad and quite frankly I forgot all about it. Forward too 16 years down the road and I have been really ill for 10 years at least. 

In 1999 after suffering with terrible pain in my abdomen, and frequent urination, I was diagnosed with IC, interstitial Cystitis, chronic inflammation of the Bladder wall. It kinda feels like a 24 - 7 Bladder infection, very nasty! I managed to work for 5 more years, but as I became increasingly more ill I finally could not work anymore. I have tried every treatment, every prescription and nothing has made any difference. I eat well, walk and do yoga and yet I have been getting worse. I am now pretty much bedridden in the winter. So now that all this has come to light, I am pursuing explant surgery. First I need an MRI to look at the state of these old implants. That proved to be a bit of a battle with my family doctor, who by the way does not believe in Silicone breast disease. She was very defensive and it was quite a fight to get her to send a referral to an MRI clinic. I have an appointment on 23rd of January, it feels like forever. I will try to post pictures of my breasts with the implants, I do not know if I can find any pre implant pics. I cannot wait till I can find out more and move forward to getting these toxic bags out of me!

JSR60's provider

Dr. U. Kuusk

Replies (12)

January 26, 2015
I had my implants removed on January 23rd! I'm so glad I did! I too was worrying about my health. I now have little saggy boobs but feel so much better than my big fake ones! Good luck!
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January 26, 2015

Good for you for being your own advocate for the MRI. Do you have your results yet? I hope this is your answer so you can get them removed and start feeling better!

January 26, 2015
Please keep us updated to your progress, my story is very similar to yours and I am hoping/praying that removing my old saline implants will help me recover.
January 27, 2015
Going through a similar experience and excited to hear about your recovery
January 27, 2015
I got mine out yesterday for my health. one was ruptured and it looks discoloured and awful... so glad that is out of me. Hoping this Will get rid of fibromyalgia and stop MGUS progressing to cancer in blood.
UPDATED FROM JSR60

Recent pictures of me with my implants

JSR60
I hope I can get these pictures loaded. Computers and I clash sometimes,

Replies (4)

January 31, 2015
Good Luck! Thanks for your story. I'm considering the same surgery.
February 3, 2015
Good Luck to you too. I am very happy and confident in my decision. I hope you will feel the same way too, whatever you choose.
February 2, 2015
Oh girl, my prayers are with you. Im four days post and couldnt feel more free. Read Dr kolbs website (shes out of Atlanta, GA) about a detox protocol. Your body is an amazing thing. Do everything you can and God will help your body take care of the rest
February 3, 2015
Thanks I got Dr. Kolb's book and when I e mailed her office , she replied in person. I thought that was so nice of her I will definitely be needing a Detox after the surgery. Now I just have to wait for my surgeons appointment March 2. Thank you for your good wishes.
UPDATED FROM JSR60

MRI results

JSR60
I have now gotten the results of my MRI. The MRI itself is nothing to be worried about. It is a little tough to stay still for 30, 35 minutes, but you are laying down on your front [so that isn't too taxing], but I did find it a bit difficult to have my arms over my head for that long, however they did let me adjust my arms when they cramped up. I received a copy of the MRI and attempted to read it on my own, my advice in retrospect, don't do it. I made all kinds of assumptions, as a result when I got the Dr's results it was a bit of a shock. Both implants are ruptured, they are leaking outside of the capsules, the left breast is very bad, with the silicone invading my Lymph nodes. I had been trying to remain hopeful , although I knew they were/are very old. I had a really good cry that night, just the thought of all this poison roaming throughout my chest [at least] was enough to make me feel physically ill. I now have a referral to a surgeon. I do not have an appointment yet, but I have spoken to her receptionist and she said appointments are booking in late February. After they receive the MSP [Canadian medical insurance] approval, the operations are booking in April . That news did help a bit, 3 months to wait is not too bad, I made an appointment with a PS and that booking is in September! So the public health care is actually faster! Wow. I'll post a couple of pics of the MRI, but like I said the left is worse than the right, but in the pics it looks like the right is worse, go figure. Oh and an update on my FD, the first DR didn't believe that Silicone leakage is affecting my health, well her partner is the same! She doesn't even believe in Lyme's disease! I will need my FD to work with me to help me detox etc. So now I'm on the hunt for a new Family Doctor, and in Canada that is not so easy. I'll update after I see the Surgeon.

Replies (7)

January 29, 2015
Thank you so much for telling your story, my impants are 30 years old and I have been very sick for the last 3 years. I live in BC and have been told that because I paid to have them in I will not be eligible to have any MSP coverage. Mine are saline but I feel the outer silicon must be breaking down and causing my health issues. I am happy that you are having luck with them (MSP) and I can't wait to hear more about your journey. Sending you pre-surgery healing vibes:)
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February 2, 2015
wow, the mri shots are really interesting. thanks for posting your story. hoping you have success in finding a new primary dr who will be understanding and helpful. I have found quite a few sites out there that help with the 'detox' type referrals or even a list of meds to take, so do your own due dilligence before you go to the new dr, so you can go into your appt with a good idea of what questions to ask etc :)
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February 2, 2015

Thank you so much for letting us know what your MRI results were and for posting those photos. They are so fascinating. Sorry about your cry, do hope it was somewhat cleansing. This will all be behind you one day soon!

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March 6, 2015
I hope your appointment goes well. I will be having my MRI done soon & I'm very nervous. I've had my implants for 30 years, but the last set was put in 1991. Please keep us updated on your progress. Best wishes ❤
March 15, 2015
Hi there, just wondering how things are going since you haven't posted in a while. Do you have an explant date yet? My implants are 28 yrs old...mine have been leaking for 7 yrs (found out from MRI) I didn't think it was any big deal as I thought they were saline...just recently found out they're silicone. My date is March 25th explant only...will wait to see if I need lift down the road. Our breast look similar but my right is baker III contracture. Thankfully, I've never experienced any illness however my sister got BA 10 or so years prior to me and has all sorts of health problems. I wonder if it depends on a particular substance used in the implant besides the silicone. Anyway, I can't wait to get these out before I do fall ill! Do you have cc?
May 28, 2015
Hi dh60, Yes I have cc in both breasts, but the extra capsular rupture in the left breast did change the feel of that breast. I just saw your reply and the comment about your sisters health. Please encourage her strongly to check out the source of her health problems, it could easily be her breast implants. There are many women with saline implants that are ill, often with fungus and mold that takes hold in the saline fluid. I have spoken with a women whose implant when removed was BLACK. She had been very ill with arthritis , joint problems, fatigue etc. now that the implants are gone she is recovering. I am so glad that you are not ill, I hope your sister can find the help she needs. best wishes. J