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Partial Myectomy and Ptosis Repair for Blepharospasm with Apraxia of Lid Opening

UPDATED FROM jdasi

8 yrs later , and still struggling

jdasi
$5,000
I did see Dr Taban and he only suggested filler. I have lots of scar tissue and the filler was brutal and I couldn't let him do all I think. It seemed to help a little for a while, never solved my problem. but over the last year and a half as it has gone away, my life is so much more miserable . Have had 2 revision canthpexies since then. But I can't understand why they don't overcorrect left eye , when they know left eye always widens as the swelling goes down. Last surgery was only dec 26th 2017, and my left eye is already 2 mm wider.. they keep telling me. Every correction has been same story ,. My daughter gets married in 5 wks . I was hoping for the first time, I can be part of a social gathering and not be self conscious. Honestly , this surgery has ruined my life. My life is only go between work and home. This is one celebration in my life since 1986 and I can't believe no one can do this .. with all advances ...

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Replies (5)

January 15, 2018
Is there anything anyone can do that is not brutal and can give me a temporary relief so I can be less conscious at my daughter's wedding ? Anyone
January 21, 2018
Did you try Dr. Massry in LA? So sorry for what you are going through.
September 20, 2018
Have you consulted with either or both Dr. Guy Massry Dr. Kenneth Steinsapir.
December 28, 2018
So sorry about your disaster and what this has done to your life. Praying for your complete healing! I had a bad upper blepharoplasty from a plastic surgeon in Charlotte--looks horrible, dry eye, lagopthalmus, etc. Since I live in NC, I did have a consult on the phone with Dr. Massry and I talked to Dr. Steinsapir's manager, Faye. They both seem really awesome in California. I have gone to Occuloplastics, Julie Woodward, at Duke. She is amazing! She did not do revision surgery on me, but has done injections that seem to help. She is an expert in her field. If you are still searching, please private message me. I hope you are doing much better now!
December 29, 2018
Dr. Steinsapir’s office manager is Faith.
February 13, 2019
Please don't give upTry reaching outto Dr steinsapir, he may be able to help!!!
UPDATED FROM jdasi

blepharoplasty disaster

jdasi
I am uploading some other pictures of my state so if any other doctors can look at them and tell me if anyone of them can help.

Replies (5)

April 19, 2015
Hi - I'm also a doctor, but not surgery. There is Dr Kenneth Steinsapir in Beverley Hills who comments on a great many complicated cases of ptosis repair & eyelid fold repairs here in realself. Lidlift is his website. Oculoplastic specialist. Also, you may want to create a post with your pictures under "Ask a Doctor" here in realself which is aimed at doctors, and only doctors can then reply to you. I'm sure interest would be found if you mention you are a fellow physician. All the best
April 19, 2015
Apologies - I've subsequently seen you have posted a few times in "Ask a Doctor" already. Apologies
April 20, 2015
Yeah, I have tried but thanks for trying to guide me . I wish more would respond but everyone just says consult with an oculoplastic surgeon. How and where to find one that can do what I need. I have filled some requests on other Beverly Hills oculoplastic surgeons' web sites too. I will try Dr. Steinsapir as well.
April 20, 2015
I understand what you say wishing more doctors would respond. If you look at my realself profile, you will see I posted a question with pictures regarding my ptosis, on "ask a doctor" - and only received 1 single (albeit useful) reply. I had worked with a realself community manager to post the question in various realself topic areas, in order to finally result in that single response. It seems curious how the surgeons stumble across questions, or not. Nevertheless, I wish you good luck in your search for a successful correction for your complex problem.
April 21, 2015
Dr Massry works with other surgeons in the ER to get other procedures done. Id guess Dr Nassif and I know Dr. Azzizadeh, not sure if i spelled that correctly.
April 21, 2015
You look at least like you didnt have too much skin removed. Thank God, gives them so much more room to work with you. I had a lot fixed around my eyes but we had to be so careful because of no skin left to shut lids
April 22, 2015
I have a similar problem . Not much lid left on R eye upper lid and not much skin on Lt u lid. I am seeing Dr.Taban next month. I am hoping he will be my miracle.. will post once something done. First Consul
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April 28, 2015
Can you please post the surgeons name so others can be aware? Did you get The problems resolved ?
May 18, 2015
This comment was removed at the request of the user.
UPDATED FROM jdasi

pictures

jdasi
What i would really like to know us if there is a surgeon anywhere in the US who can not only fix my eyes but also give me some kind of a partial lower face lift to fix the.flaccidity not only from the nerve injuries from degloving , also aging. With all that happened with my eyes, i can't do any kind of make up, have to rub them all the time, do stopped bothering about all appearance.. I am 57 now. Looked like 27 when i was almost 40 just before my accident, 50 by the time i was 45 and 87 now. I don't want tofeell this way anymore. I have no life style illness. Life long vegetarian, no diabetes,htn bmi 22 .. Anyone who can offer help?

Replies (4)

March 29, 2015
look into reconstructive surgeons. i know there's one in new york by the name of kate mccarn who seems very good.
April 2, 2015
I recommend Dr. Norman Schorr in Beverly Hills,Ca. Google him. He is a caring man who will tell you exactly whats going on. As a surgeon and associate professor at UCLA, he a vast experience in dealing with the worst cases. People come from all over the world to see him. Best of luck!
April 19, 2015
Thanks Arlo777. I think I will try to get an appointment with Dr. Schorr. I actually made one for a doctor at Keck but just realized she is only 2 years out of residency! I know surgery is all about experience. I think I will try and see if Dr. Schorr can see me then instead. Thanks a Lot.
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April 2, 2015
Try a surgeon who specializes in facial plastic surgery. I have worked with an ENT who not only corrects airway conditions but also does facial plastic surgery. His name is Ira Papel and his partner is Theda Kontis. Both are in Baltimore.
April 2, 2015
I am curious were you able to drive after the procedure? and do you have any regrets doing the procedure? I was told by a neurologist that I would love it for 6 months then be disappointed? any comments regarding that statement? I have blepharospasms with meige and have a competent eye plastic surgeon to do the procedure but am hesitant. tpjla
February 22, 2016
Maybe Dr. Taban in Beverly Hills? I have not had work by him, but I did go on a consult and he has some good reviews on here with pictures which are the only ones that are credible.