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Botox Went Wrong - Pstosis (Drooping) of the Eyes / Cheeks / Mouth Are Possible Side Effects !!!

ORIGINAL POST

I went to the UK's top practice for 3 years...

meltyface
$4,000

I went to the UK's top practice for 3 years but when it went wrong i was treated apallingly, no admission of error and left absolutely devastated with no information.i thought it was permanent ?? i had to go on the internet and then get a second practitioners opinion.

pstosis ..(drooping) the side effect no one wants to talk about. can leave you looking horrendous..like you have had a stroke or with zombie eyes (or both, lucky me !).the practitioners who inflict it send women away claming they are hysterical, perfectionists, imagining things etc.despite being shown photo's taken just days before the procedure.

allergan are completely aware of these side effects but claim they are due to bad technique/pre-existing conditions??

however if a product is designed to relax muscles why deny it's effectiveness ?

I SAY SHOUT IT FROM THE ROOFTOPS.YOU CAN GET SEVERE FACIAL DROOPING FROM BOTOX, EVEN SMALL AMOUNTS. IT CAN TAKE 6-9 MONTHS TO CORRECT ITSELF.CONSIDER THIS BEFORE YOU UNDERGO ANY PROCEDURE.

the boards of people who have been treated with botox for migraine, bell's palsy etc.. are littered with horror stories.

botox is not some friendly harmless substance, as it has been marketed / promoted. it has MASSIVE physical side effects, messes with your adrenaline / nervous system, can migrate to your brain, has been linked with pediatric fatalities and does not have a wealth of clinical research around the use of it on the face as it's being used OFF - LABEL ie. not the purpose for which it was given medical approval. we are being used as guinea pigs, no one knows what the effects of long term use are over time on facial muscles, but botox has been linked to atrophy when used continously in other areas of the body so ???

Thousands of complaints have been registered with the FDA who have issued repeated warnings,hundreds of lawsuits pending on this , .. so called 'temporary' side effects can last up to 9months for some individuals. that is 9 months of pain, frustration , depression and having to endure the stares of strangers / friends who are wondering.. what is up with that woman's face ??

Do your research .. lots of extracts from medical journals out there on the web, i'm not making this stuff up.

Botox is not without risk and you should take the procedure very very seriously. It can go very very wrong.

meltyface's provider

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UPDATED FROM meltyface

I am in week 9 of bad pstosis (eyes/cheeks/mouth)...

meltyface

I am in week 9 of bad pstosis (eyes/cheeks/mouth) from Botox. So I thought of starting a journal to see what does /doesn't help with the recovery based on my own experience.i also had excess hylase injected which i'm sure weakened the skin but wouldn't have caused such a HUGE drop.
a 2nd practioner confirmed it was too much botox, which had migrated into other muscles weakened my entire face.

Currently doing CACI facials (weekly), facial resistance training, sauna/steam 3 times a week for a minimum of 30 mins, eva fraser facial exercises, avocado masks (3 times a week), protein shakes / supplements and am tracking down lecthicin which may help the acetocholin (forgive the spelling) kick in the nerve impulses which botox freezes.

I am a week 9 and last night started using a heat pad direct on my face (moisturise the area first , pad wrapped in clingfilm after heating). i am doing this while i watch tv, for about 45mins in total. today for the first time i can feel the nerves in my face waking up at last !!!! (probably timing??) I am doing this across the whole areas affected and today i am get shooting / tingling impulses across my face .. all the way up to my scalp and beyond ?? some really strong, some very mild .. slight discomfort ...

I read that heat destroys the botox toxin, so maybe heating up the muscles affected can have the same effect??

if you have had success with any method please let me know !! i will do anything to get rid of my meltyface

Replies (834)

March 26, 2010
I am curious how much botox you had for 4 grand? You are 100% correct-it comes with risk.
March 26, 2010
hiya butterfly .. that's the total spent over 3 years.. i nearly fell over when i sat down and did the sums !!
March 26, 2010
So on your last visit is when you had the problem? All of your other treatments were fine and then just whammo it all went wrong?
March 26, 2010
Botulinum Toxin in Clinical Dermatology By Anthony V. Benedetto extract available to view on google books pg 229..link here http://books.google.co.uk/books?id=ViacvgI6NY0C&lpg=PA229&ots=HbUw1hDyAf&dq=how%20to%20make%20botox%20wear%20off%20faster&pg=PA230#v=onepage&q=how%20to%20make%20botox%20wear%20off%20faster&f=false in clinical practise patients with BTX-A induced brow pstosis or excessive relaxation of zygotomaticus major and minor seem to recover faster if they attempt to exercise the affected muscles for 5 minutes, 5 times a day for several weeks
March 26, 2010
Hi butterfly, had frozen forehead / slight droop before but it was not very noticeable .. this time they went too deep..and hit major muscles left with hourglass deformity of the temples,orbical ?? muscles (both eyes) ...hit the zygotimacus on one side which gave the appearance of a stroke so they 'balanced' it on the other ... my face became elasticated, skin like crepe around the eyes..so distressing as they would not explain / admit to any errors ?? also the worst possible swelling in the morning as the lymph couldn't work (muscles pump it around the face)- NEVER AGAIN !!
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March 27, 2010
Hi Meltyface - you know I am already aware of your whole story and I am right in the same boat with you. You have been badly let down by the medical profession and so have I. Botox does not only last 3-6 months as claimed, particularly if you have had it more than once. Botox lasts a whole lot longer than that and if you get a bad result then being stuck with it for months and months and months and months is a DEVASTATING experience. My heart goes out to you but know that you are not alone. The effect of botox is also cumulative because the time frames given by the medical profession to market botox encourage people to have botox again when the previous lot has not completely worn off. This accounts for the often-repeated experience of good result, good result, good result, DISASTER. Further, if doctors are going to administer botox then they should have the ability to recognise a bad result and they should also have high enough ethics to admit the bad result. If these doctors can't recognise a bad botox result then they should not be administering botox. Simple. I got the same denials as you did when I sought help after my botox horror and I still can't decide if they were really so inept that they couldn't recognise it or they were lying to cover it up. Either way, is is INEXCUSABLE. Doctors' denials about bad botox results are also why lots of people who had filler and botox at the same time can be led into error that the problem is all filler-related - like you, me, Happywithme, eyeschicago, swolleneye etc etc etc, which just compounds the problem. All procedures have risks and had I been informed of them, I would have said NO to botox. I was not given proper information about the risks before any of my procedures and I signed nothing. That being said, even if you have signed a waiver or consent or release detailing all the risks, doctors still MUST perform the procedure at the appropriate standard of care. They are NEVER released from this obligation no matter what you sign. And rightly so! It was week 37 for me yesterday and the botox effect has not gone away. As you know, I got extreme cheek ptosis (full facial drop) and festoon formation under the eyes, particularly the left eye. I have approached recovery in a similar way to someone recovering from Bell's palsy or a stroke. I am also using heat and exercise and I used the Tua Viso for a while. Apparently the Tua Viso is not as effective as resistance exercises, so I have just started Carolyn's facial fitness and I am crossing my fingers that this will work... Like you, I am mindful that botox affects skin because muscles and skin are connected in the face. This is why skin after botox initially feels tight and looks shiny and then it loosens up and becomes crepey as the botox wears off. Apparently the skin tightens up again as the muscles strengthen, but I have yet to see that happen in my case. I am taking silica gel (that I suggested to you on your hyaluronidase review) and I have looked into the CACI facials but they are unavailable in the city I live in. I can't think of any other remedies to expedite your recovery, Meltyface, but I will certainly post anything else I can think of. I did not start to see improvement until week 26 and I have seen some an increase in improvement in the past few weeks (ie weeks 34-37). I was repeatedly told by doctors that the horrible result I got from botox was 'natural ageing' and they actually expected me to believe that I had aged 10 years in 4 weeks like I was a complete gullible moron. I knew it was crap so I just waited it out. And guess what? They were wrong. If it was 'natural ageing' then I have 'un-naturally un-aged' in the past couple of weeks and I have a lot of photos that clearly demonstrate the 'un-ageing' process. Medical miracle? I think not. You are not hysterical or neurotice or a perfectionist. Botox CAN make a person look older. Botox CAN make a person look like they have had a stroke. Botox gone wrong made me look like a monster. Hang in there! I will let you know how Carolyn's facial fitness works for me. Cheers, K
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March 27, 2010
Meltyface - I see you are at week 9. I am at week 37 and still not recovered. I hope my timeframe does not upset you. Waiting for this to go away has been truly awful and I hope you don't have to wait as long as me. I had a minimal amount of botox - 15 units total dispersed across forehead, crows feet, bunny lines and infraorbitally. It is a very small amount compared to the amounts other people have, but my botox effect was grotesque because the botox was potentiated by the tetracycline antibiotics I was taking. And the botox effect has certainly lasted a long time. Allergan & the FDA are aware of the bad interaction between certain classes of antibiotics and botox but there is no further information available about what impact (if any) the interaction has on the duration of the botox effect. As you would already know, botox works by blocking the transmission of acetylcholine from the nerves to the muscle. Even after the nerve-muscle connection is re-established, it takes more time for the muscles to build up strength, particularly in the case of cheek ptosis and facial drop. Our poor muscles are trying to pull up our facial fat back up against gravity! I too read the studies about lecithin increasing the production of the neurotransmitter acetylcholine, particularly in relation to the treatment of Alzheimer's disease. I took a lecithin supplement (soy based) for a few months but I can't say for sure if it helped or not. A diary keeping track of remedies is a very good idea! I have also kept a written and photographic record of my experience with botox. And I agree with you - NEVER AGAIN!!!! Good luck and please keep us updated, K
March 27, 2010
Thanks K, not just for the reply but for sharing your story.. i know this recovery is long haul but i am going to kick botox's ass for all those out there who have suffered the side effects. i had caci today (5th) session, my jaw muscle is reacting, lip, eyes, temples still dead.. but my facialist (who did loads of internet research and checked with other caci professionals to try and get the best programme) confirms my cheeks have balanced a bit and the worst temple seems to be 20% better. But for the first time I actually began to feel the current in my face and nerve impulses (esp in the zygomaticus) afterwards so there is defo something cooking. Both my friend and the staff have seen a noticable improvement since I started (not hard as frankly i looked freakish). i've been going there for years and it's a hairdressers as well.. a few botox users among the staff there and it's really made them sit back and think !! Going to stick to my regime for another week and keep checking to see if anyone has any other suggestions ?? I agree about the repeat pattern.. lovely lovely lovely HORROR.. i swear it's due to a build up. I read a study (which i can dig out) done on cats (unfortunately) that they found the botox proteins in the muscle (which also migrated to adjoining muscles) still working at 50% strength 180 days later. (the study ended there) So dishonest practitioners are getting us to go back at 25% recovery point... (3months), what a compete rip off. So working on that math, it takes a year for it to be completely out of the body (mammal's physiology is pretty similar otherwise why do we rely on animal experiments for the development of medicine in the first place let's be honest). Hence you are about 60% recovered... i am at just over 10%. but one way or another i am going to find a way to accelerate the breakdown, so that i can pass it on to other 'victims' (not self appointed - we were guilty of trusting our so called medical professionals). Have ordered Carolyn's DVD - she is soo lovely and very supportive, which (as you rightly point out)my practitioners should have been, it would have made this whole thing so much less traumatic. And thanks for your support K, i can honestly say this forum has helped me beyond measure. Melty x
March 27, 2010
PS morning oedema has reduced significantly since i started the sauna /steam room / home steam /heatpack regime for anyone suffering from botox related facial puffiness.
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March 28, 2010
Hi Melty - thanks for the info! I figured it would take about a year so I have 15 weeks left to go... Bloody hell I hope these exercises speed it up. If you could find some way to accelerate the recovery from botox then you would be an international hero. I welcome you to KICK ITS ARSE (Aussie spelling!) and let us all know how you did it. I have read a lot about botox and I have been blathering all over this site about it for 37 weeks, so I am happy to help you however I can. Let me know if you need anything. And I completely agree with you that every 3-6 months for botox is a scam. Doctors encourage it and people feel that they 'need' more botox around this time frame because it is when the ugly 'loose skin' phase kicks in and the wrinkles start to appear again. But what they don't understand (and doctors won't tell them) is that heaps of the botox effect is still there and the muscles are still weakened. Hang in there, Meltyface and I look forward to hearing from you. Cheers, K
UPDATED FROM meltyface

18 months later... I am about 70% back to...

meltyface
18 months later...

I am about 70% back to normal overall. Still waiting for filler to wear off, so i can get my symmetry back to normal. Corrugator muscles still very badly affected / flattened but powering through with CACI, massage and exercises.

Replies (72)

August 24, 2011

hey Trippy,Sara ... tiny improvements. now how something odd going on with my inf tarsus (inner eye muscle)which has popped up for the first time in 18 months.. so hopefully a good thing ?

Sara it could be that depressing the muscle in one part of your face is causing the elevation in another .. prob exaggerating the effects.

Tiny changes elsewhere but in right direction ??

what about you ??

found a study which proves that botox can last UP TO 2 YEARS in the face!! which is equallly depressing but uplifting ? gives me hope.

The effects of a single treatment of botulinum A toxin lasted from
3 months to 2 years, longer than the expected effect of the toxin

http://www.drbensimon.co.il/articles/botox_ptosis.pdf

but my facialist said my cheek muscles are now normal (you can't tell because of the filler though)
so just mouth and frontalis to go !!

September 21, 2011
Hi, I´ve had some problems logging into this site. Melty good to hear that you´ve had tiny changes. Now that one month has gone again, any improvement for you? Mouth, frontalis..?

Botox can last up to 2 years.. nice.. To my PS I would say 2 weeks my a**. (when he said this effect will be gone in 2 weeks) I´m now on 3 month mark and about 40% healed. My smile is still lopsided and I don´t smile as widely any more. In the mornings it´s worse. Are the mornings worse for everyone? I suppose it´s because muscles relax during night and it takes some time for them to wake up.

My daughter says that I have a banana smile. Well this is one experience in life, learning to live with banana smile. :/ But I have to say that I don´t think about my smile that much any more.

Happy healing to all!
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September 21, 2011
How you doing Sara! And Hello to everyone else too! Sara, you are doing much better than I was at three months, nice one!!

I have some good news, my under eye areas have really improved...I'm still not totally convinced that my eyes will return to the line free way they were before BUT in the past few months I have seen big improvements. MY right eye has been consistently improving quicker than the left eye so my left has some catching up to do but it is catching up....I am 14 months post botox under the eye (1 unit on the lower lash lines) and my eyes are very close to looking normal again, yahoo!! My under eye area is definitely pulling up and tightening but like I predicted the lines that were created with the collapse are still visible, even though they have tightened....BUT they are lessening day by day so maybe the more they tighten the less they will get? Whatever this is GOOD news and I hope it is good for people reading this that worry they wont recover...I think there's a good chance I will get back to the way I was with a probably a little change in skin texture but hopefully that is all.

I also sent off 130 photographs to my solicitor the other day for my botched filler procedure (they injected five syringes of filler in my face and made me a look like a balloon head).....I was quite emotional looking at the photographs as somehow they looked distinctly worse on photographic paper than on the computer screen! :O Probably because I could compare myself before and after, side by side, the difference left me speechless and angry with myself and the nurse for doing that to me. It is taking SOOOO long for the filler to clear, I am now on month 19 since the first syringe and month 16 since the last and my face has still got alot of that crap in it. I feel positive about my case though after seeing the photographs so I will keep you updated...hopefully I get compensation out of those rats!

I think society is starting to catch on to these cowboys and more solicitors are taking on cases like ours...The solicitor told me that rarely do the cases end up in court...as the clinics settle before it gets there...so here's hoping.

How are you all getting on, have you got any good news to report? Hopefully not bad!!

I think we will all recover from this, but I reckon it takes about two years....I am 14 months on and I probably have another 20% healing to do to get back to base....

[RS bleep]
September 21, 2011
Hey Melty, Sara and Ghoul eyes

Good to see you post on here!!

Im doing ok, 12 months next month, disappointed as I thought I would be feeling 100%.

Forehead still feels constrained, sinus still pressure. Nose still goes very red. Its as though I cannot control the temperature on my face, its either very cold or very hot.

Really trying to be positive and not worry, as I feeling a lot better than I did when I first posted on this site. So Im hoping eventually I will get better. Fingers crossed.

Sounds like you guys are going in the right direction..

Happy Healing
xxxxxxx
November 19, 2012

Hi Tripp65..just read your post on face temperature. I've been experiencing that with my cheek ptosis. Im in my 11 month now and things still are not resolved. I found that when my face is warm, I generally look better, as everything is more plumped out. But then for no rhyme or reason...it turns cold and my face will droop and narrow more!? It's as though its controlled by my biorhythms, hormones or some Botox entity!...very weird. I thought it was just me. The problem with explaining all these strange symptoms to the medicos and people in general..is that there are so many strange symptoms that come and go which are associated with this damn poison; that we come off sounding somewhat unstable. I probably have a list of at least 10 side-effects. It would be over a year ago since you posted this article...I'd be interested to know how you are going. I'm hoping its all good news!

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September 21, 2011
HI Trippy...

Yeah, I know the feeling....I was at 12 months and that was the worst but i've seen miracles in just the last six weeks....I think you will start to see progress soon, it's soooo slow but I think it will get better for you!!
January 3, 2012
Hi GhoulEyes, Meltyface and others who have shared on this site.

Thank you for sharing your stories. I have been visiting the site regularly and it has been extremely helpful to read your comments and to know that recovery continues to take place after the 6 month mark.

I am 27 weeks post botox for crows feet and have found that my eyes have only just started to improve over the last two weeks. Up until then, the slow restoration of muscle activity only worked to accentuated all the sagging, bagging and bulging that the treatment caused. I still look 10 to 15 years older and have much sagging, bagging and bulging but feel the changes over the last two weeks are finally heading in a positive direction.

However I am still worried about the hernaited fat pad under my left eye and the festooning. Did you have herniated orbital fat pads and if so did they eventually resolve. I find that when I smile as hard as I can, the muscles are starting to pull the fat pad in. However, when my face is relaxed or I smile only slightly, the bulge from the herniated fat pad is obvious and causes those horrible horizontal folds.

Also, several of you have mentioned festooning ie the fluid build up over night. Has that resolved for you over time. Mine is persisting and it is really depressing. I wake up with the big pillows under my eyes, especially the left eye. I had none of this before. Infact my family has sunken eyes, if anything.

I have been trying to stay positive but am finding this an incredibly agonising wait.

Thanks for being a lifeline everyone.

Regrets xx
January 3, 2012

Hi Regrets, my pad did pull in over time. funny how one side always seems to be worse than the other ? perhaps we have a dominant side to our faces ?

there is a point at which the cosnetic effects wear off and the weakness of the underlying muscle becomes more obvious .. everything looks horrendous then but it's the darkest hour and actually a sign of recovery.

it will get better honey, try some lymphatic drainage massage in the mornings and keep up the facial exercise, particulary your eye area.
me? still about 20% to go but has picked up in the last two months with loads of nerve activity and tension/ thickness under the skin.hopeful of 100%.

keep your chin up dear heart, you will make it through and you are still very much YOU!

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January 5, 2012
Hey there! Well, my eyes still have some way to go but they are probably about 70 percent recovered.....It is very difficult to track as you see improvements and get so over the moon by them but then you get used to them and realise you are still a way off being back to normal :( My eyes are DEFINITELY still improving and I am at the 18 month mark....I have seen more improvements (it seems) in the last 3 months than I have the entire time....My right eye is almost back to normal and my left eye is dragging....BUT the way I see it is my right eye was just as bad as my left and if THAT's improved to this state then there's every reason to hope that my left eye will follow...I really hope it starts getting better for you, it has been such a horrible time, I really couldn't comprehend my eyes ever getting better, I still can;t, even though they ARE improving.....whether they go back to full health I am yet to see but after 18 months they are still moving and tightening, that I can guarantee!!!! :D
January 15, 2012
Thanks Anon. That is great to hear.

Having another one of those bad days today, so your reply is much appreciated and has lifted my spirits.

Some days I feel really positive and just keep telling myself it is getting better. Other days, the thin skin, deep wrinkles, and bulging fat pad are too much to bear and I start to wonder if there is any positive change at all.

My eyes have always been my best feature. They stand out because they are green and an unusual shape. The new black and purple under-rings are horrid and have aged me incredibly. I now find it difficult to look at my eyes in the mirror.

I know this sounds very self indulgent and vain. I am not normally either. But I so regret getting botox.

What I really hope is that in 3 to 6 months I am someone who has a story of recovery that can be used to help others in this situation, as you have helped me today anon.

Much appreciation x Regrets
January 16, 2012
Thanks Ghouleyes too.

I only just saw your post. Much appreciated. I am so glad to hear that there should be more improvements, as if this was it - I'd be pretty devastated. I look like a zombi.

What really annoys me is all the plastic surgeons/injectors that keep saying it only last 3 - 4 months. And that any affects after that must have been there before and you didnt notice them.

As if we dont know our own face! Plus the science is that this can take up to 2 years - why dont they know this.

Can I just ask, did you guys worry about doing exercises that it was increasing your wrinkes. The skin under my eyes is so creased and dry looking and I feel all my scrunching etc is making things worse.

Cheers XX
January 16, 2012
Anon - can I just check how far down the post-injection road you are. Have you past the 12 month mark yet?
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January 16, 2012
How you doing! Well, this is probably NOT a good idea for me to write today, ha. I have been up and DOWN for quite a few weeks now....I thought I was making progress but I really don't know anymore....I think you make some progress and get so over the moon about it and then that becomes the norm and you realise you are still not looking anything like you were before the injections ...I've really been in despair for a while now....as I am now 18 months post injections and my eyes are still crepey and NOT tight underneath. There HAS been progress but it's so small and crawls...I had to come on and write to you today as you asked a very important question and that was about the exercising...WELL, from everything that I have read and also when I contacted a plastic surgeon from the US, exercising was advised but if you are doing it STOP in your tracks to think about it for a while because on Monday I went for an appointment with Ophthamology (Eye clinic) and spoke to a Doctor there about my eye woes. Before I tell you the bad news, I'll tell the bad news. ha. I told him that I was doing these exercises and he told me that I have very likely been making things WORSE. He told me that by tightening your eye like that all you are doing is stretching the skin there and adding to the problem. I could have cried right there on the spot as I have been doing that for months on end, sometimes for up to twenty minutes on a stretch. I don't know about you but I am stopping it right away...no more stretching....I can't say for sure if what he is saying is true but it makes sense and I am just too tired to even think anymore about all the contradicting stories we are being fed. The next thing is he had no knowledge of this procedure, he openly admitted that. He tried to explain my eye area away but suggesting I had aged NATURALLY !!! Or had lost weight.....arrrggghhhhhh, I could have screamed. One thing I know is this is all so dreadfully wrong....there are people out there injecting this stuff into peoples faces and nobody seems to know or care about it ...and nobody is monitored....I am so down today as I just want my eyes back to the way they were....I am slowly starting to accept that this is it, I am going to have to deal with the fact that the old me is gone :(
January 18, 2012
Hi Ghouleyes. I know what you mean. I have had two days this week I thought things were really improving and five that I have looked at myself and thought I am completely imagining things - theres no change at all. The lump under my left eye is still prominent and my under-eye look so dark and saggy I look like I have been awake for 3 months.
I wonder sometimes if I am thinking things are improving because I am getting used to the look of it? A work collegue who is aware that I had botox and who I hadnt seen for 4 weeks said she thought my eyes had improved, so I hope she is right.

I think what makes this whole thing so much worse is that the cosmetic physicians are not learning anything from it because they live in denial. Therefore, they have no answers and can give you no indication what the prognosis of a bad result is. None of them have followed up on bad results or taken an interest to track and record the recovery. Also, they aren't communicating any of this to each other either so there is no knowledge base developing and it conveniently remains off their radar! As i have mentioned elsewhere in my posts I work in research and I find it extremely frustratiung that they are so uninterested. It is ignorant and negligent.

Thanks for the info re: the exercises.

I am so sorry you are still having so much trouble Ghouleyes. Hugs. I really hope that your recovery continues. I hope we can all our old selves again soon. Regrets [RS bleep]