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POSTED UNDER Breast Reconstruction Revision REVIEWS

Breast Reconstruction with Wound Healing Issues - Stanford, CA

ORIGINAL POST

I am brca2 positive. After 4 years of biannual...

carttina
I am brca2 positive. After 4 years of biannual surveillance I decided to undergo a bilateral nipple sparing mastectomy with immediate reconstruction. The surgery is tough! You cannot be prepared for the pain you will have. I am a nurse and I wasn't prepared! I spent 5 days in the hospital and the next 2 weeks hardly able to walk and cares for by my mother and husband. I also developed wounds fairly quickly and knew things were not right. It looks like too much tissue was removed during the mastectomy/skin manipulated by the breast surgeon and then the plastic surgeon pulled things much too tight. It wa a 14 hour surgery! Complications do happen so when I lost a good portion of skin on my left breast, I had to pick myself and move on. The revision dos not result in expected results either. I think due to what was done in the revision surgery but not cleaning up edges before seeing them together. I was supposed to get a wound vac and skin graft but my PS changed her mind and decided to just stitch it up. Now I am having another surgery for a skin graft with a second surgeon!

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Dr Dunh Nguyen

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She was very nice but I question her technical skills especially after the revision. She never even cleaned up the edges and just sewed I up tight with no slack on skin. Separated agin. Now scheduled with a different Doctor for a skin graft in 2 days. 3rd sugary in 6 weeks!

Replies (24)

August 30, 2016
Well after I posted this...my wound culture came back growing serratia, likely hospital acquired. No skin graft until this is dealt with. Makes sense infection is the #1 reason for wound dehiscence.
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August 30, 2016
Wow I'm so nervous about my second surgery I hope I heal well. I had a uti before my surgery and started antibiotics 2 days prior and I called the surgeon and the nurse said I should be fine with the uti I wonder if that why I didn't heal good. I hope all get well with you
August 31, 2016
Carttina,
I am so sorry, I had a similar situation and this was in June of 2013. I am still under the care of a plastic surgeon trying to get some kind of "normal" result. She told me that with a skin-sparing, nipple-sparing mastectomy (which is what I had, also) that it is hard to deal with. I had immediate tissue expanders put in after the mastectomy. One month later, I had infection, and one was removed. Then three months later the remaining tissue expander broke, and deflated, so it was removed. Now I have gone under two more revisions and am still so unhappy with the results. I hope to follow your progress and see good results for you.
August 31, 2016
Thank you. Skin graft today so hopefully it will heal and we can revise it more later. My new plastic surgeon doesn't want to wait anymore. He was not concerned about the wound culture and thinks I need to have it cleaned out and closed.
August 31, 2016
OMG how shocking for you!! What the hell went so terribly, terribly wrong!? I wish you well in your recovery and pray you are now in the hands of a skilled surgeon. Good luck.
August 31, 2016
Thanks
September 2, 2016
For the record, I had a double mastectomy with reconstruction. They are not a pretty sight and slightly uneven. To create a 'normal' appearance in clothes I wear a soft sports type bra that has no clips. It is pulled on over the head. The bra is padded to even out the discrepancies and the shape is good. I go the large for the sake of comfort. Don't want to feel any additional restrictions. Hope this may be helpful. If not now, perhaps down the track a bit. Best wishes ,
Madelaine.
September 2, 2016
When did you have this done Madeline? Did you have a revision later to "clean" them up?
September 6, 2016
I had reconstructive surgery TWICE over 20 years ago. Unfortunately I experienced capsular contracture after both procedures. Capsular contracture refers to scar tissue that forms around breast implants which causes the breasts to harden. This condition causes great discomfort (sometimes crazy making!) due to the tightening of the capsule. It is possible this occurred because I am not sufficiently 'fleshy' above the waist. I have learned to live with the discomfort though in summer I feel like I am wearing a chest girdle 2 sizes to small that is made of hessian!
September 7, 2016
That's too bad. I don't think people really understand how real the complications are with these surgeries. I didn't that's for sure! It is a journey that I am on but at least breast cancer can't kill me!
September 1, 2016
God bless your heart and heaven sends you healing vibes. This is not an easy road but having the right surgeon ( with a whole lot of knowledge and expertise behind him/her) sure makes a world of difference. Open minded is a great asset too, some won't listen to reason and wonderful new methods if it bit them in the a$$.
Stay strong sister.
September 7, 2016
Thank you
UPDATED FROM carttina
2 months post

Skin grafts

carttina
I had skin grafts from my hips taken to close up the wounds on 8/31. My new surgeon recommended moving forward and not waiting and that a wound culture on open wounds could grow anything: so I went for it with the hopes that I can move on from this ordeal !

Replies (6)

September 2, 2016
Oh my - you are going through so much :-( my thoughts are with you- best wishes for good outcome.
September 7, 2016
Thank you!
September 5, 2016
Do you have grounds for a lawsuit? I think I'd be talking to a lawyer.
September 7, 2016
It's hard because you sign a consent and everything that happened is a potential complication. i think my first surgeon could have responded better in her treatment plan.
September 7, 2016
Thank you!
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November 21, 2016
Bless your heart! I'm so sorry for all your complications!! I was scheduled on November 23rd to have the DIEP flap procedure by Dr's. Sumeet Teotia and Nicholas Haddock in Dallas following a double mastectomy in 2014, but found out last Tuesday that the breast cancer that was in remission has metastasized to my liver with tumors "too numerous to count!" I'm hoping I can find some Prothesis that will allow me to wear a v-neck something I was so looking forward to! I'm very disappointed to say the least! I wish you the best in your recovery! God bless!
UPDATED FROM carttina
2 months post

Skin graft 5 days postop

carttina
Followed up today to have bolster dressings removed from my skin grafts. I will follow up in 2 weeks again. I continue with the cipro twice a day for a total of 14 days.

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