I am brca2 positive. After 4 years of biannual...
I am brca2 positive. After 4 years of biannual surveillance I decided to undergo a bilateral nipple sparing mastectomy with immediate reconstruction. The surgery is tough! You cannot be prepared for the pain you will have. I am a nurse and I wasn't prepared! I spent 5 days in the hospital and the next 2 weeks hardly able to walk and cares for by my mother and husband. I also developed wounds fairly quickly and knew things were not right. It looks like too much tissue was removed during the mastectomy/skin manipulated by the breast surgeon and then the plastic surgeon pulled things much too tight. It wa a 14 hour surgery! Complications do happen so when I lost a good portion of skin on my left breast, I had to pick myself and move on. The revision dos not result in expected results either. I think due to what was done in the revision surgery but not cleaning up edges before seeing them together. I was supposed to get a wound vac and skin graft but my PS changed her mind and decided to just stitch it up. Now I am having another surgery for a skin graft with a second surgeon!
I had skin grafts from my hips taken to close up the wounds on 8/31. My new surgeon recommended moving forward and not waiting and that a wound culture on open wounds could grow anything: so I went for it with the hopes that I can move on from this ordeal !
Skin graft 5 days postop
Followed up today to have bolster dressings removed from my skin grafts. I will follow up in 2 weeks again. I continue with the cipro twice a day for a total of 14 days.
Wounds today 43 days after grafting
13 Oct 2016
3 months post
A very small amount of drainage still on the left. A clear suture came to the surface a couple of days ago and I cut it off. I think it will close over now. This happened to a couple of spots in the tummy area too and they closed after those sutures came out. It did leave a bigger scar in those spots though. I go back in January for a check up and back to work Monday after 3 months off. I am hoping for a revision maybe in March or April? I won't feel good entirely until I get a nipple on the left and a cleanup on these scars. I really didn't expect this type of result with a prophylactic mastectomy and reconstruction. I still feel like I have been left mutilated. Does anyone still feel this way? I'd love to hear from you. Anyone that can send me hope that have been through this I'd appreciate it!