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POSTED UNDER Restylane Reviews

Restylane Ruined my Life - Sherman Oaks, CA

Monolaurin - a supplement people might want to try

$600
I have JUST started taking this supplement, Monolaurin, so I don't have thorough experience with it yet. I will post about it again later when I've taken it longer.

BUT it worked so well immediately that I want to share it with other people.
I have CFS and possibly Lyme so I have bacteria, viruses, fungi etc - all the stuff that comes with CFS and Lyme. I (stupidly) took 1/4 scoop for 2 days in a row and I was soooo tired, and the next day I had this weird headache that wouldn't go away, even with migraine medicine.

It took me a few days to realize - it was the Monolaurin immediately killing off bacteria and I was having a "healing crisis" or Herheimer reaction. I've never taken ANY supplement that worked so quickly.

Monolaurin is just coconut oil in a really high concentration. But it's powerful.
Read the reviews on Amazon. People with ALL different illnesses are being helped by this supplement.
I bought this brand Lauricidin (Monolaurin):
http://www.amazon.com/gp/product/B004I8SMOQ/ref=s9_psimh_gw_p121_d0_i1?pf_rd_m=ATVPDKIKX0DER&pf_rd_s=desktop-1&pf_rd_r=1WMVWG72EDWC1J1AZ89Q&pf_rd_t=36701&pf_rd_p=2105317182&pf_rd_i=desktop

This website has a TON of info on how monolaurin works. They sell their own brand of monolaurin too, and I imagine theirs is fine, but I just went with all the reviews on Amazon.
http://www.inspirednutrition.com/store/nutrition-supplements/the-ultimate-monolaurin-an-internal-bacterial-defense-7-oz.html
http://www.inspirednutrition.com

A WARNING: start off really REALLY REALLY slowly if you buy monolaurin. I took 1/4 of a scoop thinking that was a small dose and had a Herxheimer reaction - i.e. where you feel bad because the bacteria are being killed and releasing all their toxins faster than your body can get them out of your system. If you have a health condition, seriously start with 2 pellets for a few days or a week. Then 3 pellets once a day for a week etc. And just go slowly. If you feel bad, stop for a day or two. And of course talk to your doctor about this - I'm NOT a doctor. Perhaps people in good health could start with a larger dose, but I'd still suggest starting with only a few pellets. I'm taking 4 pellets a day, and I'm not having extreme fatigue or weird headaches. I'm going to slowly work up to a full scoop. And the InspiredNutrition website says THREE scoops a day is what a person with a chronic illness needs. DEFINITELY don't start with 3 scoops! Don't even start with ONE scoop.

I want everyone in my family to take it! It's apparently helpful for high cholesterol, colds, weird colds you get from flying on airplanes etc...

Let me know if you take it and how it makes you feel, or if it heals you from something....

Major fatigue post Dysport's provider

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Replies (5)

July 4, 2015
Wow you rock thx 4 telling us about this
July 6, 2015
I agree! This thread is saving hundreds of women from getting CFS, and the advice for those (like me) who already have it is indispensable.
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July 6, 2015
It's so helpful to share information!! Saves each person hours of googling!
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July 6, 2015
LifeisSweet - I'm so glad this is helping! If I can help even one person, that feels good. If you have CFS, look into Methylation. A lot of people have a mutation that stops the methylation process from happening. It's just treated by taking high doses of some vitamins and supplements and regular doses of other supplements you might not think to take. Amy Yasko has a lot of info. http://www.dramyyasko.com/our-unique-approach/methylation-cycle/
Good health to everyone!
July 6, 2015
I took your advice I am taking it now along with Colostrum which also aids in repairing the damage that has happened to the body. My digestive track is shot, it is so bad it comes in waves so hard to explain, one day I seem to be ok & the next day I can barely move, my entire body aches especially in my ribs and all in the area on top of my stomach in my stomach, like I have inflammation all over inside of my body! Scary. I pray this will help. I just started both 4 days ago and will keep everyone posted. There is so much information about Colostrum, if you Google it it comes right up.
I started slow with both. Hoping this is a miracle!
Thanks so much for the information!!
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July 6, 2015
AWESOME!!! Let us know how it goes! I bought Colustrum too I just haven't started it yet. Not sure if you've come across this info, but I had a weird stomach ache and pain in my ribs on the left side - and that is usually the pancreas. I'm watching it, it's not dire, but something to keep in mind!
Good luck and I hope you feel better soon!!!!
July 7, 2015
Aloha & Thank you so much for the heads up!
Hmmmm yes I have had pain on both sides still do but I have had it for quite awhile.
I do have a hiatal hernia, gallbladder is shot possibly hydronephrosis, along with constipation! My sphincter valve is possibly frozen possibly due to botox OMG what more can I handle? I am hurting every day! I have to say today I actually had a regular normal bowel movement on day 4 which I have not had in months! I pray that the combo of Monolarian & Colostrum is helping! I did feel things moving around the first day Good to know about the pancreas, I did have a bit of a stomach ache as well after taking it day 2 it was not as bad. I will keep taking the two for now and see what happens & will let everyone know the outcome after a few more days.
Hopefully this will help repair things, I will try anything at this point!
Well wishes to everyone!
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August 18, 2015
Hi Lokilou123,
How are you feeling? Any better? I hope so. Then again, the treatment for these kinds of illnesses usually make people feel worse before they feel better...
August 17, 2015
Hi there.
Was it the restylane or the dysport that caused your sickness?
Hope your feeling better.
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August 18, 2015
Hi Meme04,
I'm positive Dysport/Restylane injections on the same day caused my CFS. I was sick the day after my injections and every day since - debilitating fatigue hasn't let up one day since the injections 5+ years ago. Sadly there's no "test" that can "prove" THESE injections made me sick, so I don't have a definitive answer to your question. There are things like thiomersal (mercury, or sodium 2-ethylmercuriothio-benzoate) used as a preservative in injections - which could be too much mercury for someone who already has high mercury, there are people who have a thiomersal allergy... Some info I found in my research suggested NOT getting 2 injections in one day - that that can be too much for some peoples' immune systems to handle. Of course I suggest not getting cosmetic injections after my experience, but for people who still want them - consider just getting one at a time.
There are so many possible combinations of why injections make one person sick and not another, so I don't think me or the other people on this forum who are sick from injections will find out exactly what happened that made them sick. But hopefully our experience can help other people avoid these life altering illnesses.
Thank you for the well wishes.
December 10, 2015
Did you get the flu vaccine? this sounds like a vaccine reaction, not dysport or filler.
August 6, 2016
So, it kills off all bacteria or what? Because we have a lot of good bacteria too.

Peptides - something people might want to try...

First let me say *I* haven't tried these peptides yet, but I'm going to later this year. But a friend of mine who nearly died of undiagnosed Lyme and a friend of HERS have improved so much and they say its these peptides, so here's the info. When *I* actually do them myself, I'll post about that too.

Dr. Nelson Kraucak at HealthCare Partners in Florida is one of the few Drs in the US that injects these "peptides."

For any questions about the peptides or to schedule an appointment:
Sheila Keene-Lund
Operations Manager, HealthCare Partners
352-750-4333 (option 8)

NOTE: There are other Doctors out there working with peptides and proteins but they don't all have the original formulas from Oxford which are tried and true, and have been used in Europe for 35 years. I've talked to other Drs in Los Angeles and they offer "peptides" but not the ones from Oxford that cost approx. $300 per month. I've spoken to two Drs that do these "Oxford" peptides and they are the exact same cost - approx. $300 per month. So that's another way to tell if the Dr is using these "correct" peptide injections. (The injections are anywhere from $300 - $400-ish, depending on what formulation you're being treated with. When you see the Dr, he'll tell you which formulation you need for your illness based on your labs.) The company that makes the peptides won't ALLOW Drs to MARKET them on their websites, that's why you'll never find this treatment listed on a Drs website. Very mysterious. And it's also hard to google them because they're called "SAM" (SAM stands for sequenced amino acid modulation) and other scientific things come up in a "SAM" Google search... They used to be called "Solution of Peptides" but when the FDA approved them in the US, the FDA said they must be called "Sequenced Amino Acid Modulation. (All this information is from me scouring the internet and forums for hours and compiling information.)

Dr K's office has a 12 page PDF they can email you that explains a bit about the peptides. Here's a few sentences that explains how they work:
"The treatment is repeated every 21 to 28 days – until the condition “stabilizes” – i.e.
until the immunologically competent cells, coming to the circulation from the bone marrow,
become free of the immunogenic sites that stimulate the production of unwanted antibodies
(this usually happens after nine to ten treatments).
The only contraindication for this treatment is any concurrent treatment with any and all
immunosuppressive drugs (such as corticosteroids or cancer chemotherapeutic drugs, e.g.
Cyclosporin or Methotrexate) which would render the immune system of the body unable to
recognize the antagonist peptides – the active ingredient of the Solution of Peptides."

The peptides are created by the OXFORD CENTRE OF MOLECULAR IMMUNOLOGY

...What's the catch...? Unless you can find a Doctor that injects these "Oxford" peptides in your area, you have to GO see Dr K in person in Florida to get your first and 2nd injection (i.e. you see him on a Monday then see him again the NEXT Monday to make sure you're doing well and having no negative reactions.)
I did a price breakdown that I'll share with you, but before you get discouraged and think this is too expensive, remember you can do a "Go Fund Me" type crowd funding campaign. Apparently once you do this approx. year long treatment, you don't ever have to do it again. And remember, you only need a fraction of the money when you first go see Dr K. After that it's approx. $300 per month, which is relatively affordable.

COST BREAKDOWN:
$250 for phone consultation with Dr K so he can look over your past blood tests to determine what peptides to order FROM Oxford BEFORE you come to Florida. It takes 4-6 weeks for your peptides to arrive in Florida.
$880 for first 2 injections in the Florida office
$367 per injection at home. (9-12 months at $367 + shipping- call it $400) $400 x 9 months = $4,730
$45 Dr K office visit if covered by insurance (they take some insurances, check with Sheila)
~$1,000 Hotel in Florida 10 DAYS - must see him (i.e.) Monday then again the following Monday
~$300 car rental; or you can stay at a hotel in walking distance
~$500 Flight to Florida (from California - may be less depending where you are)
Total is approx $7,705.
BUT remember - this cures problems Drs can't even figure out! AND you only do this treatment once - it resets your immune system.

What you'd need to pay when you go to Florida for 10 days:
$250 - consultation you would have paid before ordering peptides
$880 for first 2 injections in the Florida office
$45 Dr K office visit if covered by insurance
~$1,000 Hotel in Florida 10 DAYS
~$300 car rental; or you can stay at a hotel in walking distance
~$500 Flight to Florida
ONLY $2,975; more or less depending on flight cost and car rental or no car rental

Please do your own research and look into this. It seems very promising. To try to find a Dr that does the peptide injections in your area, I'd just keep Googling different combinations of the words "solution of peptides" "(the city you live in or a big city nearby)" "Oxford" "SAM" - do it and leave out "SAM" etc etc. Scour any medical health forums that pop up in the search where people are talking about these injections. Some of the people talk about other doctors that do these injections.

GOOD LUCK EVERYONE!

Replies (1)

July 6, 2015
thanks so much for this information.
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July 6, 2015
I'm happy that I have it to share with people! You are welcome!! ;)

Stanford's Dr Montoya treating CFS with anti-virals

I hope I'm allowed to post links. I can't remember - I hope I'm not violating the rules. Apologies if I did.
I tried generic Valcyte - a strong anti-viral. I'd read about it 4 years ago and would have tried it back then but there was only name brand and it was $2,000 per month for 6 months. End of 2014 there is finally a generic. I'd definitely suggest CFS /FM people try it - google "Valcyte CFS" and do your own research before you try it. I, sadly, had a pretty rough week when I was on it: rage, depression, 2 migraines per day, extreme fatigue, loss of connection to time... I've stopped it for now, with my doctors direction, but perhaps I'll try it again later. From ALL the research I've done, it looks to be pretty helpful for CFS.
My husband had a good point "When people have cancer, they're given chemo and told 'this is going to be rough, but it will cure you,' why would it be different for you; why did your doctor just say to back off it." I actually don't know the answer to that. Trying Valcyte was MY idea, my Dr said, sure, we can do that - so I don't know maybe she doesn't think it's enough of a "cure" to warrant going through such painful Herxheimer reaction. Drs know what chemo will cure what cancer to some extent. And Valcyte is just ONE of the things needed to heal CFS - if it can. I'm taking all the vitamins and supplements needed to help CFS.
Dr Teitelbaum's book From Fatigued to Fantastic does a great job of explaining what vitamins/minerals/supplements CFS people need, and why. I recommend that book for anyone who wants a deeper understanding. http://www.endfatigue.com/resources/
Dr Holtorf of Holtorf Medical worked on the protocol in the book WITH Dr Teitelbaum. Holtorf has mixed reviews, but I haven't found other Naturopaths or MD Specialists who understand all the complexities of CFS/Lyme or whatever I have! I see a ND at Holtorf.
http://www.endfatigue.com/resources/

Has anyone else tried Valcyte?? I'd love to hear your experiences.

http://med.stanford.edu/chronicfatiguesyndrome.html
http://www.washingtonpost.com/news/to-your-health/wp/2015/02/10/chronic-fatigue-syndrome-is-a-real-condition-not-a-psychological-illness-expert-panel-says/

Replies (1)

June 12, 2015
This is going to sound totally weird but have you been tested to see if you have Lupus? Lupus is an autoimmune disease but there is the belief it can be caused by environmental toxins. Do a little research about Lupus. Often people with Lupus can literally not get out of bed they are so weak and exhausted. Lupus is hard to get diagnosed but there are tests for it. It won't hurt to look into it since you have tried everything else. I wish you luck and please post an update if you get another diagnosis!
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June 17, 2015
Hi Tsukidoll! Thanks for the thought. I have been tested for autoimmune illnesses, but it IS a good thought. So many of these illnesses seem to be one thing only to find out much later that it's something else... My doctor is looking into possible Lyme and Lyme co-infections. Which is ALSO a hard illness to test for! I will post about it if anything comes of it - thank you for reminding me to!
Cheers!
June 26, 2015
I hope you get some answers! I cannot imagine how frustrating what you care going through must be! I wish you the best of luck!
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July 6, 2015
Thanks ;) it's SOOOO frustrating!