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POSTED UNDER Photodynamic Therapy REVIEWS

70 YO with Multiple Actinic Karatosis with Prior History of Multiple Squamous Cells - Seminole, FL

ORIGINAL POST

Had my first Blue Light yesterday. Read the...

Redridingh00d
Had my first Blue Light yesterday. Read the reviews here and I was very anxious and expected a great deal of pain. Well, it wasn't bad at all. Granted I would not want to do this on a daily basis but I have to rate the experience as more of a discomfort than pain. I went in, had my face scrubbed with Acetone then the Levilun was applied (I did not have much of a sensation to the Levilun. Some said it burned or tingled but I felt next to nothing). Then I sat in waiting room for an hour. Then was taken to another room where I was put under a very warm electric blanket for another half hour, this was heaven. Then into the blue light therapy room. The treatment itself was very uncomfortable but not much worse than you would feel if you got a bad sunburn on you face. It has been about 24 hours and my face is red and it is warm but the Dr. gave me Alevicyn Dermal Spray (must have Rx) and it helps a lot. I also have one of those little hand held spray bottles with a fan on it that I use periodically. I was told NOT to put Aquaphor on my face but to use a mild, no scent moisturizer so I am using Cereva. I am washing my face with pHisoderm then putting on the Cereva. I don't remember who said this in their post but I want to thank them because they said to take an I-Pod or something to listen to music and I did that and it helped to keep my mind off the burning. I also used the hand held mini fan they gave me and just bopped along to the music. In 4 songs (17 min) it was over. I had no problem sleeping last night at all. My second procedure is not until Feb 17th and I will be much calmer than I was this time. I will continue to post my progress and photos and will have to wait and see what I feel about it after I have had the second and that has healed. I could not post a cost as I do not know what it will be. It was covered by my insurance so all I paid was a co-pay and then I will owe an additional 10%

Redridingh00d's provider

Frank Armstrong, DO, FAOCD

Frank Armstrong, DO, FAOCD

Dermatologic Surgeon, Board Certified in Dermatology

Redridingh00d rating for Dr. Armstrong:

Overall rating
Doctor's bedside manner
Answered my questions
After care follow-up
Time spent with me
Staff professionalism & courtesy
Wait times

Replies (5)

December 18, 2015

Thank you for posting so much detail and pics.  Let us know how the rest of the healing goes for this round, and how your next treatment goes.  How great that insurance is paying!

February 3, 2016
I just got all the inf today and was freaking out. Im 44 and I knew it was coming. However reading your post has calmed me and I just want to get it done. Look forward to the rest of your story and results. Pale skin is good skin.. :(
March 19, 2016
Was at my Dermatologist today and asked about this. My Insurance does not cover this. It costs $400.
March 19, 2016
I think this is a rather new procedure so maybe your company will add it in the future. Medicare does cover it. Seems stupid not to because in the long run this is a lot cheaper than surgery to remove skin cancer growths
March 19, 2016
Boy, isn't that the truth. My MOHs on the ala of my nose was $1769. and the repair (skin graft) was $1634. And before all that the OC, biopsies (5), & lab was $2149. Insurance;/ Who has ever understood it? Glad to know Medicare covers this. I have a couple more years until then.
UPDATED FROM Redridingh00d
2 months post

Round 2

Redridingh00d
Sorry I slacked off on the first procedure but now we are on to 2nd one. This time I told them that I did not get as much peeling as I thought I would and was concerned if that was a good thing or a bad thing. She asked me if I wanted to do a stronger dose this time and I said yes. After cleaning my face with the Acetone she put on a chemical peel then the Levilun. Still sat with the Levilun for and hour and 1/2 but this time got the nice room with the warming blanket the entire time. My treatment time was also the same, 17 min. I admit that the chemical peel did burn a bit but not unbearable. The blue light was also a bit more intense but again I have my I-Pod and just bopped along taking my mind off the procedure. I was not that red when I got home but it continued to deepen over the day and the night so that I was glowing by morning. The Alevicyn Dermal Spray helped as did the little hand held fan with the bottle filled with water from the fridge. Same procedure. Washed face twice a day with Aquaphor followed by Cereva. The peeling this time was much worse than the first and it is very uncomfortable. First your face swells so you look like a pumpkin head, it gets tight and then the itching begins. I used Aquanil HC (a sample I had gotten at the Derms office and it has 1% Hydrocortisone that helped minimally but better than nothing. You can buy Hydrocortisone over the counter. Once the peeling started I had to almost wear a straight jacket to keep from scratching. I slept in gloves just in case I scratched in my sleep. I decided to try using Vitamin E oil on the rough patches and boy did that help. It softened them and I think it helped them to slough off. I am on day two of the Vitamin E oil and think it is a Godsend. Today, 4th day after my chin is almost done peeling but the area around my nose and cheeks still feel like sandpaper. Not as thick as what was on my chin. Can't wait for that to resolve. Ok, that's it. I will make an effort to come back and post a picture after I am healed. All I can say is don't let the horror stories turn you off. It really isn't that bad at all and if it will help you beat skin cancer on your face it is worth a little misery. BYW, I am doing my chest next month.

Replies (7)

February 24, 2016
Looks great. Glad you like your dr office. I'm considering switching to someone else.
March 15, 2016
you said in the first post that you were told NOT to use Aquaphor but in the 2nd post you said you used it twice a day! So which one is right?
March 16, 2016
That was an error, I meant to say I washed my face twice a day with PhysoDerm. They DID tell me not to use Aquaphor. Thanks for pointing that out so I could correct it. I think my brain was on a coffee break.
March 16, 2016
No problem! I am having these PDT treatments done about every 30 days on different areas of my body. My arms and hands were done 5 times last year and now my doctor has started on my feet and lower legs. I have had my feet done once before with no results whatsoever, 2 weeks ago had both feet and lower legs done with some results, but not much. I have to go back in 2 weeks for another treatment on my arms and hands, then a week after that I go back for another on my feet and lower legs. I have a history of basil and squamous cell (when I first started to this specialist I was told I had about 400-500 pre-cancers) well they weren't all pre-cancers and I had to have about 15 squamous cell carcinomas surgically removed. I am on seriatane and having to do the PDT constantly, does it ever stop?
March 16, 2016
So sorry to hear of your problem. I hope that the treatments you are getting will help. I have only had 3 skin cancers so far. Last one did not have clean borders and that was on my chest. The removal left nothing to see so I did not want him to just start cutting on my chest and hope the PDT will work to kill whatever is left under the skin that can't be seen. Best wishes to you.
March 17, 2016
Thank you and the same to you.
March 14, 2017
Thank you for sharing!!