Dysport Double Vision

Hi Kerryb. How long did it take before your symptoms went away? Did anything help? I have the exact same symtoms. Very annoying. I reported it to the company and asked them if they would reimburse me for the cost of glasses, etc so that I can function in the meantime. lol! They didn't give me an answer.

they lasted for about 10 months, i went to a physical therapist who treated me for vertigo. felt much better, for my draining green eye discharge, antiboitics for infecton and rosasis eye drops for life, cause of the severe dry eye symptoms... sucks...still get dizzy..go to physical therapy now once every 3 wks, vs 3xwk for 5 months. face still gets numb when i think about what i did. but i am working, driving, better now. best of luck, it will calm down once the toxic gets out of your system...let me know....

Has anyone fully recovered?
I had injectionssss 5 and half weeks ago, and Still suffering~~Headache, neckache, dizziness, problems focusing my eyes etc...

Katy, how long before your symptoms disappeared? Did you contact the company or ask for reimbursement?

I don't know your prior research, before having the injections, nor do I know what your doctor revealed to you about the serious side effects. As an ex: I had my first & only experience with dysport when it was relatively new in 2009. My initial research was a thumbs up. The thought of Botox scared me. I don't or didn't like the frozen look & I'm a conscious nut about safety, health & exercise. My visit to the nurse & discussion about having the injections was so positive. Nurse Quinby had her whole face & neck injected. Anyway, I never 'expected' to what I went through & still experiencing. I can only suggest & encourage you to contact a lawyer for personal injury, product liability, & possible medical malpractice. I'm having 'time wise' a problem in legal help for personal injury, however, it's never too late for justice, for life. YOUR life & the pain your living with from an experience of this dangerous poison of injections. When you, as myself & all of us put did trust in a professional, was either not educated well enough, or informative of the serious side effects. Recall, as I've recently stated, finding from a lawyers website in Texas, that n 2009,about the 16 children that had spastic dysplasia were treated with dysport & had died from this FDA approved poison. Not to mention that 2 yrs ago [2009], then over 250 reported cases of serious side effectes [FDA reported], demanded by the public for the full repor. And here we all are today, the list is groing with even greater side effects.
CONTACT..a lawyer. While I was so weak & struggling in the dark just to see, I lost a lot of time for personal injury with the statute of limitations. My soul & long time values had awakened with all this reality. To refocus & to not give up on myself, for what should not have happened. God bless you. You have my full support, at best.

Were you informed of risks prior to the injections? Temporary swelling, for myself was an only possible alert made from the nurse. I did report immediately to the doctor of the fears I was experiencing, like your symptoms too. Then I was told any effects to be lasting no more than 5 months, because it would be out of my system.

Hi MissyMissy
Just wondering how you are going? I am looking through the posts trying to find recovery stories....as I am sure everyone on here does!! Have you had any relief from your symptoms?? I hope things have improved.......

Hi Miss Missy! When I was reading your post it seemed to me to have the same symptoms.I had Botox injection in April 2011 and have felt awful since then. I have been suffering from numbness in my body, difficulty in swallowing and breathing. Nobody can help me. I suffer a lot, but pray for a better day. I am with You take care !!!!!!!!!!!!!!

My full story is very alarming, & is wise for anyone in considering to risk their lives with having dysport to read. Had I known that I would have compromised my health in any serious way besides a little temporary swelling, I would not have had the injections. I never liked the botox frozen look & my only reason for the dysport was because the reports I had researched & found prior to my having the injections were safe. I only wanted a simply lift to my eyebrows, etc. for a fresher look. I have seasonal allergies & look tired, so why not have a minimum little lift & look as good as I feel. As this Dr. VanderVeer advertizes on one of her commercials. Her newest commercial emphasizes 'life changing'. This is very true for me. What I went through, & I still can't cry because my eyes are so dry with zero tears. Elizabeth VanderVeer never gave me the time of day as I got sicker with eye infections, loss of vision, my only comfort was to sleep because my eyes swoll so huge forcing to close. The botulism is a a bacteria & it damaged my glands & system. Resulting into a very unusual low grade malt lymphoma cancer in both eyes. Swelling, branching out & cutting into my right eye, causing my eyeball to bleed. The dysport spreading into a temporary lump in my neck, spreading into my lungs & causing severe double pneumonia which was also diagnosed with emphyzema. I was an athlete since 1990 with very healthy lungs. This is life changing as that phoney woman states. Forgive my name calling & bitterness towards another person, however, there's no excuse for my health as it is, for my emotional/physical pain, her neglect, & the lack of justice for my life. To this day, I'm in full body pain, my mind shuts down & is numbing. I'm a fighter for life & not into such drama. This has just been way too much. After 2yrs. see only one slight improvement. I still can't tear, yet I'm not having to constantly be lubricating my eyes with the single vial preservative free drops. Sadly, to think, I recall a few times when I was so broke & having to ration my eye drops. How athetic! For almost 2 yrs the monthly costs for the eye drops were as much as my electric bill. I become a recluse. I use to be so out going & excited with schooling. 58 yrs. young. I love my family, dog, artwork, painting, aerobics, eductaion, & hoping for a new love life. Just a happy normal life. Before, I normally would cry over almost anything. It hurts like hell that I can't even shed a frigging tear & I'm told that I unlikely will ever beable to do so again. I stop & remember my initial interest for the dysport & then the research that inspired me to use the Christmas coupon special for the intro of dysport. My honest experience is so painful. I'm a balanced lady, yet I really have changed. I'm trying so to either sleep forever to hopefully awaken with more strength & get my life back. It's still hard to breathe. I demand justice. I see that a few of you also are going through severe problems. Damn, did you research on these poisons or were you warned about just the dry eyes alone? In 2009, I could'nt find anything about dry eyes, etc. Not until my experience & I then started googling. Contacting lawyers & the FDA. Then the horror stories started coming to light. Personally, I've slowly experienced a torture that is beyound words. If I could cry that would help some. This poison that was injected & paralyzing my tearducts/glands with such infections that resembeled the look of sandblasting in my eyes & lungs, then leading into cancer, well the doctor, dysport & the justice system is getting away with murder. No money in the world could compensate for how I'm still suffering.

Lastly, what will help for dry eyes that does work. Considering, I have zero tears & had to go through retuxin chemo to heal the cancer cells of the poison [1] Only use the preservative free dry eye drops in the vials, [2] You absolutely need to use the 1000mg of the flaxseed omega 3,6,9. [I take 6000 mg daily]. Before, my chemo I was unable to use Restasis because my eyes were so inflamed that the restasis caused greater irritation. I have eye plugs in the top & bottom of my tearducts. What really helps are the Day & Night Aqua lenses. Infact, after my chemo, using the restasis, omega 3's, lenses, lots of rest, I'm able to minimize the preservative free eye drops. Still no tears, & I always have my cough. I hope this helps all of you. I also make my own soy milk which also is good. Antidepressants will also further dry out your eyes. DHEA is suppose to be good for eyes, cod liver oil, blink often & take breaks from the computer. So if you need anything for depression that won't dry out your eyes~ research. Spirulina & St.Johns Wort is good. I've been so frustrated & feeling de-valued. And not even knowing myself anymore. I'm so conscious about what I put into my body, etc. Now I sleep so much. I have to just for eye relief & fatigue. My quality of life has completely changed. I was so athletic, in good shape, in college with an optomistic future. I was very young at heart, mind, body & spirit. Now it's a constant fight with fear, numbness, humility, feeling frozen, having a greater pain from lack of mobility. I can't seem to recreate a 'visual' or find the strength for a constructive way to deal with my emotions.
Lastly, to all of you that are still suffering & value your life & decision making. Contact a lawyer. Just google~ 'injured from dysport'. Please follow the regimine with Omega 3's with flaxseed & in place of restasis a boric acid eye wash is also good. Google it & research thoroughly. Good luck :) hugs!

FYI... I forgot to add & to tally agree that B12 is an absolute help with the fatigue. I don't see that it works to help with dry eyes, but for depression & fatigue it does indeed help. I tried prozac for exactly 30 days for my depression & my need to sleep so much. I realized that my eyes needed to use more of the preservative free drops because prozac being an anti-depressant it would add more dryness to my eyes. There's a no win here, sometimes. Just to very much know your body & don't take it for granted. Use the Omega 3's & also you can get ground flaxseed & add that to your diet. I'll eat flaxseed sometimes just mixed with a food or with water. The Day & night lenses also are great for needed oxygen & to protect your eyes from the air. They really help & with your vision loss. My vision was so immediately bad, it really scared me.
Anyways, back to the B12. I get mine through Puritans Pride, online. The quality is great & so are the prices. I'm taking b12 5000mcg sublingual. Buy 1 & get 1 free or you can buy 2 & get 3 free. I'm also taking high doses of vit. d.
This is much better than taking prozac & losing anymore of myself. Good luck to everyone & do seek legal help, if you feel that you have a case against the dysport, & for any other reasons.

Hi Miss Missy. How are you feeling? I am 11 months after injection and have ups and downs. I cannot cope with swallowing problems and breathing ones. hoping for better days. Take care..

I have the exact symptoms that started within the first week of my dysport injections..I did question the physician, but he claims he has never heard of this reaction..I feel like I have drunk vision and it is impossible for me to drive at night..Please if anybody know out there how long does this last???

Just updating my progress, my vision if finally back to normal..it's been 7 weeks and lot of b6.. Very thankful

So, it took 7 weeks for your vision to get better? What if anything do you think helped? I am at week 3. I feel like I have drunk vision and the eyes don't focus together. Please help with any suggestions to make this better.

I have the exact same symptoms as Kimmy28. It started 3 days after the injections and now been 3 weeks. It is not getting any better. I feel like people think I am crazy when I explain that I feel drunk and can't focus. How long did it take for your eyesight to go back to normal? Did it start to get better little by little? Please help. I am so depressed over this.

I started taking two b6 a day and totally cut out coffee, because the b6 was enough for me otherwise it gave me crazy heart palpitations..I read that b12 was helpful, but what I had was b6 that was recommended my my pcp.. I heard they are similar, but are different.. I am not an expert, but this is what helped me. Good luck!

HI Kimmy,
Are you still feeling better after your DYsport?

Hi Kimmy, wanted to know how long it took for your vision to improve and also how long it took before your vision cleared up. I am a type A personality and a perfectionist at work but the vision problems I have, and the foggy feeling I have is preventing me from performing at my best! Plus, I can't even go out and have a drink with my girlfriends bc it already feels like I am driving drunk so having a drink will most DEFINITELY make it impossible to drive. So annoying. Love the result but I can't even enjoy it! I received Dysport 3 weeks ago and although my vision has improved for things up close, my distance is still highly impaired. Any ideas on how long before this will go away? How long did it take for you?

Hi there. I hate to say this, but its been over a year since I had Dysport injections. My eyes are still blurry, and I have no tear production. Still suffer from, foggy, dizziness, and my right eye lid droops down. i think I am 85% better from all the other horrible side effects. I was in physical therapy for 2 years..to help with being dizzy....totally the pitts! I can not believe this drug was approved! I am afraid I will suffer for life! I too no way can have even 2 sips of any kind of liquor ...again I pray for all of us. And by postings hope to help someone else from making the worse decision of their lives....Kerry.

Hi, I've posted here recently regarding my problems after Dysport. Blurry and double vision at a distance. I have been through all opth. exams, MRI and now my opth. wants me to go to a neurologist. I am wearing a plastic prism in my left eye glass lens (the eye that is problematic) but without my glasses (and the prism) , I cannot see further than about 4 feet without serious blurrieness. It is so disturbing. Now I am worried that there is more wrong with me. My opthalmoligist (sp?) has given me some examples of what this could be: myestenia gravis for instance. I have NEVER had a problem like this before Dysport. Can anyone say anything to talk this very worried gal off the ledge???? Would appreciate it. Jennifer

hi! wondering how you are doing these days? it's about a year since this post (of yours) and I am experiencing what, it seems, you experienced. I am not sure I am navigating this site properly, may have written you before, but my distance vision is highly impaired. Occurred 9 days post Dysport. Had MRI (results fine) had all ophthalmoligical (sp) exams (results fine) and now am referred to a neurologist. Depressed, anxious and, absolutely will never do Dysport again. I am hoping/praying that my symptoms are, in fact, related to Dysport. Can you tell me how you are doing? Thanks

Thanks for checking in, Meghan. No, I have not scheduled appt. wit the neurologist yet. I did see my ophthalmologist again today. She put a prism into my sunglasses so I can use them. BTW, my MRI was fine. I am so anxious-- driving my family crazy! My ophthalmologist, I think, wants to cover herself and who can blame her? I'd do the same, if I were she. But now I am wondering if I have some auto immune disease such as myestenia gravis. Can Dysport bring on an auto immune problem? Yes, I do have quite an imagination...

Hi there, are your eyes any better? Mine have been severely dry now for 6 months and I am very distressed.

Yes! They are almost normal, and it has been 3 1/2 months. My problems had to be from the Dysport. I had contacted the provider/physician who did my treatment and he agreed it must be the drug. He anticipated that as the Dysport wore off my eyes would recover and I'm so relieved to say that has been the case (thus far). Have you noticed any improvement? As a side note both Dysport and Botox do not last more than 2 1/2 to 3 months for me. I think my body processes this stuff kind of fast compared to other people. Best wishes!

Hi Ce ce, just another quick question. Did you use the Restasis? If so, do you think it was a big part of your recovery? My opthalmologist has ordered that for me from America. It will be costing me three times as much as I am here in Australia. Just wanted to know if it was worth a try. Best wishes

No, I didn't use the Restasis. There are no generic versions of this drug and I was told it would take 6 months for me to see the difference. I opted to wait it out. My opthomotrist did put in punctal plugs, which close the lower tear duct so tears stay in the eye. They did help me and were equal to the cost of two months of Restasis. I wish you well.

Hi Ce ce Thanks so much for your reply. I too have had punctal plugs put in. I will send an update if and when things start to improve. Best wishes.

Hi Ce Ce,
I realize that this posting was 7/2010 when you made your comment. Sorry for your experience, & it was a wise idea to research about dysport. However, I was very surprised that you having dry eyes & researched about Dysport causing dry eyes, yet you went ahead & had the injections? My God, I completely lost ALL ability for tearing & dry eyes is putting it mild. I never had dry eyes whatsoever, until I trusted to having this poison injected. How it slipped through the early FDA warnings, the odd timing of the silent black box warning, & or with the doctors 'silence of what it's capable of doing their patients, while they're promoting this money maker with their lure of coupon specials.