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POSTED UNDER Eyelid Surgery REVIEWS

Orbital Decompression - Prairie Village, KS

ORIGINAL POST

I will be providing a photo journal of my...

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MEDER
$29,000
I will be providing a photo journal of my experience in the Orbital Decompression medical restoration process from the disfigurement that Graves Eye Disease/Graves Disease did to me. I will provide before during and after photos and journalism if there is space to do so. This disease progressed so quickly I didn't even recognize myself after 3.5 years of having the disease

MEDER's provider

Dr. James Sokol

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Replies (3)

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February 13, 2016
Graves disease can significant change the eye/face shape but treatment is possible. I'm glad you have found somebody. Thanks for sharing your story.
February 17, 2016
I want to encourage you this morning. I believe you know this already, but sometimes it helps to hear in times of need. God is with you. He is your very present help in the time of need. He is with you on this journey and even though some days seem as though you are talking to wall, He is there every day, every hour, every minute. There is no one like God. He is often times misunderstood, mistaken, and unnoticed, oh but He is there. He will make Himself known to you and to every person who has ever lived. He will no longer be misunderstood, for every person will see and know Him. Some will cry, some will rejoice and some will regret. He will no longer be mistaken, for every person will see His wisdom and stand in awe of it. He will no longer be unnoticed, for He will be the greatest discovery of man. His glory is abundant and radiates into eternity and every man will see this and worship Him. That day is coming. It will come because, we matter to Him. He sees every tear, every broken heart, every hurt and every war that wars against us. His justice is coming and the enemy will be swallowed up. Our great God will reveal to every man the plan of His heart. There is no evil in it, because He is good. Remember in your heart that God is good, even when the enemy tries to show you differently. Remember that God is caring, loving, kind and gentle. Remember this in every trial and you will be counted faithful. His eyes are tenderly upon you. He holds you in His hands even at this very moment. He knows your troubles but He also knows your victories. You are His warrior.
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February 17, 2016
Aww, thank you my daughter. I love you and love you for your encouragement too. Lord bless.
UPDATED FROM MEDER
3 days pre

Today is my birthday and only 4 more days before the first surgery.

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MEDER
I lay wake at night thinking about the surgery... I think not knowing what the results will be and how many times I may have to have surgery to correct my eyes is a more of why I think about it so much. I could be the lucky candidate that the first time I have surgery I won't have to have any more decompression surgery. I'm trying to get everything in order. I don't want to lose my any level of my eyesight as I love doing photography and I am worried some how the surgery could affect my vision. Graves Disease... When I first learned about it and that I had it I thought I was going to die and that is why they called it Graves disease. Lol...I am a strong woman and have gone through much more than this. So why am I so weary of this surgery? It is suppose to help me. Could be the possible side effects I've read about that have permanent numbness of the face. Or that the muscles in the eyes turning so that the eyes are crooked. That one is really scary to me. I don't want to look more monsterous than I already do. I just want to look normal again that's all. I want to look like me again before I got sick with this disease. Too many thoughts. Its time for me to go enjoy my birthday and stop worrying. The surgery will help me. It's just going to be a process of time like any other medical issue.

Replies (8)

February 15, 2016

Thank you for starting a review and for posting before pics.  Good luck!  Let us know how it went when you feel up to it.  I hope you were able to enjoy your birthday and not stress over the surgery too much :)

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February 17, 2016
Yes, thank you and I will. Today I will posting close up photos of my eyes to better journal the healing and how much my eye decompress with the surgery. I am hoping and praying for the best results but I know I have a long road to recovery and may have to have additional surgeries. I hope not though but prayer is always good.
February 16, 2016
Happy Birthday, and I hope the surgery goes well for you.
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February 17, 2016
Thank you princess127! I believe I have done all that I can to prepare myself for the surgeries, at least I hope so! My son is here now and his wife are here and will be with me. So I will be spoiled for the first few days...as they have told me they will do all the cooking, cleaning, errands and breakfast in bed. God blesses me in this even though I am not much of a breakfast person. : ) Morning coffee works well for me though! I do feel loved but I am a little bit scared of this surgery.
February 16, 2016
Happy birthday and good luck with your surgery.
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February 17, 2016
Thank you willowcrest! Tomorrow is the day!
April 1, 2016
Good luck, lady
April 1, 2016
Oh and...Happy Birthday!!!
UPDATED FROM MEDER
1 day pre

02-17-2016 The Night before the 1st Surgery Right Eye Orbital Decompression

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MEDER
We leave for Kansas City tomorrow morning at 4AM. It is a 4 hour drive to the Surgical Center. I am suppose to check in by 8:30 AM and I am scheduled for 10:30AM surgery. I have done everything I can to prepare myself for surgery. I studied as much of everything that I could, watched videos, asked doctors, visited several doctors for their opinion ( with each concluding to the same end)... "You have a medical need for Orbital Decompression."
I have prayed, fasted, prayed more and asked God to be with me. This is not an easy thing for me. I need my vision. I do photography and I enjoy it very much and it is also part of my work. I am single and this disease has kept me single.
The psychological effect in the physical disfigurement has taken me from being a very outgoing person to becoming a complete recluse. My children have stopped asking me to go to the mall or anywhere with them because I am too embarrassed to go out in the public and I will only do so if I have an assignment of work. I hide behind the largest sunglasses I can find. I altered my going out shopping to daytime only and at the same time of assignments because that way I limit and have an excuse to always be wearing sunglasses.
I have to read a lot of papers in the assignments I have and looking through very dark lens is not easy but people stare at me if they see me without my sunglasses and people can be very cruel. Their stares alone make me want to shrink away and the innocent child is brutally honest in what they see...
When the weather changes to rain, snow or moisture, the pressure in my eyes becomes unbearable and it hurts a lot.
I want just want to look normal again and not have bulging eyes or sagging facial muscles that have fallen and remained broken by the disease. The bags under my eyes make me look like I have permanent black eyes.
But all is not hopeless. I have taken the first step to recovery. The Graves Disease is subsiding, the surgery will help fix a lot of what is wrong and I am on the right path to restoration. I pray all the work completed by Dr. Sokol to help restore me be blessed by God.
The pictures I am posting tonight is the night before the 1st surgery right eye. So here we go, the journey to restoration is about to begin...I'm scared but I'm determined.

Replies (10)

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February 19, 2016

Hey there,

Our situations are different, but I had eyelid surgery today, too. How are you feeling? I'm all puffy and purple. :)

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February 19, 2016
I just did an update regarding the surgery. I feel great so far. No pain meds are needed. I do have pretty good shiner though. What about you? Are you feeling ok? Did it hurt? How long did they say it will take you to recover? Did they do both eyes?
March 31, 2016
Please post pictures!!!
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April 1, 2016

MEDER, I'm so sorry I just saw this today. How are you doing now that we're six weeks out? I'm doing well. Eyelids are still red and my incisions are still a bit bumpy, but they are very slowly flattening out. Very slowly.

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April 1, 2016
Yes, me too. I am just over a month from surgery and to be honest, I felt the results are not what I expected. However, I just came from another eye Dr today. She confirmed what I believed happened. I sorta had a nightmare experience in the hospital right after my 2nd eye surgery. I was accidentally punched in my left eye by the charge nurse 12 hours after I had surgery. She was attempting to unsnap my gown, slipped and punched me directly in my left eye. She apologized and disappeared and I never saw her again. My eye had been swollen completely shut but after she hit me, it popped open my eye and I have not been able to close it since. There is something not right with my left eye now. I cant wink my eye at all. I called the Surgeon who did the surgery and he didnt seem to think it was a big deal and attributed it to swelling. Swelling may have a part to do with it but that doesnt explain why the muscle in my eye feels like it is tugging and my eye muscle turns odd. I went to another eye doctor and she confirmed it is not the eyelid but a muscle too because she can see it when I attempt to close my eye. I have to say I am very disappointed with my surgeon right now. I will not judge him though because I still think he is a good doctor but he is not hearing me and my concerns, that is why I went to my referring Doctor. She advised to see Dr White. I wanted Dr. Sokol. He is a good doctor its just I feel like the results are not what I expected and the surgery to my left eye looks like an amateur worked on it. I am left with a huge bump scar where there was no scar before or even close to the even stitching on the right eye. It just looks bad. I think I need to give it more time to allow the swelling to go down. When I expressed my concern that my eyes still look the same after surgery to my surgeon, he dismissed it as cosmetic.
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April 1, 2016
I didn't add photos because I am embarrassed at how my eyes are still like golf balls sticking out of my head. The disappointment is great.
April 1, 2016
Aaaaaw, sorry to learn this lady.
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April 1, 2016

Thanks for sharing this! :(

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April 2, 2016
butt I am working on a time lapsed photos so you can see. I should say that it isn't my eyeballs bulging out of my head rather it is my eyelids now. Either way it still looks abnormal.
April 3, 2016
I totally understand about the pictures. I too have Graves' Disease and so I understand the emotions you have as I also have. It is hard to express the feelings that go along with this terrible eye disease. I am sorry to hear about the charge nurse doing that. I would keep telling the doctor about any symptoms you have as a result of this happening. I would not take it lightly either as it could very well be linked. I can't even stand for anyone to come close to my eyes because I know how it can hurt!! I have had some inconsiderate persons come close to hitting me in the eye just because they don't think! Now I am careful about it all even the nurses. Thank you for sharing your experience. I would not have the ODS as I opted for radiation instead and SLT for lowering my pressure. Persons with GD tolerate IOP better than persons that do not have the disease. It hurts and I believe you are right about the weather change as I notice mine when this happens. I never even thought about that so now I am going to pay closer attention. Thanks. I am finally in the 'burning out stage' now or remission so that I can have eyelid surgery. Hope you are doing better today. Take it one day at a time. That's all we can handle.