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please join DYSPORT sufferers support group on fb

I am pushing for years post injection, I am positive that I will never be well and that the devastating effect of the adverse reaction of this injection will eventually kill me. The only thing I can think to do good from my experience is to help support fellow sufferers. Please feel free to join my group on Facebook called DYSPORT Sufferers Support Group.

I hate to report this but I am almost 15 months...

I hate to report this but I am almost 15 months post injection and I have been having severe near fainting spells partnered with numbness in the left side of my face, vision is shot, feel like i just got the injection all over again, and no I am not panicing, and no I have not gotten any other injections, nothing to bring this back on full swing. God help us!

Update: A bit over 5 months post injection, for...

Update: A bit over 5 months post injection, for some reason the symptoms seem to be heighteing again. This is terrifying and I almost wish I would just die, hope of getting better is fading and none of this makes any sense. Trouble breathing is at an all time high, I often jolt awake from my sleep gasping for air. Feel like I am going to pass out all the time, staying calm helps and telling yourself that it's only temporary also helps. I just don't understand why the "getting better" part is not gradual and steady because they symptoms seem to attack randomly. Dysport is an awful drug!!!!

Provider Review

Dr Fred Lauffer
Overall rating
Doctor's bedside manner
Answered my questions
After care follow-up
Time spent with me
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I was not given thorough information on the horrible side effects that could have resulted from this injection, and when I reported my life threatening symptoms to the injecting doctor, I was not taken seriously and was told to contact another doctor.I am almost 4 years post injection, and I know now that I will never be well again. I was also treated condescendingly and disrespectfully the staff nobody at that office seemed to want to be bothered by me. Absolutely horrible experience! the doctor was not nice to me on the phone, raised his voice to me, and told me there was no way that the injection was responsible for what was happening to me although everything I was experiencing was on the pamphlet plus there were things that were not even included in the pamphlet that I was experiencing, now years later those things are included in the pamphlet! I was not even offered an opportunity to come in and be seen by the injecting doctor! Should not be practicing medicine! I had patronized his office for many years and everybody was nice to me until I had this horrific reaction, I was hospitalized and in and out of the emergency room at least a dozen times because of this and I am almost 4 years post injection and I am still not well, my quality of life is in the toilet.