Get the real deal on beauty treatments—real doctors, real reviews, and real photos with real results.Here's how we earn your trust.

POSTED UNDER Photodynamic Therapy REVIEWS

60 Years Old, PDT on Face, 2 Days into It, So Far No Big Deal - Long Beach, CA

ORIGINAL POST

So I had dry scaly patches on my face for a couple...

debihana
$550
So I had dry scaly patches on my face for a couple years (cheek and nose). Loved the sun all my life. Got a very light facial last January and a couple weeks later got red spots in places I never had before, like above my lip and the other cheek. It went away. Went to Hawaii in March and my face exploded! Bright red dots on cheeks, above the lips, and I thought the facial had caused it. Ended up in Urgent Care on Maui getting Prednisone to calm it down. Back home the dermatologist recommends PDT, blue light. Took me until now, November, to schedule my workload. I see You Tube online and expect the worst. Not so! I feel like I got a fairly bad sunburn, the red spots that were present in Hawaii have returned but no worse than at that time. I keep waiting for the tight skin, purging, burning, etc., and nothing. I'm totally comfortable except look like I have polka-dots or severe rosecea. Scaly spots still there. Nothing falling off. I feel lucky - but cheated. Is the worst (best) yet to come?

debihana's provider

Dr. Hadas Skupsky

Replies (14)

November 12, 2014
I am doing this next week and am really anxious about it. I am 61 years old with a history of skin cancers. I have a very low pain threshold and am worried about that more than the appearance during treatment. Although I have seen some photos that look horrible! I work in an office and really hate to think I won't be able to wear make-up and be peeling and red. Worried.
November 12, 2014
Hi Karen, for my treatment the pain was minimal if non-existent. What really helped was having my iPod during the 16-minute treatment. I said, "ok it will be about 4 songs worth." At the beginning I felt the "rubber band snapping" feeling but not bad. Luckily some good songs played and I just concentrated on that. Seriously the procedure, for me, was not a big deal. I also had no pain after - I know some people have burning and stinging but it just felt like a sunburn for the first couple days, nothing I haven't had before. My biggest concentration of redness is on my cheeks and above my lip. One week later there is still redness on one cheek but overall fading. To me the scariest part is the biopsy on a suspicious bump, still waiting to hear back on that. Also take a book because you have to wait an hour for the med to absorb. Get some Aquaphor and Cetaphil cream to keep your face moisturized afterwards. The Aquaphor is really greasy but supposedly has healing properties. (So the label says.) The Cetaphil (I bought a jar of the cream) feels good and absorbs nicely. Good luck. Overall mine not as bad as expected or the photos I saw!
November 17, 2014
Thank you for your comments! Hopefully the experience will be similar for me. Good idea about the iPod! I will have the treatment on Thursday - I will post my experience.
November 19, 2014
Hi Karen, I was surprised at how I went from "bad" to "good" so fast. My face looked horrible on Monday after the Wednesday procedure, and by Wednesday night I ventured out to play tennis, Thursday I went out during the day (with lots of sunblock) and Friday night I went out with my friends to a bar and they told me how good I looked. I hope you have the same experience. I'm almost looking forward to doing it again to finish what I started!!! Looking forward to reading your posts.
November 20, 2014
Hi,Debi! I had the therapy this morning and it wasn't bad at all! Glad to have music during the light treatment - made the time go by so much faster - thanks for the tip! I purchased in the office the recommended ointments, CeraVe and Biafine. Have only used the Biafine so far as I have not really had any discomfort. My skin feels tight with a slight burning sensation and moderately red. Glad to have the first treatment behind me. I am glad to hear of your rapid return to normal!
November 20, 2014
Hi Karen, are you living like a mole in the dark now LOL? That's really important, I didn't even turn on the lights, and I used candles in the evening. I just pretended I was camping ;-). Yes it's good to get it behind you and glad the music helped. I used Cetaphil cream instead of the Cerave as well as Aquaphor but that's pretty greasy. I never really had bad cracking but I did keep the cream on consistently. In fact I still put Cetaphil lotion on at night because it feels good and absorbs well. Good luck and keep me posted. I'm not afraid now for the second time. My skin looks better than it did before!
January 23, 2015
Deb- I am about to have this procedure and I'm wondering do you think that some technician/doctors do a better job than others? How do I know that the one that I'm going to will do a good job? Any help or advice I would surely appreciate mine I have put off until February 20.
January 23, 2015
First, are you really in Bora Bora? I am reading a book about there right now! I can't say whether one technician is better than the other, except that in reading comments on this webpage I've seen people say they felt they were left under the light too long or something...are you doing your face? I did a lot of web research and here's a link to something that has lots of FAQs: http://www.medicinenet.com/photodynamic_therapy/article.htm It seems like the average time to leave the Levulan on is about an hour and the average time under the light is about 15-20 minutes. I'm due to have it done for the second time (normal) and I'm not nearly as worried as I was the first time. Just an issue with scheduling time off to hide for a week. Good luck and let me know how it goes! People tell me my face looks better. I'm bummed that I can't lie in the sun like I used to, this is the whitest I've ever been, but I guess it's my future. Darn, I really wanted to go to Bora Bora!
November 21, 2014
Wow, day two is a lot worse than day one. It really burns and I have swelling. Dr says it will feel better tomorrow. Hope she's right.
November 21, 2014
Yes and day three and four looked worse for me. Let's see I did it Wednesday, Sat-Sun-Mon looked the worst then Tuesday it took a turn for the better. Like they say everyone is different...I didn't really have swelling...I'm rooting for you to get better soon. On the plus side, my skin does look better now than it did prior.
November 22, 2014
Wow, made it through day 2. That was a tough day! It's hard to believe day 3 could be so much better! I'm very red, but basically no pain. Yeah!! My next treatment is December 31st. No New Year's Eve celebrating for me. LOL Are you having your next one soon? My doctor has recommended 3 treatments. If it means clearing up all the pre-cancer it is worth it!
November 23, 2014
Hi Karen, Yes they want me to do more but while I was there they did a biopsy on a little spot that I thought looked like nothing. They said it's basal cell carcinoma and want to do Mohs surgery - you probably know what that is, and they said that takes priority over the PDT. So that will be a couple thousand dollars (since I have a high deductible) and I have to figure that out first. I almost WANT to do PDT again because they say your skin looks better each time. Glad day 3 is better - keep going!! (don't have much choice do we?) NOT looking foward to a hole in my face, stitches... :-(
November 23, 2014
Sorry you are having to have surgery. I have had that procedure on my chest. I had an allergic reaction to the topical antibacterial ointment I was using so I had rather a longer than normal recovery. I have two scars on my nose from previous basal cancers and with foundation they are only noticeable to me. Good luck with your procedure. If we only knew then what we know now.
January 29, 2015
Thanks for your photos
UPDATED FROM debihana
4 days post

Getting worried

debihana
It's Sunday, day 5 and I definitely look like a pepperoni pizza. Red blotchy patches on cheeks, under nose, on nose. Super Rosecea-looking cheeks. I guess what worries me is that there are also bright red (and brown) places where there are no visible signs of the pre-cancer. For example, I had a little pink spot under one eye that looked like a scratch and indeed, my cat probably did scratch me with his snaggle tooth one morning as he likes to rub my face to wake me up. Anyway nothing a dab of make-up couldn't cover. Now it's bright red - will it stay that way?

More brown spots on the side of my face (sun/age spots) seem to have appeared.

Guess time will tell it's only day five but I'm starting to wonder how much of this will remain after the "treatment" is over. Who the heck talked me into this anyway?

Replies (3)

November 10, 2014
Try to stay calm and patient.  Have you called the doctor about this?
November 10, 2014
Not yet, let's give it another day or two...
November 10, 2014
Sounds good.
UPDATED FROM debihana
4 days post

Posting pics despite my better judgement

debihana
Curious if anyone else who had PDT looks like their Rosecea exploded.

Replies (3)

July 31, 2017
I had the same experience years ago after returning from Hawaii.
July 31, 2017
Its now been 20+ years after having the treatment.
July 31, 2017
Just wondering, did you spend a lot of time in the water? I know I did.