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To put it short Accutane (Isotretinoin in the...
To put it short Accutane (Isotretinoin in the brand Claravis) ruined my health and my appearance. This is not one of those "I blame the medication although symptoms could be from other things" this is a case of doctors confirming it was caused by this drug - and my doctor and I have made a joint complaint.
He is a good man, and never experienced as severe side effects as I have in any other patients - but I asked before hand because cases likemine do circle the internet.
I took it for a short time, in the beginning my body dried out completely with a rash down my chest, and I had to PEEL the lids of my eyes in the morning, I also had a severe dull headaches all day everyday, but I was told it would go away after treatment. Then suddenly I began feeling like I had pneumonia, body pain, night sweats and half of my head felt like it was filled with cotton. My eyes were only getting worse and, especially the left one, and I was starting to feel scared for my sight. So I stopped treatment.
Symptoms got worse, so I eventually went to the ER who thought it had to be a brain tumor since my left eye had started to sag. But I got a CAT scan + 2 MRI's and they found nothing.
I went to the eye doctor afterwards but they too found nothing except dry eyes and also agreed that my left eye was starting to look weird. I also got a bunch of floater in my left eye, but again they couldn't say why.
Later my nails started to get beaus lines and mureke lines and my toenails turned white and lifted from my toes and eventually fell off. I also lost so much hair people though I had chemo.
Now 3 years later I no longer feel like I have pneumonia all the time, but my body still aches and my eyes are still as dry, and the left still looks different from my right, my floaters are still present and my ears have also gone completely dry from very oily. Now I have patches of grey scales in both my ears. My skin have also thinned excessively all over my body and face, where veins are very much visible, so much that doctors and nurses were "Stunned" to see how much my skin has changed. Again no can tell me exactly what happened.
I WISH I never took this drug!! Its the biggest regret in my life. I can only hope and pray that time will heal me or that my doctors find me a cure.
I am happy it works for many people, but please be careful. Clear skin isn't everything in life. I was told the percentage of permanent side effects was so low it wouldn't happen to me. I was promised by my doctor who told me he would't have prescribed it for his own son if it was dangerous. But it still did happen to me.
It was also really hard to report, since you as a normal person can't prove anything. Even with my doctors word by my side, they were reluctant to look into it. I only had it reported through perseverance, so I think only 1 percent or lower who experience serious side effects actually get it reported and assurance that its caused by the medication.
So if you are considering this treatment, please proceed with caution. I wouldn't want my worst enemy to go through what I have!
Will upload pictures at a later time, but they are coming.
He is a good man, and never experienced as severe side effects as I have in any other patients - but I asked before hand because cases likemine do circle the internet.
I took it for a short time, in the beginning my body dried out completely with a rash down my chest, and I had to PEEL the lids of my eyes in the morning, I also had a severe dull headaches all day everyday, but I was told it would go away after treatment. Then suddenly I began feeling like I had pneumonia, body pain, night sweats and half of my head felt like it was filled with cotton. My eyes were only getting worse and, especially the left one, and I was starting to feel scared for my sight. So I stopped treatment.
Symptoms got worse, so I eventually went to the ER who thought it had to be a brain tumor since my left eye had started to sag. But I got a CAT scan + 2 MRI's and they found nothing.
I went to the eye doctor afterwards but they too found nothing except dry eyes and also agreed that my left eye was starting to look weird. I also got a bunch of floater in my left eye, but again they couldn't say why.
Later my nails started to get beaus lines and mureke lines and my toenails turned white and lifted from my toes and eventually fell off. I also lost so much hair people though I had chemo.
Now 3 years later I no longer feel like I have pneumonia all the time, but my body still aches and my eyes are still as dry, and the left still looks different from my right, my floaters are still present and my ears have also gone completely dry from very oily. Now I have patches of grey scales in both my ears. My skin have also thinned excessively all over my body and face, where veins are very much visible, so much that doctors and nurses were "Stunned" to see how much my skin has changed. Again no can tell me exactly what happened.
I WISH I never took this drug!! Its the biggest regret in my life. I can only hope and pray that time will heal me or that my doctors find me a cure.
I am happy it works for many people, but please be careful. Clear skin isn't everything in life. I was told the percentage of permanent side effects was so low it wouldn't happen to me. I was promised by my doctor who told me he would't have prescribed it for his own son if it was dangerous. But it still did happen to me.
It was also really hard to report, since you as a normal person can't prove anything. Even with my doctors word by my side, they were reluctant to look into it. I only had it reported through perseverance, so I think only 1 percent or lower who experience serious side effects actually get it reported and assurance that its caused by the medication.
So if you are considering this treatment, please proceed with caution. I wouldn't want my worst enemy to go through what I have!
Will upload pictures at a later time, but they are coming.
Provider Review
Dr. Jens S
Kind and incredibly helpful man. I have nothing bad to say about him.