POSTED UNDER Sientra Breast Reconstruction REVIEWS
amazing services and great compassion! Charlotte, NC
ORIGINAL POST
I had to have a double mastectomy, and Dr. Capizzi...
WORTH IT$4,500
I had to have a double mastectomy, and Dr. Capizzi and his staff made the reconstruction process do-able and as easy as it could be. Great technical abilities, wonderful compassion and a marvelously caring staff helped during a very difficult time in my life. Would recommend him for anything PS!!!
UPDATED FROM AnnieG522
9 years post
WHERE I AM, 9 YEARS OUT....
I have an appointment with Dr. Capizzi on 6/24/14 because my "gummy bears" (am I now 62) are suddenly hard, wonky lumpy, and achy. Feeling very positive that I can trust what he tells me is our best step, whether they are okay -- revise or remove.
Am posting some of my first photos from my initial reconstruction. Do not have photos of the "wonkiness" :)
Am posting some of my first photos from my initial reconstruction. Do not have photos of the "wonkiness" :)
Replies (8)

June 22, 2014
Thanks for the update to your review. I'll be anxious to hear what your doctor says next week. You're right, you shouldn't have to live with discomfort like you're experiencing. Seems like there should be a solution. Just curious as to why you didn't get silicone implants for your original surgery? Seems like silicone is fairly common for reconstruction. Let us know how your appointment goes next week!

June 30, 2014
Beth, for my first reconstruction (prior to a second round of new cancer in RT breast), I did use the saline since they didn't have the first generation of the Allergan "gummy bears" On my next go 'round, I had the Allergan solid silicone put it in, and they were too small so we swapped them for the 580's. The last couple of years they have moved, gotten hard, and painful. This time we wil be going with Sientra, which is a much newer type.
My appointment went well and now we're waiting on a go ahead from my GP (I have multiple chronic conditions), and for the insurance to be okayed. Do not anticipate any problems in either area. NOT looking forward to anesthesia again, but that's just because I had such a medication muddle from other conditions and bad interactions. My surgeries (other than removal of large intestine) were pretty easy and had good recovery. I do want to get this over with as my the end of the day I feel like boulders hanging from skin, and it's miserable trying to sleep.
Dr. C absolutely agreed about the capscular contraction -- SO .... I am going to try to post a "NOW" photo so people can see the marked difference, and when we're finished again, post a NEW photo :) Great site by the way.

July 2, 2014
Glad you're aware of what medication you can tolerate with anesthesia. I'm hoping this revision will relieve you of the discomfort you're experiencing with the hardening of your current breasts. I have read great things about Sientra implants. Glad RealSelf is helpful to you. Thanks for paying it forward by sharing your story!
June 23, 2014
I hope you update after your consult on June 24. It sounds like maybe you have some capsular contracture or something if they are now hard and wonky? Unfortunately one is always at risk for CC with implants, especially with reconstruction patients. Sounds like you have a great rapport with your surgeon and that is very helpful at this time.
You had a great result after your second revision!

June 23, 2014
ScubaCat -- Dr. Capizzi is one of the many outstanding doctors I'm blessed to have found since I have multiple chronic illnesses. When my insurance turned down my Alloderm, I did an appeal which he asked for a copy of to help other patients get it approved at BC/BS of NC. I was happy to do that.
Been blessed to know him on a more personal level, as well. But that's true of all my "ologists" and my wonderful GP. Will update after I talk with him tomorrow. Kinda nervous about it all. Maybe it's just my imagination?
June 23, 2014
I can understand the nervousness. I have breast reconstruction too (am only a couple of months out) and while I am very, very pleased, there is a couple things I think may require revision in a few months. I worry about further surgeries, about revisions making things worse, about keeping my expectations reasonable!
It was great that you were able to help others get Alloderm! It can be so important in reconstruction (I have Alloderm at IMF to help support implant and create shape) and it is a shame when women are denied it.

June 25, 2014
ScubaCat -- I had my first reconstruction after my initial cancer in 2002. Then I got a new occurrence in the RT side, and did the mastectomy; went through all the reconstruction, and they just weren't what I thought. Dr. Capizzi was great about swapping them out, and I've been happy with them until this bout of contracture and pain.
I also have the Alloderm on both sides. My understanding is that somehow your body changes it to have your DNA and cells. TMI.
Revisions are NOT bad -- since I've had 2 already, for different reasons. Sometimes I wish that I didn't scare so profoundly, but then again, hardly any one sees them!
Just as an FYI, some local tattoo parlors (AND CHECK THEM OUT THOROUGHLY) do the nipple coloring, and do a much better job than the anesthetician at the plastic surgeons. Like all tattooing, they do fade. Don't know where you are at on that one. We have a great place here in town, and the owner's mom is a BC survivor, so he's very cool about doing these.
Keep in touch and let me know how you're doing. And I'll get Jim to take some BEFORE photos so you can see my afters and appreciate it! Blessings on your day.
June 25, 2014
AnnieG522, I actually had nipple sparing, but when I was unsure as to whether or not I was going to keep them I had looked at a couple tattoo artists (Vinnie Meyers, and a place out on Vancouver Island, mostly) and was willing to travel to do it. If I bothered, in my case my natural nipples were/are so darn pale anyway!
Your body integrates with the Alloderm in a few months or so. Kind of neat, and definitely has been a benefit to breast reconstruction. It was Alloderm that allowed me to do a direct-to-implant procedure and avoid tissue expanders.
Yeah, I know revisions are VERY common after reconstruction, so certainly it is not something I was unaware of before, I just am hoping for as few interventions as possible. I have been very fortunate to have a very good recovery, I know women who have had so many complications and revisions.
UPDATED FROM AnnieG522
9 years post
24 JUN 2014 CONSULTATION RE: WONKY "GUMMY BEARS"
I saw Dr. Capizzi yesterday, and he agreed that the implants had hardened due to encapsulation (sp?), and that we could remove them entirely, or replace them. Since I had the "original"s by Allergan, after some information about the Sientra, and finding out how much better they've gotten than when I was in the 10 year initial study, I have decided to have them replaced.
We are setting up surgery -- about 1 1/2 hours, he said. Office is verifying my insurance, getting a note from my GP that I'm okay for surgery, etc. No photos to post yet, but will get husband to do some Befores, so we can post afters.
I know at 62 this may need to happen again in my lifetime, but the lifespan of the Sientra's are longer, and complications lower by considerable percentages. And at 72, who knows? Can't worry that far ahead!
Dr. Capizzi was wonderful -- same sweet, empathetic and enormously direct man as always. His staff is top notch, and very, very kind. All around, a good visit.
We are setting up surgery -- about 1 1/2 hours, he said. Office is verifying my insurance, getting a note from my GP that I'm okay for surgery, etc. No photos to post yet, but will get husband to do some Befores, so we can post afters.
I know at 62 this may need to happen again in my lifetime, but the lifespan of the Sientra's are longer, and complications lower by considerable percentages. And at 72, who knows? Can't worry that far ahead!
Dr. Capizzi was wonderful -- same sweet, empathetic and enormously direct man as always. His staff is top notch, and very, very kind. All around, a good visit.
Replies (2)