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Botox for Chronic Migraines

UPDATED FROM Margo Zargo
4 months post

I just had my second round of Botox injections on...

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Margo Zargo
WORTH IT$40
I just had my second round of Botox injections on 12/21/2012, this time the neurologist did the 31 shot recommended protocol, and a couple of extra shots further back of the shots that I get in my temples. She said that this might help because my muscles are so large from grinding and clenching my teeth. I've been wearing a nightguard for the past 10 years, but sometimes I forget and only wear it a few times a week.

This second round was done 4 months after the first round, and about three weeks before the second round, I started to get terrible migraines again. The day after she did the second round, I got an excruciating migraine that lasted the whole day, but it could have been due to the stress of getting the shots. Who really wants to get 31+ shots in their face, temples, and neck.

The only side-effect that I had from the first round was that my upper back felt tight for about two months, it didn't hurt, but it was just uncomfortable, a couple of Advil helped. I told the neurologist about this and she used a lesser strength at the base of my neck, so hopefully, it won't happen again.

She does a lot of Botox for migraine patients, so I asked her if it helps them, too, and she said that she has found that it help her patients the most that are teeth grinders and who clench their teeth.

I wanted to have the second round at 3 months, but I was unable to get an appointment sooner. Luckily, I had been hording my Sumatriptan meds that I didn't need for the past three months. I only get 9 pills a month because of my insurance, and I used up my whole supply during the last month before my second round of shots.

I'll post another update next week when it kicks in.

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Margo Zargo

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Recommend to first neurologist by a psychiatrist. The first neurologist tried many different meds on me, so many that I was beginning to feel like a lab rat. She then suggested Botox, which she doesn't do, and then referred me to a second neurologist that does do Botox.

Replies (5)

December 28, 2012
My insurance approved my Botox before I had it. Now they are trying to say it was not medically necessary. How can they do this and now I'm stuck with almost 2000.00 bill. I already paid 130.00. Enough to start my headaches back up. I was taking three imitrex shots daily and having chest pains from them. But the insurance claims they were not medically necessary. Wow!
January 13, 2013
Crnnurse, have you tried to appeal their decision? Most insurance policies have an appeals process you can use if they deny coverage or make an unfavorable determination. It is a giant pain, but you may be able to get them to reverse their decision if you submit evidence that the treatment was medically necessary (like records of the other treatment options you have tried and how your migraines impact your life.) If your insurance still won't pay, I would suggest negotiating with the provider's office to get your bill reduced. At most, you should only have to pay the rate your insurance company allows for the service rather than the amount the provider billed. Good luck!
May 1, 2013
What is your insurance provider? I have cigna and I want to make sure they don't do the same thing, I have been approved already and my appt is in June.
January 13, 2013
Could you please let me know who your treating physician is? I am new to the Tucson area and am trying to find a new neurologist/headache specialist. I've had debilitating migraines almost every day for years, although I currently take 5 differrent preventative meds every day. I have exhausted virtually every other treatment option (triptans, ergot, caffeine, pain meds, nausea meds, antidepressants, antiseizure drugs, beta-blocker, calcium channel blocker, trigger point injections, steroid injections, spinal facet injections, vitamins, aromatherapy, etc.) Any info you could provide would be greatly appreciated!
February 27, 2013

After nearly 10 years, countless MRI's, CT scans, neurologist visits, etc....I will be having botox next week for the migraines. I cannot tell you how excited I am to see if it works! I suffer not only migraines at least have of the month, but daily headaches also. My last neurologist in Wi., who had me on about 6 different meds (i have been taking topamax for years), basically told me if those meds didn't work, I would be referred to the Diamond Headache Clinic, and was told I would have a large bill and miss extensive time from work. I almost felt like it was a threat from this doctor, and basically I "needed" to make the new meds work. I'm sure all you migraine sufferer's have also been on the wonderful merry-go-round of meds, or just plain being told there is nothing else they can do for you...so you'll just have to deal with it. I now live in Ga., and was referred to a pain management specialist, and I am so encouraged! Hopefully Botox will deliver some great results for me

April 18, 2013

My neurologist charges me almost $4000.00 each time I get Botox for my migraines? My insurance has paid about one half of that. Does anyone else get charged that much? I am curious as it seems like a lot of $ and I could get it done at a plastic surgeons office for much less. Any thoughts?

May 5, 2013
I just had mine done and it was $1,000. After 3 appeals my insurance finally agreed to cover it
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June 4, 2013
I have some twitching in my eyes in my right more than the left. It came to just over $1.000.00 but my co-pay was $125.00 100 vile, 2 pkg. I had about 15 tiny shots, if that helps you. Inspector Cruso 59
July 31, 2013
I only have to pay the co-pays for my procedure and follow-up visits. The rest is paid by my insurance company. However, Botox is one of the drug on their formulary.
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April 25, 2013

I am so happy I found this web site! I am scheduled to go for Botox in a few weeks due to chronic migraines. I have tried 27 different meds (some prophylactic and some for acute pain relief) and nothing has worked. I now have a prescription for Oxy, Fiorinol, a muscle relaxant and Zomig nasal spray. They "somewhat" work but the side effects have been wreaked havoc on my liver and stomach. I have been very nervous about getting the Botox treatments done. I had pretty much come to the conclusion that there was NOTHING left for me to do and that this too would be a bust. Now that I have read some of these posts and heard that it has been successful for some it gives me hope. Luckily I am in Canada so our Health Care system is a bit different. Botox is not covered but almost all Insurance Providers accept it as a viable option and don't put up much of a fuss about covering the cost. My Neurologist just wrote out the prescription for two bottles of it and some saline and I went and picked it up from the drugstore. Thanks for all of the info! Hopefully it works!

UPDATED FROM Margo Zargo
26 days post

I added some before and after pictures

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Margo Zargo

I added some before and after pictures. The text that I added to the pictures got cut off in the upload. The first picture of my forehead was taken two days ago, three and a half weeks after the Botox, and the other, more wrinkled photo, was taken in 2007 when I was 47.

I was even more wrinkled-up a few weeks ago, as I'm 52 now.. I just happen to be putting these pictures into a photo album, they're both untouched. What a difference! Not only are my headaches better, but so in my tinnitus, and I look younger...I feel like I've won the Win, Place, and Show!

Replies (2)

September 12, 2012
i am having the botox injections today.does anyone know, what im i expecting to notice anything different ,when you first get them ,i am so nerveous , im just so scared something will go wrong, i hear about the droopy eye lids ,and still people having bad headache , is it worth it and does it hurt, i said 31 injections in the head is a bit much i think,why so many injections, and what should i expect . the first couple of days
September 12, 2012
Anxious to hear what your results are. I agree, 31 injections is frightening! Good luck today. I hope that you feel better.
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September 12, 2012
The temporary pain that you will have from the injections is no where near the pain of one minute of a migraine. After you have the shots, you can ask your doctor for an Rx for some numbing cream, but I just took a few Advil, and that was it. Make sure you don't lie down or do any exercises for a least 4 hours after the shots, so they don't move. I though I might have the droopiness after a few days, but I just splash cold water on my eyes in the morning, so it's more like puffiness and it goes away. The first few days after, I was still getting bad headaches, and now nothing. I hope your results are like mine.
September 12, 2012

Margo Zargo, I just read your Sept. 8th update! It made me soooo happy to hear your migraines have been helped!! I can only imagine the improvement in your daily life!! I also have to complement you on your attitude. Its great that even though you are still dealing with some other discomforts and headaches you are still able to see the good this has done. I really hope something is able to be done so you no longer have neck or back stiffness, and perhaps with your second round even the normal headaches will be minimized - hoping!! :)

UPDATED FROM Margo Zargo
22 days post

It's been about three weeks since I had my first...

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Margo Zargo
It's been about three weeks since I had my first round of Botox shots, and I've changed the rating to "Worth It" because it really is helping me.

I'm still getting headaches, but they are just regular ones and not excruciating migraines. The tinnitus in my left ear is still softer. My forehead wrinkles are less apparent, but on the outer sides where the doctor didn't use any Botox they appear worse because the middle of my forehead is much smoother. I can now see how when one fixes something on their face that they start to focus on something else and want to fix that, too.

I do have a constant stiffness in my upper back at the base of my neck that I'll have to discuss with my doctor, but a couple of Ibuprofen in the morning are all I need. I also have to splash water on my face the first thing when I wake up and use anti-itch eye drops, or my eyebrows seem, to me, to look too high. My husband doesn't notice any difference, so maybe it's just me, but I think it helps. Everyone says that I don't look any different at all.

I'm just so happy that this has helped my migraines so soon, and all the other minor neck and back stiffness is nothing compared to the migraines and tinnitus. The neurologist told me that I probably wouldn't get any relief until the second round of shots, and I'm just ecstatic that it didn't take that long!!!

Replies (3)

September 9, 2012
I love Botox. I just had no idea it could be used for migraines. I used to suffer from horrible, excruciating headaches. But since I gave up milk ( I use Silk milk now) and meat ( I still eat fish and sea products) I had not have one headache in 5 years. I also don't eat fast food anymore
September 24, 2012

I dont suffer from chronic migrains but came on just to read about it and the stories are promising to say the least but you mentioning diet change really made sense. my daughter has suffered from migrains but eliminating lactose meat and gluten have made a huge difference. many migrains i suspect are food triggered.

May 4, 2016
I have never heard of it helping with hearing loss or ringing! I experience both as well. Was reading about getting injections for headaches because I noticed my pressure headache between my brows was reduced drastically after getting botox there for cosmetic reasons. I will definitely look into using it for hearing issues as well.
February 20, 2017
Was to say my neurologist wants me to get the boots shots