Lumps then More Lumps, Swelling, Pain and Inflammation - Alabama

Dear Megan,

re: Sculptra - a "Doctor" - some plastic surgeon or dermatologist cannot do a test spot on an area of your body for these injectiable 'implants'injected under your facial skin, Sculptra. It is great idea, but not appliciable.

In all sincerity and please give Tom this message and the people employed by Reaself, my true Admiration for standing up and having the likes of a Sanofi Aventis (Dermik) cringe when they hear the words 'Real Self'. RealSelf is doing the job the FDA was set up to do
and is so corrupted.

If RealSelf was in gear five years ago, the way it is now and so easy to access, I would not have lost my Health (I have developed all these awful autoimmine diseases), survive with chronic facial nerve pain, blurred vision, granulomas, infections. I was what is considered to be by standards (and I take no credit for this just lucky genetic pool) very attractive, I am so horrifically disfigured I don't even want to see family and friends and know they feel pitty for me and do not know how to react / what to even say.

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I had six no problem for a year, it was the last one that did it. I keep saying not on that side no more and he did, not long after it started. You never will know even with a test if you will develop an reaction. It's like playing roulette. Better to not touch this product.

I feel for you. I've had sculptra and did not have any issues. I'm saying a prayer for ya.

I am so very very sorry you are dealing with such horrible complications. My heart goes out to you.

Hello. So far I have had no issues from my Sculptra. Can you share more info with me. Can you give me the name of the doctor who did your Sculptra?

The problem is if to much is given plus not mixed or injected right an overreaction can happen. I know when mine did after I got injected way to much on one side. I just knew it was not good. It's still on but not as bad as last year this month is my 3 year. Stress activates it no question. Have no auto immune disorder and no organ failure etc that some seem to got. I don't think Dr really know enough about this product. Dr Z in LV . Washed his hand from me right when my problem started what a jerk

Ladysundance! Don't do any more even if you like it now. You want to be safe. It's other things that's safe and much better. I did it because no down time but its not worth it absolutely not. You can go to the best injector and you still can get problems.

I too having a trouble ;(( did you managed to get it sorted. My doc says kenelog is the solution ???

I am still having the Kenalog injections (5 so far). The granulomas are smaller but still there and I continue to the excessive mucus in my saliva. I have also been on antibiotics for over 8 months. Not a good thing. I just keep hoping all this treatment will eventually help. I get very discouraged from time to time but try very very hard to be optimistic. How are you doing?

There is an on going debate about the underlying cause being an infection or autoimmune in nature. This treatment has worked, it does not cause side effects and there has not been a recurrence. Hyperbaric oxygen therapy (HBOT) involves breathing pure oxygen while sitting in a sealed steel and concrete chamber. The atmospheric pressure inside is increased by pumping air, which cannot escape, into the chamber. The oxygen is usually delivered via a mask. These chambers are used to treat MS and you may find acess to one locally via a directory for services for MS sufferers. If you have a tendancy to adverse autoimmune conditions, or a familiar history then this is not the treatment for you.

There is an on going debate about the underlying cause being an infection or autoimmune in nature. This treatment has worked, it does not cause side effects and there has not been a recurrence. Hyperbaric oxygen therapy (HBOT) involves breathing pure oxygen while sitting in a sealed steel and concrete chamber. The atmospheric pressure inside is increased by pumping air, which cannot escape, into the chamber. The oxygen is usually delivered via a mask. These chambers are used to treat MS and you may find acess to one locally via a directory for services for MS sufferers. If you have a tendancy to adverse autoimmune conditions, or a familiar history then this is not the treatment for you.

Ohh I have that excessive saliva. What is causing this?

Where is this excessive mucus coming from? I too have it and have often thought it is associated with my sculptra problems!

The assumption is that the excessive mucus is due to inflammation of the salivary glands. I had to have a dental bridge put in about 4 months after the Sculptra injections. Within 24 hours I started to develop the granulomas and have experienced the excessive mucus, most likely the result of the Sculptra.

You comment that this treatment works. Did you have hyperbaric oxygen therapy and if so, what specifically were your symptoms - inflammation? Granulomas? Excessive mucus?

Joanie, Who is doing your Kenalog injections? What antibiotics are you taking? thank you, Siggie

Who is your Doctor. I need to find a Dr. who can help me dissolve the Sculptra. thank you.

My plastic surgeon in Massachusetts has given me the Kenalog injections. I have had 5' spaced 3 weeks apart. the lumps are smaller but still hard and the mucousy saliva is still a major issue. I was on Doxycycline for 8 mos with no noticeable improvement and lots of bad side effects. If you do go on antibiotics, be sure to take probiotics and stay out of the sun.

Dental work and sculptra is a real no no. I am suffering the consequences of this combination right now. Huge lumps in my cheeks and insane swelling of my face. I'm on antibiotics and steroids. It's not a good situation at the moment.

Can you tell me where the info is on how the HBOT treatment has "worked".

I been on every antibiotic, it only helps so much prednisone controlled it more but something you shouldn't stay on. Doxycycline is more for skin inflammation and is the mildest safest of antibiotics people can stay on it for years, but as you say, don't seam to make a difference to be on it or not in this case. Haven't had any side effects from that medicine. What is your side effects? Debating to stop or not now when the price went up and I don't see much of a difference any way.

What I see works is infrared light, but you have to use it 3 times a week.

Was where you are now 2 years ago, yes very scary. I also was on 20 mg prednisone, antibiotics it just wouldn't stop I also laid around all day long with warm/hot towels on my face so the fluid could escape. Year 3 It is night and day a difference.

Joanie Be careful of the steroids it only led to atrophy and discoloration of the skin and a adrenal gland tumor for me, which are know to be caused by steroid overuse, chronic inflammation and stress

Steroid does not do that . People have kenalog inj for allergies all the time much bigger doses. In the face if the Dr knowes what he is doing micro inj is sometimes needed to stop big inflammation and should not give any of those side effects, but if the Dr don't know what he is doing and give to much yes could cause indentations but not discoloration or tumor . Adrenals shuts down from the stress not from sculptra or kenalog. I am a victim as well not trying to defend sculptra just getting real facts out.

Does not matter if you have an auto immune or not. I know they like to blame it on that but any one can get a reaction

Listen cream maker you have no idea what you are talking about I am not talking about 8-12 injections in each side of my face for over a year that caused atrophy and discoloration I am talking about IV steroids and all the methyl dose packs and being on straight predinosone over a month at a time just to reduce the severe inflammation. Granted I have been suffering almost 4 years, are you an endocrinologist???? are you a doctor ? Obviously you know nothing about adrenal glands when taking a steroid, tell me what is the reaction of an adrenal gland to a steroid ? I will be more than happy to submit my photos!! thank you Go call Dr Oz!!! actually I watched him inject this product into someone's hands. You need to know the facts Its people like you that causes people to continually consider this product

I have to dear so yes I know what am saying. My misunderstandings if you were put on I've steroid never heard of to do in this situation would not think good as prednisone works the same. Only way french say is to micro inj right in the active area a few times. i was on prednisone for one year 20 mg on and off as well as every kind of antibiotics out there. No am not but am a nurse and know French so I been studding and done a lot of research from French sites (as well as from here)because that's were it's from.

Feel sorry you so mad.. No I am trying to help and warn people. Important to go to the right Dr to get right answer and the truth. Most Dr don't know anything about this product but still does it that when the danger comes in. Of course Dr Oz perhaps never heard about any one having problems the Dr wont say any its up to us the victims. Hope you get well soon

This sounds like a temporary fix, it may reduce the swelling for a while but as long as the product remains, the swelling will be back

I agree, but feel Cream Maker is making good points. Steroids do cause adrenal gland problems. After being on medrol dose packs and doxycycline for over a year because of horrible sculptra reaction, I was sent to an endochrinologist. She said that for some people after using corticosteroids, their adrenal glands "go to sleep" and stop producing the hormone. I asked her "how do you wake them up" she said we can not we just put you on cortisone for the rest of your life. Needless to say, the medrol dose packs made me feel awful even though they did reduce the inflammatory reaction. That was not going to be an option for me. I have learned to be very very wary of doctors. I am using an integrative medicine MD and nutrition to attempt to awaken my adrenal glands. It is very slow going. The big problem with sculptra is that it creates the filling effect by causing an inflammatory response and fibrosis. Inflammation is a problem in many diseases and is a very complex systemic cascade of events. It involves many systems. It can not be easily shut off. The desired response will shut off after sufficient fibrosis however for those of us who had a vigorous response to the product, it can not be shut off and only removal of the product will stop it. Since the microparticles are dispersed throughout the soft tissue and in some people placed in muscles, glands, or surround nerves, the fibrotic response is destructive to the normal tissues rendering them abnormal. Ohhh the things I have had to learn about the medical world. I would never ever do it again.

My background is RN so no am not an md but have many friends in the medical field

My break outs are only in the area of the injections. My face has lost its pigmentation in both cheeks and it is so scared up that it can't be fixed. No doctor would believe me that something was coming out that was not supposed to be in there. They basically were telling me I was crazy. The strange part is that none of them were willing to look at the samples of the seeds I had collected. Even the dermatologist at Duke has just agreed today to look at them and send them to the lab to be examined. I can only keep praying for answers. For the first time in my life I thought about taking my own life. I felt like my own family didn't believe me and that I had become a burden on them. I now feel better with the help of a great therapist and hope I can keep my spirits up!

Pawley Tell your MD's that the PLLactic acid is similar to the the johnson absorbable sutures that was taken off the market they never broke down and some floated to the surface called floating sutures just google Poly L lactic acid and resorbable sutures JOHNSON AND JOHNSON DID THE RIGHT THING not like Sanofi bring info to your MD's its there!

I sent you a private message-

I can't find your message!

I already take 10mg of prednisone a day due to my RA. Ive been on them for 5 years or so and have not had any bad effects except thinning of my skin.