My experience has been like many others I've read about. Years of contemplating the op, as soon as I had the money, found the right consultant for me and went for it. I'm 47, relatively fit though overweight and despite my one black nipple setting me back a little in recovery, am delighted with the results so far, not least of all the pleasant change it has offered my head and heart when I catch my reflection!
The anaesthetic has knocked me sideways. So glad I'm self employed with the ability to take the time i need to recover well.
This website has been great. I'm now 14days post op. Had a difficult week this week but my nurse friend warned me that it's 2 steps forward 1 back in recovery. And she's not wrong.
Updated on 30 Jul 2018:
It's funny, I've thought of it for years and still can't quite believe I went through with it!
I am currently resting as much as possible still, but keeping as active as I can too. Finding the balance when I'm normally an active zippy person is hard to guage.
I have taken to buying some new clothes online. I'm not a good shopper, I've always hated it in fact and for obvious reasons, but already I'm finding tops I wanna try, with a different neck line, size etc, this comes attached with years of fantasies about what I always wished I could wear. We went through my wardrobe and my partner decided that most of the tops just had to go. Considering most were from charity shops anyway, I'm good to go with a new attitude towards it all.
I've decided not to buy any bras yet. I want to take delight in going into a shop and just buying something off the shelf. The excitement I have for this is astonishingly bizarre and very welcome in my life.
It is so refreshing to catch myself in a car window reflection and smiling rather than feeling embarrassed and full of deep self loathing. This is why I went through with it.
Updated on 3 Aug 2018:
So I saw my surgeon today. I really like her and love the aftercare that she is giving me. She's very happy with righty, behaving in an exemplary fashion. And she is also very happy with how lefty is managing to develop a fantastic scab. I have been airing my breasts as directed for an hour here and there to help lefty dry out and form the scab. She, lefty that is, feels like she has a hard crab shell over her, protecting the goodness that is happening and healing underneath. 'no picking'! Absolooootely bloody not... That's the surgeons job. She wants to see me in two weeks to be able to start cutting the scab back.
I had my first front to front embrace with my partner this evening, it's just been too sore til now. What with black nipple, rollercoaster recovery journey, and the funeral of a young friend to cope with, it's all felt quite isolating over here, so a lovely hold, hug, embrace was exactly what I needed. My partner notices a big difference in our embrace. I felt it was just so wonderful to be able to get right in there, so close. I suspect that playing my guitar is going to feel so very different hey!?
I've added the two photos as I found finally520's review and photos so helpful for tracking the week on week changes and though I can't quite tell much of a difference, I have decided to keep taking weekly photos over the course of recovery. I want to know when lefty sheds the scab and what the under looks like and how long it takes to heal. Looking at other reviews has been invaluable to me, the ups and downs that people have recovered amazingly from. I am a patient woman, but also prone to worrying, so read on and stay grateful for the changes and miraculous healing body.
My belly still feels and looks bloated. How are you all getting on with yours?
Updated on 13 Aug 2018:
Can't deny it, am feeling a little upset with the latest opening of my vertical incision scar under my horrendous black nipple scar on lefty! Am adding a photo just in case it may help anyone else at some point. All was going swimmingly in the 'patiently healing' department when yesterday it took a turn in the other direction. Mix that in with a bit of pmt, grief from my friend dying and impending work bookings and I'm feeling a little down.
I cannot fault my surgeon at all. Her post surgery care and concern is wonderful. Thank goodness for that! She called me today just to see how I was doing, having not received my morning email with an overnight update and photo... It had landed in her spam box!
Still she called on the off chance and has booked me in to see her assistant tomorrow morning and then to see her on Thursday afternoon. She is talking about putting some silver in with the wound which helps the healing process.
I am blessed with her meticulousness. That and the fact that I had a back up plan for my work bookings which I've now 'code reded'!
Don't mean to make anyone queazy... It's not pretty I know... But it's the reality I'm dealing with just now. I look forward to looking back at all this and going 'blimey, I remember that, it was horrible but I got through it eventually and look at these wonderful [RS bleep] I now have! Best thing I ever did!'
Updated on 17 Aug 2018:
Saw PS yesterday (Thursday) and today having seen her assistant on Tuesday. Assistant did a good all over dressing for the whole areola and opened vertical scar area at the t junction. I was concerned as I was being completely covered in when I had been doing well airing and hardening the scab for when I next saw Anita. I thought it was going to get soggy and festering... Mad what my mind was trying to tell me! I was afraid of letting her down, despite having tried to take great care of her work.
Sure enough when I saw Anita yesterday, it was soggy in part but also ready to cut back the scab. She took away about just over half of the scab, much to my surprise. I had convinced myself it wasn't going to be good enough to be able to cut back at all! My mind is so unkind at times. She then placed a layer of aquacel over the whole area and a fantastic watertight padded dressing... In the shape of a heart! I came home last night with my partner both holding the impression that the nipple hadn't survived. The areola was looking pinkish as it was being exposed but where was no nipple.
I had a night of contemplating how important it is to me, if the nipple hasn't survived.
Saw PS today as well. She managed to pick off the rest of the scab over the areola. Underneath was a mixture of pink and yellow, plus tiny blemishes of red. And whats more... We both saw, at the same time, what looked like the potential of a definite surviving nipple. Bloody hell!!!!!
More silver and a new dressing, a happier PS, and 6 dressing change appointments with her assistants and a follow up with her as soon as she gets back from annual leave in 2 weeks.
I drove there and back with my sister's company. The furthest I've driven... About 40 miles or so. Boobs no longer sore over every bump, but lefty tender from the picking today. I've been using my dogs inflatable ring donut shaped no nibbling collar, just thread the seatbelt through it to keep it away from my chest area.
Feeling loads more relieved and positive knowing it's moving on with the silver aquacel helping to speed up the healing process. Came away from clinic today thinking 'it'll all be alright' again. I'm gonna sleep well tonight! Night ladies x
Updated on 20 Aug 2018:
Don't mean to upset anyone with this but feel it important to keep this real for anyone in the future who may need to see the healing process I'm going through.
I saw nurse 1 today who managed to take all but a slither of the black scab off. She was very pleased with this. Plus she took a load of slough off. I couldn't look! Three good things she mentioned:-
1. There were spots of bleeding and the blood flow was good
2. I could feel some stuff which means there is sensation!
3. Seems definitely to be a nipple amongst it all - just to the left of the yellow bit!
I then went to take a photo, was slightly taken aback (!!!!) but managed not to pass out. I'm not good with this sort of stuff. The yellow bit is where there was originally a blister formed in the first week. PS told me this is where there may well be scarring left on my areola when healed, rather than the skin one would hope for. As you can see the vertical scar has pretty much opened up completely. My understanding at the moment is that it is all sealed in with the Aquacel silver healing guaze for the silver to work and heal from the inside. We don't want a layer of skin to heal over the top and potentially cause a pocket of fluid underneath, that would be bad!
Although right now it's hard to see the way to a properly healed breast, I do trust that in time the vertical scar can be restitched and some sort of shape regained for the areola. Only time will tell quite what I'll be left with. And there are some amazing tattoos around if we even need to go there.
It just seems like an incredibly unfortunate road that my op has taken. I'm so glad not everyone goes through this, jeez! Upset that I am, but reassured by my relationship with my surgeon that we'll get through it together and that she won't let me go until we're both happy. She has been so amazing and is gutted for me, and herself I guess. I feel sorry that I've blotted her book! I have been trying to take such good care of her work and she has such a good history of work.
Next nurse appointment on Wednesday. First session of work tomorrow, singing with a group of 50 elders. Thankfully I've enlisted 2 helpers! Just hope my energies are up to it. I booked this work thinking I'd be pretty much fighting fit by now... Almost 6 weeks post op now! Wish me luck!
Updated on 24 Aug 2018:
So....
I've added the photos I was afraid to add before now. It may help someone in the future hey!?
After the shock uncovering at nurse session 1 on Monday this week (picture 2) I've managed to get my head around what's going on. I am being treated and nursed so well which all helps my anxiety. Nurse 1 left just a slither of black (picture 3) for nurse 2 to deslough two days later, Wednesday.
Nurses and surgeons, I've realised, take delight in desloughing!!!
Back to nurse 1 today, Friday, who was happy with the progress of islands forming and outer edges of the wound starting to contract. She brought in another surgeon to have a look after she'd cleaned and desloughed in part (picture 4) and then the surgeon decided to pick out all the yellow as it was bad fat tissue, not good. The more they can take out the faster the healing progress... he left a hole or two (picture 5)! The nurse then packed the holes with the Aquacel dressing, sealed it up again in the padded dressing and sent me on my way, very happy with themselves.
My usual PS is being kept in the loop with photo updates while she is on annual leave. Bless her, she texts me to make sure I'm ok after each session I have with a nurse to make sure I'm ok. I am ok. The 2nd surgeon I met today said this sort of thing happens only every now and against, like 1 in 500! Not sure that makes me special!!!
All the time they are desloughing I barely feel a thing by the way. Every now and again I do and I'm told that thats good as because it means there's sensitivity and good nerves in there! After the digging out today, I do feel slightly tender and like I just want to relax over the weekend.
So despite my partner and my PS being away for the week I've been cared for highly by the nursing team and managed to do my first 2 work sessions (singing with 30-50 participants) following the op. Healing is in progress, I do have a nipple in tact and I know that in time my areola and incision scar will contract back into some sort of shape. Any revisions or corrections will be months down the line once we know what we're left with but I feel quite hopeful considering the 2 setbacks so far.
Updated on 5 Sep 2018:
Clearly, my recovery is not to be smooth at all.
Day 1 - complication of black areola and nipple
Wk 4 - complication of vertical incision scar opening up as the black scab came away undoing stitches as it went
Wk 8 - an infection in the open wound!
I'm learning so much. Mainly about myself in the face of such complications. The nursing staff have been incredible in looking after me while my surgeon is away. She's back next Thursday and I'm looking forward to seeing her. She's been in touch with me by text after every redressing visit, to see how I am. Bless her. Think I've got them all a bit worried. Why aren't I healing? I guess I am, but slowly. And now an infection!
Now I haven't taken antibiotics, apart from the ones they gave during the op, for 25 years. I took aversion to using them after they gave me a terrible and stubborn candida issue in 1997 which lasted well over a year and made my life truly miserable. All because I took 3 lots of antibiotics within a year. What can I say? I'm a delicate flower! And antibiotics are poison... But no mucking about now Jodi, this is serious [RS bleep] going down in your recovery and the best thing to do is take them to boost your healing. Every tablet feels like poison I'm putting in my body. They have also prescribed some anti thrush treatment. Fingers crossed everyone coz if I get similar issues as before in 1997, that may just test my resolve too much for whether this whole op was worth while!
Feeling a bit worn now. Back to work proper next week!
Thank goodness I went private and all this aftercare comes in with the package. Still trying to post here in the hope that looking back or over my journey will be helpful to someone else in the future. It's a reality check for me this. The positives are:-
I'm not ill, I am a well person
I've stuck to a good healthy diet full of protein greens and lemons
I have a nipple in amongst the wound even then the areola died
I have an amazing team looking after me
I have much love around me
I am a positive thinker
I am very happy with my new bust size - thank goodness for that!
Sending well wishes to everyone else on your recovery journeys
Updated on 25 Sep 2018:
Ok, so 3 weeks on from my last update...
These photos depict the last 3 weeks of redressings. I have been going in every 2 or 3 days. The infection did clear with the antibiotics and I realise now that the stingy pain that I was assuming was just more zingers was in fact the infection. Really hard to tell what's what. Even now, the different pains I get are hard to define. Some are because I've moved in the wrong direction at the wrong angle, some coz I've stretched too far, some coz its a deep wound that just for a moment is telling me it's there. Some zingers from nerves refinding themselves! It's a knack of self discipline not to get worried... And clearly I know nothing.... I am in the very capable hands of a good team who are also learning from my journey.
Do you all still get zingers after 2.5 months? I feel I do every now and again in rightie, though almost gone. Lefty seems to be doing its own thing so it's very hard to tell what's going on. Some days all the scars under rightie feel quite tender. Do you get that?
My surgeon is back, talk about relief! So nice to see her. And she's happy with how things have progressed. I see her once a week and she's just suggested we try to reduce to 2 dressings a week, which is great... Great on my fuel and my energy and time.
I'm still on restricted lifting of heavy things as lefty needs to mesh together still. Apparently it is starting to heal from the inside up. I'm just hoping for no more complications, though of course, infections love warm moist areas to breed in and I'm offering a really good one of those!
Thanks for all your thoughts and support. Although behind in my healing journey, I still look forward to buying my first decent bra beyond the post surgery ones I'm still wearing. I'm currently still a 38d. That's fine, really hoping when I can be more active I'll get down to the c I want! But it's no Biggie... Even with all this going on, I'm so happy to be rid of the big cumbersome embarrassing [RS bleep] that never felt like they were mine!
Surgeon allowed me to stop wearing my bras at night about 2 weeks ago. Really nice to be so much more comfortable, sleeping on either side now with little need for too much thought about it!
All in all, healing is progressing, albeit slowly. Leftie feels a lot less sore and wound like. When I'm working I forget its a wound altogether! So seems like it looks worse that it feels ATM!
Wishing everyone well x
Updated on 25 Sep 2018:
I don't think these uploaded before so trying again. And it won't let me update without writing 200words here! So...
I started my review by saying my experience has been like many others I've read about... Up until the day after the op that is... And since then, geesh, it's been quite an isolated and isolating incident.
Because I was always totally embarrassed about the size of my chest, ever since it grew, I've been quite quiet about the op in my life generally. One of my closest friends didn't even know it had always been such a big issue for me and even my family were surprised that it must be such an issue to me that I'd save up and go through with such a drastic alteration surgery.
Despite all the complications I've been having, I am totally happy with the size I now am. In time I will heal.
And I love the fact that people haven't noticed the change. 3 people have asked if I have lost weight. Just 3. I didn't want people looking at my chest then, and I still don't want them too now. The difference is my head space - so totally different. I'm not embarrassed or full of self loathing. I'm so very happy to feel i am a normal manageable size, as should have been in the first place!!!
Isolating because I do feel slightly let down by my body in recovery. I know it's doing the best it can. But there is still the part that asks, why are these complications happening to me? I'm not feeling sorry for myself but more wondering what made my body react so differently to others?
Updated on 14 Oct 2018:
These photos have been taken over the course of the last 3 weeks. Feel like my lefty is starting to take some proper form resembling an areola and a nipple! It's been 3 months since my op!
My surgeon doesn't care suggest whether I may be ready or not by Christmas to sit in a private hot tub we've hired for our holiday. I don't blame her... Not after all the setbacks I've had!
Updated on 30 Dec 2018:
I am still here! Slowly healing. I've found uploading a problem at times as I think there's a glitch in the website somewhere. Get to writing something, uploading photos and then it all disappears. This is my 3rd attempt to upload these photos! And then I got locked out altogether.
I have no idea why the photos are sideways on! Perhaps I can rotate them later but for now....
The journey has been slow and more of the same. Having gone to clinic 3 times a week for the first 3 months post op, I'm was then down to twice a week, and now once to see my surgeon.
Updated on 30 Dec 2018:
We have been paying for our Christmas holiday retreat all year, very much needing and looking forward to the break.
When I initially had the operation I thought... '5 months after op would be fine for a hot tub' and believed it would be amazing to be in my new birthday suit, free and healed with a new sense of feminity and self-confidence.
Not quite as I'd fantasized!
The whole holiday has been in jeapordy, though we decided to go for it anyway as the dressings may well be up to it - lounging in 40° wood fired round outdoor tub under the stars.... Yes please!
We left home, packed with various dressings from the care team, Hibiscrub antiseptic shower gel and a pin prick of a hole.
Healing is not to be hurried.... But surely any day now....
The problem of course, is infection... From faeces. Extra extra care in showering before and after each tub with the antiseptic gel. And cleanliness around dressing changes plus we have the dogs to navigate and all their germs!
The team have clearly stated that the hole can not be allowed to cover over until the inside has come up from the bottom to meet it. So the Aquacel, over the holiday, was more as a plug to keep the hole open while the inside comes up healing from underneath.
If you look at picture 4, last photo before driving back from holiday, don't be fooled into thinking there is a nipple in the centre of what I have left of an areola - that's actually scar tissue left from the blister before. What is actually left of my nipple is on the right hand side of the areola, directly next to the pin prick hole
Updated on 30 Dec 2018:
As anyone who has followed my story will know, my journey has been hard edged. I've had issue after issue from day 1 of recovery and waking up to a black nipple. I am grateful for all the goodness in my life. I've an amazing surgeon, care team and home life who have all supported me with love and decency all the way.
The holiday was incredible, walking the Dales with my fiancée and the dogs, coming back to soaking in our private hot tub. I decided to try out the 2 different dressings I had from the team.
First dressing, picture 2, was great. I kept it on for 3 days of tubbing (then the tub is dropped and cleaned and scrubbed and refilled) and it was perfectly dry when changed. My surgeon had suggested I then give some air drying time with no dressing on. So I did overnight.
Second dressing, picture 3, leaked and after 2 tubs I decided to check into find the pad was sodden, so went back to the first but also realised I was running out of spot dressings - the small brown plasters from picture 2. My surgeon had told me I could just use a normal spot plaster, so off the a chemist we went.
Third dressing from the pharmacist was fabulous. I did need to explain my particular situation, but wow, what a result! Used these for the rest of the holiday... But... In the meantime....
Water got in.
After the water had got in and after a few days, lefty started feeling tender. I felt like I had a large lump developing and that lefty was swelling. When I realised it wasn't my imagination and it was quite sore, despite airing and re dressing and keeping clean I succumbed to a walk in clinic, far from home, sure to be told it was an infection. But they didn't say that at all. They said it was fine, probably scar tissue moving from having my arms draped over the back of the hot tub, redressed it and sent me home. I said to my fiancée, 'ok so it's not an infection, but why is it so sore then, it feels swollen like it's gonna burst'. The following day, we travelled back 350 miles, and something burst as I was driving down the motorway! I didn't feel a bang, but felt it was wet under my arm and it smelt slightly, not too bad, but not perspiration and anyway, I wasn't sweating.
It was a nervous drive home for the final 40miles. I rang my surgeon immediately. She believed it was a reaction to the water getting in and building up and then the breast needed to reject the serum fluid. So it burst out of the water proof dressings from the pharmacy and made a complete mess, nearly giving us both a heart attack!
As I write this, on a 'taking it easy' day (instructed by my wonderful fiancée) I am about to change the sanitary towel dressing (instructed by my surgeon to catch the oozing over night) to see the size of the damage. I'm pretty sure a third hole was developing above the two in picture 7.
So a slight set back, yet again... But please please please, no infection! I hate antibiotics.
Updated on 30 Dec 2018:
I'm feeling grateful that I arranged an appointment at my usual clinic for tomorrow when I spoke with Carole from there last Thurs. I was in Derby on holiday wondering if I needed to go into the walk in clinic as I wasn't sure, if it was an infection, that it wouldn't kick off big time when i was traveling and before I could get home to my usual team of nurses. Carole took a 5 min synopsis over the phone and advised that it was probably best if I got it checked out... See last post...!
The trauma that has unraveled since then, what with the 'travelling boob outburst', is now under control and my panic has subsided with logic. I don't blame myself for a little trauma, a little drama, a little panic. After all, it's not everyday you go to bed with a medium flow sanitary towel on your tit! It's also not many people who can say 'my boob burst on the M2 motorway... while i was driving'.
I didn't really think much about it before now... I'm neither a chemist or biologist... But the gunk that my boob ejected with the serum fluid, seemed quite acidic/burny. It seemed to me that the fluid burst out the dressing in a forceful way, quite different from the 100% waterproof protection the dressing had afforded me, stopping the 40° hot tub water from getting in! The adhesive was strong, was it burnt through?
It felt like the fluid, after the initial outburst, then slowly leaked out, burning a new hole in my skin. Overnight this oozed into the sanitary towel which with its super absorbent capacity, along with the Aquacel which is great for drawing out bad properties, kept the fluid away from my skin.
Does the body hold such burny fluid in itself?
Or I wonder if the hot tub water would have had an element of the hot tub cleaning fluid in it which the inside of my breast didn't like... And so it shouldn't! I wonder if some of the hot tub water got trapped in a type of blister effect which swelled and finally burst as the body needed to get rid of it?
When I redressed it this morning I made the mistake of putting a spot dressing on. At about 4pm I had burns on my skin under my boob from where a small amount of the fluid had leaked out the dressing and onto my bra and this was now directly against my skin. Enflamed and like a burn. I've now redressed again with another sanitary towel and braless as both post surgery bras are in the wash!!!
Whatever did actually happen, the effect is, I'm set back in my recovery again.
But I'm well and looking forward to getting to my clinic tomorrow for sterile conditions and a professional to take a look.
A friend asked me if all the issues I was having was just unlucky to which I said 'yes'. I'm probably one in a million if not more, and that means, it most certainly won't be happening to any of you out there! Phew!