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VERY SCARED in a Lot of PAIN! Lupus, Capsule Contracture, Could You Be Me? - Thousand Oaks, CA

UPDATED FROM WhiteLilly
14 days post

November 26, Saw Dr. K first thing this morning...

WORTH IT$3,500
November 26,

Saw Dr. K first thing this morning and very good news ........ the antibiotics are working and I don't need to have another drain put in . He explained that to me on the phone that after a breast implant is removed , sometimes the fluid builds up in the pocket where the implant use to be. Of course anything get an infection , especially when the person probably is not in the best state of health to begin with , ya know ! Low immune and High ANA . His care and concern was of the up most over the weekend and this morning ! I told my husband , that when he talked to me on the phone , he not only talked to me as a Doctor but with the tone like a Caring Big Brother :) So let's go immune system and kick some butt !!!!! I know I can do this !
Just so if you have questions about the symptoms , this is what i was feeling. Started with Dizzy, Vomiting, Fever low to High , and swelling of only one breast as the picture shows , but of course this could happen in both . I had bruising too , which also could mean internal bleeding which you may or may not need to have drained . I believe my bruising was from all the scar tissue from my partial mastectomy they had to get threw.

If anyone has any questions or needs just a cyber (((((( HUG )))))) I'm here !!!!!

WhiteLilly's provider

Zol Kryger, MD

Zol Kryger, MD

Board Certified Plastic Surgeon

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Dr. Zol Kryger and Dr. Gil Kryger are AMAZING and EXCELLENT and top Surgeons in their field ! They are both compassionate and caring before and after ! Unbelievably Professional and caring staff. I highly recommend them for Breast Implant Removal and Breast Lift. Scale of 1-10 , I would give them a 15 :)

Replies (11)

My preyers are with you.... Xxxxx
and mine you you ((((( HuG )))))))))

So much hoping that you don't have an infection! Please keep us updated!

so glad to hear they found the source of your pain! what a relief! but now an infection? why does it seem the lifts after explant are always so rough? i am thinking i am correct in letting myself heal from removal first.
I kinda expected a little temper tamper from the left breast since the Right one was getiing all the attention this time....... lol she had to have her lime light to ! "pay attention to me. Pay attention to mt too !!! Wish having a per-mastectomy the Dr.'s had a lot more work and this side will need more recovery.
Hi WhiteLilly, you really are an amazing lady. Your posts are enlightening and very funny in parts considering all that you have/are going through. Your new breasts, even with the infection look FABULOUS!!! Keep healing well and getting stronger day by day, you are a trooper of the best kind. Lots of love and hugs to you xxxxxxxxxxxxxxxxxxxxxx
Fabulous lift - such nice work! Glad antibiotics are working, but super sorry you have had to go through all this.
UPDATED FROM WhiteLilly
13 days post

November 25 Tomorrow will be two weeks exactly...

November 25

Tomorrow will be two weeks exactly from having my implants removed and we decided to go with a lift to help try to restore them to a somewhat natural state. " of course in my mind , I had dreams of perky 20 something year old breasts again " lol But , this was only my little fantasy and really & truly I wouldn't care if I had nips on my back , as long as I was healthy again and felt a day with out pain.
Morning of Surgery : The Doctors office called and said they could take me early. :-) I took a really long shower to relax and make sure I shaved , since who knows how long it would be. LoL. I brought a little throw blanket ( sometimes after surgery you feel really cold and have shivers ) A plastic bag to throw up in , and most important " a pillow " ( mine was made of the Micro sponge ) Pillows really help with exorbing the bounce and pressure on the car ride home !
Once in Dr. K's office , he was right on time. Everyone was so very nice. I was very , very impressed with the Operating Facility ! The nurse took me back to get vitals and she sat me in a Big over stuffed Leather Chair and gave me a heated blanket to stay warm. In the corner of the room was a flat screen TV on the food network Chanel " ummmm , you guys don't let us eat before coming in here " Rumble in my tummy ............ Really though , in a room like that , I was so relaxed and comfortable. I couldn't believe I wasn't nervouse at all. I was sitting there and I know it was only a second I was alone. But it gave me that chance to take it all in. And that's when the calmness washed over me from head to toe that I was finally going to have the poisen removed from my body.
Dr. K came in at this point and it was time to check out his drawing skills :). He took a blue marker and drew a road map on both breasts and chest. I was a little shy in the fact that my breast are so large and he was trying to be as delicate as he could to move them with out causing me pain. He informed me I had side fat that there wasn't much he could do with. " geeeezzz I hate getting old " . So I joked with him at that point and said, I would be happy with anything that made my nipples point up-ward after 3 kids. :) As Dr. K left the room , I said hey Doc ? A+ on the art work ! Now time with the anesthesiologist. Poor guy. But he was good and got it all on the second try. They always ask how your veins are, and mine are not so good, they roll. So, I let them know and it doesn't bother me to be poked. Ive just learned to look away. Once he has the IV going , I tell him how it took 3 nurses and 7 try's to get my last IV started. I didn't even bruise from him at all , now that's talent.
It's time to go in and I kiss my husband good-bye. Surgery is going to be a few hours - so I tell him to go get a Hardy Mans meal, " since I won't be cooking anytime soon " and a full man is a happy man. Also this is a good time to go fill all Medications you will need. Just have the Doctor's office write them early for you , that way who ever is taking care of you after , isn't running around all over the place after you are done when you need them the most.
Here we go.... Walking into surgical room. Lay down , arms out like a cross , there's the Anesthesiologist ( thinking in my head " I can do this - I can do this " ) Next thing I'm hearing , is she is awake , give her Blah Blah for pain. I realize I'm crying. As I come around , I've been in recovery for awhile. The Doctor is by my bed side and reassures me that the right breast was severely infected and that was clearly what has been making me sick. He also showed me my implants to visually take away any fear of what they may have looked like . And i must say, they looked really good considering their age. They dont normally do this because this intales many more steps for them. Instead of just being able to put them into a bag - he had to clean them up and wash them so I could see them. He must of known that this extra effort would make a HUGE difference in my mind when explaining infection. No one wants to think about black bacteria filled sacks being in your body ! He did have to rupture one implant to remove it - but they use a vucuum so there is no leakage. The infection was in the capsule surrounding the implants which was also removed located under the chests muscle. As I'm learning , a surgery No Doctor wants to undertake. It's a pain in the Ass! Nothing but cleaning up someone else's mess. But yet , never once did Dr. K make me feel this way. He has unbelievable compassion and knowledge in this Medical Field.
I have my Pathology report back and I received good news !!! No evidence of cancer. Right breast tissue did have chronic inflammation. The Left breast didn't have a large capsule the Doctor said. I think about those thousands of women that wait for that same news , feeling sick , and lifeless and maybe their news isn't as good. I'm one of the lucky ones for the moment. Even though I sure don't feel lucky , as sick as I've been. I feel guilty to feel this way. How do you even begin to compare ones pain and sickness to another's . Having gone a partial mastectomy 17 years ago on Left side and riding this roller coaster ride once again! I just pray for all of us !
Recovery : Can you say Blurrrrrr! Pain , TV , Sleep !
The drains are a pain in the butt. The nurse taught me if you put a hand towel around your neck and clip each drain to the end you can take a reasonable comfortable shower :-) also , if you find yourself itching where the drains come out and lay on your skin, you can put a small piece of flat gauze and place it between your drain and skin.
Oh ! And when going in to have your drains removed ..... They say it doesn't hurt ? But , mine did ! I almost passed out when the right one was removed. I actually saw stars ! My husband said he saw my fist clench and thought for sure I was going to right hook him one to the jaw ! At this Doctors visit I didn't see Dr. K - but , I don't think that was why it hurt. Everyone is different. I also didn't take any pain med that day so maybe that was it ? Who knows ? All I know , is if given the chance to do it again. Reminder to self.......double up on pain med before hand !
Healing was going great until 2 days ago. Why does everything bad always seem to happen on the weekend or the very first day your husband returns back to work ??? I woke up with vertigo and was throwing up all day with a slight fever. I also noticed immediately my breasts were different sizes. I had swelling in my Left side. The next day I called Dr. K and he seemed very concerned. Darn it ! Instead of going to Emergency - which was his recommendation - I told him I couldn't. I'm at home by myself with the kids. My husband just went back to work, I can't ask him to come home, he will kill me ! Never mind the infection ! So he prescribed a really strong antibiotic and made me promise I will see him Monday !
Today is Sunday and I've had a pretty good fever all day and still throwing up. Swelling is about 2 sizes I would guess with a little burning sensation. I was hoping and still am praying the antibiotics will kick in to gear. Do you know that Dr. K called me today to ask me how I was feeling !!!!!! I know !!! He is Amazing !!! He's my Angel !!!!
I see Dr. K tomorrow and will let you all know what happens or could happen if you do have an infection.
Until then,

All my love to all of you

Replies (0)

UPDATED FROM WhiteLilly
2 days pre

November 10 I received a phone call from Dr. K's...

November 10
I received a phone call from Dr. K's office and they said that my insurance will be covering everything , including a lift. I hung up the phone and laid there for a few minutes in shock ! Then it took another 10 min for me to really believe enough to tell my husband. Tears welled up in his eyes and he said , you have to be kidding me ? All of it ? I said yes, all of it ! You see , right now with my health problems the last few years - we don't have a bucket to [RS bleep] in. Dr. K. ~ you truly are my Angel !

Replies (17)

Thank you so so so much for posting your story on RealSelf. I'm beyond happy for you that you'll be getting your implants out and hope that you find immediate relief. Please do keep us posted and PM me if you need any help with the site at all.

{{{Virtual hugs}}}

Thank You so very much and (((((( HUGS ))))))) Back :-) teary eyed....
Good luck with your surgery and I truly hope that your recovery is easy and gives you all of your former health back. I have my surgery on 24th Nov and have suffered for years with autoimmune symptoms ( I do believe that my implants are the cause) I am having really bad burning pain in my right breast, it goes up into my neck and around into my shoulder blade. I can't wait for my surgery to come so that I can start to feel good again. Hugs coming your way xx
That is the same pain I am feeling. Bad burning inside all on right side, pain in my breast with tingling , pain in my upper back / shoulder blade , Shoulder and it radiates up my neck , also the front of my chest muscles ! I have had pain / tightness for almost 9 months. The Doctors sent me to a Cardiologist and I went thru intense testing , as they thought it could be my heart. Is your ANA blood levels Elevated ? And have any of your your tests come back positive for immune diseases ? You can do this ! Hang in there ! I too believe your life will change Nov 24th ! I am here for you if you have any questions or just need support !
Wow WhiteLilly, reading your post was just like reading about myself! my burning has also crept to the muscles across my chest. I wondered at one point if it was my heart, but like you I have had every test that my GP could arrange - My ME/CFS started about 4 years ago but I only ever had slight discomfort in my breast (always the right one) I had my implants changed in Feb this year because they were pip. A few hours after this surgery my right breast filled with fluid ( I could actually hear it sqishing around) I spoke with my surgeon and he said that my body would absorb the fluid and thankfully after a few days it did just that. But from that first day I had discomfort in that breast, it started like a feeling of pressure all over my breast and collar bone through to my shoulder blade, I honestly thought that I had cancer and went through the worst time emotionally. I lost 15lbs in two weeks because I was so worked up. The surgeon said everything felt fine and I just had to be patient and it would settle. It never has. I have had Ultra sound on my breasts - all was fine, although the oncologist that I saw did say that my body could be reacting against the implant , I didn't want to believe that as I had only just had them exchanged. I had Xrays and Ultra sound scans of my gall bladder/ lungs/pancreas/spleen/liver/ stomach and finally my heart. All came back fine. My bloodwork was fine only showing that my body was fighting an infection but my GP said this is normal so close to surgery. I continued to work as a swimming coach until the start of July but then my body just gave in to the pain and illness so now I am at home trying to get stronger for what hopefully will be my last surgery. xxxx
Dear Nerja1, I am here for you all the way ! You are not alone in this ! You now have a friend that relates to everything you are feeling and going through. When are you scheduled for your next surgery ? Here is what my husband would say, coming from the Paramedic Fireman Rational side ~ it's really really important that you have had your GP run all those tests so as to rule out anything else...... Now coming from someone who knows what you are feeling physically and emotionally , that would be " me " .. I had to look up what PIP meant ? Now I understand . I have also read that our bodies can reject our implants at anytime. That our bodies send out antibodies to attack our implants because they are a foreign objects , which in turn can cause immune problems if left untreated...... Can you imagine years and years and years of your body sending out " Fighters " to fight and there is NO fight - so they turn on you and attack !!!! Oh honey , I am so sorry for your pain. You are me and I am you ! I have lost 15 pounds in 6 weeks, I too thought I for sure had cancer ! And to all those women who are fighting breast cancer or know someone who is ~ My heart and Soul are with you and them and you are in my Prayers ! The chest pain........ We feel like its our heart ! The tightness, the stabbing , the burning , it never stops ! Radio - Active Die Angio Gram and wearing Heart Monitors ........ Doctor's sometimes have said its all in your head, your too stressed out ! Take some Zanaz and antidepressant's ! Others have said, there is scar tissue from implants on chest wall and it is affecting my heart. Then a very wise Cardiologist here in West Hills said , " you are too young to have sooooo many Health problems ! At what what point did you stop listening to your body tell you that something was wrong for things to get so far ? You need to reconnect with yourself, and "listen"................... You said this will be your last surgery ? Will you be having them replaced with new implants ?
Hi WhiteLilly. No no and no again, these implants are coming out and will never ever be replaced, I have endured 12 years of surgeries ( my story is a long one but feel free to read my full profile) I will have them out on 24/11/12 along with both capsules and will have 3 x lymph nodes removed from my axilla on both sides, they have silicone in them from the pip implants that I had for several years, so in effect I have got mattress filler in my lymph glands that needs to come out. I will also have a lift to try and form a small breast from whatever tissue I might have left. The op will probably take the surgeon about 3.5 / 4 hrs and like I said it will hopefully be my last. Take care [RS bleep]
Nerja1 I am thinking of you everyday and sending you positive thought and warm wishes. I hope your recovery is quick and easy and you regain your strength and health with speed xoxoxoox ((((((((( BIGGGG HUUGGGG)))))))))
Hoping everything goes well for you today, love and hugs [RS bleep]
best wishes and good luck! hope you find relief.
Thank you :)
Wow, I am so happy for you that you found such a wonderful doctor and that your insurance is paying for everything! Reading stories like yours makes me grateful that I haven't had more severe problems with my implants. Recently though, I have been thinking that I don't want to push my luck and should get them out as soon as possible. Keep us posted!