Sculptra: Stories

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Lumps then More Lumps, Swelling, Pain and Inflammation - Alabama

  • Not Worth It
  • Alabama, AL

I got Sculptra Nov 2011, I had immediate lumps,...

I got Sculptra Nov 2011, I had immediate lumps, that I was told would go down, then I got a parotid gland infection one month later. No lumps went down, but swelling did. I now have many lumps coming up and they are tender and you can see them in certain light, but most people dont see them. THe biggest problem is that I have since then had RA flare ups ( I was diagnoses in Nov 2011 right before injections) and have disfigured ankles, writs and little finger. I need to see doctor for next step in RA treatment. I have been getting saline injections, been put on anti inflamatories ( taking mobic for RA anyway), antibiotics and antihistamines.. and was told lumps could take at least a year to see improvement. I don't think that the saline is working at all and I do not like to take meds. I think that I probably need to take steroids to reduce immune reaction. I was solicited by my dermatologist for the injections and I was told that RA would not be a problem. I was not told that i could get lumps because of immune response. Doc still does not think it is an immune reaction. she calls them collagen lumps.

This drug is for immune compromised people, not people with an immune response that is overactive. One should do a small test to see what happens and then come back in 6 months.

I was refunded my money.

Great review?

Comments (25)

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Pawleys1 4 Mar 2013
Why don't any doctors on here comment on what we are posting and help guide us. They could be and I don't recognize the names. I just wish someone would help in getting answers to our problems.
Joanie21431 19 Oct 2012
Have you decided to take steroids and if so, what? I am dealing with inflammatory issues and am so afraid of steroids.
Pawleys1 19 Oct 2012
I already take 10mg of prednisone a day due to my RA. Ive been on them for 5 years or so and have not had any bad effects except thinning of my skin.
Pawleys1 12 Oct 2012
I too have RA and I had a mini facelift and a chemical peel. I had no idea that the steroids thinned the skin so I don't think he should have done the peel. Also, about eight months after surgery I started breaking out with what I thought was acne. You could not squeeze the little white things out that were coming out of my face so I gently removed it with tweezers and to my surprise it was attached to what looked like a hair and on the end was a seed looking thing. I have been to six doctors and they all say I'm just picking at my face. They suggested I see. Psychiatrist. I did and after eight months he said he felt like I didn't have a problem with picking and that there is actually something wrong coming out of my face. I'm now at Duke Medical Center trying to get answers.
Pawleys1 12 Oct 2012
My break outs are only in the area of the injections. My face has lost its pigmentation in both cheeks and it is so scared up that it can't be fixed. No doctor would believe me that something was coming out that was not supposed to be in there. They basically were telling me I was crazy. The strange part is that none of them were willing to look at the samples of the seeds I had collected. Even the dermatologist at Duke has just agreed today to look at them and send them to the lab to be examined. I can only keep praying for answers. For the first time in my life I thought about taking my own life. I felt like my own family didn't believe me and that I had become a burden on them. I now feel better with the help of a great therapist and hope I can keep my spirits up!
PrettyInShockingPink 31 Aug 2012
Sculptra has changed my entire life. Everything about me is different since.... A day doesn't go by that I am not aware of how these 'safe' cosmetic injections have impacted my life.
DBk 1 Mar 2013
I too having a trouble ;(( did you managed to get it sorted. My doc says kenelog is the solution ???
Joanie21431 1 Mar 2013
I am still having the Kenalog injections (5 so far). The granulomas are smaller but still there and I continue to the excessive mucus in my saliva. I have also been on antibiotics for over 8 months. Not a good thing. I just keep hoping all this treatment will eventually help. I get very discouraged from time to time but try very very hard to be optimistic. How are you doing?
Tori21 4 Mar 2013
There is an on going debate about the underlying cause being an infection or autoimmune in nature. This treatment has worked, it does not cause side effects and there has not been a recurrence. Hyperbaric oxygen therapy (HBOT) involves breathing pure oxygen while sitting in a sealed steel and concrete chamber. The atmospheric pressure inside is increased by pumping air, which cannot escape, into the chamber. The oxygen is usually delivered via a mask. These chambers are used to treat MS and you may find acess to one locally via a directory for services for MS sufferers. If you have a tendancy to adverse autoimmune conditions, or a familiar history then this is not the treatment for you.
Pawleys1 4 Mar 2013
Ohh I have that excessive saliva. What is causing this?
Pawleys1 4 Mar 2013
Where is this excessive mucus coming from? I too have it and have often thought it is associated with my sculptra problems!
Joanie21431 5 Mar 2013
The assumption is that the excessive mucus is due to inflammation of the salivary glands. I had to have a dental bridge put in about 4 months after the Sculptra injections. Within 24 hours I started to develop the granulomas and have experienced the excessive mucus, most likely the result of the Sculptra.
Joanie21431 5 Mar 2013
You comment that this treatment works. Did you have hyperbaric oxygen therapy and if so, what specifically were your symptoms - inflammation? Granulomas? Excessive mucus?
Siggie 7 May 2013
Joanie, Who is doing your Kenalog injections? What antibiotics are you taking? thank you, Siggie
Siggie 7 May 2013
Who is your Doctor. I need to find a Dr. who can help me dissolve the Sculptra. thank you.
Joanie21431 7 May 2013
My plastic surgeon in Massachusetts has given me the Kenalog injections. I have had 5' spaced 3 weeks apart. the lumps are smaller but still hard and the mucousy saliva is still a major issue. I was on Doxycycline for 8 mos with no noticeable improvement and lots of bad side effects. If you do go on antibiotics, be sure to take probiotics and stay out of the sun.
doesn't look 50 16 May 2013
Dental work and sculptra is a real no no. I am suffering the consequences of this combination right now. Huge lumps in my cheeks and insane swelling of my face. I'm on antibiotics and steroids. It's not a good situation at the moment.
doesn't look 50 16 May 2013
Can you tell me where the info is on how the HBOT treatment has "worked".
Tori21 4 Mar 2013
There is an on going debate about the underlying cause being an infection or autoimmune in nature. This treatment has worked, it does not cause side effects and there has not been a recurrence. Hyperbaric oxygen therapy (HBOT) involves breathing pure oxygen while sitting in a sealed steel and concrete chamber. The atmospheric pressure inside is increased by pumping air, which cannot escape, into the chamber. The oxygen is usually delivered via a mask. These chambers are used to treat MS and you may find acess to one locally via a directory for services for MS sufferers. If you have a tendancy to adverse autoimmune conditions, or a familiar history then this is not the treatment for you.
sculptradamage 17 Aug 2012

It has been over 4 years and I have lumps that are still growing. I have had numerous surgeries and now have systemic disease. I am told that because of a chronic foreign body immune response with inflammation, I have to live with this immune system dysregulation and all that goes with that. Sculptra is disease in a syringe How come this is allowed to continue. Where is the medical ethics? Why were we never told about this well known complication? I am so sick and disfigured I can not function. You got your money back but they can not give you your health back. Such a crime of assault.

diana3196 19 Aug 2012
I feel for you. I've had sculptra and did not have any issues. I'm saying a prayer for ya.
Joanie21431 1 Mar 2013
I am so very very sorry you are dealing with such horrible complications. My heart goes out to you.
Megan P (Community Manager) 13 Aug 2012

I think your advice for people to do a small test spot is good. You are right, better to see what goes on with a little spot.

I'm sorry to hear all that you are going through. Please keep us posted with what goes on with the lumps, and how you are doing overall.

PrettyInShockingPink 31 Aug 2012
Dear Megan,

re: Sculptra - a "Doctor" - some plastic surgeon or dermatologist cannot do a test spot on an area of your body for these injectiable 'implants'injected under your facial skin, Sculptra. It is great idea, but not appliciable.

In all sincerity and please give Tom this message and the people employed by Reaself, my true Admiration for standing up and having the likes of a Sanofi Aventis (Dermik) cringe when they hear the words 'Real Self'. RealSelf is doing the job the FDA was set up to do
and is so corrupted.

If RealSelf was in gear five years ago, the way it is now and so easy to access, I would not have lost my Health (I have developed all these awful autoimmine diseases), survive with chronic facial nerve pain, blurred vision, granulomas, infections. I was what is considered to be by standards (and I take no credit for this just lucky genetic pool) very attractive, I am so horrifically disfigured I don't even want to see family and friends and know they feel pitty for me and do not know how to react / what to even say.

.
Tori21 10 Dec 2012

Hi Pretty Sculptra granulomas are thought to be an autoimmune response try oxygen chamber therapy similar to that used for MS sufferers. It has resolved the lumps for a patient of mine. Do not have Sculptra if you are pregnant or intend to concieve or have any auto immune condition.

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