Really ? Positive experience so far with Botox for Migraine.

  • Doyleh
  • 10 months ago

I think I have read 20 plus posts and the common thread is Botox (1st round) is just awful.  Is this another case of if you have something bad to say you tell the world.  I have had migraines for 14 years and tried everything, even having the nerves is my neck fused.  I had my 1st round  of injections June 7th 2013, I think that had I read these posts I would probably not have had Botox. i have had only minor issues with the Botox, swollowing seems to be slightly different, tension in my neck is getting less with each day.  I have to say the past 2 weeks have been the most peaceful that I have experienced in more years than I can remember. i guess that you have to take all you read with a grain of salt

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It is wonderful that you have had such a good experience, but the posts are there to warn others of the potential bad side effects. I am 35 years old and work in the medical field. I was injected with Botox for migraines 9 weeks ago. I have had many problems since. One of them being, difficulty swallowing. I have had 2 swallowing studies and during both they have found that the botox has paralyzed my distal esophagus. I am no longer able to eat solids, on baby food and Boost, and have lost 10 pounds in less than 4 weeks. I don't want people to take what we are all saying "with a grain of salt" because getting Botox can be a serious thing and can cause some serious problems. I was injected by a neurologist at a hospital and it still happened to me. I have only posted my story to let others know what can potentially happen so they can think about it very carefully before making a decision. Again, I am very happy that you are finding relief with the Botox and I hope it continues for you.
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I had my first tx 3 months ago. I had a pretty bad headache the following day and numbness in my forehead for a few weeks. After a few weeks I noticed my temples on both sides of my forehead have caved in. I think I look like Skelator! Luckily my hair covers it. My headaches improved with less frequency and severity. By the end of the 3 months they returned pretty much that same as they were prior to Botox. One week ago I had round two. I did not let him do my temples again. I have felt progressively worse each day. Almost constant headache, about a 7/10, severe pain in my neck, shoulders and back, loss of range of motion in my neck and my neck 'catches' when I turn my head sometimes sending what feels like an electric shock down my back. It just occurred to me today that these symptoms are most likely from the botox, and after reading this forum I am pretty sure they are. I already have cervical spine issues, fusion with plate and screws at C5-7 and a known herniation at C4-5. The doctor knew this but didn't seem to think it would be an issue. I'm not so sure. If this only lasts a few days and controls my headaches than it will be worth it. However, if this is how I will feel for the next 3 months, I don't think so. We'll see what tomorrow brings. Today has been pretty awful.
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How are you doing now?
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Its good to hear that you are having good experience! We did open a community devoted specifically to Botox for Migraines. It currently has a 45% Worth It Rating based on 12 reviews, so just a little under half felt it was worth it. It seems RealSelfers are pretty split over if it helps their migraines or not.

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