botox side effects - neck pain?

  • alhuff26
  • Cincinnati, OH
  • 3 years ago

when used medically two of the most common side effects of botox are headaches and neck pain. obviously we know a lot of us have experienced the botox headache but what about the neck pain? I had my botox about 36 hours ago and my neck is killing me. I'm trying to tell myself its just because I had injections in my neck so the muscles are sore because I'm terrified that its a side effect that will last the next three to four months. I dont know if i could handle that! does anyone else have experience with neck pain from botox?

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Had my injections two weeks ago. Had three rounds last year with no real relief and decided to try again. My neck and shoulder area is so stiff I can't stand it. Now I have a herniated disk and compressed nerve at C5-C6, but it has never felt like this - so I attribute the pain and stiffness to the Botox based on what I read here. Still getting headaches, but they are different now - not so much occipital but what I call deep "brain pain". Nothing is helping - not TENS, not massage, not rubbing cream, not Ibuprofen, not my Yoga, not tylenol - I may have to bring out the big guns. I am taking Xanax at night to sleep, but I wake up with the headache about 3 a.m. and then this neck think kicks my a$$. It's so stiff. I think I am done. They also put me on Topamax two weeks ago. No help from that either. Karen from Arizona.
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I'm sorry it's not working so well for you. Hope it gets better. Topamax made my hair fall out! Don't take that..it aggravated my headaches if anything and i lost hair. I found the botox to be helpful more than anything ive used. I did have some side effect but it allowed me to function better than i was. But i have constant migraines so it was a last resort after trying everything else. I also have ptsd which for many people are linked to migraines. Sometimes the only thing that works is Xanax but it knocks me out. I am looking in to CBD oils for ptsd and for migraines. I hope the laws pass it soon. Its helping so many people. Might want to look into it if its legal yet in your state.
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I am also sorry to hear that it is not working for you. It did take 3x for me to get relief. However I did have a level 1 fusion on C5-6 before i started using the botox. the surgery helped the pain alot but still had pain so started botox treatment years later after doing occipital nerve blocks and nerve ablations. I wake up in pain every morning even with the botox but I drink a good strong cup of coffee and it helps with my morning headache. I also am using a pain patch in addition as the botox alone dose not help 100% I use Butrans. It is very expensive without insurance but thank God right now my insurance pays for it after my deductible. I did try the CBD oils and it helped tremendously however, I have long hair and couldn't keep my head saturated in the oils. So that wasn't an option for me unless I shave my head =0 but it worked very well on my forehead and neck. I hope you find some answers. blessings,
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OMG Karen!! On 8/14, I had injections for chronic migraines and chronic shoulder/neck pain due to side effects of head/neck cancer 10 years ago. They were by a nurse practitioner (had never met the neurologist). I am in AZ too, in Tucson specifically. I now have the worst neck pain I've ever had in my life and am scared to death that it won't get better. The pain was so bad after 3 days that I had to take painkillers and even landed in the ER when my neuro wouldn't see me. I'm seeing a massage therapist who specializes in neuromuscular massage, but with limited results. The neuro saw me Monday and said he'd only ever see this happen in 2 people. This blog says otherwise! I'm pulling for you hon.
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I hope your pain reduces soon. X
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Has anyone had droopy eyelids/loose eyelid skin after this treatment? My eyelids are sagging since I had this done. I feel the skin so loose and hanging. It's freaking me out. And it didn't even help my migraines. They are exactly the same. I had some neck pain the 1st week but that's ok now. They are trying to talk me into doing another round, but not if it's going to make my eyelids like this & not even help my headaches. I'm worried that my eyelids are not going to go back to the way they were. OMG! Has this happened to anyone else????
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hey kittycatt =) love that name. this is a normal reaction when they use too much botox in that area. it will return to normal once it wears off but may take anywhere from a few weeks to a couple months. Everyone is different but the good news is that it is temporary. You can talk to your doc and let them know, some are easy to talk to where others are arrogant. I had to change the person who was doing mine, thankfully there was another girl in the office that did a much better job. As for the neck pain, this is normal too. I was in so much more pain after my 1st round I didn't want to do it again either but they did talk me into it and for me it has been a great help. I got some relief with the second round toward the end of the 2 month period but more with the 3rd round. I am still using it (wish I didn't have too, but it helps so much) and it has been 2 years. I had other bad side effects that you may want to watch out for. The lady that did this to me also injected the botox too low on the sides of my head that it affected the muscles that I use to chew my food with. so I wan't able to eat meat unless it was cooked really tender. Another time I wasn't able to open my mouth wide enough to yawn without causing pain. All went away as the botox wore off. I didn't get really good relief until my 3rd. And now I get a good 2 1/2 months without migraines and so for me it is worth it. I hope this helps you. blessings
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Hi kittycat! Yes, I have had that one other time and I am having it again. First time was many years ago by a neurologist, as was this time. After the first time, I switched to having them done by a dermatologist and had no problem whatsoever -- in fact, if done well, there's a definite lifting of the eyelids. The first time it happened, the drooping lasted a couple of months, then went away. You could probably go to a good dermatologist and have them administer Botox PROPERLY to counteract it, but it would mean more Botox and it would be cash and not covered by insurance, probably $300. Hang in there!
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Got my first set of injections one week ago. Had a migraine the next day but went away when I took my zomig. But the next day the neck pain began at the base of my neck. Actually thought that I had slept wrong! Now it's travelled down to my lower neck and shoulders. It's horrible to bend over!! Hard to sleep and even to move at all. And to make it worse, I have to leave for a trip on Wednesday (13 hour drive). Not sure what to do about the pain during the trip. Any ideas for me???
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Sorry I did not see your question until today. How did your trip go? The first time I got my injections I was in so much pain and couldn't bend over either. I couldn't imagine having to drive in that condition. bless your heart. For me the pain from the injections got better on my 3rd round. blessings
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Second round much better and the reduction in headaches was worth sticking with the neck pane. X
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Ok I'm going to try this again (last post didn't go thru). Thank you for responding psilipo! I got thru the trip but it was hard. Pain in neck and shoulders pretty much gone. Only have pain when cleaning house. While out of town, doctor ordered me a cervical collar and had me taking aleve (I have side affects from narcotics.). Collar did help some but was so uncomfortable. I will get second round of injections ONLY if she doesn't put it in my neck or shoulders. The pain was just too much for me and had me down too long. But, migraines have really decreased!!! Hoping for greater improvement! Thanks again!
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I am glad you made it. That stinks that you have reactions to narcotics but at least you can tolerate the aleve. The neck collar was a good idea tho I do know that it isn't comfy at all. but at least your head stayed up =) I am glad that you got relief! House cleaning kicks my booty too but hey I know it will go away if I rest. You may want to let your doc know prior to your appt that you don't want the injections in your neck and shoulders. some docs, assistants especially, follow the protocol which includes neck and shoulder. But I think that they are finding out not all can tolerate that. there are 3 in my pain management office that do injections, and I have found out the one that does it the best. The time before my last round I didn't have any pain at all! I am not sure what happened last time but it seems to get better each time. Take care!
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It's really good to hear how others are coping . At times I have wondered which is worse the Botox or the migraines. But I am slowly thinking the migraines are the worst. Did you ever feel down after Botox?
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I have to agree that migraines are worse. If it hadn't been for that darn neck pain I would have been good. I don't recall feeling down but my husband says that I am moody. Don't know if that's related to the Botox or not.
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Evertime I have the Botox I feel down for a few weeks then revert back to my self. Could be it's the additional pain from my neck which eases off after a few weeks
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I am due for botox this week. I have been doing so well on them and was wondering if I really even need them anymore. I do use Butrans, which is a pain patch for other spinal issues so thought maybe it would cover my migraine pain. wrong =( I have had the worst headaches in the last few days. It is important to get the injections promptly every 3 months. I had to reschedule due to another appt but now which I had already done my botox. Only a week out but it will feel like forever.... I do get a little down after the botox. it varies from time to time as well. the last time I was terribly sick, but got really great relief for about 2 1/2 months so it is worth it to me. I just started working again and it feels good to be out of the house. For me botox is better. I do hate to have to use that and the other pain methods that I am using but I thank God for them because I wouldn't be able to get out of bed without it. Hope you are doing well and that you get your questions answered. be blessed =)
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Yes, that is what is happening. Pain makes us cranky and moody and sometimes depressed. Hang in there, you know it will ease up and then you will be better in a few weeks.
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alhuff26...My neck pain lasted 2 months and I am still having trouble with it. OTC meds wont help because the neck muscles are weak. Best thing to do is rest and use ice with biofreeze (amazon) or moist heat if that helps. 15 min on 15 min off. Take it easy and don't overdue. Some don't have any reaction, some have slight neck pain and body aches, some are like me and have severe neck pain. Deffinger... I can't believe doctor gave it to you for tension headaches. Are they chronic? They don't recommend botox for anyone except for chronic and then it only reduces it a little bit. I was desperate but will NEVER do it again. I hope your neck starts feeling better
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I wish I had seen these reviews before I agreed to Botox for tension headaches. But then when desperate you are willing to try the latest. My doctor gave me quite a few shots in the temple, behind the ear, down the neck and into my upper shoulders. My neck is stiff and hurts, still having headaches, but they are different from tension headaches. My body aches like it did when I was diagnosed for fibromyalgia so 25 years ago. I am not going back for the 2nd round of shots. And, I personally am not recommending Botox for tension headaches. I feel like I have had a serious set back in my pain management.
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I had botox injection given to me in the er a few days ago. It has worked for the migraines mostly with the just twinges of headaches here and there. But i have disabeling muscle weeknesss from my shoulders down my arms to lower back and can do nothing but lay in bed. How do I get rid of this. Also no appitie.
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When I had my neck pain I put ice on neck area and had chiropractic adjustments done daily. I also purchased a neck brace and wore it when i was not at work. With time, approximately, 3 months, the pain did go away. I will never do botox in my neck area again. I would rather have the headaches.
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I had the same issue. The only thing that helped to relieve it was an icepack and some biofreeze (eucolyptis gel). Tylenol 3 helped take the edge off. It was like that for almost 6 weeks. I hope that doesn't happen to you. Cannot return to my waitressing job still due to the neck weakness. Doctor says it should have worn off by now.
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Still in pain 6 weeks on . I found a neck support has helped a little . It helps to know I not alone with this problem. The migraine pain is much better at least I got pain free days.
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I have had 4 rounds of Botox. The neck pain has reduced but I cannot hold my head up straight after over a year. My head tilts to the right. I really didn't notice but my hairdresser did. I have stopped Botox. It never helped my headaches. Hope things improve for you.
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