I think of you often and am glad you are doing better. Thank you for being so descriptive with your recovery. God Speed!
RayJ - try tranquil eyes goggles. They have little removable foam pads inside the eye cups that you wet in cool or warm water. They keep the lids down and moist. They have helped me. You can find them at Dry Eye Zone online. Good luck...
I know exactly what you are going through. Don't give up finding someone to fix it. I am not! In 2007 a PS did fat grafting to my eye lids- BIG MISTAKE! The more horrible thing about it was that I was not even aware that he was going...