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If you've had double-jaw surgery complications - this could help!

Dear Jaw Survivors,

I've been getting some clarity on what-the-heck happened to my face.

Lymph nodes were killed on the left - I'll have constant lymphodema - but another of my persistent nagging questions was, "Why does talking and eating feel lousy?" , and "Why do I have more mass on one side of my face?" "Why do the muscle feel so tight on one side?" No answers from my surgeon. Prescribed muscle relaxants that made me hurl. Told I had more facial tissue on one-side.

I've seen folks on here with similar issues.

Because my left-side was "knocked out" for so long, the muscles on my right took over, in particular my right-Masseter that is now of Popeye proportions, every movement has been taken over by that bad boy.

The potential fix (for me): 15 units of botox injected in right Masseter, every three months, over nine months, at which point that muscle should have weakened sufficiently so I can begin facial physical therapy to rebuild the muscles on the left-side.

If one-side of your face feels lousy, if it's getting worse, if the muscles feel tight one side, if you're in discomfort on one side - it's worth getting a consult with a TMJ physical therapist AND a dermatologist experienced at treating the Masseter. My surgeon had no idea how to fix this.

Best of luck! This surgery is friggin' crazy.

2 years and 2 weeks post-op - still numb, still squint, still in braces

Here's the update on my double jaw surgery.

My left cheek, left top-lip, left bottom-lip and left bottom of my face remain numb. The muscles in my left top-lip and lower left-lip continue not to move making my smile (not showing teeth) squint and my nose squint.

I'm still in braces - although those are supposedly coming off shortly. Still depressed and being a recluse. Oh well.

To those of you going through the process, good luck in your recovery xo

Over a year ago, I underwent double jaw surgery,...

Over a year ago, I underwent double jaw surgery, from the moment I awakened something was wrong with the left-side of my face. Fast-forward several months to muscle weakness and numbness - a squint smile, drooped cheek, drooped mouth... Fast-foward a year - a large hard swelling on the left-side of my cheek caused by puss and damage to one of my teeth during surgery, whereby the tooth died. Fast forward to now - a damaged face, which I'm aware of every waking moment. Added to which, I hate wearing my Hawley retainers - I might feel different if my smile/face didn't remind me of a stroke patient. Plus I was left with spaces between my back teeth from where I had been banded by my ortho, which now trap food. This means every time I eat - even something small - I must floss. And yes, I went to a reputable ortho and a reputable surgeon, but this surgery is complex and things go wrong... often.
Had I known my outcome, I would not have had this surgery. But at least, I've decided that I'll never have children, as I could never put a human being through what I've been though.

Provider Review

Dr. Zoghby
Overall rating
Doctor's bedside manner
Answered my questions
After care follow-up
Time spent with me
Phone or email responsiveness
Staff professionalism & courtesy
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Major post-surgery complications. Was never referred to specialists who could help or told to seek them. Massive infection that was not detected (finally was by dentist). My surgeon's typical response to ongoing issues were along the lines of "time heals" and "wait and see." Finally recieved some clarity on issues due to consults with lymph specialists, another oral surgeon, TMJ facial physical therapist, and dermatologist. Dr. Z is a lovely man and you'll enjoy meeting him and if your surgery goes well, you will likely adore him forever. But if you have complications, you will have to seek out experts yourself who can provide answers for you. The surgery was carried at Bon Secours - my treatment there was a farce - hospital bed battery alarm went off, IV drip hung on opposite side from arm resulting in bruising, curtains never opened in 48 hours (kept in darkness), ice only provided when asked and not replaced, and the kicker - given thick soup with pieces of vegetables that completely blocked elasticated-shut mouth leading to panic attack - when complaint made by parent - told food was another department's issue - they couldn't give a crap. I had a follow-up surgery at UVA (my septum was broken and my nose twisted during either surgery and/or the removal of one of my pieces of hardware), I had a PHENOMENAL experience there. UVA and it's nose, ear and throat department gets FIVE STARS. Bon Secours - I wouldn't piss on it if it was on fire.