Sculptra experience - terrible - please be careful

Thank you Dru11. Will let you know how it goes.

Hi Jill - I've been to my original doctor - and another one for a second opinion. The first said it may be that my body is making too much collagen - the second said it might be that the product just developed early and may settle. It's so hard to know - looking at all the info - some doctors say it comes out at 4 weeks and some say it peaks at 6 months. I'm pretty confused.

Sorry forgot to mention that both of them said nothing can be done (without risky side effects). I will just have to wait it out and hope it doesn't develop further.

Squishy..

Hello! Was just wondering if the problems have dissolved much since then. Thank you

it is a granuloma, I have biopsys. Any suggestions about dealing with it? the doctors have tried injection with saline and kenalog and still have lumps.

How do you deal with all this on a emotional level? I have days where I can barely function. No job, no self esteem, and people in my family sick of hearing me complain

Unfortunately I have isolated. I do see a shrink and I have tried really hard to accept what is now, but I have lost so much and not just things but my identity, my confidence. This has made me not only very ill but also very disfigured. For me it was put under my eyes. Muscles under my right eye went necrotic and had to be cut out and the lower lid destroyed. So making eye contact is a challenge. You know how you feel with a zit well this is exponential. People try, but it just makes everyone including myself feel awkward and uncomfortable. It is easiest to not go out or to go to a place where people did not know what I used to look like (strangers). What makes me so darn angry is when the Drs say it is natural and then you learn it is a synthetic polyester. When they say on this site and others that it is absorbed in 2 years and then you have it show in biopsy 3 years later. Then they say well it must have been done wrong or you are so unique. That is so much hogwash because I am really a pretty average human being and searching pubmed identifies how common and predictable this reaction is. My family and physicians are also tired of my problems. People like problems they can fix or help with but once you are maimed and chronically ill people want to move on. They still have full lives and do not want to dwell on your particular misfortune. I wish I could just move on but having seen my life hijacked and blown up at my age, I can not build it again. I must accept I am chronically ill and disfigured. Thank You Dr. for injecting this chronic inflammation into me and ruining my life.

I asked doctors why some people have inflammation for years, when doctors claim sculptra particles dissolve within 6-12 months. I have not heard one answer. Could it be they have no answer

The FDA and Sanofi Aventis both say the duration of particles is >24months. At that time on histology "large remnants" remain, consistent with the "persistent particle nature" of the implanted material. Greater than 24 months but never a less than what? One doctor told me the particles erode slowly like a ship at the bottom of the sea. it is call bio erosion of a polyester. The stuff may never be completely gone and my body does not like it at all. I wish I had never heard of the stuff. Safe, Natural collage my behind.

So sad for you. I am fortunate as I have not had any serious granulomas or necrosis. But at 22 months the inflammation is still going, less now but all the same I know it's still in there.

Just a thought but were you ever checked out for Lyme disease. I was diagnosed in a non traditional way by a Chinese medicine acupuncturist. My regular doc's came out that I was exposed but don't have it. Anyway, Lyme is running rampant in our neck of the woods. I not saying for sure, just possible, it could be keeping your immune system down.

That is so very sad and very much reflects my experience with sculptra

Dru - what kind of treatment are you receiving for your auto immune disorder? How long since you had sculptra and is it getting any better? I can't believe sculptra is being used on people if it causes this reaction. How many other people have it now - but don't associate the two things?

I think that's what happened to me. I have inflamed joints and pain in my hands. I went the Drs for it the other day. I had a sculptra injection a year and a half ago and now beginning to have problems. I wished I never did this

How are you doing now Dru? x

Are you crazy? Why would you take a chance with Sculptra, it has ruined too many people. Please be good to yourself and use a HA filler instead. At least it's something your body will like and recognize rather than a full blown immune reaction with Polyester Sculptra

Sculptra destroyed my life and my health. I am very sick with multi organ systemic sarcoidosis. Sculptra caused this.

Any updates Deda! I tried to message you but RS wouldnt let me

I feel like sculptra is killing me and that I will have a heart attack from it. I have severe cardiac sarcoidosis caused by sculptra.