BRAC2+ Opted Bilateral Mastectomy That Ended in Severe Complications -Indianapolis, IN

I've currently had to have my left side totally removed on December 23 2013 emergency due to implant was exposed through skin ripping from being thin. I had a stem cell fat transplant at the same time and will have 2 more before they will try to do an expander and reconstruction to the left. Sorry for the late update but 3 pretty much back to back emergency surgeries from November to end of December has kept me busy :)

I had my surgery to be preventive...it's been less than that from day one. I just had surgery #9 to try to repair damages from 1st surgery. My expander on left side ruptured within hours of procedure which lead to going back to OR to remove defective expander. From that day I've had daily ribcage pain /left breast pain. I received bone marrow pain I jections to 6 ribs on left side & 3 sternal injections to help with pain. The injections helped for nearly 3mths then the pain reappeared...I was sent to a pain Management MD that is still following me for pain issues. My lect jp drain fell out 2weeks after 1st surgery &was still draining30 to50 mld per day & they decided due to the complications not to reinsert drain. I have had constant issues of left breast swelling where swli g so large breast had to be held with both hands to walk. The extreme swelling of left breast caused thinning of tissue which in return caused necrosis to left areola that I was told was normsl. But being a nurse I new otherwise. Called several times to get help only to be told this was all normal and the pain I was experiencing was in my head. They stated they had never had this happen or experienced a patient of my nature. Needless to say I switched MDs and have had several surgeries to repair damages. My 9th surgery was 2weeks ago where I was taken to OR emergently because they had placed alloderm for added support 2 1/2 wks prior & I now have a bad Staph infection resulting in alloderm being removed Vancomycin irrigation of left side to flush infection out and clean cavity then they placed jp drain. Jp drain was in for 1 1/2 weeks and removed along with the staples around areola. I'm now still on antibiotics due to the sensitivity. My left breast is still swelling as it always has and I go back on Tuesday because implant appears to be pushing out around areola. Never in a million years this would be my life...constant pain & swelling. Below I will add a picture of the 1st necrotic episode & a picture of just today. I would never wish this upon anyone & hope if one person reads this & contacts me & I can help them from going through what I am almost 2yrs later.