Fix a birth defect in adulthood?
1 year ago
I was born with a genetic disorder called Crouzon Syndrome. I had 3 major surgeries as a child to make me look sort of normal. I'm now 37 and thinking about getting additional work to get me closer to normal. I'm sick of being called names on a regular basis. The problem is I don't really have records of the work that was done previously. Is further work even possible and would it do any good?
Doctor Answers 2
Having had Crouzone syndrome and previous surgery, you need a cranio-facial plastic surgeon in a major center. I recommend
Dr. Bahman Guyuron
Chairmen department of Plastic Surgery
case Western reserve university
You should contact a craniofacial surgeon in your area/state. Craniofacial teams are usually associated with mayor university centers. I am sure that there is one in MN. Good luck.
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