Do any doctors have experience correcting cosmetic issues caused by Waardenberg syndrome?

Wondering how likely it is to correct a wide nasal route and correct inner eyelids.

Doctor Answers 6

Do any doctors have experience correcting cosmetic issues caused by Waardenberg syndrome?

Greetings

Thank you for your question. This as it sounds is a big surgery that involves a craniofacial plastic surgeon and a neurosurgeon team. It would depend on what degree of hyperrtelorism that you have to determine whether the camouflage approach would be effective. 


Turkey Plastic Surgeon
4.9 out of 5 stars 80 reviews

Hypertelorism

The options for correcting mild degrees of hypertelorism is either a major hypertelorism repair or nasal augmentation with medial canthoplasties. It would depend on what degree of hyperrtelorism that you have to determine whether the camouflage approach would be effective. Review of pictures would be necessary to answer this question for you.

Changing the central face with surgery is challenging.

Changing the central face that looks very normal and making it cosmetically better in basically impossible.  I think that is the most challenging aspect of Waardenberg syndrome.  Unfortunately to make you look more normal, you need surgery that does not draw more attention to your appearance due to the effects of surgery.  It is one thing to promise an improvement that accomplishes this and an entirely another matter to deliver this result.  The surgeon you are looking for would be trained in craniofacial surgery. Due to how little this area of medicine is paid, many of our best trained craniofacial surgeons do little crainofacial surgery after training or after leaving an academic appointment.  For that reason, you need to carefully research where to get this care and get several opinions. It is most likely you will need care from very active craniofacial service, which are University based.  Whatever surgery you get will be irreversible and has the possibility of making your look worse not better.

Kenneth D. Steinsapir, MD
Los Angeles Oculoplastic Surgeon
4.9 out of 5 stars 23 reviews

Wide set eyes

It depends on what you want corrected. If you have wide set eyes you may need to have a segment of bone removed and the eye sockets moved closer towards your nose. This as it sounds is a big surgery that involves a craniofacial plastic surgeon and a neurosurgeon team. Your best starting point would be to look at the university of Iowa, university of Wisconsin and the mayo clinic which are all reasonably close to you. If they don't perform that procedure John polley in Grand Rapids Michigan does and I'm sure someone at the university of Michigan or the university of Chicago does as well.


Best

David Shifrin, MD
Chicago Plastic Surgeon
4.9 out of 5 stars 150 reviews

Craniofacial surgeon

You are best to see a craniofacial surgeon who may need to perform surgery on the skull to improve the intercanthal width. Best to luck.

Steven Wallach, MD
New York Plastic Surgeon
4.1 out of 5 stars 24 reviews

Waardenberg syndrome

Thanks for your question. There are two separate issues likely with Waardenberg syndrome- the first is a broad "nasal root" or radix area, and the second is dystopia canthorum, or the inside corners of the eye being spread apart.

The nasal issue would be more straightforward to correct with a rhinoplasty, but the issue with the wide set eyes requires attaching the inside corners with a wire passed through the inside of the nose.

I recommend you consult with a facial plastic surgeon to determine the best measures for your face.  There is a clinic in your area with two very highly respected facial plastic surgeons.

Best wishes

Daniel J. Givens, MD
Dubuque Facial Plastic Surgeon
5.0 out of 5 stars 8 reviews

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