jdasi

Partial Myectomy and Ptosis Repair for Blepharospasm with Apraxia of Lid Opening

I just wanted to add . i think it would have made all the difference if my surgeon had done a brow lift instead of Ptosis repair. Due to the repair, my lids keep pulling the brow down because the upper lids aren't wide enough any more. my eyebrows sit almost underneath the brow ridge instead of a little above. Just added this in case you do talk to your surgeon again,

I am carrying on. Decided to take a break from surgeries. Learning to live with what I have. Both my lower lids have started to turn inwards and i have been told they will need surgical correction. every now and then the lashes rub too much and they get very irritated. Vision wise i can get by but all the precision is gone, I see double unless I scrunch up my eyes like the spasm s did. the floppy upper Lt lid is a little better but still loose, so still have to squeeze out air and tears from it periodically.

I never heard back from you. kept wondering if you ever talked to your surgeon about me.I am so far away, will need a phone consult or something first before i can take a chance again.

How are you doing? Hope all is well with you.
Take care, Happy Holidays!!

Jdasi

Thanks Kim! Much Appreciated. God bless you.

Kim, I would like to speak with Dr Holds if he can make my eyes look even again. I have developed a problem in both lower lids now too because of changing angle of eyes. Both lids turn inwards everynow and then especially when I rub(entropion). This locum is coming to an end, can't really afford much but paid some of the debt. I wonder if he will give a free phone consult as a professional curtsey, I am sure the insurance will pay for functional lid repair and if he will charge a reasonable fee for the rest..I can try to come one time. I live in Idaho. Can you talk to him about me please and tell me what he says? I will really appreciate any help.

Thks for caring! Did U ever get your surg? I dec to not let this destroy me, the person.Been to hell and back before, prayed for a chance again.With God's grace, found a 3 mo job in one of the rural areas, with patching at night and drops after every patient,sqeezing out the air from the lids in-between, I am getting more used to working with these eyes. Both eyes have very diff shape,I wear glasses all the time. The pts are elderly, don't care about what I look like and love the care they get,give a lot of blessing.My life is getting rebuilt one blessing at a time. The price is-living away from my family and making up at night for all the extra time I take to do my notes due to eyes.Instead of 8-5 or 6, my working days are 8-10 or 11. 4-5 hrs sleep x 5 days, sleep half day sat and sun , time is going fast. Can't do any procedures or trust my readings of xrays scans etc, live walking distance from the place of work ....