It's good to know there are cases where the effects clear up. I certainly hope they clear up in mine. But the doctor would still be at fault, even if I'd had no side effects at all, because Dysport's use is contra-indicated in the manufacturer's guide if the patient has heart irregularities, asthma, swallowing problems or has had a reaction to a botulinum product. The guide also says Dysport is meant to be used on patients under age 65. These were five strong reasons not to use it on me and the injecting doctor knew 3 of them. He didn't ask about any others, didn't give me any product details and when I asked if I had anything to worry about, since I'm allergic to many meds, he said, as I've noted before, "Absolutely not", etc., etc. I was terrified - I didn't WANT my forehead done. I just didn't know how to stop him in the middle of all the stuff he was doing (he even took a couple of keratoses on my back, along with doing everything else). Everything I know about Dysport I learned after I started having side effects. I'd never heard of the the stuff when he used it. If he'd left the forehead alone, I would have been pretty happy with the other things he did, but with directly related eye, ear, head, neck and heart issues ever since, I am not happy. Unfortunately for me, the problem is entirely mine, not his. All I can do is hope for the best and try to figure out what seems to help or seems to make it worse. I guess I should get off this site for a while and stop complaining. I'm leaning too heavily on it since the side effects flair-up and my side effects, after all, are pretty minor compared to what's happened to some of you. But it's certainly been a big help to be able to gripe about a problem I don't want to discuss with friends or neighbors and that my husband is tired of hearing about! And the suggestions, information and support are always helpful.
Ear pressure strong AGAIN with right ear screaming and a small patch of hive-like itchy bumps has developed on the RIGHT side of base of neck- 6 months after Dysport injection. (First patch cropped up on LEFT side of base of neck 2 months after injection. Hate to see the right side getting more involved. Unsettling.) But most worrisome is the terrible heart pressure today. My A-fib started up again - this morning - after a lull of 3 or 4 months (have to check my notes) like it did 7 days after the injection (I'd had a 5-month lull before that.) Dysport has made the A-Fib and BP harder to control with medication because response varies. The injector knew I had A-Fib and I'll note one more time that I did not ASK for forehead treatment - he just 'did it' along with lip, leg, back and ankle work, assuring me I had nothing to worry about, he used it on his 81 year old mother I
Many, many thanks for your replies and suggestions. I'm so grateful for them. My ears are inexplicably slightly better today, but I no longer feel I can be sure of anything. I have a couple of questions: 1) Has anyone anywhere compiled a list of adversely affected people (with pseudonyms, I'd hope) with histories including cross reference points like age at time of injection, health prior, previous treatments and reactions to them, actions that may have intensified the adverse response or any that seemed to alleviate the effects, etc. A lot of such info is scattered among the different posts but I can't think of any simple format to pull it together in and wonder if anyone has done so. It could be useful in drawing conclusions and making decisions. 2) Is it possible to compile a list of the MDs/others who have done injections to people who've had adverse side effects? This list would be even more immediately useful than the above and could maybe get MD's to use more restraint. No one would be trying to sue them (virtually impossible anyway, since it's an elective procedure, even if you didn't ask for it) and it wouldn't be libel. It would just be letting people know which doctors have done injections that had bad side effects. A simple record of fact. But with such an on-going list in the public eye, MDs would finally be taking RISKS ALONG WITH THE PATIENT each time they do an injection. Only fair. They shouldn't be PUSHING Dysport anyway. (But, since the list could cause them to lose money, I suppose the MDs would then take the listers to court to prove their statements - and good luck with that, vis a vis hostile attorneys. And Ive thought of something else. All in all, I see my hopes of these MDs taking risks along with the patient going down the drain. Any one know whether such a list is legal and safe for the listers?)
The ear pressure has actually gotten worse. The left ear has also had long episodes of pulsing whooshes the past several days and nights and it's maddening. The relentless ear pressure interferes with functioning - even with thinking. It's very depressing, having fallen into this trap. (This is day 196 since that Dysport was injected - and I did'nt even ask for it.) Do people who've had bad reactions to this stuff ever get over them or has it not been in use long enough to know? Or does anybody besides those people give a damn? I'm sure no one is trying to find a 'cure', since apparantly the number adversely affected is so small. True??
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