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living a nightmare

Joined: 19 Aug 2011
Activity: 13 posts

13 comments

Recent comments

  • Posted to AQUAMID DISASTER... on 6 Apr 2012

    dear joanna please can you help? you said you had surgery in the usa..i cannot find a surgeon in london with experience in this field and my symptoms have started to escalate on a daily basis..if i do not have something done soon i am in danger of loosing part of my face as the granuloma has coiled around my facial artery..i am now very scared and desperate...
  • Posted to AQUAMID DISASTER... on 16 Mar 2012

    as a result of "conversations"on this blog ,i am going to try and get to see dr cassuto in milan...so far i have only had a rather abrupt reply from his secretary so i can see getting an appointment may be tricky. he evidently has special lasers to deal with granulomas secondary to aqua mid but its obviously rather experimental...if anyone has seen him for treatment could they email me am******nk@gmail.com..my condition continues to deteriorate ..constant eye infections and now ulcers..very painful the granuloma is changing the shape of my face but if you didn't know me you probably wouldn't think anything was wrong..i can now only work as a doctor part time but spend the rest of my time now wring music ...anyone can look me up on you tube under anna brocklebank and see some of my music...well as one door closes perhaps another opens! good luck to you all

  • Posted to AQUAMID DISASTER... on 5 Mar 2012

    thanks so much for your prompt repl...i contacted cassuto but only got a reply from his secretary with a list of dates for an appointment...i was rather hoping for a telephone consult first as i don't want to travel only to be told I'm not a suitable candidate....i think you're right, i should get my dermatologist to have a word with him first if thats possible....could you send me your telephone number again and the contact number of dr cassuto as I'm beginning to feel bait desperate!!!
    with love anna (living nightmare!) x
  • Posted to AQUAMID DISASTER... on 3 Mar 2012

    /Users/annabrocklebank/Desktop/Photo on 08-01-2012 at 05.25 #5.jpg
  • Posted to AQUAMID DISASTER... on 3 Mar 2012

    don't know if photo of me came up today but i will send one from e few days ago to show how quickly and unexpectedly it happens