sp1354

Recent comments

• Posted to Partial Myectomy and Ptosis Repair for Blepharospasm with Apraxia of Lid Opening on 9 Dec 2010

  jdasi, so sorry to hear of all the persons that are going thru BEBRF
  I pray that heal us of this horrible affliction I started back in sept/oct 2007 squinting had my eyes ck'd by several eye dr's and one specialist for aprox 4 hours and same as others a mild dry eye , vision good for my age 53 saw many dr's at this piont about 2 mos, developed heaviness and cramps, as if i had water inside the head moving, very dizzy,nausea,unbalance and ringing in my ears, i would try to describe it as if having a really BAD head cold and had just gotten off a really wild rollercoaster ride, i did't know how to knock some sense in these trained drs it's been three yrs, after seeing a number of neur's they would refer me to phych. and one even said "we can refer u to a neursurg. to open your eye perm. and use alot of eye drops" the worst was when they would tell me there is nothing they can do. I would walk out very depressed, i just came back from visiting dr in utah myectomy was advised had botox to see if i can have some relief, just 3 days ago, finally someone actually knew my symptoms felt very good about dr. i don't have the money came back broke no insurance. my life has turned upsidedown, constent pressure head, neck, shoulders, feel like i'am going crazy, left all drugs lorazepam, etc. tried about 20-30 dif,ones none help the only one i get relief after 5-7 days is ambien -cr i get to finally sleep and when i get up to use rroom i can open my eyes completely and relieved of any pressure pain! Thank God!!! but in the morning i start getting all the syptoms. back
  i tried taking ambien during the day it seemed to help a little but dr said i was over-dosing and it should only be used in the dark. i spend my last 3 yrs confined in a dark room a do alot of praying which has helped my from taking my life, going crazy, nobody knew what was wrong until this dr seemed to know what i'am going thru! I was very active in our church most of my life, helping the sick and needy, i miss it all so much, i pray that God will deliver me from this affliction all i want to do is serve Him with all my heart. sp please if anybody has had myectomy surgery please reply thanks and God bless!