Hello Everyone!
Wow..didn't think that 4 years ago I would have so many posts still coming in. I wanted to give an update on how I am doing.
I am 4 years post injections and will say that I am about 90% recovered. I have to admit that I think I will never be completely the same but then again, I am not so sure I remember what that was. Although I occasionally experience some of the symptoms, I have found that being gluten free has greatly reduced the pain and neuropathy I had experienced most recently. Instead of bad days, I find that the symptoms are very mild and very short lived. I am still extremely sensitive to medications, when it is absolutely necessary to take something, and stress and great amounts of cardio exercise seem to cause flare ups.
I recently read an article from researchers who claim that the reason none of the medical tests show a positive diagnosis is because this stays in the brain tissue and there is no way to find it without extreme measures. I truly wish there would be someone in the medical field who would definitively find the answers we are all searching for. It has to start with a medical community that puts the care of the patient before the almighty dollar! Please make sure that you report this to the FDA and the manufacturer. At some point our voices will be heard. Some wise words given to me by one of the many amazing people I have met during this journey said "I'd rather feel good than look younger". Amen to that.
Remember that time will be kinder to you than botox was.
Until then I wish you all continued healing.
GRS
Hi Kasia79,
I am the originator of this post and will tell you that after 4 years, I feel recovered about 90%. Any lasting symptoms are extremely mild and very manageable as well as short lived. I have found that keeping my diet gluten free helps with the pain and neuropathy that I have had and am hopeful that with time I will be 100%.
Hang in there and take care. With time you will be recovered!
GRS
Hello Everyone,
I am so sorry to hear how many continue to suffer from this horrible illness, reaction, side effect whatever you want to call it. I promise you that time will heal you and that you are not alone. Your happiness and joy will return as will your health.
I think it is time to get the word out. There was a reporter from Canada who did a report on the reactions of botox. Contact any media outlet you can find who will listen. Dr. Oz's staff had started to respond to my email however when I told them none of my symptoms were physical and you couldn't see them they were no longer interested. As if my symptoms weren't real because they couldn't be seen or documented in a medical test. Maybe if we all speak out, our voices will be loud and clear!!!
Hi Again!
Although the side effects I suffered from seemed to change over the 2 years I was sick, I mostly had strange anxiety attacks that kept me up all night long, depression, brain fog, muscle twitches, dry mouth, blurry vision, sensitive to cold, the list goes on and on...as does the list of professionals I have seen.
Like you, Susan, I would feel better for a few days then it would return although I will tell you that it seemed that only in looking back that I noticed I was getting better. Every few months or so I would have a really bad episode but those seemed to become more mild and less frequent over time. I tried everything from medications (sleep meds, anti anxiety, anti depression, bi-polar, anti-schizophrenic that I refused to take) to herbal remedies and acupuncture, which helped somewhat.
Time was the only remedy that worked, that and staying off caffeine and keeping my diet as clean as possible.
You will feel better, I promise you that. Hang in there and take care. You are NOT alone as I have found with the many friends I have made along this journey back to health.
Hello Everyone!
I originally posted over 2 years, and wow...haven't checked back for a while. I can say that I am finally free of the "bad days" and symptoms that everyone has described. Now, there is so much good information out there, however still no "cure" or anything to ease the symptoms. The "fine" doctor who responded was incorrect, in that I have had several doctors and my pharmacist agree that it was the botox I suffered from. I encourage you all to report your reactions to the FDA and Allergan. It's time that the word gets out there about this horrible suffering, so that patients and physicians are WELL informed.
Recent comments
Posted to Did you have flu symptoms after Botox? on 15 Nov 2012
Posted to Did you have flu symptoms after Botox? on 15 Nov 2012
Posted to Did you have flu symptoms after Botox? on 26 Mar 2011
I am so sorry to hear how many continue to suffer from this horrible illness, reaction, side effect whatever you want to call it. I promise you that time will heal you and that you are not alone. Your happiness and joy will return as will your health.
I think it is time to get the word out. There was a reporter from Canada who did a report on the reactions of botox. Contact any media outlet you can find who will listen. Dr. Oz's staff had started to respond to my email however when I told them none of my symptoms were physical and you couldn't see them they were no longer interested. As if my symptoms weren't real because they couldn't be seen or documented in a medical test. Maybe if we all speak out, our voices will be loud and clear!!!
Health and Happiness to All,
Gail
Posted to Did you have flu symptoms after Botox? on 14 Mar 2011
Although the side effects I suffered from seemed to change over the 2 years I was sick, I mostly had strange anxiety attacks that kept me up all night long, depression, brain fog, muscle twitches, dry mouth, blurry vision, sensitive to cold, the list goes on and on...as does the list of professionals I have seen.
Like you, Susan, I would feel better for a few days then it would return although I will tell you that it seemed that only in looking back that I noticed I was getting better. Every few months or so I would have a really bad episode but those seemed to become more mild and less frequent over time. I tried everything from medications (sleep meds, anti anxiety, anti depression, bi-polar, anti-schizophrenic that I refused to take) to herbal remedies and acupuncture, which helped somewhat.
Time was the only remedy that worked, that and staying off caffeine and keeping my diet as clean as possible.
You will feel better, I promise you that. Hang in there and take care. You are NOT alone as I have found with the many friends I have made along this journey back to health.
Take care,
Gail
Posted to Did you have flu symptoms after Botox? on 13 Mar 2011
I originally posted over 2 years, and wow...haven't checked back for a while. I can say that I am finally free of the "bad days" and symptoms that everyone has described. Now, there is so much good information out there, however still no "cure" or anything to ease the symptoms. The "fine" doctor who responded was incorrect, in that I have had several doctors and my pharmacist agree that it was the botox I suffered from. I encourage you all to report your reactions to the FDA and Allergan. It's time that the word gets out there about this horrible suffering, so that patients and physicians are WELL informed.
Take care and good health to all!
GRS